Re: Re: Question for MommaA

[Guest guest]

hi tina. good luck with your xolair shot tomorrow (today?). i was also the

first patient in my drs office to start with the xolair in january 2004. during

my first few doses, a local representative from either xolair or

novartis/genetech (i can't remember) was at my drs office when i got there. he

showed the staff how to mix the xolair, draw it up, change needles and inject

it. i'm not sure how common that is, but it was definately helpful.

my dr has a rotating schedule for injection sites (i get 375 mg -- 3 shots). i

inject into 3 of the four sites (left arm, both thighs and stomach) and we

rotate with every dose. after my third dose, the pharmacy sent a nurse trained

in xolair, and she showed me how to mix and inject. eventualy, we switched from

my right arm (difficult to self inject when you're a rightie) to my stomach.

as for the weight loss, first off, congratulations!!!! to your dr, regarding

the xolair, it might not be that big a deal. you can mention it to your dr, but

they might not change your dose.

good luck with it. remember it takes a little bit of time to build up in your

system, so you might not start feeling a difference for a couple of months.

heather

misssdallas <misssdallas@...> wrote:

HI pat, i recently joined this group, im going for my first xolair

shot tomorrow. however i am still nervous. (side effects) after

reading the last few posts from the few people having side effects

im really scared. my first question is all the reading that i have

been doing, considering that my pulmo office i will be the first to

recieve the injection, that the xolair page in the internet says

that no more than 150mg should be injected into one site alone. if

my dose is 300mg that should be 2 sites? i feel bad telling my md

that she has to make it 2 sites but im am being safe. and the second

question is that since i have been ordered for the 300mg i have lost

over 20 lbs. whish should bring my dose to 225mg per the xolair

page. make sense? thanks tina

> Yes, Prednisone adversely lowers IgE, some school of thought say

it can go either way (high or low), but really has not been my

experience. So dosing a prednisone dependent patient can be

tricky. If hey don't feel Xolair is working after 3 months and the

MD wants to stop Xolair, I ask them to consider the Prednisone &

IgE. Most increase Xolair dose & wait 6 more months. Some are

still hard headed and think a Nurse can't teach a octor anything &

do a dis-service to their patient by stopping the Xolair prematurely.

>

> Keep up the good work!

>

> Pat

>

> __________________________________________________

>

[Guest guest]

Makes sense Tina, the only reason they split the shots at 150mg is that 1cc/ml

of medication is about all that should be injected under the skin. More would

make a larger " lump " that would get red, inflammed and maybe itchy. People call

that an " allergic reaction " . It is nothing of the sort. Even though it is 2

shots, personally, I'd take the 2 shots.

Pat

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[Guest guest]

Thank you Addy

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