Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Thank you for sharing your story with us. I am in a similar situation. On pred non-stop since March 2003 with the lowest I ever got was 12.5 mg (recently after xolair...). So I am completely Cushingoid and have such a funny looking body now I need to wear a burlap sack (case in point, I bought new pants for school today without seeing if the ones from last year fit because I could not handle the heartbreak of being unable to fit pants I could 8 months ago.) But the good news is that I am having more and more good days (esp when the weather cooperates) and I am frequently becoming introspective about the whole situation. I mean the Man must have a plan, right? I get to tinker with my own pred taper too so I will invent (with pulmo's approval), the world's slowest taper (e.g. 1 mg a month) and get myself off pred if it is the last thing I do. I am couch bound when I go from 15 mg to 12.5 mg for a couple of days as my body readjusts so I think the lower I go, the harder it will be. I have frequently have said that getting off pred will be one of the hardest things I ever do in my life. But, with everyone's support here, I am sure that eventually, it will be done, one baby step at a time! (With a quite a bit of help from Novartis!) ps I wonder if the scientits who worked on the drug development ever heard any personal xolair success stories....they should know that what they do really does make a difference. __________________________________________________________ Find your next car at http://autos..ca Quote Link to comment Share on other sites More sharing options...
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