Re: Had a turn for the worse today

[Guest guest]

Doug,

So sorry you are back on pred and that you suspect Xolair is not

working for you. So frustrating!

For the second time, I'm having an allergy attack within hours of

getting my allergy shots. I am wondering if the Xolair is helping me

and if now my shots are too strong or something. I read a post on

another board by someone who has been on Xolair for 4 months and just

got another skin test - her reactions were significantly lower to

most allergens. I may wait another month or two and then get another

skin test also.

Addy

[Guest guest]

Doug..

Sorry things were so bad today. My wife has never had to neb and

compared to you her condition is mild indeed. But I know how

distressing it is when you can not breathe.

My wife had her second Xolair shot last Wednesday with an increased

dosage. She was a litle dizzy and had brief blurry vision...maybe a

half hour afterwards then these symptoms were gone. She has noticed

that her nasal problems felt somewhat better usually for a day after

the shot but then she has been getting some chest tightness after

that and it lasts for about a week. Before the Xolair she had

almost no chest tightness. She hasn't been able to decrease any of

her meds...Pulmicort, Nasonex, Zyrtec or Singulair...and that was

the primary reason we started on Xolair. As improbable as it may be

she seems to feel a bit worse with the Xolair. We know that two

months isn't much of a trial but if next month leaves her with more

dizziness and blurry vision plus more chest tightness we are going

to tell the doctor that the Xolair experiment is over. It doesn't

appear to be the miracle drug we had hoped for, at least in my

wife's case so far. I do hope it works much better for all of the

people on this board.

Casey

[Guest guest]

> Doug..

> Sorry things were so bad today. My wife has never had to neb and

> compared to you her condition is mild indeed. But I know how

> distressing it is when you can not breathe.

> My wife had her second Xolair shot last Wednesday with an increased

> dosage. She was a litle dizzy and had brief blurry vision...maybe

a

> half hour afterwards then these symptoms were gone. She has

noticed

> that her nasal problems felt somewhat better usually for a day

after

> the shot but then she has been getting some chest tightness after

> that and it lasts for about a week. Before the Xolair she had

> almost no chest tightness. She hasn't been able to decrease any of

> her meds...Pulmicort, Nasonex, Zyrtec or Singulair...and that was

> the primary reason we started on Xolair. As improbable as it may

be

> she seems to feel a bit worse with the Xolair. We know that two

> months isn't much of a trial but if next month leaves her with more

> dizziness and blurry vision plus more chest tightness we are going

> to tell the doctor that the Xolair experiment is over. It doesn't

> appear to be the miracle drug we had hoped for, at least in my

> wife's case so far. I do hope it works much better for all of the

> people on this board.

> Casey

Casey,

With her only having 2 shots, it is wayyyyyyy to early to make any

judgements on if the xolair is working or not. My doctor says it

takes some people up to 6 months to a year to see any results.

It IS working for some people and I haven't given up yet.

Right now, I am worried about ostioprosis (sp) because of all the

pred I am taking. I have upped my calcium to 2000 mg a day and am

taking a good multi-vitamin.

Doug