measuring free - floating IgE?

[Guest guest]

i was thinking about what addy said, and it seems that it could be a

very helpful test to help adjust xolair doses. i'm already on the

max approved dose (375 every two weeks). lets say my free floating

IgE was high, would they then be able to increase my dose? you may

not know this, but i figured i'd throw the question out to you.

just wondering. there are times i just don't feel 375 is enough for

me. i always wonder what would happen if i injected that extra 75mg

left in the vial...would i suddenly grow a third eye or something -

haha

(cipro liquid came yesterday, i just nebulized dose two - i forgot

how awful this stuff tasted - even though its going thru my nose, it

manages to make it to my mouth. oh well. if it clears my sinus

infection, i shouldn't complain! )

hope everyone is feeling good!

heather

[Guest guest]

Interesting questions, I'd love to know the answers too.

I sure wish that there was some way we could keep what we have to

put up our nose from making it to the taste buds. I have to use

Nasarel nasal spray 2x/day, it's really nasty too.-

Hope it clears up your sinus infection. You've had a long haul with

it.

Best wishes

--

In , " heather " <heaven1975@y...> wrote:

>

>

> i was thinking about what addy said, and it seems that it could be

a

> very helpful test to help adjust xolair doses. i'm already on the

> max approved dose (375 every two weeks). lets say my free floating

> IgE was high, would they then be able to increase my dose? you may

> not know this, but i figured i'd throw the question out to you.

>

> just wondering. there are times i just don't feel 375 is enough

for

> me. i always wonder what would happen if i injected that extra

75mg

> left in the vial...would i suddenly grow a third eye or something -

> haha

>

>

> (cipro liquid came yesterday, i just nebulized dose two - i forgot

> how awful this stuff tasted - even though its going thru my nose,

it

> manages to make it to my mouth. oh well. if it clears my sinus

> infection, i shouldn't complain! )

>

> hope everyone is feeling good!

> heather

[Guest guest]

Theoretically if they could measure just the free-floating IgE

separate from the already Xolair-bound-IgE they could play around

with dosages more. According to my doc they think that some people

may be able to lower dosages eventually but that also some folks

might go through periods where their free-floating IgE might

increase and an increase in dosage might be needed.

, I did try to squeeze a few more mg out of my vials last

time and I'm going to continue to do so. I get 375mg too.

--- In , " heather " <heaven1975@y...>

wrote:

>

>

> i was thinking about what addy said, and it seems that it could be

a

> very helpful test to help adjust xolair doses. i'm already on the

> max approved dose (375 every two weeks). lets say my free floating

> IgE was high, would they then be able to increase my dose? you may

> not know this, but i figured i'd throw the question out to you.

>

> just wondering. there are times i just don't feel 375 is enough

for

> me. i always wonder what would happen if i injected that extra

75mg

> left in the vial...would i suddenly grow a third eye or something -

> haha

>

>

> (cipro liquid came yesterday, i just nebulized dose two - i forgot

> how awful this stuff tasted - even though its going thru my nose,

it

> manages to make it to my mouth. oh well. if it clears my sinus

> infection, i shouldn't complain! )

>

> hope everyone is feeling good!

> heather

[Guest guest]

THanks to everyone for the good wishes.

For my part, Astelin leaves the worst taste.

Doug, the Xopenex doesn't do any better for me side-effect wise. It

does seem to last longer, so I need to neb less frequently, so

that's a good thing.

Gotta go cough some more,

Addy

--- In , " " <cox58asthma@y...>

wrote:

>

>

> Interesting questions, I'd love to know the answers too.

>

> I sure wish that there was some way we could keep what we have to

> put up our nose from making it to the taste buds. I have to use

> Nasarel nasal spray 2x/day, it's really nasty too.-

>

> Hope it clears up your sinus infection. You've had a long haul

with

> it.

>

> Best wishes

> --

> In , " heather " <heaven1975@y...>

wrote:

> >

> >

> > i was thinking about what addy said, and it seems that it could

be

> a

> > very helpful test to help adjust xolair doses. i'm already on

the

> > max approved dose (375 every two weeks). lets say my free

floating

> > IgE was high, would they then be able to increase my dose? you

may

> > not know this, but i figured i'd throw the question out to you.

> >

> > just wondering. there are times i just don't feel 375 is enough

> for

> > me. i always wonder what would happen if i injected that extra

> 75mg

> > left in the vial...would i suddenly grow a third eye or

something -

>

> > haha

> >

> >

> > (cipro liquid came yesterday, i just nebulized dose two - i

forgot

> > how awful this stuff tasted - even though its going thru my

nose,

> it

> > manages to make it to my mouth. oh well. if it clears my sinus

> > infection, i shouldn't complain! )

> >

> > hope everyone is feeling good!

> > heather

[Guest guest]

did you see an improvement with the added xolair? or does it take

time to build up at that dose too? did your dr approve it, or is it

on your own (just wondering, not judging by any means!)

astelin also leaves a horrible taste in my mouth

feel better

> >

> >

> > i was thinking about what addy said, and it seems that it could

be

> a

> > very helpful test to help adjust xolair doses. i'm already on

the

> > max approved dose (375 every two weeks). lets say my free

floating

> > IgE was high, would they then be able to increase my dose? you

may

> > not know this, but i figured i'd throw the question out to you.

> >

> > just wondering. there are times i just don't feel 375 is enough

> for

> > me. i always wonder what would happen if i injected that extra

> 75mg

> > left in the vial...would i suddenly grow a third eye or

something -

>

> > haha

> >

> >

> > (cipro liquid came yesterday, i just nebulized dose two - i

forgot

> > how awful this stuff tasted - even though its going thru my

nose,

> it

> > manages to make it to my mouth. oh well. if it clears my sinus

> > infection, i shouldn't complain! )

> >

> > hope everyone is feeling good!

> > heather

[Guest guest]

I just eeked out a little extra out of each vial on my own. It

didn't amount to a whole lot - 1.1 cc per shot (three shots) vs.

1.0. I have felt a little better, but I don't know if you can

attribute it to the add'l Xolair or not.

Addy