Re: A New Patient For Xolair

[Guest guest]

Hi,

I was hospitalized with my asthma on my 14th birthday. Have had

severe allergic asthma since I was three, and I'm 30something now.

I also took adult doses of meds from an early age. If Xolair had

come along when I was 14, I would have begged my parents to let me

have it. I know every parent takes a huge risk when they let their

child take any medication. But if your child has to take a lot of

oral steroids and if she's had any hospital or ER episodes in the

last year, I would recommend you seriously consider it.

God knows I love living and breathing without prednisone.

Addy

> Hi,

>

> My name is Robin , and my daughter, Tawnia, has had asthma

> for all of her life. She is 14, and has been on adult doses of

> medications since she was 6. She's been in and out of doctors

> offices, along with hospitals, and has been put on every new drug

> placed on the market, as soon as they are available.

>

> My question is this: Her pediactric pulmonologist wants to start

> her on Xolair next month. Are there any members of this group who

> has a child in a similar circumstances and conditions who have

used

> Xolair?

>

> I'm not too sure about this and was hoping to find some answers

and

> someone who has been or is at the place my husband and I find

> ourselves at right now.

>

> Thanks,

>

> Robin

>

> P.S. You may contact me at summitseeker1200@y...

[Guest guest]

Hello,

My son started taking Xolair when he was eleven and now is thirteen. He saw

immediate

improvement. Our life was being spent at the doctor's office or ER because of

his allergic

asthma. I will be glad to answer any of your questions.

summitseeker1200 <summitseeker1200@...> wrote:

Hi,

My name is Robin , and my daughter, Tawnia, has had asthma

for all of her life. She is 14, and has been on adult doses of

medications since she was 6. She's been in and out of doctors

offices, along with hospitals, and has been put on every new drug

placed on the market, as soon as they are available.

My question is this: Her pediactric pulmonologist wants to start

her on Xolair next month. Are there any members of this group who

has a child in a similar circumstances and conditions who have used

Xolair?

I'm not too sure about this and was hoping to find some answers and

someone who has been or is at the place my husband and I find

ourselves at right now.

Thanks,

Robin

P.S. You may contact me at summitseeker1200@....

[Guest guest]

Robin,

I am a nurse in a specialty pharmacy. I track all children under 12 and all

people over 65 on Xolair. We currently have twin 2 year olds on Xolair. I wish

I had enough space to tell you about them all. They are doing fantastically.

There is one child from the age of 5 that couldn't leave his home because his

allergies were so bad. He was on oxygen and more than the adult doses of

medication since 5 years old, after his 4th shot, he was off oxygen, his

nebulizer was put away and he ventured outside to toss a football with his

brother. This was the first time in 6 years he had been outside, his mom and I

were both crying on the phone when she told me that. That is not a typical

response. Sometimes it takes 9 months or a year due to other circumstances for

enough IgE to be bound that the attacks or exacerbations quit happening. Some

people experience body aches, head aches " flu like symptoms " for the first

couple months that seem to be associated with the injection times, but

go away shortly after experiencing them. Stay tuned to the group. They are a

wealth of knowledge. Just remember that each person on earth is an individual

and we all react differently to same stimuli. Give your daughter a hug and kiss

and tell her she'll be better soon. 1 year in a life that is going to last 80

or 100 years is not a long time in the scope of things.

Pat

---------------------------------

Start your day with - make it your home page

[Guest guest]

Hi, Robin,

I realize that it is very scarry to be a mom and see your child sick.

I am Sr. , I have had asthma since 1988. I had been struggling for years

not knowing why I was not feeling well. Especially when I left my home town and

area. I would loss my voice for 6 months and went to the doctor and they said

it was a cold or something like that. I was in Minnesota for vacation and came

back and coughed for two weeks straight and my regular doctor was on vacation

and I went to a clinic where I saw a different doctor and she said that I did

not have a cold and recommended me to go to a pulmunary doctor. She is the one

who diognosed me with asthma. It is scarry for me when I am not feeling well

and am not sure what it is. But since I have been on Xolair it has been a lot

better. The main problem is getting others to realize that even though I can

run around at times and at others I can hardly move because of the breathing.

The point I am trying to make is to trust your doctor and know that their is

another person that is there to help you and your child and that is God. Or as

I like to say the Man upstairs. Trust your instincts.

Blessings and may you all " breath easier. " Know that we are here routting for

you and each asthmatic who is in the group.

As Always,

Sr. Volz, C.R.

summitseeker1200 <summitseeker1200@...> wrote:

Hi,

My name is Robin , and my daughter, Tawnia, has had asthma

for all of her life. She is 14, and has been on adult doses of

medications since she was 6. She's been in and out of doctors

offices, along with hospitals, and has been put on every new drug

placed on the market, as soon as they are available.

My question is this: Her pediactric pulmonologist wants to start

her on Xolair next month. Are there any members of this group who

has a child in a similar circumstances and conditions who have used

Xolair?

I'm not too sure about this and was hoping to find some answers and

someone who has been or is at the place my husband and I find

ourselves at right now.

Thanks,

Robin

P.S. You may contact me at summitseeker1200@....