Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hi , welcome! I have a son, 17, with OCD, which all began back around age 11.5. Came on suddenly, it seemed, and about all of us here can say it really does affect the family, so you're not alone there! I'm a single mom with 3 sons. 's brothers weren't always understanding about his OCD (to put it nicely); he has a twin, not identical, and then an older brother (now 21). Regarding medication - well, some doctors just seem to have a favorite or one they are more familiar with prescribing. What you can do is read up on the different ones and see if there's 1 or 2 you'd like to try first, some doctors are OK with parent input. For instance with my son, who still (at 17!) doesn't swallow pills, he had to have a liquid so that narrowed our choices down. Some medications can put on weight, like I think Paxil (Paroxetine) is the worst for that. And seems like one is more " activating " than the others; can't recall which. The OCD Foundation website here has information on medication: http://www.ocfoundation.org/ocd-medication-children.html Wish I had more time, but wanted to say " hi " and " welcome " ! I'm glad you found us! (North Carolina) > > Hi everyone! > > I am soooo glad to have found this group. I've been looking around > and it seems like the perfect place for me right now. > > My daughter is 9 years old. She has always had little " quirks " about > her. In the past 4-5 months she has developed tics and I have been > trying to get her help since then. We finally have an appointment > next week with a child psykiatrist. (I live in Sweden and with > socialized medicine there are waiting lists for just about > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hello , I have a daughter that is 9 years also. This is my first time responding to anyone. She was diagnosed last April after she developed a disturbing tick after the birth of our fourth child. She has always had " things " that worried us. Doctor after doctor told us she was just a difficult child, even manipulative. One of her teachers told us she thought she was allergic to blue die! We've heard it all. The tick was the urning point for us. I went to her school with my concerns and the team of teachers and therapists we met with became a life saving force for us. Like you, we found relief in a diagnosis. After months of cognitive therapy it became clear we had to try meds. She was suffering so much, our whole family was. To medicate or not, it's sort of a journey you go on (at least for us). We had to come to a place of acceptance; we had to be ready to take that step. After we made the decision to try 5MGS of fluoxetine I went home and had myself a good cry. Then we held our breath and waited with much trepidation. To our delight, in a matter of 3 days we noticed a less anxious and happier child. The tools she was being taught in therapy really started to take hold. For our daughter the meds have made a huge difference. It's still a struggle for her. But we're all doing better at managing it all. I wish you luck. (Het) > > Hi everyone! > > I am soooo glad to have found this group. I've been looking around > and it seems like the perfect place for me right now. > > My daughter is 9 years old. She has always had little " quirks " about > her. In the past 4-5 months she has developed tics and I have been > trying to get her help since then. We finally have an appointment > next week with a child psykiatrist. (I live in Sweden and with > socialized medicine there are waiting lists for just about > everything). Supposedly someone specializing in childhood ocd and > tourettes. I'm planning on compiling a list of all the symtoms my > daughter has and reading some of the postings here made me realize > that a lot of things she is all about are really symptoms of ocd or > tourettes!!! I didn't even KNOW! > > I am so scared and upset, but I am also hopeful. Finally, WE will be > getting help, this has been affecting the whole family. We are a > total mess. One of the things I'm scared about are the medications. > There seem to be so many...how do they figure out just which one > will help my daughter???? Will she be a guinea pig as I was trying > to find a good AD for my depression years ago? > > I look forward to being here, giving and receiving support. This is > so very hard. > > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hi, , This group is absolutely wonderful! The other night our son (14) was in crisis and while my husband took him out of the house for a car ride to try to calm him down, I posted a message asking about sleep problems and within minutes people in the group were offering suggestions and comfort. As far as meds go, I don't think any parent wants to put their child on them, but in our case it came to a point where there was no question our son was suffering. It's been about 1.5 years and we are still trying to find the right med(s), but he is a severe case. I'm sure many people have had great luck right away. It's just that the med thing is more of an art than a science. As my son's psychiatrist said, if he could put his finger on the med that would help him, of course he would. Just the nature of the illness and the meds, unfortunately. Best of luck to you. Patty > > Hi everyone! > > I am soooo glad to have found this group. I've been looking around > and it seems like the perfect place for me right now. > > My daughter is 9 years old. She has always had little " quirks " about > her. In the past 4-5 months she has developed tics and I have been > trying to get her help since then. We finally have an appointment > next week with a child psykiatrist. (I live in Sweden and with > socialized medicine there are waiting lists for just about > everything). Supposedly someone specializing in childhood ocd and > tourettes. I'm planning on compiling a list of all the symtoms my > daughter has and reading some of the postings here made me realize > that a lot of things she is all about are really symptoms of ocd or > tourettes!!! I didn't even KNOW! > > I am so scared and upset, but I am also hopeful. Finally, WE will be > getting help, this has been affecting the whole family. We are a > total mess. One of the things I'm scared about are the medications. > There seem to be so many...how do they figure out just which one > will help my daughter???? Will she be a guinea pig as I was trying > to find a good AD for my depression years ago? > > I look forward to being here, giving and receiving support. This is > so very hard. > > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hi, , This group is absolutely wonderful! The other night our son (14) was in crisis and while my husband took him out of the house for a car ride to try to calm him down, I posted a message asking about sleep problems and within minutes people in the group were offering suggestions and comfort. As far as meds go, I don't think any parent wants to put their child on them, but in our case it came to a point where there was no question our son was suffering. It's been about 1.5 years and we are still trying to find the right med(s), but he is a severe case. I'm sure many people have had great luck right away. It's just that the med thing is more of an art than a science. As my son's psychiatrist said, if he could put his finger on the med that would help him, of course he would. Just the nature of the illness and the meds, unfortunately. Best of luck to you. Patty > > Hi everyone! > > I am soooo glad to have found this group. I've been looking around > and it seems like the perfect place for me right now. > > My daughter is 9 years old. She has always had little " quirks " about > her. In the past 4-5 months she has developed tics and I have been > trying to get her help since then. We finally have an appointment > next week with a child psykiatrist. (I live in Sweden and with > socialized medicine there are waiting lists for just about > everything). Supposedly someone specializing in childhood ocd and > tourettes. I'm planning on compiling a list of all the symtoms my > daughter has and reading some of the postings here made me realize > that a lot of things she is all about are really symptoms of ocd or > tourettes!!! I didn't even KNOW! > > I am so scared and upset, but I am also hopeful. Finally, WE will be > getting help, this has been affecting the whole family. We are a > total mess. One of the things I'm scared about are the medications. > There seem to be so many...how do they figure out just which one > will help my daughter???? Will she be a guinea pig as I was trying > to find a good AD for my depression years ago? > > I look forward to being here, giving and receiving support. This is > so very hard. > > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 It is a tough decision with meds - I know when we first went on them I spent a few nights crying wondering if I was doing the right thing, come a couple of weeks later I never looked back. For it was necessary, he just could not and can not cope without them. Having said that it was trial and error till we found the right ones, well the ones that worked the best so far. How do I cope, I don't think I do very well, but then other people always say how do you do it....... I can yell and scream as good as my son LOL. But now I try to take myself away from the situation providing no-one is in danger for 5 or 10 minutes until I can calm myself down. It is hard on his twin sister as she is a " yuck " unless he is having a really good day then she is ok, but those days are few and far between. Anyway welcome to the group and good luck Jaxx (New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 _____ Another question I have is how your families are? This affects all of us. My son, 11, is totally stressed out by his sister not feeling well. I'm afraid that he is also developing symptoms. I know that I can lose control sometimes. It scares me, but I get so upset and irritated and scream even louder than my daughter does...sometimes. What do you do to help yourself cope? It's nice to hear that you all lose it sometimes. I find that yelling is the only way to get Elise to STOP sometimes. Everything I've been taught these past months tells me to remain calm, but sometimes I feel I need to stronghold the OCD when it's so obviously controlling my daughter. I find that telling her that I'm mad at the OCD and not her is comforting to both of us. She is simply blinded by it sometimes. I still find her behavior so hard to understand. She can be so scary to my other children at times; my 8 year old daughter feels the brunt of it. They are only 18 months apart and very close but when Elise is in the thick of one of her " fits " , it's most often Sage who gets caught in the cross fire. We have had talks with Sage about OCD, she's come to therapy with us and has learned how to help her sister when she can and how to get out of the way (so she doesn't get hurt) when she needs to. Our whole family unit has had to learn how to cope and help Elise with the OCD. IT'S SO DRAINING on my family. We recently joined a support group for parents with children with anxiety. It helps a bit but we are the only parents dealing with OCD in the group. The other parents just can't understand what we go through every day. One of the ways I'm coping with OCD is to reach out to all of you. I need understanding from others who KNOW. A question for all of you. Do any of your children have Textile issues that go along with the OCD? My daughter suffers greatly from Textile Dysfunction and cannot tolerate certain types of clothing touching her skin. Finding new shoes can be a nightmare! Also my daughters sleep is still suffering. We need to medicate her at night so she can sleep, otherwise she's up all night and (very distraught). I'm wondering when if at all will this get better for her? TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi , I think all of our families are totally stressed out! My 11 yr old dd just doesn't seem to understand her sister's(10) behavior. I have bought her books and talked to her over and over. She just can't understand why flips out over everything. My 11 yr old will instigate and make things much worse. I wish she could learn to just get out of her way when she goes off. I too sometimes just " lose it and yell and scream " , than I feel awful afterwards and cry myself to sleep. This is all very draining!!!!!!!! What we all have been dealt is not easy! This group has definitely been my lifesaver! Both my daughter and son(5) have sensory integration as well as ocd. It seems to go hand in hand for many children.I think that was my first sign that something was wrong with my son. What does your dd take for sleep? Mine takes clonidine. It works well. Hugs to you Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi , My 12 year old daughter has textile issues. There are certain types of textures that she just cannot tolerate. It was worse when she was younger, so maybe as she is maturing she is handling it better. Our whole family is affected also. And yes, I lose control sometimes. I have screamed louder than her just so she will hear me. It affects my other two children, too. My 16 and 8 year old leave for school before does, so that has truly been a blessing for them. We have school issues. She was just put on homebound status. I'm sad, but there is a bit of relief. We have been dealing with her not wanted to go to school for 4 long years. Just hang in there and keep looking up. God bless, Becky *Oh yeah, welcome!! Ballard <hlballard@...> wrote: _____ Another question I have is how your families are? This affects all of us. My son, 11, is totally stressed out by his sister not feeling well. I'm afraid that he is also developing symptoms. I know that I can lose control sometimes. It scares me, but I get so upset and irritated and scream even louder than my daughter does...sometimes. What do you do to help yourself cope? It's nice to hear that you all lose it sometimes. I find that yelling is the only way to get Elise to STOP sometimes. Everything I've been taught these past months tells me to remain calm, but sometimes I feel I need to stronghold the OCD when it's so obviously controlling my daughter. I find that telling her that I'm mad at the OCD and not her is comforting to both of us. She is simply blinded by it sometimes. I still find her behavior so hard to understand. She can be so scary to my other children at times; my 8 year old daughter feels the brunt of it. They are only 18 months apart and very close but when Elise is in the thick of one of her " fits " , it's most often Sage who gets caught in the cross fire. We have had talks with Sage about OCD, she's come to therapy with us and has learned how to help her sister when she can and how to get out of the way (so she doesn't get hurt) when she needs to. Our whole family unit has had to learn how to cope and help Elise with the OCD. IT'S SO DRAINING on my family. We recently joined a support group for parents with children with anxiety. It helps a bit but we are the only parents dealing with OCD in the group. The other parents just can't understand what we go through every day. One of the ways I'm coping with OCD is to reach out to all of you. I need understanding from others who KNOW. A question for all of you. Do any of your children have Textile issues that go along with the OCD? My daughter suffers greatly from Textile Dysfunction and cannot tolerate certain types of clothing touching her skin. Finding new shoes can be a nightmare! Also my daughters sleep is still suffering. We need to medicate her at night so she can sleep, otherwise she's up all night and (very distraught). I'm wondering when if at all will this get better for her? TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 > > , ocd does affect the whole family but the good news is there is help for that too. My dd, Bre(15) has ocd. We went to family counseling to learn about the disorder and to help learn coping skills. My son was acting up and needed to learn how to treat his sister and how to cope himself. I also keep a journal of my feelings and take time out for me.I have been on meds myself in the past and seen a therapist to sort out my negative thoughts. I felt helpless and alone. Now that I understand and accept ocd, it is much easier. As far as when will all this get better...we had a terrible year and then things finally mellowed out. Now there are ups and downs but the worst seems to be over. Alot of hard work on Bre's part and riding out the anxiety was the key. So there is hope too for the sufferer and family. When I lose control, I shake it off and move on. I know I can't be perfect all the time. So hang in there and keep posting here. It does help reading and talking to people who understand ocd! (Hugs) Sandy > > > > _____ > > Another question I have is how your families are? > > > > This affects all of us. My son, 11, is totally stressed out by his sister > not feeling well. I'm afraid that he is also developing symptoms. I know > that I can lose control sometimes. It scares me, but I get so upset and > irritated and scream even louder than my daughter does...sometimes. What do > you do to help yourself cope? > > > > It's nice to hear that you all lose it sometimes. I find that yelling is the > only way to get Elise to STOP sometimes. Everything I've been taught these > past months tells me to remain calm, but sometimes I feel I need to > stronghold the OCD when it's so obviously controlling my daughter. I find > that telling her that I'm mad at the OCD and not her is comforting to both > of us. She is simply blinded by it sometimes. > > > > I still find her behavior so hard to understand. She can be so scary to my > other children at times; my 8 year old daughter feels the brunt of it. They > are only 18 months apart and very close but when Elise is in the thick of > one of her " fits " , it's most often Sage who gets caught in the cross fire. > We have had talks with Sage about OCD, she's come to therapy with us and has > learned how to help her sister when she can and how to get out of the way > (so she doesn't get hurt) when she needs to. Our whole family unit has had > to learn how to cope and help Elise with the OCD. > > > > IT'S SO DRAINING on my family. > > > > We recently joined a support group for parents with children with anxiety. > It helps a bit but we are the only parents dealing with OCD in the group. > The other parents just can't understand what we go through every day. One of > the ways I'm coping with OCD is to reach out to all of you. I need > understanding from others who KNOW. > > > > A question for all of you. Do any of your children have Textile issues that > go along with the OCD? My daughter suffers greatly from Textile Dysfunction > and cannot tolerate certain types of clothing touching her skin. Finding new > shoes can be a nightmare! > > > > Also my daughters sleep is still suffering. We need to medicate her at night > so she can sleep, otherwise she's up all night and (very distraught). I'm > wondering when if at all will this get better for her? > > > > TX > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Judy, She was on clonidine but complained of dry mouth. Her doctor said that is not a common complaint but it was real for her and all she could think of, so sleep was nonexistent coupled with much anxiety. After that we went back to using allergy medicine (Diphenhydramine hydrochloride 25 mg). It's not perfect but, coupled with reading seems to make her tired enough so the thoughts don't plague her sleep. Still, I would like to see a day when just sleep comes. I still hate giving her meds on a daily basis. But it helps so I have to accept it as part of our lives. Have you ever explored occupational therapy for sensory integration? It has recently been suggested by Elise's therapist. We have asked the school to make it part of her 504 plan (we have just started the process of setting up that up). We are also having her evaluated for any other learning difficulties. It's hard to tell if her mind is just clouded by the OCD and anxiety or if she may have mild learning difficulties that need to be defined. Everyone agrees she is a sharp child but some pieces seem to be out of place. I was good to hear from you. Thank you so much! _____ From: [mailto: ] On Behalf Of jchabot Sent: Wednesday, November 08, 2006 8:41 AM Subject: RE: Re: I'm new here too! Hi , I think all of our families are totally stressed out! My 11 yr old dd just doesn't seem to understand her sister's(10) behavior. I have bought her books and talked to her over and over. She just can't understand why flips out over everything. My 11 yr old will instigate and make things much worse. I wish she could learn to just get out of her way when she goes off. I too sometimes just " lose it and yell and scream " , than I feel awful afterwards and cry myself to sleep. This is all very draining!!!!!!!! What we all have been dealt is not easy! This group has definitely been my lifesaver! Both my daughter and son(5) have sensory integration as well as ocd. It seems to go hand in hand for many children.I think that was my first sign that something was wrong with my son. What does your dd take for sleep? Mine takes clonidine. It works well. Hugs to you Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 My dd, Abby, is only 5, and her symptoms are pretty light compared to some. Her older brother is almost 17, and just sees her as she is, this is just how she is, she has quirks as we all do. He does tease her sometimes, which upsets me. This isnt anything she can help or just not do. Her younger sister is 3 1/2 and I do worry about her imitating a lot of Abby's issues, and wonder how do I know if that is all it is, or if she really is showing signs. My dh doesnt see most of it, most of it is me. I am here with her all the time and deal with her during times of stress, so I get to deal with most of it. He sees some, but claims he tells her to knock it off and she does. This group is a great way to cope. It is so wonderful to know I am not alone, my child is not alone, and that other people understand. Sharon SV: Re: I'm new here too! Thank you ALL, for your welcome! I'm reading up on everything now and feel I will be well prepared for our initial appointment next Wednesday. I now have no doubt in my mind that my daughter suffers from OCD. I will make a list of all symtoms, I will be calm and I will get her the help she needs. It looks like a long wait till things will start calming down and I will work on that also. Another question I have is how your families are? This affects all of us. My son, 11, is totally stressed out by his sister not feeling well. I'm afraid that he is also developing symtoms. I know that I can lose control sometimes. It scares me, but I get so upset and irritated and scream even louder than my daughter does...sometimes. What do you do to help yourself cope? Hugs, <@...> skrev: Hi , welcome! I have a son, 17, with OCD, which all began back around age 11.5. Came on suddenly, it seemed, and about all of us here can say it really does affect the family, so you're not alone there! I'm a single mom with 3 sons. 's brothers weren't always understanding about his OCD (to put it nicely); he has a twin, not identical, and then an older brother (now 21). Regarding medication - well, some doctors just seem to have a favorite or one they are more familiar with prescribing. What you can do is read up on the different ones and see if there's 1 or 2 you'd like to try first, some doctors are OK with parent input. For instance with my son, who still (at 17!) doesn't swallow pills, he had to have a liquid so that narrowed our choices down. Some medications can put on weight, like I think Paxil (Paroxetine) is the worst for that. And seems like one is more " activating " than the others; can't recall which. The OCD Foundation website here has information on medication: http://www.ocfoundation.org/ocd-medication-children.html Wish I had more time, but wanted to say " hi " and " welcome " ! I'm glad you found us! (North Carolina) > > Hi everyone! > > I am soooo glad to have found this group. I've been looking around > and it seems like the perfect place for me right now. > > My daughter is 9 years old. She has always had little " quirks " about > her. In the past 4-5 months she has developed tics and I have been > trying to get her help since then. We finally have an appointment > next week with a child psykiatrist. (I live in Sweden and with > socialized medicine there are waiting lists for just about > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Yes, we have issues with clothing. She has lots of sensory issues, clothing being one of them. She has gotten MUCH better about that, though, as her OCD and anxiety have gotten better. She actually wears tights and jeans now, something she had never worn before! Shopping is awful, though. She needs to try everything on, or it isnt even worth buying it for her. Sharon RE: Re: I'm new here too! _____ Another question I have is how your families are? This affects all of us. My son, 11, is totally stressed out by his sister not feeling well. I'm afraid that he is also developing symptoms. I know that I can lose control sometimes. It scares me, but I get so upset and irritated and scream even louder than my daughter does...sometimes. What do you do to help yourself cope? It's nice to hear that you all lose it sometimes. I find that yelling is the only way to get Elise to STOP sometimes. Everything I've been taught these past months tells me to remain calm, but sometimes I feel I need to stronghold the OCD when it's so obviously controlling my daughter. I find that telling her that I'm mad at the OCD and not her is comforting to both of us. She is simply blinded by it sometimes. I still find her behavior so hard to understand. She can be so scary to my other children at times; my 8 year old daughter feels the brunt of it. They are only 18 months apart and very close but when Elise is in the thick of one of her " fits " , it's most often Sage who gets caught in the cross fire. We have had talks with Sage about OCD, she's come to therapy with us and has learned how to help her sister when she can and how to get out of the way (so she doesn't get hurt) when she needs to. Our whole family unit has had to learn how to cope and help Elise with the OCD. IT'S SO DRAINING on my family. We recently joined a support group for parents with children with anxiety. It helps a bit but we are the only parents dealing with OCD in the group. The other parents just can't understand what we go through every day. One of the ways I'm coping with OCD is to reach out to all of you. I need understanding from others who KNOW. A question for all of you. Do any of your children have Textile issues that go along with the OCD? My daughter suffers greatly from Textile Dysfunction and cannot tolerate certain types of clothing touching her skin. Finding new shoes can be a nightmare! Also my daughters sleep is still suffering. We need to medicate her at night so she can sleep, otherwise she's up all night and (very distraught). I'm wondering when if at all will this get better for her? TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 , I cope by using the support of this group and by trying to have as normal a life as possible. But it's definitely a day by day (sometimes minute by minute) life. When this all first began with meds/docs for my son (14 y/o) about 1.5 years ago, I had a very difficult time accepting it. As much as I hate to admit it, I think I had kind of a selfish response thinking " how could this happen to me? " I've learned a lot as time has gone on and now my attitude is more focused on relentlessly searching for help for my son to ease his suffering and make his life better. I've pretty much stopped feeling sorry for myself, but it took me a long time. I think it's ok to let yourself respond however you respond and not feel bad/guilty about that in addition to everything else. Now when I find myself thinking negative, nonproductive thoughts and worrying about the future, I TRY to re-focus on a positive thought, such as there are new medicines coming out all the time, lots of research being done on ocd, people with ocd can and do lead happy, productive lives, etc. Best of luck to you, Patty > > > > > > _____ > > Another question I have is how your families are? > > > > This affects all of us. My son, 11, is totally stressed out by his sister > not feeling well. I'm afraid that he is also developing symptoms. I know > that I can lose control sometimes. It scares me, but I get so upset and > irritated and scream even louder than my daughter does...sometimes. What do > you do to help yourself cope? > > > > It's nice to hear that you all lose it sometimes. I find that yelling is the > only way to get Elise to STOP sometimes. Everything I've been taught these > past months tells me to remain calm, but sometimes I feel I need to > stronghold the OCD when it's so obviously controlling my daughter. I find > that telling her that I'm mad at the OCD and not her is comforting to both > of us. She is simply blinded by it sometimes. > > > > I still find her behavior so hard to understand. She can be so scary to my > other children at times; my 8 year old daughter feels the brunt of it. They > are only 18 months apart and very close but when Elise is in the thick of > one of her " fits " , it's most often Sage who gets caught in the cross fire. > We have had talks with Sage about OCD, she's come to therapy with us and has > learned how to help her sister when she can and how to get out of the way > (so she doesn't get hurt) when she needs to. Our whole family unit has had > to learn how to cope and help Elise with the OCD. > > > > IT'S SO DRAINING on my family. > > > > We recently joined a support group for parents with children with anxiety. > It helps a bit but we are the only parents dealing with OCD in the group. > The other parents just can't understand what we go through every day. One of > the ways I'm coping with OCD is to reach out to all of you. I need > understanding from others who KNOW. > > > > A question for all of you. Do any of your children have Textile issues that > go along with the OCD? My daughter suffers greatly from Textile Dysfunction > and cannot tolerate certain types of clothing touching her skin. Finding new > shoes can be a nightmare! > > > > Also my daughters sleep is still suffering. We need to medicate her at night > so she can sleep, otherwise she's up all night and (very distraught). I'm > wondering when if at all will this get better for her? > > > > TX > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 My son also has textile issues but he also has Aspergers (finally confirmed) and will not eat certain foods if they are not the right texture - will only ever wear one type of shoe (now we go into the smallest adult size and am not sure if I can get the same shoe . Having said that he now wears jandals - first type of different shoe in years LOL. Clothes are elastic waisted shorts and a certain kind etc..... I am not sure how much is OCD, Aspergers - I have given up trying to figure it out where what quirks belong with what. He also has ADHD and Tourette's. Cheers Jaxx (New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 welcome - I've been on here a while and must admit it's nice to hear so many today say they lose it too!! I hate it when I do and sometimes it's often - I know it works better when I do the right thing but when push comes to shove and there are 3 younger (who are VERY understanding) but I think even if it were 7 yo.o dd and I - I'd still flip - especially if she's not fighting - then it just feels like me against her and not us against OCD - so frustrating -everyone here is wonderful!!!! welcome again Quoting Ballard <hlballard@...>: > > > > > _____ > > Another question I have is how your families are? > > > > This affects all of us. My son, 11, is totally stressed out by his sister > not feeling well. I'm afraid that he is also developing symptoms. I know > that I can lose control sometimes. It scares me, but I get so upset and > irritated and scream even louder than my daughter does...sometimes. What do > you do to help yourself cope? > > > > It's nice to hear that you all lose it sometimes. I find that yelling is the > only way to get Elise to STOP sometimes. Everything I've been taught these > past months tells me to remain calm, but sometimes I feel I need to > stronghold the OCD when it's so obviously controlling my daughter. I find > that telling her that I'm mad at the OCD and not her is comforting to both > of us. She is simply blinded by it sometimes. > > > > I still find her behavior so hard to understand. She can be so scary to my > other children at times; my 8 year old daughter feels the brunt of it. They > are only 18 months apart and very close but when Elise is in the thick of > one of her " fits " , it's most often Sage who gets caught in the cross fire. > We have had talks with Sage about OCD, she's come to therapy with us and has > learned how to help her sister when she can and how to get out of the way > (so she doesn't get hurt) when she needs to. Our whole family unit has had > to learn how to cope and help Elise with the OCD. > > > > IT'S SO DRAINING on my family. > > > > We recently joined a support group for parents with children with anxiety. > It helps a bit but we are the only parents dealing with OCD in the group. > The other parents just can't understand what we go through every day. One of > the ways I'm coping with OCD is to reach out to all of you. I need > understanding from others who KNOW. > > > > A question for all of you. Do any of your children have Textile issues that > go along with the OCD? My daughter suffers greatly from Textile Dysfunction > and cannot tolerate certain types of clothing touching her skin. Finding new > shoes can be a nightmare! > > > > Also my daughters sleep is still suffering. We need to medicate her at night > so she can sleep, otherwise she's up all night and (very distraught). I'm > wondering when if at all will this get better for her? > > > > TX > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi , My daughter used to be on the benadryl for sleep also, but it was to the point she needed 4 tsps to sleep so we had to try other avenues. I hate having my kids on meds also, but the sleep deprivation alone is a major problem. I'm glad that it's working for your daughter because at least the benadryl is fairly safe. I did have my dd take occupational therapy, but unfortunately it didn't help her sensory issues. I have heard it does wonders for others though. Have you had a neuropsychological evaluation done on your dd? We found out sooo much from having that done. My daughter is very intelligent, but has a difficult time with the reading due to her ocd. She will count syllables in her head while reading , so than she doesn't comprehend what she's read. I wish you luck! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hello Judy, Thank you for your reply. It's so good to be part of this group. _____ From: [mailto: ] On Behalf Of jchabot Sent: Wednesday, November 08, 2006 9:27 PM Subject: RE: Re: I'm new here too! Hi , My daughter used to be on the benadryl for sleep also, but it was to the point she needed 4 tsps to sleep so we had to try other avenues. I hate having my kids on meds also, but the sleep deprivation alone is a major problem. I'm glad that it's working for your daughter because at least the benadryl is fairly safe. I did have my dd take occupational therapy, but unfortunately it didn't help her sensory issues. I have heard it does wonders for others though. Have you had a neuropsychological evaluation done on your dd? We found out sooo much from having that done. My daughter is very intelligent, but has a difficult time with the reading due to her ocd. She will count syllables in her head while reading , so than she doesn't comprehend what she's read. I wish you luck! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 My dd did OT for sensory and it worked very well on her. She still has some issues, but not nearly as bad as they were before OT. I am going to work on making a good sensory space for her in our house. Her preschool teacher showed me a room they use full of sensory stuff and she loves it! Sharon RE: Re: I'm new here too! Hi , My daughter used to be on the benadryl for sleep also, but it was to the point she needed 4 tsps to sleep so we had to try other avenues. I hate having my kids on meds also, but the sleep deprivation alone is a major problem. I'm glad that it's working for your daughter because at least the benadryl is fairly safe. I did have my dd take occupational therapy, but unfortunately it didn't help her sensory issues. I have heard it does wonders for others though. Have you had a neuropsychological evaluation done on your dd? We found out sooo much from having that done. My daughter is very intelligent, but has a difficult time with the reading due to her ocd. She will count syllables in her head while reading , so than she doesn't comprehend what she's read. I wish you luck! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 I was in auto accident in Dec. 06, In May 07 I had Anterior Discectomy and Fusion of C-4 through C-7. I also have congenital spinal stenosis that is worsening and C-3 is bulging. After my fusion I felt good, no pain. Then in Dec. 07 felt a pop in my neck and the pain gets worse all of the time. Pain has gone not only down my right arm, but now is going down my left arm too! My right hand is stiffening again and some days pain in some of my fingers. My Neurosurgeon released me in May 08, told me if it worsens to contact my GP or Ortho. Went to see new Ortho this last week, my old Ortho took leave of absence. New Ortho has mentioned numerous treatments. Not sure what he's going to try first, wants my Gastro to do a swallow test again before putting me on steroids. Quote Link to comment Share on other sites More sharing options...
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