new to the group

[Guest guest]

Hello

Thank you to the organizers who set up this forum for Xolair. It is

great to hear about the succes stories for a change. I hope I will

benefit from Xolair, too!

I am not asking for sympathy, but allergies,hives, asthma, and the

stress have made me a non-functional, dull person. It is extremely

depressing, in a nutshell. I have a small daughter and I can not go

outside or work. I don't dare go to a zoo, or even to a local park

because of the trouble I get. My husband works 12 to 14 hours just

to support me and get insurance. He is fed up too. Normal things

that people take for granted are off limits to me. Going to get the

mail or driving one mile from my house is a major accomplishment.

Decent sleep is a rare commodity, too. For me, there are two

seasons, pollen/mold season and bronchitis season. I am a walking

pharmacy with 2 different antihistamines, zantac and oral steroids,

advair, inhalers, nasal sprays, saline nasal sprays, etc. I don't

blame my inlaws for hating me - I am always fighting bronchitis or

allergies when they visit us. I feel alone in this battle for my

life.

I have a million questions that I don't feel like asking the

physician or nurses about Xolair. (At least not yet.)

If I take Xolair, and stop it suddenly, is there a worsening of

allergy/asthma symptoms? Is this a permanent cure for asthma? I

think it only works only as long as one takes Xolair, and will not

result in any permanant cure, maybe. ( When oral or topical steroids

are suddenly stopped or tapered off, my allergy and asthma symptoms

can get WORSE than ever!!)

Has anyone become accidentally pregnant while on Xolair? What do you

do then? Is Xolair safe for the developing child or while

lactating? It is so new that these problems may have not been

encountered yet.

I don't mean to sound ignorant or too verbose, but growing up my

teachers always said there are no dumb questions. Please enlighten

me! Forgive me if this is too long. I am unfamiliar w/ the group

etiquette other than not advertising, inappropriate language,

rudeness - which I have no time for or will ever do!

Thanks,

G.M.