I mentioned to the nurse today about getting Xolair at home

[Guest guest]

I told her that some were giving themselves Xolair at home now. She

gave me one of the strangest, looks of shock I have ever seen.

My peak flows are up to 700 now. I usually blow anywhere from 475-

600. Hmmmm, does this mean the Xolair might actually be working after

so many months???? My asthma seems the same. Hmmmm I wonder!

Doug

[Guest guest]

Doug,

It's interesting that the provider of my Xolair, NovaFactor, was so

forthcoming with the suggestion that I could do the shots myself,

but the doctors are not so enthusiastic.

Glad to hear about your progress. Progress is progress, which is

always good news. Sounds like you are over the flu as well.

Something I have been using to measure my breathing capacity is a

PIKO pocket flowmeter. I bought it off the internet for about $25.

It's an electronic flowmeter that measures PEF and FEV1.

I have also started working with a device called 'UltraBreathe'

which is intended to strengthen the breathing muscles. I did some

research on this before I bought it and got a wide variety of

recommendations (or not). I figured it couldn't hurt. So far the

jury is still out as far as I'm concerned.

Happy new year!

Greg

> I told her that some were giving themselves Xolair at home now.

She

> gave me one of the strangest, looks of shock I have ever seen.

>

> My peak flows are up to 700 now. I usually blow anywhere from 475-

> 600. Hmmmm, does this mean the Xolair might actually be working

after

> so many months???? My asthma seems the same. Hmmmm I wonder!

>

> Doug

[Guest guest]

> > I told her that some were giving themselves Xolair at home now.

> She

> > gave me one of the strangest, looks of shock I have ever seen.

> >

> > My peak flows are up to 700 now. I usually blow anywhere from 475-

> > 600. Hmmmm, does this mean the Xolair might actually be working

> after

> > so many months???? My asthma seems the same. Hmmmm I wonder!

> >

> > Doug

[Guest guest]

Doug,

I bought one of the Omron nebulizers about a month or two ago. It

has a rechargeable battery and a kit so I can use it in my car. I

think it cost about $150. I wish I had checked on eBay before buying

it, because I found several there for a good bit less money.

I do know that if you are using Pulmicort you cannot use it in the

ulrasonic nebulizers. The ultrasonic nebs are small and run on 'AA'

batteries. I don't think there is a car adapter kit available.

I still have the DeVilbiss nebulizer I bought in 1989. It's the

size of a large shoebox. I am presently only using my nebulizer

once daily, so the Omron works best for me.

Greg

>

> Hi Greg,

>

> I get my Xolair from Curascript Specialty Pharmacy. They are very

> good and very prompt with the delivery of my Xolair to the doctors

> office. They also call and check how I am doing every month.

>

> A pocket flowmeter sounds great. I will check the web for one.

> What I would really like is one of those new, portable nebulizers

by

> Omron. I could get one but my insurance wont pay for it. They say

will

> only pay for ONE neb machine.

>

> The last one I purchased in 1994 finally wore out and broke on me 2

> years ago. I bought a new one but the insurance wouldnt reimburse

me

> even though my other one was broken! GRRRRRR!!! Yea, at the same

time

> raising my rates too! grrrrrr Had to pay for it myself. I hope

this

> Devilbis machine is durable. I use it 4 times a day, sometimes

more.

>

> Doug

>

[Guest guest]

> Doug,

>

> I bought one of the Omron nebulizers about a month or two ago. It

> has a rechargeable battery and a kit so I can use it in my car. I

> think it cost about $150. I wish I had checked on eBay before

buying

> it, because I found several there for a good bit less money.

>

> I do know that if you are using Pulmicort you cannot use it in the

> ulrasonic nebulizers. The ultrasonic nebs are small and run

on 'AA'

> batteries. I don't think there is a car adapter kit available.

>

> I still have the DeVilbiss nebulizer I bought in 1989. It's the

> size of a large shoebox. I am presently only using my nebulizer

> once daily, so the Omron works best for me.

>

> Greg

>

>

Greg,

Yes, I use Pulmicort twice daily. I do have an OLD Omron portable

nebulizer that I bought in 1994 and I have no problems using

Pulmicort in it. I use it when I go out of town. The smaller ones

just looked more portable and convenient. I will check them out on

ebay thanks

Doug