Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Dear , My wife has an incurable blood cancer called Mutltiple Myeloma. She is taking LDN as an adjunct to conventional care. In my opinion, may have a direct effect on the disease but likely will not. Its effects would be secondary, in encouraging the T-cell side of her immune system to fight the cancer, especially when the cancer is in responding to another treatment and is at low levels. I have no expertise in breast cancer, however, my opinon is that the effect of helping the body fight the cancer is the best effect most will see from LDN. It could be that the effect of occupying the particular receptor LDN goes to could " trip up " cancer cells and cause their death, but I find this unlikely. Thus I conclude it is best to think of LDN as a valuable supplement, which encourages the natural body systems. It would be unwise to use it in hopes it proves to be a " magic bullet " which is highly active directly against the disease. This is my opinion, and worth all you paid for it. A merry heart doeth good like a medicine: but a broken spirit drieth the bones. Proverbs 17:22 Don Schultz (no medical training, and not terribly bright) Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49 Dx'd June/01; IgA Kappa @5,880, B2M 7.8, Radiation to L3, Aredia 6X now Zometa monthly, 100mg Thal daily & 40mgX4days pulsed Dex thru Dec '01 when failed; Mar-Jun/02 2 rounds VAD no effect & 2 rounds DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon maint' Aug/02 to Jan 03; Jan 03 IgA climbing; Feb 03 Hi dose Dex Failed, Velcade Phase3 trial Mar/03 complete response in 2 cycles, Jan 2004 Velcade failed, Starting Revimid Phase 2 open label March 04. Blessed be the Lord, who daily loads us with benefits, even the God of our salvation. Selah (pause, consider this) Psalms 68:19 http://www.medhelp.org/NIHlib/GF-456.html http://www.healthtalk.com/multiplemyeloma/diseasebasics.cfm http://www.labtestsonline.org/ http://www.myeloma.org/ http://www.multiplemyeloma.org/ -----Original Message----- From: Bren Sent: Friday, April 30, 2004 9:25 AM low dose naltrexone Subject: [low dose naltrexone] Anyone using LDN ONLY for Breast Cancer? My mom was just diagnosed with breast cancer, it was caught early and yesterday she had a lumpectomy, no lymph nodes were removed. I started her on 3.5mg of LDN Wednesday of last week. I am on LDN for my MS with remarkable results eleven months straight now. My mom tried one of my 4.5mg of LDN and was able to tolerate it quite well, so the next refill we will be asking for 4.5mg for her. Are there others out there using LDN only to treat their breast cancer? What has been your results? How severe is your breast cancer? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 My best friend has a very aggressive breast cancer. Did the chemo and radiation and her doc, at a prestigious NY hospital ,put her on 4,5mgs LDN after her treatments. So far,6months on ldn and some Mushroom supplements and co-Q10 and her test are fine.I will post more info when I find out more. kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Thanx Don. Of course she just had the lumpectomy yesterday and we are awaiting more tests to be performed next week before any form of treatment is started by the doctor. I wanted her immune system to get a head start with the LDN. She may not have to have any treatment, she may only need radiation, maybe chemo, maybe even a mastectomy after the tissue around the tumor is examined in the lab. I do know that Dr. Bernard Bihari has treated breast cancer patients with LDN alone and has had very good results. I am hoping someone who has gone this route is looking in and will give me their results and opinion on their treatment. People, if this double posts I am sorry. This happens quite often when I post or reply on any group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hi All. I'm new to this group, MS dx in 1988 so I'm not new to this friggin disease. RR until about 4 yrs ago when I graduated to SP. I finished radiation approx 3 wks ago for stage 0-1 breast cancer (that was completely excised in lumpectomies - phew) and am now on Tamoxifen. I'm in the process of finagling a script for LDN from someone/anyone. With this angle (LDN for cancer), I may have success with my oncologist, who also has MS. I've asked my neuro twice and am being ignored. I'm calling a wholistic MD Monday but maybe AFTER I check with the oncologist (since the oncologist is local and the wholistic MD is 90 mi away). Thanks for all of the info and insight. I'm ready for something good.... In a message dated 4/30/2004 2:54:24 PM Central Daylight Time, donschultz@... writes: This sounds to me like a good use of LDN in most cancer. That is to use it to help maintain a healthy condition following conventional treatment. For those with a very slow moving cancer, LDN could be tried independently, to see what it does. Don Schultz -----Original Message-----From: noclue915@... [mailto:noclue915@...]Sent: Friday, April 30, 2004 2:03 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Anyone using LDN ONLY for Breast Cancer?My best friend has a very aggressive breast cancer. Did the chemo and radiation and her doc, at a prestigious NY hospital ,put her on 4,5mgs LDN after her treatments. So far,6months on ldn and some Mushroom supplements and co-Q10 and her test are fine.I will post more info when I find out more. kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 This sounds to me like a good use of LDN in most cancer. That is to use it to help maintain a healthy condition following conventional treatment. For those with a very slow moving cancer, LDN could be tried independently, to see what it does. Don Schultz -----Original Message-----From: noclue915@... [mailto:noclue915@...]Sent: Friday, April 30, 2004 2:03 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Anyone using LDN ONLY for Breast Cancer?My best friend has a very aggressive breast cancer. Did the chemo and radiation and her doc, at a prestigious NY hospital ,put her on 4,5mgs LDN after her treatments. So far,6months on ldn and some Mushroom supplements and co-Q10 and her test are fine.I will post more info when I find out more. kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Mushroom supplements hey ????? You go girl - bit of LSD sounds cool to me - Just Joking - had to say it Friday > This sounds to me like a good use of LDN in most cancer. That is to use it > to help maintain a healthy condition following conventional treatment. For > those with a very slow moving cancer, LDN could be tried independently, to > see what it does. > > Don Schultz > > -----Original Message----- > From: noclue915@a... [mailto:noclue915@a...] > Sent: Friday, April 30, 2004 2:03 PM > low dose naltrexone > Subject: Re: [low dose naltrexone] Anyone using LDN ONLY for Breast Cancer? > > > My best friend has a very aggressive breast cancer. Did the chemo and > radiation and her doc, at a prestigious NY hospital ,put her on 4,5mgs LDN > after her treatments. So far,6months on ldn and some Mushroom supplements > and co-Q10 and her test are fine.I will post more info when I find out more. > kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Sandy, I'm a patient of Dr. Bihari's, but I would find it interesting to hear what he'd have to say in a group setting. Please keep me (us) posted. ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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