Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Hi everyone. I've just been reading posts the past week or so get acquainted with this group. I've only been on Xolair since May, but already I've had an incredible change not only in my asthma symptoms, but in a whole host of other immune system problems. Two years ago I suddenly developed severe asthma, then acute, chronic pansinusitis, then pancreatitis, then some gastrointestinal thing (constant vomiting), and I was covered in hives -- over my whole body. I have seen countless specialists at several prestigious universities, hospitals and clinics and had every test available. No one knows what I have, it just seems like I am having a constant severe allergic reaction. I've had to take 60-90mg of medrol per day, plus Advair, Flonase, ranitadine, Zyrtec, prevacid, intraconasole and more... I was perfectly healthy before this started. No asthma, no sinus problems, I don't drink, I didn't think I had seasonal allergies... nothing. It has been unbelievably frustrating. I've had every surgery they suggested and tried every drug they suggested, even interferon where the side effects were even worse than the disease. But unless was on high doses of steroids, I ended up back in the hospital over and over again. I was terribly cushnoid (like you can be pleasantly cushnoid) and hated going anywhere. Finally my doctor suggested Xolair as a last ditch attempt to control my symptoms. WOW! The day of my first shot, my symptoms started to improve. That very night my hives started to lessen and within three days they were almost completely gone. I didn't feel nauseous, I could breathe... and best of all I had energy!!!! I feel like I'm alive again. I feel like I have my life back. I can play with my little boy and I enjoy it! I was qualified by insurance company (after they orginally turned me down) for this mediciation because of my asthma, but in reality it's treating all of my symptoms. I could not be happier. I wish it would work this well for everyone. Now why didn't my doctor (or any of the legions of doctors I saw) suggest this sooner? *sigh* Who knows? Anyway, I know this is probably way too long, but it's just so nice to meet some people who understand what a difference this drug can make in your life. Quote Link to comment Share on other sites More sharing options...
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