Re: severe reactions??????????

[Guest guest]

,

I'm sorry to hear that Xolair was a problem for you. Was your reaction

anaphylactic in nature? Was it apparent from the first injection that it was a

problem?

I'm asking because I'm wondering if anaphylactic reactions ever occur later

in the course of treatment.

All best,

Meryl

I am the one that had the reactions. My doctor as

well as the Novartis rep told me that severe reactions

occur in very rare. THey also said that maybe my

body just couldnt handle the drugs.

I know you addressed this to Pat but I thought you

would like a little more input from me...hope I didnt

overstep.

*Hugs*

--- <carrie72583@...> wrote:

> Hi everyone,

>

> Pat perhaps you can comment. There is a girl on the

> webmd board who reported that she stopped xolair

> after

> experiencing 3 severe reactions including one where

> she stopped breathing. The xolair was helping her

> though, she reports.

>

> Could you comment on anything you have read/heard

> about such reactions? Could someone be

> allergic/intolerant to an antibody that blocks IgE -

> which in turn causes allergy???????

>

> I thought the anaphylaxis rate was like 1/4000 pts

> or

> something like that.

>

> Thanks for your expert input once again!

>

[Guest guest]

I am the one that had the reactions. My doctor as

well as the Novartis rep told me that severe reactions

occur in very rare. THey also said that maybe my

body just couldnt handle the drugs.

I know you addressed this to Pat but I thought you

would like a little more input from me...hope I didnt

overstep.

*Hugs*

--- <carrie72583@...> wrote:

> Hi everyone,

>

> Pat perhaps you can comment. There is a girl on the

> webmd board who reported that she stopped xolair

> after

> experiencing 3 severe reactions including one where

> she stopped breathing. The xolair was helping her

> though, she reports.

>

> Could you comment on anything you have read/heard

> about such reactions? Could someone be

> allergic/intolerant to an antibody that blocks IgE -

> which in turn causes allergy???????

>

> I thought the anaphylaxis rate was like 1/4000 pts

> or

> something like that.

>

> Thanks for your expert input once again!

>

>

>

>

>

>

>

>

__________________________________________________________

>

> Find your next car at http://autos..ca

>

>

>

www.my.tupperware.com/melissapeterson

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi ,

I didn't know you posted here! Hi! I thought maybe Pat

could shed some light on the issue. I mean what was

happening on a physiological level so that you reacted

that way? She may have some clarification or

hypothesis to offer.

ps I am glad that you recovered from those

reactions!!!

__________________________________________________________

Find your next car at http://autos..ca

[Guest guest]

Meryl

Yes it was. My throat closed and was really bad. It

wasnt apparent from the first shot. I had symptoms

but nothing as bad as that in the first few monthes.

I didnt make it to 6 monthes on the Xolair. I did 5

monthes and my dr pulled me off.

I think that answers all your questions...if you have

others or I missed something let me know and I'll

answer it.

*Hugs*

--- msbehavior@... wrote:

> ,

>

> I'm sorry to hear that Xolair was a problem for

> you. Was your reaction

> anaphylactic in nature? Was it apparent from the

> first injection that it was a

> problem?

>

> I'm asking because I'm wondering if anaphylactic

> reactions ever occur later

> in the course of treatment.

>

> All best,

> Meryl

>

>

> I am the one that had the reactions. My doctor as

> well as the Novartis rep told me that severe

> reactions

> occur in very rare. THey also said that maybe my

> body just couldnt handle the drugs.

>

> I know you addressed this to Pat but I thought you

> would like a little more input from me...hope I

> didnt

> overstep.

>

> *Hugs*

>

> --- <carrie72583@...> wrote:

>

> > Hi everyone,

> >

> > Pat perhaps you can comment. There is a girl on

> the

> > webmd board who reported that she stopped xolair

> > after

> > experiencing 3 severe reactions including one

> where

> > she stopped breathing. The xolair was helping her

> > though, she reports.

> >

> > Could you comment on anything you have read/heard

> > about such reactions? Could someone be

> > allergic/intolerant to an antibody that blocks IgE

> -

> > which in turn causes allergy???????

> >

> > I thought the anaphylaxis rate was like 1/4000 pts

> > or

> > something like that.

> >

> > Thanks for your expert input once again!

> >

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

www.my.tupperware.com/melissapeterson

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi ,

I have read all of the postings. In the research 3 people had " bad " reactions

after their shots. 1 was anaphylactic in nature, not a true anaphylaxis, was

treated with epi pen & nebulizer & was fine. This was after the 3rd month of

shots. Nothing is printed to say if the person decided to buy a cat because she

felt better & was off her other meds too, if they ate peanuts when they knew

they had anaphlaxis to peanuts etc... So... there really was 1 of this type of

reaction in over 4000 people in the study. Were they just in someplace that

they were exposed to a huge amount of allergen? No one knows, so no " good "

answer can be given. If a person is " high strung & anxious " & has asthma &

allergies and hates shots, are they more at risk for reaction? They are just

because of their phobia and mental state. We all know when we are stressed or

very upset our asthma is worse. So, until we know all of the facts behind each

incident, no blanket statement can be made. Anyone writing

on the internet can write whatever they want, they know anonimity lets them

write whatever pops into their heads. That being said, I am sure we don't have

anyone in this forum who would purposely tell a story to upset the rest, but out

on the net, we have no idea. It is possible to put something in your body that

your body decides it has had enough of, and have a reaction. That is the way

food allergies build up. So, yes it is possible. Probable to happen in the

masses, I don't think so. I am sure there are a few people in the millions who

will eventually receive xolair that won't tolerate it, but the good it does the

rest of us should be a reason to start or continue it. We can walk across the

street and get hit by a car, we are in a controlled environment for the most

place getting the drug. Epinephrine & albuterol/atrovent stem the reaction. My

best advice to my patients, is to try it, when you feel better, get off

prednisone & other drugs, you are lucky and blessed that

it works for you. There will always be a very few that it won't help, and I am

upset for them. Hopefully soon, we'll find a cure not just a tretament.

Remember to donate to the American Lung Association, they fund most of the

research and even have 3 facilities in Florida that are research based.

Hope that helped.

Pat

__________________________________________________

[Guest guest]

Thank you for the clarification Pat. For me, xolair

has been a gift from God that I spent 3 years waiting

for. I am not cured, far from it, but each time I

flare it is a bit easier than the last so I KNOW one

day I will be off pred and I will have my life back.

As for side effects I have had none and I am not

worried at all about it. I have enough side effects

from the rest of my meds!!

(10 mg and counting....)

__________________________________________________________

Find your next car at http://autos..ca