Re: What's going on?!

[Guest guest]

,

I had severe flu-like symptoms after my first two sets of injections. I had a

milder, shorter-lasting version of these side effects the third time, and so

far, don't seem to be having them at all after the fourth shot.

I talked to a nurse who works for NovaFactor (which I think is a

pharmaceutical distributor for Genentech) and she said that my side effects were

probably

related to the drug, but she thought it was likely that they'd diminish over

time, since most of the reported side effects seemed to do so. I decided to

hang in and continue, and so far it seems to be true that the severity and

frequency of the side effects have diminished quite a bit.

Meryl

I just had my xolair injection on friday. I felt great saturday and

sunday. Monday I woke up sick with some kind of viral or sinus

infection. Today I woke up and I lost my hearing in both my ears, my

asthma is buggin me, my sinuses hurt terribly, and I can't talk. Am

I crazy or is the xolair making me sick? Before you say anything you

should know that I was sick about 6 weeks ago and I was on

antibiotics and pregnizone. Whatever I had lasted for 4 weeks but

then I was fine. They wouldn't have given me the xolair on friday if

I wasn't. I ironically finished my last antibiotic on sunday. Is

this just a coincidence or is this a side effect? I called the drug

company and they said its possible. I called my doctor and he said

that none of his 13 patients on it have reported this. Great. I

don't know if I want the xolair if its going to make me sick every

time I take it. It's not worth it.

[Guest guest]

,

I continued to have repeated infections the first three months I was

on Xolair, not due to Xolair but b/c I couldn't get out of the

prednisone-antibiotic cycle. My immune system was weak. Like most

everyone here, I can't just catch a cold. If a cold went around the

office, within 48 hours I was on pred and antibiotics again.

There is a very small chance what you are experiencing can be

attributed to the Xolair but it is more likely that you've picked up

a bug and your system is having a hard time with that.

I hope it's not the Xolair. Keep talking with your doctor about it.

Addy

--- In , " " <cascadiaclimber@y...>

wrote:

>

>

> I just had my xolair injection on friday. I felt great saturday

and

> sunday. Monday I woke up sick with some kind of viral or sinus

> infection. Today I woke up and I lost my hearing in both my ears,

my

> asthma is buggin me, my sinuses hurt terribly, and I can't talk.

Am

> I crazy or is the xolair making me sick? Before you say anything

you

> should know that I was sick about 6 weeks ago and I was on

> antibiotics and pregnizone. Whatever I had lasted for 4 weeks but

> then I was fine. They wouldn't have given me the xolair on friday

if

> I wasn't. I ironically finished my last antibiotic on sunday. Is

> this just a coincidence or is this a side effect? I called the

drug

> company and they said its possible. I called my doctor and he

said

> that none of his 13 patients on it have reported this. Great. I

> don't know if I want the xolair if its going to make me sick every

> time I take it. It's not worth it.

>

[Guest guest]

I mentioned before that *I* found the whole adrenal glandulars to cause a

problem because of too much adrenaline in them. I'm not the only person to have

reported this

I found whole glandulars to cause *Me* anxiety. My money'd be on the NAX, if it

were me, i'd look at a cortex only supplement.

chris

>

>

> The worst is anxiety, a sort of jittery feeling, feeling itchy, uncomfortable

in my body, can't sleep (it's 2am and every time I try to sleep my mind just

whirls uncontrollably). I feel like I want to go for a run or something!!

Believe me, this is NOT normal! It's like I've got loads of energy to burn off,

I need to jump up and down or something. But it's also very jittery and anxious,

quite an unpleasant feeling.

>

> I'm thinking, could it be too much NAX? Or too much NDT? Or maybe not enough

of something else?

>

[Guest guest]

Thanks both of you for your comments. Sounds like the NAX is the culprit. I had

been doing pretty well up until the last few days, so maybe I will try halving

the dose first and see if that solves it. I'm also taking liquorice and ginseng,

which I've been taking for a couple of months now, so maybe that's kicking in

and I'm just OD'ing on adrenal stuff! Can you recommend a cortex only

supplement?

>

> I had a similar experience and then all those horrible symptoms stopped as

soon as I stopped taking the NAX.

[Ed]

[Guest guest]

Hi, yes, I take Adrenal Cortex Glandular by Nutri Meds. Its pretty expensive but

I've really looked around plus checked with my nutritionist and we cant come up

with a better quality/price/dose ratio option - if others know of one please let

me know!! There are a couple of cheaper ones e.g. Thorne Research Adrenal

Cortex, but that one is a very low dose so you would have to take a number of

those to get the same dose as the Nutri Meds one - ultimately making it work out

much more expensive.

For two years I took Allergy Research Group Adrenal Cortex, but they stopped

manufacturing it about a year ago. However, I have spoken to Nutri Link (the

company that supplies Allergy Research products to UK) and Allergy Research are

going to start making it again, although the date of when is currently unknown.

As soon as they do I will be switching back to that one, as its a fansastic

product and works out significantly cheaper than the Nutri Meds one.

As neither contain any B vitamins, you may also want to replace the b Vitamins

that are in the NAX. Again, I have asked my nutritionist about which b vit is

the best option for me and on her advice have been taking this one

http://www.allergyresearchgroup.com/Super-Vitamin-B-Complex-120-Caps-p-234.html

Super Vitamin B Complex by Allergy Research Group (try getting it from

Revital.com).

Hope that is helpful. Am sure others may have different advice/preferences!

Good luck.

> >

> > I had a similar experience and then all those horrible symptoms stopped as

soon as I stopped taking the NAX.

>

> [Ed]

>

[Guest guest]

If the symptoms started on increasing the ERFA, isn't it more likely to be the

ERFA? Those symptoms sound hyperthyroid.

I find NAX difficult to take because it contains a lot of B vitamins and they

seem to cause bladder irritation, but I haven't noticed any of the symptoms that

affected you.

My brother introduce adrenal support very slowly and carefully because he got

insomnia. He wondered whether he had a backlog of unused thyroid hormone, which

suddenly the adrenal support enabled him to make use of.

Miriam

> Hi all, can anyone help me to work out what's going on with me? I've been

taking NAX and erfa for the past few weeks and starting to feel much better.

Been taking 2 NAX in the morning, and 1/2 grain erfa in the morning, another 1/2

in the afternoon. At the weekend I raised by another 1/2 grain but stopped again

because I've started to have very odd symptoms.

>

> The worst is anxiety, a sort of jittery feeling, feeling itchy, uncomfortable

in my body, can't sleep (it's 2am and every time I try to sleep my mind just

whirls uncontrollably). I feel like I want to go for a run or something!!

Believe me, this is NOT normal! It's like I've got loads of energy to burn off,

I need to jump up and down or something. But it's also very jittery and anxious,

quite an unpleasant feeling.

>

> I'm thinking, could it be too much NAX? Or too much NDT? Or maybe not enough

of something else?

[Guest guest]

i *think* iherb.com sell them

mandimart.co.uk sell them but has limited stocks, and the price is higher than

iherb (but no vat i guess)

I'm not sure if www.revital.co.uk sells them, i think that they fall foul of the

new european vitamin laws.

chris

>

> Thanks both of you for your comments. Sounds like the NAX is the culprit. I

had been doing pretty well up until the last few days, so maybe I will try

halving the dose first and see if that solves it. I'm also taking liquorice and

ginseng, which I've been taking for a couple of months now, so maybe that's

kicking in and I'm just OD'ing on adrenal stuff! Can you recommend a cortex only

supplement?

>

> --- In thyroid treatment@

[Guest guest]

I used to take that too, good stuff!

>For two years I took Allergy Research Group Adrenal Cortex, but they stopped

manufacturing it about a year ago.

>> As neither contain any B vitamins, you may also want to replace the b

Vitamins that are in the NAX.

and just to reiterate, not eveyrone does well on high dose b vitamins. just

like not everyone does well on thyroxine, or NAX for that matter....

chris

>

> Hi, yes, I take Adrenal Cortex Glandular by Nutri Meds. Its pretty expensive

but I've really looked around plus checked with my nutritionist and we cant come

up with a better quality/price/dose ratio option - if others know of one please

let me know!! There are a couple of cheaper ones e.g. Thorne Research Adrenal

Cortex, but that one is a very low dose so you would have to take a number of

those to get the same dose as the Nutri Meds one - ultimately making it work out

much more expensive.

>

[Guest guest]

>However, I got very confused about this when I spoke to Nutri as they told me

that NAX does NOT CONTAIN ANY HORMONES. They double checked this with their

senior nutritionist practitioner in charge and she confirmed that NAX does not

contain any hormones at all and that they extract any hormones from the product.

In fact she went so far as to say that it would be illegal for them to sell it

if it contained hormones. I asked her why it does not spell this out on the

packaging of the NAX, in the wame way that it does on the Nutri Thyroid, as the

latter specicically says " hormone free " . She said that she didnt know.

In the words of Judge Judy (nearly), " I don't believe them! " It may be that it

has pro hormones or something in which convert to hormones maybe. Ross -

author of the mood cure- mentions her clients found whole adrenal glandulars too

stimulating.

chris

>

>

> However, I got very confused about this when I spoke to Nutri as they told me

that NAX does NOT CONTAIN ANY HORMONES. They double checked this with their

senior nutritionist practitioner in charge and she confirmed that NAX does not

contain any hormones at all and that they extract any hormones from the product.

In fact she went so far as to say that it would be illegal for them to sell it

if it contained hormones. I asked her why it does not spell this out on the

packaging of the NAX, in the wame way that it does on the Nutri Thyroid, as the

latter specicically says " hormone free " . She said that she didnt know.

[Guest guest]

I've asked GP to test these vits etc but she refused. She said she wants to rule

out 'everything else' first. (She's testing me for diabetes and sleep apnoea.)

I've halved the NAX and felt a bit more normal yesterday. I'll carry on playing

by ear and hopefully it will become clear soon.

Thanks for all the suggestions.

(Sorry for not snipping the message short first time! I forgot!)

Georgie

>

you need to get these supplemented because no

> matter what type or amount of thyroid hormone you are taking, if these

> levels are low, the thyroid hormone cannot be fully utilised at the cellular

> level and you will remain with symptoms of hypothyroidism.

>

> Luv - Sheila

>

[Guest guest]

Then why doesn't she rule out these minerals and vitamins first,

which would be relatively cheap and quick to do rather than sending you to a

hospital to see whether you are suffering with sleep apnoea - it is really

worrying that we are our future appears to now lie in the hands of doctors who

are concerned only with saving their surgery money.

Luv - Sheila

I've asked GP to test these vits etc but she refused. She said she wants to

rule out 'everything else' first. (She's testing me for diabetes and sleep

apnoea.)

I've halved the NAX and felt a bit more normal yesterday. I'll carry on playing

by ear and hopefully it will become clear soon.

Thanks for all the suggestions.

(Sorry for not snipping the message short first time! I forgot!)

Georgie

[Guest guest]

I know, Sheila. She basically made me feel like I was some kind of lunatic for

wanting my vits tested - as if that was some kind of far out, ridiculously rare

scenario that couldn't possibly apply to me! I will ask again, though, once the

other tests are done with.

>

> Then why doesn't she rule out these minerals and vitamins first,