Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 I have been very busy and wanted to report...I am doing well and am sitting at a 20 YEAR LOW prednisone dose of 10 mg a day!! My docs all think the Xolair reps oughta pay for my drug and take me on the road as a poster child<vbg>. I am slowly weaning off the IVIG therapy, but it will take several months to do that because there are no guidelines for doing so, but the Xolair seems to be holding through that decrease. I will be parked at this pred dose for many months while my system tries to recalibrate, but I truly don't mind. Two years ago no one thought I would survive to see my 50th birthday (which was in December) much less regain almost normal lung volumes on my PFTs. For me, the drug has been a miracle. I will admit to rolling my eyes a bit in jealousy when I read about some of the peak flow numbers; I remind myself that in asthma what counts is the *change* not the absolute value, but golly, I could get two GOOD readings out of some of your numbers...wonder if I could fool the doc??? I heard the Humana HMOs are charging $350 co-pays per month and that prices are varying widely from region to region. My allergist says that in part it is because some doctors buy the drug and then charge the patient, others have the patient buy the drug and bring it in and bill for the nurse time to mix it (which is considerable for large doses)...the reimbursement for these various methods are all different. Supposedly eventually the insurance companies will decide how to handle/bill it and that all important CODE will be assigned. There will be more and more of these type drugs coming on the market in the future. Anyway...best wishes to all P Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.