Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 > > Has anyone been diagnosed with this as an adult? If so, I'd like very much to hear about your treatment as I've been diagnosed with this recently. . . > > Thank-you, > > , Although, I have never heard the term Basilar Invagination, I think there is a correlation between Basilar invagination and Cervicomedullary compression and Foreman Magnum Stensosis. The latter two are not uncommon in persons with Achondroplasia. At the age of the 36, I had cervico-medullary decompression surgery, a craniectomy and lamenectomy of C1-C2, prior to surgery I had tingling in the hands, numb arms in the morning, I was falling down more, headaches, and difficulty breathing (at the time, I thought I just had a weird sore throat/cold that would not go away). Waking up in the recovery room following my surgery - I immediately noticed a big difference - I could breath, no more weird cold. I was aware of having foramen magnum stenosis for about three years prior to my surgery, it was monitored, via doctor's appt's and MRI's. I had two weeks notice before my decompression surgery. Cases vary so from person to person even among those with achondroplasia. Be sure to see a neurosurgeon who has an expertise in Achondroplasia and the Foreman Magnum region. If you have not already done so you may want to do a MEDLINE search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Has anyone experienced stuttering with Basilar Invagination? Or Dysarthria? If you've had dysarthria with Basilar Invagination, could you tell what the Dyarthria was like, did it sound like stuttering? Quote Link to comment Share on other sites More sharing options...
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