Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Jen, We all have had that happen to us, each shot is different and that 1st month stinks. I just had my 12 shot and am fine, but my 1st, 3rd, and another one I can remember which was worst. They all won't be like this, is he sleeping? It isn't easy to watch, but hang in there the first month is almost over. The most important thing is to remember we are here for you to vent and cry and smile. We will always be here for you and Shane. Just be thankful you weren't online when I started treatments and right before. The anger I felt and sadness were overwhelming and sometimes I just sat here and typed away to get it out of my system. Just knowing this group of people were here meant the world to me. Lynne [ ] 3rd Shot Shane's sides from the 3rd shot were rough last night. Lots of chills, body aches, and nausea. I will preface this with I love him dearly but he looks like crap. Not that I expected him to look so handsome all the time during treatment, but I felt like someone kicked me this morning when I saw him. It really sunk in that he's going to be doing this for another 10 months...and it hurts me that there's not really anything I can do to make him feel better. I know he's the one going through all the pain and feeling bad, but it hurts me too to see him feeling so poorly. Sorry, I'm not trying to sound like " poor me " or anything, but I just needed to sort of vent out my sadness. I know that not all of you have had such great support from friends and family and I'm sorry for that. No one should have to go through this alone, and for those of you who are...my heart goes out to ya'll. I hope everyone is feeling good and having a happy day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 : Debbie went thru the tx with me and she didn't have anyone to talk to. She was miserable but she loved me right thru it. You go ahead and talk to us and just let it rip cause we all know how the spouses felt. I wish there was some magic spell that I could cast on you so that it would be easier on you, but there is no such thing. Let us help you because as it goes on it will be harder and we don't mind. Right guys! Take care of him cause there will be a time when he has to take care of you. Debbie had a disc go bad on her and I got a good dose of what she went thru taking care of me. I try not to let my mind wander......It's to small and fragile to be out by itselfEddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Another case of the someone loving their better half thru this. I will never be able to put in words what Debbie did for me when I was at my worst. The physical part was easy to explain but the mental part is the tough one to convey to anyone, For every person with a spark of Genius, there are a hundred with ignition trouble.Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Thanks, and no he's not sleeping. At least not for longer than a couple of hours at a time. This is so hard to watch. He's worried to take too many sleeping pills...like if he takes one a night that he might become addicted. We see the doc again in 2 weeks and will talk about it with him. Jen > Hi Jen, > We all have had that happen to us, each shot is different and that 1st > month stinks. I just had my 12 shot and am fine, but my 1st, 3rd, and > another one I can remember which was worst. They all won't be like this, is > he sleeping? It isn't easy to watch, but hang in there the first month is > almost over. > The most important thing is to remember we are here for you to vent and > cry and smile. We will always be here for you and Shane. > Just be thankful you weren't online when I started treatments and right > before. The anger I felt and sadness were overwhelming and sometimes I just > sat here and typed away to get it out of my system. Just knowing this group > of people were here meant the world to me. Lynne > > > > > [ ] 3rd Shot > > > Shane's sides from the 3rd shot were rough last night. Lots of > chills, body aches, and nausea. I will preface this with I love him > dearly but he looks like crap. Not that I expected him to look so > handsome all the time during treatment, but I felt like someone > kicked me this morning when I saw him. It really sunk in that he's > going to be doing this for another 10 months...and it hurts me that > there's not really anything I can do to make him feel better. I know > he's the one going through all the pain and feeling bad, but it hurts > me too to see him feeling so poorly. Sorry, I'm not trying to sound > like " poor me " or anything, but I just needed to sort of vent out my > sadness. I know that not all of you have had such great support from > friends and family and I'm sorry for that. No one should have to go > through this alone, and for those of you who are...my heart goes out > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Hi I can really relate, since I've been supporting my husband through his tx. Ben is on his 4th round of therapy in 8 years, this time Pegasys/Ribavirin. He's been on tx since last May 23 and will finish the first week of June this year. (Doc wants him " undetectable " for 10 months, and his first clear bloodwork was last Aug) BTW, he seems to think that the Pegasys has been easier on his system than the Peg-Intron. Also, he hasn't been able to tolerate ANY of the anti-depressents, tried zoloft, welbutrin and one other (can't remember) but all make him agitated and paranoid. The only thing that seems to help is a small dose(4mg) of valium when he gets really agitated - it helps to take the edge off. My husband is still working full time, so I've come up with a few ways to help him through his days/weeks, and maybe some will help you. First, it's not easy. It's never easy to watch someone suffer and be in pain. As soon as he gets home from work everyday, I make him go and lay down, even if he doesn't sleep. He's a little high-strung, and can get REALLY crabby - it's one of the sides, so sometimes I found that loving him best is get really firm with him and tell him, 'you're getting crabby, so GO LAY DOWN NOW'. It almost always helps. That way, he's laying down, I can make dinner, and whenever he feels like getting up, then he eats. I must admit, our household schedule has never been this crazy and we eat at odd hours. One of the sides that he suffers is that his feet burn. It really makes him nuts, so I splurged once (we don't have alot of money to splurge with) and I got him a massage - a FOOT massage, one hour, exfoliating, like a mud pack, with aromatic oils, and while his feet were packed in whatever, they gave him a mini-head/neck massage. It was SO worth it to see him relaxed. I can't afford that on a regular basis, and maybe next time I'll just get him a half-hour swedish massage (head, neck, arms). Because he goes through some really strange cravings, I always try and make sure I have those things on hand - one time it was potatoes, then organges, then yogurt, now it's orange juice. And we always make sure there's plenty of cold water in the fridge to keep him flushed out. The other thing is that I drive all the time. No matter where we go - to church, to work, to shopping - I'm always the designated driver. His mental accuity has suffered so much that he doesn't always have the mental sharpness to be able to drive, so I just make sure that I'm getting enough sleep and taking my vitamins so I don't get sick, and I just pick up all the slack. I guess that's just how I've dealt with it. I just make sure that I do as much as I can so that he doesn't have to. When I start to think of how hard this is on me, I have to remember that HE's the one going thru tx, with all those toxins pouring into his system, so I can't complain. I hope maybe this helps - it's not easy, but this is a great group (this might even by my first time posting, I can't remember!) Everyone is here for you. Sorry for such a long post! Blessings, Sue B in NJ > > Message: 1 > Date: Wed, 31 Mar 2004 15:50:34 -0000 > From: " " <jenjenintexas@...> > Subject: 3rd Shot > > Shane's sides from the 3rd shot were rough last night. Lots of > chills, body aches, and nausea. I will preface this with I love him > dearly but he looks like crap. Not that I expected him to look so > handsome all the time during treatment, but I felt like someone > kicked me this morning when I saw him. It really sunk in that he's > going to be doing this for another 10 months...and it hurts me that > there's not really anything I can do to make him feel better. I know > he's the one going through all the pain and feeling bad, but it hurts > me too to see him feeling so poorly. Sorry, I'm not trying to sound > like " poor me " or anything, but I just needed to sort of vent out my > sadness. I know that not all of you have had such great support from > friends and family and I'm sorry for that. No one should have to go > through this alone, and for those of you who are...my heart goes out > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Jen, not sleeping can turn your world upside down. None of us like to take the extra pills that sometimes go with taking treatments. I feel like an alarm clock just waiting for the time to take something else. And I hate it, but I know it is only for a little while and treatments mess up our systems, so sometimes we need to take other pills to make the sides easier. I didn't sleep much in the beginning and had to insist on meds for sleeping, the abion has been a god sent, and my stress level went down a couple of notches. [ ] 3rd Shot > > > Shane's sides from the 3rd shot were rough last night. Lots of > chills, body aches, and nausea. I will preface this with I love him > dearly but he looks like crap. Not that I expected him to look so > handsome all the time during treatment, but I felt like someone > kicked me this morning when I saw him. It really sunk in that he's > going to be doing this for another 10 months...and it hurts me that > there's not really anything I can do to make him feel better. I know > he's the one going through all the pain and feeling bad, but it hurts > me too to see him feeling so poorly. Sorry, I'm not trying to sound > like " poor me " or anything, but I just needed to sort of vent out my > sadness. I know that not all of you have had such great support from > friends and family and I'm sorry for that. No one should have to go > through this alone, and for those of you who are...my heart goes out > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 I also took ambien to help me sleep. There was a little hitch in my sleeping patterns when I went off of it, but nothing major. I still do take a little xanax for stress/anxiety and that helped me wean myself off of the sleeping pills. No withdrawals or anything like that, I just had a hard time falling asleep without them for a little while. I would have to say they were well worth it overall! -dz-Lynne Dunham <lynne@...> wrote: Jen, not sleeping can turn your world upside down. None of us like to takethe extra pills that sometimes go with taking treatments. I feel like analarm clock just waiting for the time to take something else. And I hateit, but I know it is only for a little while and treatments mess up oursystems, so sometimes we need to take other pills to make the sides easier.I didn't sleep much in the beginning and had to insist on meds for sleeping,the abion has been a god sent, and my stress level went down a couple ofnotches. [ ] 3rd Shot>>> Shane's sides from the 3rd shot were rough last night. Lots of> chills, body aches, and nausea. I will preface this with I love him> dearly but he looks like crap. Not that I expected him to look so> handsome all the time during treatment, but I felt like someone> kicked me this morning when I saw him. It really sunk in that he's> going to be doing this for another 10 months...and it hurts me that> there's not really anything I can do to make him feel better. Iknow> he's the one going through all the pain and feeling bad, but ithurts> me too to see him feeling so poorly. Sorry, I'm not trying to sound> like "poor me" or anything, but I just needed to sort of vent out my> sadness. I know that not all of you have had such great supportfrom> friends and family and I'm sorry for that. No one should have to go> through this alone, and for those of you who are...my heart goes out> to ya'll. I hope everyone is feeling good and having a happy day.>> >>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 THANK YOU!!! I've tried not to be over-bearing or bossy and just to let him do his own thing, but I think he's trying to do too much and wearing himself out. Maybe I should just send him to bed. Saturday night he wigged out and was so angry...and I think scared, too. The meds really play mind games. He said he's having " brain shivers " so I'm calling the GP today to see if they can get him in to up his Paxil. Thanks for the support...I appreciate it. Wow, 4 rounds of tx...ya'll are so strong. June's not that far away...keep up the good work!!! > Hi > > I can really relate, since I've been supporting my husband through his tx. Ben is on his 4th round of therapy in 8 years, this time Pegasys/Ribavirin. He's been on tx since last May 23 and will finish the first week of June this year. (Doc wants him " undetectable " for 10 months, and his first clear bloodwork was last Aug) BTW, he seems to think that the Pegasys has been easier on his system than the Peg- Intron. Also, he hasn't been able to tolerate ANY of the anti- depressents, tried zoloft, welbutrin and one other (can't remember) but all make him agitated and paranoid. The only thing that seems to help is a small dose(4mg) of valium when he gets really agitated - it helps to take the edge off. > > My husband is still working full time, so I've come up with a few ways to help him through his days/weeks, and maybe some will help you. First, it's not easy. It's never easy to watch someone suffer and be in pain. As soon as he gets home from work everyday, I make him go and lay down, even if he doesn't sleep. He's a little high- strung, and can get REALLY crabby - it's one of the sides, so sometimes I found that loving him best is get really firm with him and tell him, 'you're getting crabby, so GO LAY DOWN NOW'. It almost always helps. That way, he's laying down, I can make dinner, and whenever he feels like getting up, then he eats. I must admit, our household schedule has never been this crazy and we eat at odd hours. > > One of the sides that he suffers is that his feet burn. It really makes him nuts, so I splurged once (we don't have alot of money to splurge with) and I got him a massage - a FOOT massage, one hour, exfoliating, like a mud pack, with aromatic oils, and while his feet were packed in whatever, they gave him a mini-head/neck massage. It was SO worth it to see him relaxed. I can't afford that on a regular basis, and maybe next time I'll just get him a half-hour swedish massage (head, neck, arms). > > Because he goes through some really strange cravings, I always try and make sure I have those things on hand - one time it was potatoes, then organges, then yogurt, now it's orange juice. And we always make sure there's plenty of cold water in the fridge to keep him flushed out. > > The other thing is that I drive all the time. No matter where we go - to church, to work, to shopping - I'm always the designated driver. His mental accuity has suffered so much that he doesn't always have the mental sharpness to be able to drive, so I just make sure that I'm getting enough sleep and taking my vitamins so I don't get sick, and I just pick up all the slack. > I guess that's just how I've dealt with it. I just make sure that I do as much as I can so that he doesn't have to. When I start to think of how hard this is on me, I have to remember that HE's the one going thru tx, with all those toxins pouring into his system, so I can't complain. > > I hope maybe this helps - it's not easy, but this is a great group (this might even by my first time posting, I can't remember!) Everyone is here for you. > Sorry for such a long post! > > Blessings, > Sue B > in NJ > > > > > > > Message: 1 > > Date: Wed, 31 Mar 2004 15:50:34 -0000 > > From: " " <jenjenintexas@y...> > > Subject: 3rd Shot > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > chills, body aches, and nausea. I will preface this with I love him > > dearly but he looks like crap. Not that I expected him to look so > > handsome all the time during treatment, but I felt like someone > > kicked me this morning when I saw him. It really sunk in that he's > > going to be doing this for another 10 months...and it hurts me that > > there's not really anything I can do to make him feel better. I know > > he's the one going through all the pain and feeling bad, but it hurts > > me too to see him feeling so poorly. Sorry, I'm not trying to sound > > like " poor me " or anything, but I just needed to sort of vent out my > > sadness. I know that not all of you have had such great support from > > friends and family and I'm sorry for that. No one should have to go > > through this alone, and for those of you who are...my heart goes out > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Last night he slept pretty good, but he took a sleeping pill and then another pain pill for his headache. He's just going to have to start taking them.... Jen > > Hi Jen, > > We all have had that happen to us, each shot is different and > that 1st > > month stinks. I just had my 12 shot and am fine, but my 1st, 3rd, > and > > another one I can remember which was worst. They all won't be like > this, is > > he sleeping? It isn't easy to watch, but hang in there the first > month is > > almost over. > > The most important thing is to remember we are here for you to > vent and > > cry and smile. We will always be here for you and Shane. > > Just be thankful you weren't online when I started treatments and > right > > before. The anger I felt and sadness were overwhelming and > sometimes I just > > sat here and typed away to get it out of my system. Just knowing > this group > > of people were here meant the world to me. Lynne > > > > > > > > > > [ ] 3rd Shot > > > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > chills, body aches, and nausea. I will preface this with I love him > > dearly but he looks like crap. Not that I expected him to look so > > handsome all the time during treatment, but I felt like someone > > kicked me this morning when I saw him. It really sunk in that he's > > going to be doing this for another 10 months...and it hurts me that > > there's not really anything I can do to make him feel better. I > know > > he's the one going through all the pain and feeling bad, but it > hurts > > me too to see him feeling so poorly. Sorry, I'm not trying to sound > > like " poor me " or anything, but I just needed to sort of vent out my > > sadness. I know that not all of you have had such great support > from > > friends and family and I'm sorry for that. No one should have to go > > through this alone, and for those of you who are...my heart goes out > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Did he seem better emotionally today Jen after the sleeping pill? Tell him we are thinking of him. [ ] 3rd Shot > > > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > chills, body aches, and nausea. I will preface this with I love him > > dearly but he looks like crap. Not that I expected him to look so > > handsome all the time during treatment, but I felt like someone > > kicked me this morning when I saw him. It really sunk in that he's > > going to be doing this for another 10 months...and it hurts me that > > there's not really anything I can do to make him feel better. I > know > > he's the one going through all the pain and feeling bad, but it > hurts > > me too to see him feeling so poorly. Sorry, I'm not trying to sound > > like " poor me " or anything, but I just needed to sort of vent out my > > sadness. I know that not all of you have had such great support > from > > friends and family and I'm sorry for that. No one should have to go > > through this alone, and for those of you who are...my heart goes out > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 I think so. He had a smile on his face today. Tommy is home from pre-school on Thursdays and I think them hanging out together today was just what was needed. > > > Hi Jen, > > > We all have had that happen to us, each shot is different and > > that 1st > > > month stinks. I just had my 12 shot and am fine, but my 1st, 3rd, > > and > > > another one I can remember which was worst. They all won't be > like > > this, is > > > he sleeping? It isn't easy to watch, but hang in there the first > > month is > > > almost over. > > > The most important thing is to remember we are here for you to > > vent and > > > cry and smile. We will always be here for you and Shane. > > > Just be thankful you weren't online when I started treatments > and > > right > > > before. The anger I felt and sadness were overwhelming and > > sometimes I just > > > sat here and typed away to get it out of my system. Just knowing > > this group > > > of people were here meant the world to me. Lynne > > > > > > > > > > > > > > > [ ] 3rd Shot > > > > > > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > > chills, body aches, and nausea. I will preface this with I love > him > > > dearly but he looks like crap. Not that I expected him to look so > > > handsome all the time during treatment, but I felt like someone > > > kicked me this morning when I saw him. It really sunk in that > he's > > > going to be doing this for another 10 months...and it hurts me > that > > > there's not really anything I can do to make him feel better. I > > know > > > he's the one going through all the pain and feeling bad, but it > > hurts > > > me too to see him feeling so poorly. Sorry, I'm not trying to > sound > > > like " poor me " or anything, but I just needed to sort of vent out > my > > > sadness. I know that not all of you have had such great support > > from > > > friends and family and I'm sorry for that. No one should have to > go > > > through this alone, and for those of you who are...my heart goes > out > > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 It’s a family affair. It hurts you too, don’t feel guilty that you are feeling sorry for yourself or anything like that. This is not easy for you either. In any relationship we lean on each other, now you find that he’s not able to be there for you as much, though I’m sure he tries. You have to pick up the slack. Please vent all you want, that’s why we’re all here. It WILL get better. Some days are better than others, but the first month or so, your body adjusts a certain degree to the meds. Hang in there, he’s lucky to have you around, make sure to take some time for yourself too. –dz- [ ] 3rd Shot Shane's sides from the 3rd shot were rough last night. Lots of chills, body aches, and nausea. I will preface this with I love him dearly but he looks like crap. Not that I expected him to look so handsome all the time during treatment, but I felt like someone kicked me this morning when I saw him. It really sunk in that he's going to be doing this for another 10 months...and it hurts me that there's not really anything I can do to make him feel better. I know he's the one going through all the pain and feeling bad, but it hurts me too to see him feeling so poorly. Sorry, I'm not trying to sound like " poor me " or anything, but I just needed to sort of vent out my sadness. I know that not all of you have had such great support from friends and family and I'm sorry for that. No one should have to go through this alone, and for those of you who are...my heart goes out to ya'll. I hope everyone is feeling good and having a happy day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Jen, If he uses a little assistance to help him rest, it's not a bad thing. I have only taken the ambien twice, when I had reliable overnight care and I knew my children would be alright if I slept.After that kind of rest and sleep, I was ready for the world. If I did not have small children though, I would probably honestly indulge in a few good nights. > > Hi Jen, > > We all have had that happen to us, each shot is different and > that 1st > > month stinks. I just had my 12 shot and am fine, but my 1st, 3rd, > and > > another one I can remember which was worst. They all won't be like > this, is > > he sleeping? It isn't easy to watch, but hang in there the first > month is > > almost over. > > The most important thing is to remember we are here for you to > vent and > > cry and smile. We will always be here for you and Shane. > > Just be thankful you weren't online when I started treatments and > right > > before. The anger I felt and sadness were overwhelming and > sometimes I just > > sat here and typed away to get it out of my system. Just knowing > this group > > of people were here meant the world to me. Lynne > > > > > > > > > > [ ] 3rd Shot > > > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > chills, body aches, and nausea. I will preface this with I love him > > dearly but he looks like crap. Not that I expected him to look so > > handsome all the time during treatment, but I felt like someone > > kicked me this morning when I saw him. It really sunk in that he's > > going to be doing this for another 10 months...and it hurts me that > > there's not really anything I can do to make him feel better. I > know > > he's the one going through all the pain and feeling bad, but it > hurts > > me too to see him feeling so poorly. Sorry, I'm not trying to sound > > like " poor me " or anything, but I just needed to sort of vent out my > > sadness. I know that not all of you have had such great support > from > > friends and family and I'm sorry for that. No one should have to go > > through this alone, and for those of you who are...my heart goes out > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Plus you live alone Tammie and you have to hear every little noise. Maybe you can plan again to have someone stay over so you can catch up on some rest. I take the Ambion everynight, and still wake up a couple of times with it. I am in bed by 10 pm but up at 5:30. I hear my alarm clock all the time or even if my oldest dogs barks in the middle of the night I am up and taking care of her. But I do have Steve here to watch over thing in case I ever did fall into a deep sleep. Gosh I love the sound of those words. Deep Sleep. [ ] 3rd Shot > > > > > > Shane's sides from the 3rd shot were rough last night. Lots of > > chills, body aches, and nausea. I will preface this with I love him > > dearly but he looks like crap. Not that I expected him to look so > > handsome all the time during treatment, but I felt like someone > > kicked me this morning when I saw him. It really sunk in that he's > > going to be doing this for another 10 months...and it hurts me that > > there's not really anything I can do to make him feel better. I > know > > he's the one going through all the pain and feeling bad, but it > hurts > > me too to see him feeling so poorly. Sorry, I'm not trying to sound > > like " poor me " or anything, but I just needed to sort of vent out my > > sadness. I know that not all of you have had such great support > from > > friends and family and I'm sorry for that. No one should have to go > > through this alone, and for those of you who are...my heart goes out > > to ya'll. I hope everyone is feeling good and having a happy day. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Hi Nick, Sounds like you are doing the shots correctly, and 10 minutes isn't much time for it sitting in the syringe. I get the red spots also and yes they last for a few weeks, but eventually go away. I still procrastinate doing the shots and wait awhile, I just hate doing it, but that is me. Sometimes I notice the sights get black and blue too, but when I get to feeling tired the next day, know I have done it right. LOL They always give you more in the bottle they you need and what you are seeing is bubbles from air. It does get better in time, keep your chin up, Lynne [ ] 3rd shot I took my third shot on Sunday. I have side effects, but I think more from the ribavarin than the interferon. The only thing I get is a red mark at the injection site that pops up 3-4 days after the shot, accompanied by mild itchiness. This lasts for about two weeks. I beginning to wonder if I'm doing my shots right. The only thing that makes me wonder about my shots is, I can get a little shaky as I get nervous about doing the injection properly. I let the solution sit for ten minutes before I begin the process of injecting. Would being a little shaky have a big impact on how well the interferon will work? I have sides from my red blood cell count dropping a bit, but not much else. I also had a headache for a few days after my first shot and a few other things but they seemed to have been very minimal on the second and third shots.Twice (first two shots) I noticed a tiny bit of foam in what was left in the vial, a result from my shakiness when I picked the vial up to draw the interferon into the needle. I took the shot(s) prior to noticing it. Should I just consider myself lucky up to this point? Any input from any of you would be appreciated. Hope everyone is having a good day! Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Hello! I'm fairly new to this group and to Xolair. I had my 3rd shot yesterday. Any idea when I can expect to see some improvement? I'm on Pred and off work and tired of feeling rotten. Any idea what the success vs. failure rate is? Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Hi Annette, I know how you feel. I used to feel the same way. I pretty much lost hope also after my 3rd month as I kept hearing from others (this is before I found this group) that it should have been acting by the second month. It is when I came to this group, I saw how slowly it works for some people. Click the Polls on the left menu, and one of the questions asks how long it has taken before you felt it was working for you. In my personal case, it took 5 to 6 months before I felt better. I hope this helps, but I would advice always talking to you doctor about it. As the previous post said, there is no single " Majic " drug for anyone! I would also encourage you to read the previous messages in this board, as a lot of members have posted there history here. Ash Happy breathing everyone! > Hello! > > I'm fairly new to this group and to Xolair. I had my 3rd shot > yesterday. Any idea when I can expect to see some improvement? I'm > on Pred and off work and tired of feeling rotten. Any idea what the > success vs. failure rate is? > > Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 > Hello! > > I'm fairly new to this group and to Xolair. I had my 3rd shot > yesterday. Any idea when I can expect to see some improvement? I'm > on Pred and off work and tired of feeling rotten. Any idea what the > success vs. failure rate is? > > Annette Annette, Remember, Xolair is not a " rescue " medication like your albuterol inhailer. It takes time to work. Some people in here felt relief the first few days, others like myself had to wait 6 months before getting any results. My doctor said it sometimes takes up to a full year for some people. We are all different Give it some time Doug Group founder Quote Link to comment Share on other sites More sharing options...
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