Re: tough week/delurking member

[Guest guest]

--- Carol Corley <mybouvs@...> wrote:

> What an unfortunate treatment you got in your ED and

> so different from what you would have been given in

> my hospital in Florida. You would have been given

> IV Solumedrol, nebulizer treatment with albuterol

> and atrovent, probably iv fluids, probably iv

> Rocephin and/or iv Levaquin, probably oxygen, and

> depending on your vital signs, you might have been

> admitted for a day to stabilize. Then your

> treatment plan would be re-evaluated, and you would

> be sent home with appropriate prescriptions, and

> given a follow-up appointment with your doctor.

> If I would have been given 24 Ventolin puffs, they

> would probably have to admit me for tacchycardia!

> Good luck, hope you get your Xolaire approved.

> Carol

Piggy banking onto Carol's post...

24 ventolin puffs? Hole-lee cow. I'd be in a

straight jacket from the freaking panic attack all

that would have caused.

I can't take albutreol or ventolin. It's hard enough

keeeping my heart from tachying with the theophylline

and Duoneb.

I use my portable Omron for treatments. Duoneb (if

needed) and Intal. I'm trying out Foradil (sp?) and

am less than impressed.

It doesn't seem to be helping as much as hoped.

My insurance has okayed the Xolair, but ugly second

thoughts are rearing their heads. Everyone is worried

Xolair will be like the 2 inhibitors and the

company isn't telling about all the side affects. Of

course, I'd rather not hear about the conspiracy

stories. And I'm maxed out on all the asthma drugs I

can take.

Theophylline SR, Duoneb, Intal, Pulmicort, Singular is

what I am taking right now. The only other option is

loading up on Prednisone (no no no). I've tried

allergy shots and all the other MDIs.

I guess what I want to hear is I'm not going to drop

dead in the office after the shot (only

kidding--grin).

Did any of you have second thoughts about starting

treatment?

I see my doctor the 3rd.

Thanks to all that have read this far...

Nan

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Nan,

this med has and will change my life. I cried when I

found out it came to Canada.

No side effects at all.

__________________________________________________________

Find your next car at http://autos..ca

[Guest guest]

Hi, welcome to the group.

I had no second thoughts. My weight had ballooned from pred; I was

in a sick cycle all the time; I got everything that went aroudn the

office. I've had allergic asthma for so long. I talked it over

with my husband and said, " there seem to be no apparent long term

riks, but I don't care if I get cancer 5, 10 years from now and it's

linked to this drug. I cannot live my life any longer. "

I LOVE Xolair. It turned my life around.

Addy

>

> > What an unfortunate treatment you got in your ED and

> > so different from what you would have been given in

> > my hospital in Florida. You would have been given

> > IV Solumedrol, nebulizer treatment with albuterol

> > and atrovent, probably iv fluids, probably iv

> > Rocephin and/or iv Levaquin, probably oxygen, and

> > depending on your vital signs, you might have been

> > admitted for a day to stabilize. Then your

> > treatment plan would be re-evaluated, and you would

> > be sent home with appropriate prescriptions, and

> > given a follow-up appointment with your doctor.

> > If I would have been given 24 Ventolin puffs, they

> > would probably have to admit me for tacchycardia!

> > Good luck, hope you get your Xolaire approved.

> > Carol

>

> Piggy banking onto Carol's post...

>

> 24 ventolin puffs? Hole-lee cow. I'd be in a

> straight jacket from the freaking panic attack all

> that would have caused.

>

> I can't take albutreol or ventolin. It's hard enough

> keeeping my heart from tachying with the theophylline

> and Duoneb.

>

> I use my portable Omron for treatments. Duoneb (if

> needed) and Intal. I'm trying out Foradil (sp?) and

> am less than impressed.

> It doesn't seem to be helping as much as hoped.

>

> My insurance has okayed the Xolair, but ugly second

> thoughts are rearing their heads. Everyone is worried

> Xolair will be like the 2 inhibitors and the

> company isn't telling about all the side affects. Of

> course, I'd rather not hear about the conspiracy

> stories. And I'm maxed out on all the asthma drugs I

> can take.

>

> Theophylline SR, Duoneb, Intal, Pulmicort, Singular is

> what I am taking right now. The only other option is

> loading up on Prednisone (no no no). I've tried

> allergy shots and all the other MDIs.

>

> I guess what I want to hear is I'm not going to drop

> dead in the office after the shot (only

> kidding--grin).

>

> Did any of you have second thoughts about starting

> treatment?

>

> I see my doctor the 3rd.

>

> Thanks to all that have read this far...

>

> Nan

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

[Guest guest]

I'm anxious about starting on Xolair because of the increased cancer

risk. BUT I've gained so much weight on steroids and in spite of just

finishing my first year on Weight Watchers, being very adherent to

the program, I haven't lost weight. The good news is I didn't gain

another 10 pounds, all in my abdomen, as I'd been doing in each of

the pre-Weight Watchers years. The steroids also bumped my already

high BP to the point that I needed 3 BP meds to control it and my

skin is a mess - I bruise unbelievably easy and get skin tears with

only trivial brushes against my arms. I also have very bad GERD

(gastric reflux)from the steroids, for which I take more mega-meds.So

I'm very ready to give Xolair a try, but I am very nervous about it.

Just waiting to receive insurance approval to start.

Also, I've received antibodies as IVIG over the years for an antibody

deficiency, had a number of very bad reactions and am worried that

something similar might happen with Xolair. Oh well, only time will

tell and I am SO tiredofsteroids!

Fran (new group member)

> >

> > > What an unfortunate treatment you got in your ED and

> > > so different from what you would have been given in

> > > my hospital in Florida. You would have been given

> > > IV Solumedrol, nebulizer treatment with albuterol

> > > and atrovent, probably iv fluids, probably iv

> > > Rocephin and/or iv Levaquin, probably oxygen, and

> > > depending on your vital signs, you might have been

> > > admitted for a day to stabilize. Then your

> > > treatment plan would be re-evaluated, and you would

> > > be sent home with appropriate prescriptions, and

> > > given a follow-up appointment with your doctor.

> > > If I would have been given 24 Ventolin puffs, they

> > > would probably have to admit me for tacchycardia!

> > > Good luck, hope you get your Xolaire approved.

> > > Carol

> >

> > Piggy banking onto Carol's post...

> >

> > 24 ventolin puffs? Hole-lee cow. I'd be in a

> > straight jacket from the freaking panic attack all

> > that would have caused.

> >

> > I can't take albutreol or ventolin. It's hard enough

> > keeeping my heart from tachying with the theophylline

> > and Duoneb.

> >

> > I use my portable Omron for treatments. Duoneb (if

> > needed) and Intal. I'm trying out Foradil (sp?) and

> > am less than impressed.

> > It doesn't seem to be helping as much as hoped.

> >

> > My insurance has okayed the Xolair, but ugly second

> > thoughts are rearing their heads. Everyone is worried

> > Xolair will be like the 2 inhibitors and the

> > company isn't telling about all the side affects. Of

> > course, I'd rather not hear about the conspiracy

> > stories. And I'm maxed out on all the asthma drugs I

> > can take.

> >

> > Theophylline SR, Duoneb, Intal, Pulmicort, Singular is

> > what I am taking right now. The only other option is

> > loading up on Prednisone (no no no). I've tried

> > allergy shots and all the other MDIs.

> >

> > I guess what I want to hear is I'm not going to drop

> > dead in the office after the shot (only

> > kidding--grin).

> >

> > Did any of you have second thoughts about starting

> > treatment?

> >

> > I see my doctor the 3rd.

> >

> > Thanks to all that have read this far...

> >

> > Nan

> >

> >

> >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005

> > http://mail.

> >

>

[Guest guest]

WElcome to the group! One of the things we do here is remind

everyone who's worried about the " cancer risks " that the numbers of

folks who got cancer in the trial studies were not statistically

greater than folks from a random sample of people not taking Xolair

AND of those folks who did get cancer following participating in the

trials, there was no way to tell if they had cancer before starting

Xolair or not. Each and every one of us has to do a cost-benefit

analysis when trying a new medical therapy, but let's face it -

could any one of us make it through chemo while living with severe

persistent asthma and taking all those drugs? No way.

Doug, our group founder, has taken more pred than I have over his

life, but I've taken a lot of it. Prior to starting Xolair, I was

doing a taper a month for almost 2 years. I had a very rough go

weening off pred in terms of my adrenal gland recovery, but after

about 4 months that was all over. I still bruise easily though.

I love living life with Xolair. I hope that it will be of as much

benefit to you as it has to most of our group. Please let us know

how you are doing with it.

Take care,

Addy

Group moderator

[Guest guest]

Thanks for the welcome and the great information, Addy. It sounds

like you've had great success with Xolair!

Fran

>

> WElcome to the group! One of the things we do here is remind

> everyone who's worried about the " cancer risks " that the numbers of

> folks who got cancer in the trial studies were not statistically

> greater than folks from a random sample of people not taking Xolair

> AND of those folks who did get cancer following participating in

the

> trials, there was no way to tell if they had cancer before starting

> Xolair or not. Each and every one of us has to do a cost-benefit

> analysis when trying a new medical therapy, but let's face it -

> could any one of us make it through chemo while living with severe

> persistent asthma and taking all those drugs? No way.

>

> Doug, our group founder, has taken more pred than I have over his

> life, but I've taken a lot of it. Prior to starting Xolair, I was

> doing a taper a month for almost 2 years. I had a very rough go

> weening off pred in terms of my adrenal gland recovery, but after

> about 4 months that was all over. I still bruise easily though.

>

> I love living life with Xolair. I hope that it will be of as much

> benefit to you as it has to most of our group. Please let us know

> how you are doing with it.

>

> Take care,

>

> Addy

> Group moderator

>