Re: My pain has been____________unrelenting

[Guest guest]

citi_sue wrote:

And this thing at the base of my skull, well, it brings me to tears

when I yawn or open my mouth to eat. It just really, really, REALLY

hurts.

~~~~~

What " thing " ?

~~~~~

[Guest guest]

*thing* is the area at the base of my skull on the left side, that

brings me great pain everytime I yawn or open my mouth to eat. I

don't know " exactly " what " it " is.... so the thing I referr to is

the area of pain I have since I don't have a diagnosis of what is

going on in that area

Sue

>

> And this thing at the base of my skull, well, it brings me to tears

> when I yawn or open my mouth to eat. It just really, really,

REALLY

> hurts.

>

>

> ~~~~~

>

> What " thing " ?

>

> ~~~~~

>

[Guest guest]

What " thing " ?? I wish I knew what that thing was. The thing I

referr to is an area at the base of my skull on the Left side that

causes me great pain everytime I yawn or open my mouth to eat. So

since I don't know what it is, I refer to it as " That Thing " .

Sue

>

> I am doing just simple pool therapy, and having a hard time doing

just

> that. It's like something always has to go wrong! Now I am

walking

> lopsided because something is wrong in my back. It's like I have a

> swollen spot with an irritated nerve there, and it is driving me

nuts.

> I hate not being able to walk. And this thing at the base of my

skull,

> well, it brings me to tears when I yawn or open my mouth to eat.

It

> just really, really, REALLY hurts. I want to be able to eat

without it

> bringing me to tears, or stopping because of frustration. I can't

seem

> to get my doctor to believe me on this one.(that there is something

> wrong there at the base of my skull on the left side)

>

> I'm sorry, I'm just so frustrated today to the point of tears.

> Everything hurts so bad. I can barely even MOVE! my head with out

> pain. And I need to get ready for pool therapy tomorrow, that i

don't

> know how I am going to do. Thanks for listening, I'm having a

really

> tough evening and am just beside my self.

> sue

>

[Guest guest]

Sue,

are you talking about the tempromandibular joint (tmj)? it is the joint that

opens and closes when you open and close your mouth.

hope this helps.

lexie

[Guest guest]

Hi Lexie,

No it's not that joint. The problem area is at the " base " of my skull

at the back of my head on the left side. Not in the jaw bone or near

the jaw bone. Although I do have tmj... this is no where near that.

It is at the back of my head, near the middle, but off to the left a

little. Thats where it hurts.... I think it might be a badly

inflammed facet. Only think I can think of... I just know it hurt

pretty bad...

>

> Sue,

> are you talking about the tempromandibular joint (tmj)? it is the

joint that opens and closes when you open and close your mouth.

>

> hope this helps.

> lexie

>

>

[Guest guest]

ouch! God bless ya Sue, that's a bad place to hurt! I was fused C5 to occiput

last January and it was NOT a cakewalk from my end. My disease simply put,

allowed my head to sink down onto my neck and squeeze everything in its way.

I will be praying for you!

Lexie

[Guest guest]

citi_sue wrote:

The problem area is at the " base " of my skull at the back of my head on

the left side.

~~~~~~~

What did your diagnostic testing reveal?

~~~~~~~

[Guest guest]

Hi Pat,

I have had many MRI'S done, and I don't think they have looked at

that specific area. But I do have arthritis on the base of my skull,

and the facets are arthritic too with a lot of inflammation. Thats

all I know. I have a doctors appt on friday and I am going to talke

to him about it AGAIN. It just gets to the point now that it will

hurt if I move my head even slightly. To me it feels like there is

not enough room between what ever is hitting together. Kinda like

two sore irritated raw bruises hitting against each other. But I

need to find out what this is. It is causing me a lot of pain and

grief. It's just always " there " . And lately its highly painful, and

none of my meds are helping it. So I am at a loss....

Sue

>

> The problem area is at the " base " of my skull at the back of my

head on

> the left side.

>

>

> ~~~~~~~

>

> What did your diagnostic testing reveal?

>

> ~~~~~~~

>

[Guest guest]

Dear Lexie,

Ya know, this is so weird you mentioned something about allowing your

head to sink down onto your neck... This morning when I was putting

my make-up on, (not that I need it mind you) ha ha ha but I had

turned my head just very slightly, and at the base of my skull on the

left side, it felt just like that my skull or something slipped just

a little. And when it did, it felt like it slipped into something

that felt like a small bowl shape feeling. I know it sounds weird,

but it did feel like that. And it worsened my pain instantly and

progressed throught the day. I got to the point that that area was

so sensitive it hurt to move even the tiniest bit. I am just having

a big problem in that area, and I always end out losing my thought or

have a hard time getting my doctor to believe or understand what I am

trying to say is going on. I think I need some kind of different scan

there, but I do not know what kind of other scans there are to look

at something like that.

Does anybody know if there is such a scan that can look

at " movement " ?? Like a live real time scan to see the movement to

see maybe what is going on there? The doctors have all said that my

neck is " stable " . I feel otherwise at times. I feel movement, and

when things do move, it is hard for me to get comfortable when I try

to sleep. Maybe the plates shifting.... I don't know, I'm at a

total loss right now....

But hey, I went to pool therapy yesterday----without pain meds!-----

and I did " okay " . Didn't even take one all day or night yesterday!!

Although today was a different story.... but hey, that was some

progress huh?

Sue

>

> ouch! God bless ya Sue, that's a bad place to hurt! I was fused C5

to occiput last January and it was NOT a cakewalk from my end. My

disease simply put, allowed my head to sink down onto my neck and

squeeze everything in its way.

>

> I will be praying for you!

> Lexie

>

>

[Guest guest]

Sue,

if you ssearch on chiari institute great neck, new york, there are some

great videos on their website that might help explain what is going on in your

neck.

Good luck and God bless,

Lexie

[Guest guest]

Lexie, thank you, I will definately check it out, maybe it will give

me what I need for my dr.s appt tomorrow. That is the area that I

had my stroke too... isn't that weird?

Sue

>

> Sue,

> if you ssearch on chiari institute great neck, new york, there

are some great videos on their website that might help explain what

is going on in your neck.

>

> Good luck and God bless,

> Lexie

>

>