Re: some good, some bad... =o(

[Guest guest]

,

I'm sorry to hear you're having trouble and back on pred. I know

how it is! I'm still having lung trouble and can't quite finish

this last episode.

I guess none of us can expect not to have ANY more allergic episodes

any more. This last month has been hard on me, but after nine

months of very few and then only mild symptoms, I cannot complain.

FYI last year I couldn't wear my contacts often due to all the

facial swelling from allergic sinus disease, so I totally empathize

with your current situation. Please keep us updated on what your

ENT is doing/saying. I am fascinated to hear of an ENT looking into

allergic sinus disease. I've seen 3 different ENTs in my area in the

last seven years and none of them are really interested.

Take care,

Addy

[Guest guest]

heather,

Sorry to hear about you having to go back on pred and maybe

surgery. Maybe, even though it's bad it would have been worse

without the Xolair. Hope the 2 weeks of pred clears up the problem

for you.

I'm taking Advair 500/50 and sometimes I think it has a small

bronchodialator effect after about 30 min., but other times I don't

feel it at all. I think I felt it more whwen I first started taking

it.

Best wishes and try to keep a positive outlook, we are all with you.

In , " heather " <heaven1975@y...> wrote:

>

>

> first of all, i want to start off by apologizing...i'm not usually

a

> whiney person. by nature, i'm a happy go lucky, see the glass as

> half full, glad to be alive person.

>

> my six months of no prednisone (my record!!) has come to an end. i

> returned to the ENT, and he is so frustrated. somehow, despite

> xolair for nine months, allergies have caused my sinuses to swell

> beyond belief, to the point where my eye continues to swell as

> sinuses flare. he has put me on a short pred taper. he admitted

to

> feeling awful b/c he gave me such hope two weeks ago. he really

> thought we had this whole sinus disease under control, thanks to

> xolair. he had said two weeks ago that the xolair was doing

> miracles, and it didn't look like any more surgery would be

needed.

> yesterday, his new plan (with a dissappointed look on both our

> faces) is the two weeks of pred, a two week period of no pred (to

> see if swelling resumes) a CT and then we'll talk about a need for

> surgery. he's hopeful though, that if we do surgery, the xolair

will

> help keep it all in check. (no allergy symptoms to cause

problems).

> i just wanted to cry...i'm so tired of it all....

>

> ok, enough of that. now the good -- through all this, my lungs

have

> remained fairly stable. they have dropped in their funtion, but

not

> enough to make me want to increase any meds (my dr has me increase

> flovent on a " as needed " basis, or start pred if i feel i need it,

> and just letting her know). so at least thats good. i'm sure the

> xolair is helping. not as much as i had hoped, but its definately

> doing something. and with less steroids in me, i seem to be less

of

> a sponge for all the kid cooties that come my way at work! YEAH!!!

>

> ---- and a sidenote - is anyone taking serevent or advair? i

heard

> yesterday from a friend that most people on serevent, right after

> taking it, find it to have a bronchodilator effect. thats an

> indicator that its working or something?? anyone hear/experience

> that...because i don't. hmmm

>

> have a great saturday!

>

> heather

[Guest guest]

its the pred yo~yo..i was sooo hoping i was done with the pred...i

know, as an asthmatic, thats quite a tall order...but a girl can

dream.

its frustrating, and i hate that its stealing the bounce out of

me...which i can't understand. i'd go months being sick. now this

has me all sorts of twisted. the other oddity, two days on pred,

and somehow, i'm having more trouble breathing today that i have.

hoping its not a flare in the works.

i'm very fortunate to have such a great ENT. he is a man of exact

details, and doesn't take NO for an answer. i almost welcome

surgery, even if it going to be an every 12-18 month maintainance

type thing. i most likely will get a CT in a month...i'll keep you

posted addy, as i know you are dealing with similar circumstances.

this is my 2nd ENT. have you ever used sinu-neb? my ENT had me on

it right after surgery, and i generally get it for stubborn

infections. its worth asking about. if you want to look into it,

here is the link. http://www.sinuspharmacy.com/ its basicly a fancy

nebulizer attachment that helps deliver meds via nebulizer to the

sinuses directly. it was very effective for me.

thanks for listening to me whine.

heather

>

>

> ,

>

> I'm sorry to hear you're having trouble and back on pred. I know

> how it is! I'm still having lung trouble and can't quite finish

> this last episode.

>

> I guess none of us can expect not to have ANY more allergic

episodes

> any more. This last month has been hard on me, but after nine

> months of very few and then only mild symptoms, I cannot complain.

>

> FYI last year I couldn't wear my contacts often due to all the

> facial swelling from allergic sinus disease, so I totally

empathize

> with your current situation. Please keep us updated on what your

> ENT is doing/saying. I am fascinated to hear of an ENT looking

into

> allergic sinus disease. I've seen 3 different ENTs in my area in

the

> last seven years and none of them are really interested.

>

> Take care,

>

> Addy