Re: terrible allergic headache

[Guest guest]

oh addy, that stinks! i was a week late during the summer and i was

nothing but miserable. it shows how well xolair does work!

i can relate to the sinus problems. the xolair helps mine, but

doesn't make them totally go away. its interesting you mention it,

b/c my ENT is trying to get a test group approved to use xolair for

extreme sinus disease (he was overly excited that i was on it

already - he wanted me in his sinus group - so he was asking me a

half hour of questions!)

i hope the sinus rinses are helping. i wish there was a sure fire

cure.

i didn't think that the xolair stopped your body from making IgE, i

thought it just bound up the IgE after it was produced making it non-

functional. hmmm..guess i was way off base on that one.

feel better

heather

>

>

> I am late getting my Xolair. I was away at training all week and

> was unable to pick it up before the doctor's office closed. I am

> having terrible sinus trouble as a result. You can visibly see

the

> swelling in my face, and the headache/s is/are horrible. I

started

> sinus rinsing again and taking all my meds and had to take 20mg

pred

> yesterday.

>

> My doctor says that this means that my body is still making IgE,

so

> I have IgE that has not bonded to Xolair and therefore is

triggering

> allergic reactions.

>

> I should be able to pick up my Xolair tomorrow and take my shots

> tomorrow evening.

>

> I certainly haven't missed having these sinus issues!

>

> Take care, all,

>

> Addy

[Guest guest]

It's getting worse....

Thanks, . You are right - Xolair binds to the IgE so it

can't bind to the mast cell. As we make new IgE it needs new Xolair

to bind to apparently. Doug, maybe you could get your Xolair nurse

to post about this so we know we understand this right.

At any rate, I couldn't get my Xolair today, either. My Xolair

nurse was out of the office last week and my order didn't come in.

She called my specialty pharmacy today and they will have it to her

by 9am tomorrow. As a result, I have mild asthma symptoms this

evening. Augh.

, I will be very interested to learn if your ENT gets

permission to test a group with severe sinus disease. I am serious

when I say that Xolair has improved my sinus outcomes 110%. This

was my most serious issue - severe allergies would set my sinuses

off first, and the drainage would usually trigger the asthma. By

intervening in the allergic process, Xolair has really given my

sinuses a break. this is the first round of headaches I have had in

a while, and certainly the first serious headache in months. I used

to have headaches daily from my sinuses..

Take care everyone

Addy

[Guest guest]

oh my goodness, addy -- i can't belive that you still haven't gotten

your xolair. i wish i hadn't given my xolair back to my dr - you

could have had it! i ended up with an extra months worth b/c in my

changeover of insurance, BOTH companies sent it out.

i'm glad you'll have it tomorrow. what a relief.

i'm going to ask my ENT on friday how he is coming with his

potential study and whatnot. it definately is interesting. since

xolair starting in jan 04, this is only my third sinus infection --

and i have not yet needed the sinu-neb! (well, this time i might, i

don't think the 2 weeks of cipro knocked this one out). since i

can't think on the spot all the time, i'm making a list of questions

(regarding xolair) for my ENT. if anyone has something to add, by

all means...

feel better addy!

heather

>

>

> It's getting worse....

>

> Thanks, . You are right - Xolair binds to the IgE so it

> can't bind to the mast cell. As we make new IgE it needs new

Xolair

> to bind to apparently. Doug, maybe you could get your Xolair

nurse

> to post about this so we know we understand this right.

>

> At any rate, I couldn't get my Xolair today, either. My Xolair

> nurse was out of the office last week and my order didn't come

in.

> She called my specialty pharmacy today and they will have it to

her

> by 9am tomorrow. As a result, I have mild asthma symptoms this

> evening. Augh.

>

> , I will be very interested to learn if your ENT gets

> permission to test a group with severe sinus disease. I am

serious

> when I say that Xolair has improved my sinus outcomes 110%. This

> was my most serious issue - severe allergies would set my sinuses

> off first, and the drainage would usually trigger the asthma. By

> intervening in the allergic process, Xolair has really given my

> sinuses a break. this is the first round of headaches I have had

in

> a while, and certainly the first serious headache in months. I

used

> to have headaches daily from my sinuses..

>

> Take care everyone

>

> Addy