misc

[Guest guest]

Hi Tery,

I am behind but was very happy to read you are having less pain, that is

great. Good luck with your eye surgery, my mom has to have that done. I

will be thinking of you on Tuesday.

Me Mom

----------

> From: tpeppergirl@...

>

> Subject: [ ] Misc

> Date: Thursday, March 22, 2001 7:31 PM

>

> I stayed home from work today because I have a cold type thingy going on

and

> it is in my eyes. Went to the eye doc yesterday and he gave me some

drops,

> they work good, my eyes are clearing already. My RD called me in a rx

for

> ab. My first cataract surgery is scheduled for this coming Tuesday Mar

27 so

> I've gotta get rid of this mess. I'm getting nervous about it. I know

it is

> a simple procedure, just kinda scary.

>

> The good news is today I was laying on the couch and I realized that

> yesterday I only took one pain pill all day and that was at bed time. It

is

> now 7:30 and I haven't had one all day today. Maybe I do have the drug

and

> it is going to help me at last. There is some hope left after all.

>

> Also, welcome to all of the newcomers, this is a great support group,

you'll

> love it here. Tery - FL

>

>

>

[Guest guest]

Tery,

That is the best news Tery. I hope it's true and it is finally starting to kick

in.

Cataract surgery may be a simple procedure, but it is a surgical procedure on

your eyes. I would be nervous too. We will all be here to cheer you on. I

hope your eyes feel better today.

Hugs,

a

----- Original Message -----

From: tpeppergirl@...

Sent: Thursday, March 22, 2001 7:31 PM

Subject: [ ] Misc

I stayed home from work today because I have a cold type thingy going on and

it is in my eyes. Went to the eye doc yesterday and he gave me some drops,

they work good, my eyes are clearing already. My RD called me in a rx for

ab. My first cataract surgery is scheduled for this coming Tuesday Mar 27 so

I've gotta get rid of this mess. I'm getting nervous about it. I know it is

a simple procedure, just kinda scary.

The good news is today I was laying on the couch and I realized that

yesterday I only took one pain pill all day and that was at bed time. It is

now 7:30 and I haven't had one all day today. Maybe I do have the drug and

it is going to help me at last. There is some hope left after all.

Also, welcome to all of the newcomers, this is a great support group, you'll

love it here. Tery - FL

[Guest guest]

HI All, I am so tired of running fevers..and taking antibiotics and just

being stuck here not doing much... I went back to dr yesterday bcs of fevers

and I think there is some infection oin my abdomen....it's a lil red and

oozy...so he is starting me on Cipro? antibiotics....I'm hot, then I'm

freezing to the bone, and in between I scream cos it makes my muscles and

joints hurt like a flare ......I just had my son help me change my bed

linens.I stay awake half the night cos I am hot or cold or sopping wet from

sweat....and then my head still hasnt totally cleared from cold/allergies/

sinus....ears still plugged....well,maybe I will go out and sit on porch

today for some fresh air...supposed to be 90...gotta stay out of sun but I

think it might feel good......enough of my complaining .......Judy in AZ

[Guest guest]

oh judy i am sorry you are feeling so miserable. i hope the cipro works fast

and you feel better soon.

kathy

[Guest guest]

HI Me MOm LInda, Thanks for the sun warning on Cipro. It is working I think,

I actually sleep for a few hours after I take it. My abdomen is getting sorer

like muscles being pulled ...but I feel lots better than on Friday. My

stitches have definitely set now. Still running fevers during day yesterday

but slept pretty good last night ..so hopefully no fevers today...anything is

an improvement...Cipro is very expensive ...my ins always prints real price

and then copay price....it was only 20$ but costs 100.84 for 20.

unfortunately that goes against my RX cap...oh well , I needed it or they

wouldnt have had to authorize it. So I hope you are having a much better time

of it now.....less pain, more ease...Take care and thx again...JUdy in AZ

[Guest guest]

Hi Judy,

Sorry to read you are having such a bad time. I am on Cipro, it is

expensive. I can tell from experience stay out of the sun. I was sitting

in the shade last summer and got burned so bad. It was a long time

healing, I will never sit in the sun again. Even though it does feel good

on the joints.

Me Mom

----------

> From: JHend65291@...

>

> Subject: Re: [ ] Misc

> Date: Saturday, March 24, 2001 9:46 AM

>

> HI All, I am so tired of running fevers..and taking antibiotics and just

> being stuck here not doing much... I went back to dr yesterday bcs of

fevers

> and I think there is some infection oin my abdomen....it's a lil red and

> oozy...so he is starting me on Cipro? antibiotics....I'm hot, then I'm

> freezing to the bone, and in between I scream cos it makes my muscles and

> joints hurt like a flare ......I just had my son help me change my bed

> linens.I stay awake half the night cos I am hot or cold or sopping wet

from

> sweat....and then my head still hasnt totally cleared from

cold/allergies/

> sinus....ears still plugged....well,maybe I will go out and sit on porch

> today for some fresh air...supposed to be 90...gotta stay out of sun but

I

> think it might feel good......enough of my complaining .......Judy in AZ

>

>

>

[Guest guest]

Doug - that's great news!

We had the carpet in the living room and the hall replaced with wood

laminate. I went with that over real wood b/c I didn't think I

could manage the glue they would have to use to put the wood down

and I didn't want to leave my house for several days. Anyway, it

looks great. Much easier to clean up the dog hair. Miss -dog

doesn't like it. I'm going to go get a couple of throw rugs for her

to lie on and that will go in the wash. I'll put one where we sit

in the living room and the other in the hallway outside our bedroom

door where she likes to sleep. She's been sneaking into our bedroom

to sleep on the rug in there. She knows she's not allowed!

The dust they stirred up getting the carpet up has bothered my

allergies, but nothing more than congestion and headache (not that

those aren't annoying).

Take care, everyone.

Addy

[Guest guest]

Hi,

We told our son the minute we knew. FIgured it'd be best to make it seem just a part of his life.

He never got mad. Was just like, "oh".

Good luck - don't make more of it than it is, honestly. You stay calm - and he won't think of it as something horrific. Just something he has. I told my son, "Hey, I'm overweight". We all have something.

Again, good luck.

Hugs.

Robin

And when the broken hearted people living in the world agree, there will be an answer, let it be. For though they may be parted there is still a chance that they will see, there will be an answer. let it be.

From: Cathleen Veloria <cathleen.veloria@...>Subject: ( ) misc Date: Tuesday, September 21, 2010, 10:06 PM

When do you tell, or do you tell your child he/she has Asperger's? My son is 7 and he knows somethings up because we've been talking a lot lately about the subject but not directly at him. He hasn't asked yet, but I know he will. He knows he has ADHD but to him that just translates to "I'm too hyper right now and I can't control it" or "I need help to focus" etc and it doesn't bother him. Do any of the kids that we're told, did they get upset?

Thanks

[Guest guest]

I told my 8 year old shortly after he was diagnosed with Asperger's this year. His reaction was one of relief. He said he knew there was something different about him. I read a workbook with him entitled Asperger's... What Does It Mean To Me? by Faherty. It seemed to help him self reflect. The only thing that made me uncomfortable about the book was that it uses the term "autism" more than "Asperger's".

>> When do you tell, or do you tell your child he/she has Asperger's? My son is 7 > and he knows somethings up because we've been talking a lot lately about the > subject but not directly at him. He hasn't asked yet, but I know he will. He > knows he has ADHD but to him that just translates to "I'm too hyper right now > and I can't control it" or "I need help to focus" etc and it doesn't bother him. > Do any of the kids that we're told, did they get upset?> > Thanks>

[Guest guest]

I kept calling my son's behaviour as Asperger's to my child psych and he said they're taking it out of the DSM as it's own diagnosis and putting it under Autism, anyone else heard that? And will that effect treatment of AS kids? Or effect anything else?

Cathleen

From: debbiegoldberg98 <debbiegoldberg98@...> Sent: Sun, September 26, 2010 6:18:25 PMSubject: ( ) Re: misc

I told my 8 year old shortly after he was diagnosed with Asperger's this year. His reaction was one of relief. He said he knew there was something different about him. I read a workbook with him entitled Asperger's... What Does It Mean To Me? by Faherty. It seemed to help him self reflect. The only thing that made me uncomfortable about the book was that it uses the term "autism" more than "Asperger's".

>> When do you tell, or do you tell your child he/she has Asperger's? My son is 7 > and he knows somethings up because we've been talking a lot lately about the > subject but not directly at him. He hasn't asked yet, but I know he will. He > knows he has ADHD but to him that just translates to "I'm too hyper right now > and I can't control it" or "I need help to focus" etc and it doesn't bother him. > Do any of the kids that we're told, did they get upset?> > Thanks>

[Guest guest]

I did hear that but my understanding is that it wont affect their treatment but

might rather make services easier to get. I had a hard time when I heard this

because hearing your child has aspergers is easier to swallow for me than your

child is autistic. I have a hard enough time with people believing me now when

I say he has aspergers!

Sent from my Verizon Wireless Pho

Cathleen Veloria <cathleen.veloria@...> wrote:

>I kept calling my son's behaviour as Asperger's to my child psych and he said

>they're taking it out of the DSM as it's own diagnosis and putting it under

>Autism, anyone else heard that? And will that effect treatment of AS kids? Or

>effect anything else?

>

>Cathleen

>

>

>

>

>________________________________

>From: debbiegoldberg98 <debbiegoldberg98@...>

>

>Sent: Sun, September 26, 2010 6:18:25 PM

>Subject: ( ) Re: misc

>

> 

>I told my 8 year old shortly after he was diagnosed with Asperger's this year.

>His reaction was one of relief. He said he knew there was something different

>about him. I read a workbook with him entitled Asperger's... What Does It Mean

>To Me? by Faherty. It seemed to help him self reflect. The only thing

>that made me uncomfortable about the book was that it uses the term " autism "

>more than " Asperger's " .

>

>

>

>>

>> When do you tell, or do you tell your child he/she has Asperger's? My son is

7

>

>> and he knows somethings up because we've been talking a lot lately about the

>> subject but not directly at him. He hasn't  asked yet, but I know he will.

He

>> knows he has ADHD but to him that just translates to " I'm too hyper right now

>> and I can't control it " or " I need help to focus " etc and it doesn't bother

>>him.

>>

>> Do any of the kids that we're told, did they get upset?

>>

>> Thanks

>>

>

>

>

>

>

[Guest guest]

It can be very hard to get an accurate diagnosis right now. Given that early

diagnosis is critical, perhaps it is better to widen the diagnosis so that kids

are getting diagnosed at 2-3 instead of 9.

> > >>

> > >> When do you tell, or do you tell your child he/she has Asperger's? My son

is 7

> > >

> > >> and he knows somethings up because we've been talking a lot lately about

the

> > >> subject but not directly at him. He hasn't  asked yet, but I know he

will. He

> > >> knows he has ADHD but to him that just translates to " I'm too hyper right

now

> > >> and I can't control it " or " I need help to focus " etc and it doesn't

bother

> > >>him.

> > >>

> > >> Do any of the kids that we're told, did they get upset?

> > >>

> > >> Thanks

> > >>

> > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

may i asked you this what worked with tantrums my jason is 14 is still crys makes scenes went he doesnt get his wayFrom: Comtois <suetois@...>Subject: ( ) Re: misc Date: Thursday, October 7, 2010, 11:37 AM

We told our son when he was in 5th grade (didn't get the diagnosis until 4th grade although he started having significant problems in 1st grade). Two things happened: the next day he informed his teacher that he couldn't do his classwork because he has Aspergers. LOL. We disabused him of that notion that evening. The second thing was more of a problem. He's our youngest son and two of his older brothers also have AS. Both of them have significant issues. One is somewhat more autistic than you would usually expect with an AS diagnosis. The other has problems with emotional control. He's not violent toward other people, but he cries and makes scenes that get him in trouble on a regular basis. I believe our youngest son immediately started worrying that he was going to have the same sorts of problems as his brothers. I assured him that every person with AS is different from every other person. He isn't like his brothers. Then we went

over some of the ways that AS makes his life difficult. The most significant one to him was the fact that he has a great deal of trouble with behaving in ways that don't alienate other children. I told him we would work on that, and it would get better. I also told him that his ability to learn things about science is one of the positive things that AS gives him. He liked that because he's proud of all the stuff he knows. I believe it was a balanced discussion. Our son seems to have welcomed the information that there's a reason for some of his difficulties--that they don't mean that he's a bad boy--but instead are things that challenge him but that can be improved with extra effort. I think a matter-of-fact presentation along with reassurance and an emphasis on positive aspects makes it relatively easy for children to process how AS fits into their lives.

Sue C.

[Guest guest]

, I wish I could help you with your son's tantrums, but I think they

almost have to grow out of them. Both of my older boys started managing their

emotions better (not perfectly, but there's been a noticeable improvement) when

they got to about 15yo. I personally think the meltdowns are part of having

Asperger's for some kids. They are *so* common. I think the kids are bombarded

with situations they can't handle, and they simply don't have the necessary

skills to control their emotions, so you see a lot of temper and crying until

they start to feel more in control of their world.

Of course you don't want to make the problem worse, so stay calm and don't give

in to unreasonable demands. I generally encourage my sons to spend some time

alone when they're getting too worked up. It gives them a chance to calm back

down. I told one of them, I'm not putting him in time out because that's not

appropriate at his age, and it's not meant as a punishment, but as a way for him

to get back in control. I approach it as a suggestion rather than an order.

They respond well, but I'm pretty sure the fact that they're developing more

maturity as they get older has a lot to do with it.

It also helps if you can pick up on what's likely to set them off and talk about

it before it gets to be a big deal. One of the boys got an F in Driver's Ed (of

all things--and it's just the classroom portion so far), but the rest of his

grades were all A's. I praised him for the A's and then casually mentioned that

he needed to be prepared for his father to be unhappy about the F. That

immediately kicked him into " drama mode. " Instead of engaging, I pointed out

that I was just giving him a heads up so he wouldn't get worked up later. Then

I talked with his sister about her grades instead. My son calmed himself down,

and when his dad got home, there wasn't another scene.

Good luck.

Sue C.

>

> From: Comtois <suetois@...>

> Subject: ( ) Re: misc

>

> Date: Thursday, October 7, 2010, 11:37 AM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> We told our son when he was in 5th grade (didn't get the diagnosis until

4th grade although he started having significant problems in 1st grade). Two

things happened: the next day he informed his teacher that he couldn't do his

classwork because he has Aspergers. LOL. We disabused him of that notion that

evening. The second thing was more of a problem. He's our youngest son and two

of his older brothers also have AS. Both of them have significant issues. One

is somewhat more autistic than you would usually expect with an AS diagnosis.

The other has problems with emotional control. He's not violent toward other

people, but he cries and makes scenes that get him in trouble on a regular

basis. I believe our youngest son immediately started worrying that he was

going to have the same sorts of problems as his brothers. I assured him that

every person with AS is different from every other person. He isn't like his

brothers. Then we went

> over some of the ways that AS makes his life difficult. The most significant

one to him was the fact that he has a great deal of trouble with behaving in

ways that don't alienate other children. I told him we would work on that, and

it would get better. I also told him that his ability to learn things about

science is one of the positive things that AS gives him. He liked that because

he's proud of all the stuff he knows. I believe it was a balanced discussion.

Our son seems to have welcomed the information that there's a reason for some of

his difficulties--that they don't mean that he's a bad boy--but instead are

things that challenge him but that can be improved with extra effort. I think a

matter-of-fact presentation along with reassurance and an emphasis on positive

aspects makes it relatively easy for children to process how AS fits into their

lives.

>

>

>

> Sue C.

>