Re: Want others feedback on xolair

[Guest guest]

My situation is very similar to yours. Tubes in my ears for over

five years. Six sinus surgeries, two by world renown Kennedy

at University of Penn. Xolair has done nothing for me, two years of

use. If insurance wasn't paying, I would stop it. I don't know if

this is a direct result of Xolair, but I have lost over 20 pounds

since starting it. My other medications have not changed. Flovent,

Zyrtec, Singulair, occasional oral steriods, etc. Would be

interesting to see the amount of poeple who improved using this, and

where able to stop most medications. I have a feeling xolair is not

living up to its hype.

>

> Hi. I've been on xolair now for 11 months. I've been finding a lot

> of things it has helped and a lot of things it hasn't helped and

> then a few things that seem very bizarre. My allergist put me on

> xolair mainly because of my severe sinusitus. I had my 7th sinus

> surgery in March of 2004. We wanted to see if maybe it was possible

> it would also help my severe allergic rhinitis and maybe even clear

> up my mild asthma. So here's what happened so far...my asthma has

> strangely gotten worse. I have more frequent attacks now and I

find

> myself having to carry my rescue inhaler (abuterol) where ever I

> go. Never had to do that before. Some of my allergic symptoms

have

> dissapeared, but other have either remained the same or have gotten

> worse. I sneeze more now than I think most people do in their life

> time. Sometimes I have horrible sneezing attacks where I can keep

> snezing about 20 times. Feels like my brain is going to explode.

I

> used to get hives from my allergies, but that seems to have

> dissapeared now. My nose is about the same stuffiness and congested

> it was before, maybe slightly better, but not much. My eyes used

to

> be very irritaed and red and watery. That seems to have

deminished.

> My ears seem to be a problem though. I had tubes put in in 2004.

> They are still in there believe it or not, but I seem to get a lot

> of problems with fluid build up and hearing loss and when my

> allergies are bad, even severe pain in the ears. Here's the weird

> thing though. I have only had about 5 sinus infections since I've

> been on xolair. I used to get them every 3 weeks! And another

> bizarre thing...I haven't gotten sick at all. I work with kids and

> I also go to college. I'm around sick people all the time. before

I

> was on xolair I would be sick whether sinus infection, flu, or

cold,

> about every 2 weeks. All the doctors tell me this cold season has

> been bad, but I haven't been sick at all. I talked to my doctor

> about this. One of my doctors thinks its just a coinsidence. The

> other one says not enough about xoalir is known to know if it does

> anything for that purpose. I honestly don't think its a

> coinsidence. Has anyone else found this to be true for

themselves?

> Does xolair perhaps do something to the body's immunity to fend off

> colds, viruses, and flus?

>