Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Hi , from another . My daughter Eleanor has brachy/plagio and has had her DOC Band since 6/17. How is your son doing with his band? Montclair, NJ Mommy to Eleanor, 9.75 months, DOCBand 6/17/04 New here.. plagiocephaly Hello to all... My name is and I have a son Connor who has Brachycephaly. He was Doc banded on 7-14-04. I just thought it would be nice to join and chat with parents who where going through the same thing. & Connor-licious Brachy / Doc banded 7-14-04 For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 , Welcome to the group. We love to chat In fact we actually have chats on Mondays and Fridays at 10 PM EST (and Monday and Wed at 1 PM EST - I think). We are you from? I'm sure we have someone going to the same CT clinic. mom to na DOC Gradfuzzer3544 <hmstlouis@...> wrote: Hello to all...My name is and I have a son Connor who has Brachycephaly. He was Doc banded on 7-14-04. I just thought it would be nice to join and chat with parents who where going through the same thing. & Connor-liciousBrachy / Doc banded 7-14-04For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 .. Nice to meet you, and thanks for welcoming me to the group. I do belong to another group as well. We just started our chat night this past Monday and worked out well. I noticed there are a lot of people here, so it must be hard to keep up with everybody. I will check out your chat night tonight if I get a chance and am not too tired, I had and early bird wake up tooooo early this morning. I live in GA right now and am going to the Atlanta clinic. I'm from NY state though, and have lived in NJ and CT for awhile... & Connor-licious Brachy / 6 mos. / Doc banded 7-14-04 > Hello to all... > > My name is and I have a son Connor who has Brachycephaly. He > was Doc banded on 7-14-04. I just thought it would be nice to join > and chat with parents who where going through the same thing. > > & Connor-licious > Brachy / Doc banded 7-14-04 > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 i just getting ready to start xolair. from reading all the posts i am starting to feel better. i have had severe asthma for a while and getting tired of working so hard to breathe. which makes this worse is that i am a respiratory therapist and tend to treat myself at home, mainly because im tired of spending time in the hospital. i have read just about every article on this drug and the side effects. and to be honest i am really scared but also tired of being on all this medication. how long does it take to feel better? after the first injection? i will be the first one in my pulmonologist's office and not to many people in this area know about it. would someone please give me a little insight? also is it usually the standard dose of 300mg every 2 weeks pretty standard? the good thing is that i was able to get the xolair covered at 100% through xolair itself. pretty expensive drug. thanks again tina Quote Link to comment Share on other sites More sharing options...
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