Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 > Happy new year to all of you. Missed being part of the > conversations the past few days, but was out enjoying the 70 degree > weather. Actually got outside and went JOGGING a few times. Yes, > it's true. Thank you Xolair. > > Had my latest shot this morning and had some very interesting > discussions with my Dr. I know I have been rather harsh on the > medical profession lately, particularly about them not wanting to > give up the gravy train of charging office visits for Xolair shots. > > Anyway, to cut to the chase, he actually SUGGESTED that I might > start giving the shots to myself! (I can hear the collective gasp of > doctors everywhere - no pun intended). He said that the next two > times I come in, I will work directly with the nurse to learn how to > mix the Xolair and administer the injections. > > I am humbled and offer my sincere apologies to him and the rest of > the ethical professionals working in the field of medicine. > > BTW - I was able to negotiate with my insurance company to get the > copay for Xolair down to $35 / month. Giving myself the shots will > certainly make the insurance company very happy. > > I also asked my Dr. about the asthma scores that were referred to in > previous posts. He was unfamiliar with them, but said that many > doctors will develop scoring methods in order to determine if they > are making progress with their patients. He also said that > sometimes groups of doctors will develop scoring systems so that > they can use the information gathered over a wide group of patients > as a basis for research. > > Addy, I read Coping With Prednisone several years ago when I first > started using pred in large doses (60 mg / day). It was helpful > because it does list many of the potential side-effects of the > drug. I re-read it every year because my memory is short, and it > keeps me aware of what is happening to me. I'm now down to 15 mg 4x > weekly, and want to cut it even further, but I am taking it slowly. > > Bill - glad to have you as part of the group. I have used the nasal > irrigation method you describe for years. It works, but my wife > justifiably complains if the shower is not properly cleaned up. > Sorry to be gross, but hey, it is what it is. I also use Astelin > and Zyrtec when things are really bad. Unfortunately, nothing > really works for me. I've tried Rhinocort, Flonase, Nasarel, > NasalCrom, etc., and even had sinus surgery last year, but nothing > has been truly effective. Even Xolair hasn't helped with the > sinuses. > > My doctor told me some time ago that Singulair had been approved for > allergic rhinitis. Anyone have any experience with that? I have > taken singulair, but had a problem that I believe was related to it > several years ago, and even though I have tried twice to take it > since, I get nervous if I start having symptoms like before. > > Doug, sounds like you are over your flu. Glad to hear that. Also > glad you are able to reduce your prednisone, too. > > Again, happy new year. I hope everyone continues to make good > progress this year. > > Greg Greg, Good to hear from you Crow?? Hmmmmmm, I've had quail and dove before LOL! With your news, I am going to ask my doctor next time I have a visit. If you could, email me privately at uca79ii@... and tell me where you live and your doctor's name. Maybe if my doctor knows him, he might change his mind. I drive 24 miles round trip for all my shots. They charge me 14.00 a shot which is covered after a 200.00 deductible but givin my own shots would save me time and money. This week I am going mon, wed and friday for regular shots. Next monday for my by weekly Xolair. Congratulations on being able to exercise so well without symptoms. The only way I can tell that the Xolair is working for me is by how much less pred I am taking. My doc told me today to stay on the 10 mg till my next regular office visit. Congrats also for getting your insurance to pay. That is a MIRACLE in itself. I just got my first weekly paycheck of the new year today and it was 30.00 less. My church takes my medical insurance premiums off the top of my gross salary, holds out the taxes and pays me the rest each week. That is 90.00 a month or $1080.00 more this yearout of my pocket for premiums. If they hadn't given me a slight raise this year, to pay for part of the premium increase, I would have been in really bad shape. Next year, I turn 50. They say my premiums are going to go up 30% just because of my new age group not to mention the regular yearsly increases. About of 1/3rd of my salary goes to medical insurance. Pretty soon, I will not be alble to pay for anything else. I sure am glad my wife works. I have a full year to dread. WHEW! Change companies you ask? LOL! No one would take me with all my pre- existing conditions. I am stuck with this company. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Greg, glad you are seeing such improvement in your quality of life. That's terrific! They put some sort of coating on the hallway floor outside my office today - I don't know why they didn't do it at night or on the weekend like they usually do - anyway, it triggered my asthma. Albuterol inhaler did nothing so I had to come home and neb. That helped a lot, but my lungs still hurt and I am needing to neb every 4 hours now. I emailed the supervisor....Yes, I did my nasal irrigation to try to keep my sinuses from reacting. Doug, that is just depressing about your insurance. Do you serve a church that belongs to a diocese or conference that could seek medical insurance for all church employees? (Like the Episcopal church). There's power in numbers. Take care everyone, Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 > Greg, glad you are seeing such improvement in your quality of life. > That's terrific! > > They put some sort of coating on the hallway floor outside my office > today - I don't know why they didn't do it at night or on the weekend > like they usually do - anyway, it triggered my asthma. Albuterol > inhaler did nothing so I had to come home and neb. That helped a > lot, but my lungs still hurt and I am needing to neb every 4 hours > now. I emailed the supervisor....Yes, I did my nasal irrigation to > try to keep my sinuses from reacting. > > Doug, that is just depressing about your insurance. Do you serve a > church that belongs to a diocese or conference that could seek > medical insurance for all church employees? (Like the Episcopal > church). There's power in numbers. > > Take care everyone, > > Addy Addy, My insurance is through the Annunity Board of the Southern Baptist Convention and I have had it since 1985 when I was in much better health and it was only 100.00 a month. It is the only thing I can get. Well, at least I AM grateful that I HAVE coverage. Some people cant get any at all. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Doug.. Did you know that there is a way to put aside money for medical bills and the money isn't taxable? I was a teacher before I retired and we had a plan where you could designate any sum, let's say for example, $2000 which would be spent for medical premiums, drug and doctor copays, dental braces..... I just estimated what I thought my costs would be for the year and that amount went into a category that was subtracted from my taxable amount for the IRS. Your employer may be able to get into that program...why not ask? You could save hundreds of dollars in income tax potentially. Casey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 > > Bill - glad to have you as part of the group. I have used the nasal > irrigation method you describe for years. It works, but my wife > justifiably complains if the shower is not properly cleaned up. > Sorry to be gross, but hey, it is what it is. I also use Astelin > and Zyrtec when things are really bad. Unfortunately, nothing > really works for me. I've tried Rhinocort, Flonase, Nasarel, > NasalCrom, etc., and even had sinus surgery last year, but nothing > has been truly effective. Even Xolair hasn't helped with the > sinuses. > > My doctor told me some time ago that Singulair had been approved for > allergic rhinitis. Anyone have any experience with that? I have > taken singulair, but had a problem that I believe was related to it > several years ago, and even though I have tried twice to take it > since, I get nervous if I start having symptoms like before. > > Doug, sounds like you are over your flu. Glad to hear that. Also > glad you are able to reduce your prednisone, too. > > Again, happy new year. I hope everyone continues to make good > progress this year. > > Greg Greg.. My wife has done twice daily nasal washes for several years and they help. Have you tried Nasonex? She has tried Flonase and many others but nothing works as well as Nasonex. She also takes daily doses of Pulmicort, Zyrtec, Protonix (for GERT) and Singulair. She took Singulair for a while a couple of years ago and didn't think it was helping, but started taking it again and it seems to be working better now. Her OB/GYN put her on Effexor for non-asthama related reasons and thought it might help her sleep better. After a week, it has made her sleep worse. She will likely scrap that drug. Does anyone else have problems sleeping (no doubt all the meds mixing together do not help)? What would you recommend? Casey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 > Doug.. > Did you know that there is a way to put aside money for medical > bills and the money isn't taxable? I was a teacher before I retired > and we had a plan where you could designate any sum, let's say for > example, $2000 which would be spent for medical premiums, drug and > doctor copays, dental braces..... I just estimated what I thought > my costs would be for the year and that amount went into a category > that was subtracted from my taxable amount for the IRS. > Your employer may be able to get into that program...why not ask? > You could save hundreds of dollars in income tax potentially. > > Casey Thanks Casey As an ordained minister, I am allowed by law to break down my salary package into categories: Medical insurance, Housing allowlancce, Retirement and Tax witholding. The rest they give me in weekly salary. My taxable salary is usually so low that I can always take medical off quite easily. Needless to say, I have a GREAT CPA who helps me. Doug Quote Link to comment Share on other sites More sharing options...
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