Re: Hello, test, really good news

[Guest guest]

Hi Addy,

My tightness has been going down slightly compared to last year. This

time last year I was taking over 30mg of prednizone daily and in bed

inside an air conditioned room all day. Yesterday I was out all day

with my wife shopping (not too sure if that was relief - just

kidding). What a difference! It sometimes does not feel like it is

working, but I think the yoga & Xolair combination has been helping

me to stregthen my chest muscles to reduce the chest tightness. I

just get panic attacks when I know that my chest is about to feel

tight which makes this worse and I take shorter breaths and keep

puffing on the combivent. The challenge is to calm down the nerves.

Do you feel the same?

As Doug says, hopefully in a year's time, things will start to work

better. But it has been 6 weeks since I took any prednizone now!

Doug, I hope you are doing better, and thanks for arranging the chat

in June.

Ash

> Hi, gang, I'm sending this more as a test - I got an email from

> that something was wrong with my acct. Actually, I'd already

figured

> it out b/c I wasn't getting my emails from this group.

>

> I tried to post a few days ago and don't know if it went through -

> I'm off the allergy shots and get to decrease my meds a lot thanks

to

> Xolair!

>

> Ash, I still get chest tightness sometimes, usually associated with

a

> change in barometric pressure.

>

> Oh, Doug sent me an email that he was home and doing okay thanks to

> the pain meds.

>

> For me, it's a good thing I don't have a job or play a sport with a

> high risk of injury. I absolutely LOVE pain medication - not

really

> a good thing.

>

> Take care everyone,

>

> Addy

[Guest guest]

Ash,

I know what you're talking about. My worse period in 2-3 years was

last year, esp from June on. My chest was tight about 90% of the

time. I was in bed a lot, and gave up doing any shopping except for

food and necessities and then I would only go early in the morning

when fewer people were present and I would be exposed to fewer germs

b/c I knew the prednisone had damaged my immune system. I certainly

didn't go to movies or the mall! I know you were glad to get out

yesterday (I'll bet your wife was ecstatic).

I don't do yoga, but I read this great book a few years ago about

Asthma that recommended some breathing exercises, and I do those when

I'm starting to get tight. They do help relax me, which stops the

panicking, and also force me to breathe more efficiently, increasing

my oxygen intake and getting rid of more CO2.

I'm glad you are seeing improvement, even if it's going slowly. Like

I said before, I still have trouble with drops in barometric pressure

and I don't expect that to change. It will be interesting to go back

and look at all our posts from October - December, and then see how

we are all doing a year later.

Take care,

Addy

--- In , " akohli87450 " <akohli87450@y...>

wrote:

> Hi Addy,

>

> My tightness has been going down slightly compared to last year.

This

> time last year I was taking over 30mg of prednizone daily and in

bed

> inside an air conditioned room all day. Yesterday I was out all day

> with my wife shopping (not too sure if that was relief - just

> kidding). What a difference! It sometimes does not feel like it is

> working, but I think the yoga & Xolair combination has been helping

> me to stregthen my chest muscles to reduce the chest tightness. I

> just get panic attacks when I know that my chest is about to feel

> tight which makes this worse and I take shorter breaths and keep

> puffing on the combivent. The challenge is to calm down the nerves.

> Do you feel the same?

>

> As Doug says, hopefully in a year's time, things will start to work

> better. But it has been 6 weeks since I took any prednizone now!

> Doug, I hope you are doing better, and thanks for arranging the

chat

> in June.

>

> Ash

>