Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 > I found this on a site. Does anyone know about these? > http://www.careexpress.com/products.asp? > CATEGORY_ID=154 & PARENT_ID=22 & COMBINE=SCA-910 No, I can't say I have heard of them but they look good I have never heard of a flutter valve. My advice is to ask your Ear Nose and Throat Doctor as well as your allergist Thanks for posting Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Please post anything you hear about this flutter valve. You learn something new on this board all the time and I have never heard of this. I am surprised at the number of people that post with GERD problems. I have had the Nissan Laproscopic surgery to help control it. I also have tried the sinus irrigator that several people have posted about and it actually helps a little. Except I found out my nose is broke (deviated septum)and now I have that surgery to look forward to. But I am not doing that until after the first frost. Has anyone had this surgery? The doc I talked to says they don't do the old yards of gauze anymore. He sews it up I guess. I'm scared to death of the surgery because I breathe so poorly I think I would go crazy (it blocks your nasal passages for a week). I am back on xolair. I took it for six months and quit because I noticed no relief. But after reading this board it seemed some people did not get relief until at least 9 months, so I am back for more. I have very severe asthma & allergies and live in a condo I call " the bubble " . Wood floors and a bunch of air cleaners. I cannot travel because I get too sick (the lovely dust mite)if I stay anywhere except " the bubble. " I quit my job 10 years ago because I could no longer work at the same pace in the environment I was in. So now I am self-employed and made my office into a bubble also. I laugh everytime I see the bubble boy episode on Seinfeld because it reminds me of my life. Great board. Keep up the good work. You really do learn great things on here. By the way, I lived in Arkansas for awhile and I wondered if Doug has worn one of those Hog Hats for the Arkansas Razorback sports teams yet Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 <<I lived in Arkansas for awhile and I wondered if Doug has worn one of those Hog Hats for the Arkansas Razorback sports teams yet >> Why yes! I have had one for at least 25 years. I have never worn it to a game but have had it displayed in each office I had. They hated that thing when I lived in NC, especially after Arkansas beat the Tar Heels for the National Championship in basketball several years ago. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Tony, I had the sinus surgery about two years ago to repair a deviated septum from a broken nose and also to remove some polyps. The surgery wasn't bad and the recovery was quick. A friend hand the surgery several years ago, and they actually re-broke his nose and it took him about 8 weeks to recover - complete with the black eyes and all. With mine, the doctor just shaved the bone in the septum to open up my nasal passages. I was back to work on Monday after having the surgery on Thursday, and no visible side-effects. Having said that, I didn't notice a great deal of relief following the surgery. The reason I had the surgery in the first place was due to recurring sinus / ear infections. After the surgery, I still suffer from ear infections at least 2 - 4 times a year. My sinuses got so bad that I completely lost my sense of smell. There was no nasal spray that seemed to do any good. I started doing sinus irrigation several months ago, using a small ear syringe and salt water. It was unpleasant at first, with no results. After a few weeks, however, my sinuses cleared up, and my sense of smell returned. I no longer use any nasal sprays, and I do the sinus irrigation treatment about three times a week. I thought I had a cold last week, but it turns out it was just allergies gone amok. Ragweed pollen has been high, but then we got a lot of rain and the air cleared up. Now we are getting hammered by Frances so next week the mold count will be high. Xolair has been great for asthma but clearly does nothing for the allergies. One thing I have noticed is that when my sinuses are clear, my overall breathing is much, much better. Good luck. Greg --- In , " tonymason2001 " <robs@c...> wrote: > I also have tried the sinus irrigator that several people have posted > about and it actually helps a little. Except I found out my nose is > broke (deviated septum)and now I have that surgery to look forward > to. But I am not doing that until after the first frost. Has anyone > had this surgery? > The doc I talked to says they don't do the old yards of gauze > anymore. He > sews it up I guess. I'm scared to death of the surgery because I > breathe so poorly I think I would go crazy (it blocks your nasal > passages for a week). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Tony, I have not heard about a flutter valve before. I totally get the concept of living in a bubble. I was just about there this time last year. I hope and pray that Xolair will work for you. It seems that there are 3 groups of Xolair patients: some who get immediate benefit; some who take 2-4 months; some who take their own sweet time. Take care, Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Greg: Thanks for sharing the information on the surgery. I am basically getting it for the same reasons you are, I simply have blockage and lots of infections. I guess we will see what kind of luck I have. The nasal irrigator was pretty gross but I have to admit it helps some. I have tried all the nasal steroids (flonase, etc) and chromolyn sodium and whatever else there is and get no relief. I am glad you have some asthma relief with the xolair but it is too bad you are getting no help with the allergy part yet. It is supposed to really help with the allergy part, at least that's they hoped it would do. I hope Ivan misses you. Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Thanks Addy- I guess I already know I'm in the " take their own sweet time " category since I have taken 8 shots now but I will give it another six months at least. When I have some time I will try to find out about the flutter valve. I was wondering if there are any others who can no longer tolerate prednisone. I am 46 years old and about 4 years ago I got to the point where my body just absolutely will not tolerate it. I used to take it quite often and would get the usually weight gain, abnormal hunger, moodiness (at least that is what I am told, I don't know how that is possible But now if I take 20 mgs once it is like I took 200 mgs. I tell the doctor I get side effects walking past the bottle. Of course with GERD it just rips your stomach up also. Anyway, I think at one point a doctor put me on 50 mgs a day for about four months and I think that is what did it to me. I will do anything possible not to take prednisone. Thanks for encouragement. Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 I am far less tolerant of pred than I used to be. Last year was a nightmare. That book " Coping with Prednisone " has some good suggestions. Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 --- In , " sunovapunta2001 " <ima4evr21gurl@h...> wrote: > I found this on a site. Does anyone know about these? > http://www.careexpress.com/products.asp? > CATEGORY_ID=154 & PARENT_ID=22 & COMBINE=SCA-910 There are several clinical trials that show flutter PEP devices increase FEV in COPD. They are used alot with CF. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2004 Report Share Posted September 26, 2004 -I was given a flutter valve in June. After using it the doctors could hear air moving in my lower lungs. That is the first time in a couple years that they could hear anything moving. At the same time I started coughing up all this mucus. It has really helped me in more ways than one. I hardly have any mucus any more, it is great. -- In , " sunovapunta2001 " <ima4evr21gurl@h...> wrote: > I found this on a site. Does anyone know about these? > http://www.careexpress.com/products.asp? > CATEGORY_ID=154 & PARENT_ID=22 & COMBINE=SCA-910 Quote Link to comment Share on other sites More sharing options...
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