Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Hi - I was wondering if anyone has tried, or explored, the use of Xolair for CFS? There are a few reasons I am really curious about Xolair for CFS. First, my CFS (since 1982) is most noticeably influenced by allergies. Although I am largely recovered after a relapse in 1994 (at about 80% of the elusive " normal " , my overall stamina / health is noticeably worse in allergy season - which in southern California unfortunately means Feb -Sept or so. Even though I take 2-3 meds at any one time for my allergies, they don't seem to do much but dampen the symptoms and prevent allergy attacks. Currently taking Astelin spray, Flonase and otc Claritin. I know that Allegra and Zyrtec are more effective but unfortunately I have a sensitive stomach and don't seem to be able to tolerate them. I can tell that allergies are my Achilles heal because when I travel to a place that has less, or different, allergens, I typically feel much better. Of course if I stayed there long enough my body would eventually become sensitized to the allergens there, so moving around is not an option to me in any way (I also have a family, lots of local roots etc.). On my website RemedyFind a rating was recently posted for Xolair for CFS, and the results of this one guy's experience are so remarkable that it's really gotten me interested in learning more about the potential of Xolair for CFS. Here is his rating if you care to read it - http://www.remedyfind.com/rem.asp?ID=10403 Of course, not being an asthmatic I would have to pay out of pocket, which probably makes this whole idea unreasonable, but I can't help but wake up at night wondering what my life would be like without the constant stress of having to deal with allergies. Anyone have any experiences to share? All the best, Brett Hodges Quote Link to comment Share on other sites More sharing options...
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