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<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#contentColumn> Skip secondary menu ,

I wanted to try and answer your questions so did some research on TM.....it

seems like most people will have 1 occurrence and will recover....left with

either no problems or some problems.

The only way a patient can have a procedure without a DR ordering it is to

be a CASH PAY patient. Otherwise, you can not get it done without DR's

orders.

Why do you think that your doctor sent a note to the neuro...and what info

puzzled you? Certainly you can ask for copies of your records BUT you will

have to pay for them....depending on the state in mine there is a 5.00

charge and then so many cents a page. Most records have cost me 30 to 50

dollars.

Are you concerned that you have MS? There are signs and symptoms that lead

a dr to order a MRI...with out the presenting signs there would be no reason

for the dr to order the test.

Why did you go to the neuro?

Deb RN

What is transverse myelitis?

Transverse myelitis is a neurological disorder caused by inflammation across

both sides of one level, or segment, of the spinal cord. The term myelitis

refers to inflammation of the spinal cord; transverse simply describes the

position of the inflammation, that is, across the width of the spinal cord.

Attacks of inflammation can damage or destroy myelin, the fatty insulating

substance that covers nerve cell fibers. This damage causes nervous system

scars that interrupt communications between the nerves in the spinal cord

and the rest of the body.

Symptoms of transverse myelitis include a loss of spinal cord function over

several hours to several weeks. What usually begins as a sudden onset of

lower back pain, muscle weakness, or abnormal sensations in the toes and

feet can rapidly progress to more severe symptoms, including paralysis,

urinary retention, and loss of bowel control. Although some patients recover

from transverse myelitis with minor or no residual problems, others suffer

permanent impairments that affect their ability to perform ordinary tasks of

daily living. Most patients will have only one episode of transverse

myelitis; a small percentage may have a recurrence.

The segment of the spinal cord at which the damage occurs determines which

parts of the body are affected. Nerves in the cervical (neck) region control

signals to the neck, arms, hands, and muscles of breathing (the diaphragm).

Nerves in the thoracic (upper back) region relay signals to the torso and

some parts of the arms. Nerves at the lumbar (mid-back) level control

signals to the hips and legs. Finally, sacral nerves, located within the

lowest segment of the spinal cord, relay signals to the groin, toes, and

some parts of the legs. Damage at one segment will affect function at that

segment and segments below it. In patients with transverse myelitis,

demyelination usually occurs at the thoracic level, causing problems with

leg movement and bowel and bladder control, which require signals from the

lower segments of the spinal cord.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

Who gets transverse myelitis?

Transverse myelitis occurs in adults and children, in both genders, and in

all races. No familial predisposition is apparent. A peak in incidence rates

(the number of new cases per year) appears to occur between 10 and 19 years

and 30 and 39 years. Although only a few studies have examined incidence

rates, it is estimated that about 1,400 new cases of transverse myelitis are

diagnosed each year in the United States, and approximately 33,000 Americans

have some type of disability resulting from the disorder.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

What causes transverse myelitis?

Researchers are uncertain of the exact causes of transverse myelitis. The

inflammation that causes such extensive damage to nerve fibers of the spinal

cord may result from viral infections, abnormal immune reactions, or

insufficient blood flow through the blood vessels located in the spinal

cord. Transverse myelitis also may occur as a complication of syphilis,

measles, Lyme disease, and some vaccinations, including those for chickenpox

and rabies. Cases in which a cause cannot be identified are called

idiopathic.

Transverse myelitis often develops following viral infections. Infectious

agents suspected of causing transverse myelitis include varicella zoster

(the virus that causes chickenpox and shingles), herpes simplex,

cytomegalovirus, Epstein-Barr, influenza, echovirus, human immunodeficiency

virus (HIV), hepatitis A, and rubella. Bacterial skin infections, middle-ear

infections (otitis media), and Mycoplasma pneumoniae (bacterial pneumonia)

have also been associated with the condition.

In post-infectious cases of transverse myelitis, immune system mechanisms,

rather than active viral or bacterial infections, appear to play an

important role in causing damage to spinal nerves. Although researchers have

not yet identified the precise mechanisms of spinal cord injury in these

cases, stimulation of the immune system in response to infection indicates

that an autoimmune reaction may be responsible. In autoimmune diseases, the

immune system, which normally protects the body from foreign organisms,

mistakenly attacks the body's own tissue, causing inflammation and, in some

cases, damage to myelin within the spinal cord.

Because some affected individuals also have autoimmune diseases such as

systemic lupus erythematosus, Sjogren's syndrome, and sarcoidosis, some

scientists suggest that transverse myelitis may also be an autoimmune

disorder. In addition, some cancers may trigger an abnormal immune response

that may lead to transverse myelitis.

An acute, rapidly progressing form of transverse myelitis sometimes signals

the first attack of multiple sclerosis (MS), however, studies indicate that

most people who develop transverse myelitis do not go on to develop MS.

Patients with transverse myelitis should nonetheless be screened for MS

because patients with this diagnosis will require different treatments.

Some cases of transverse myelitis result from spinal arteriovenous

malformations (abnormalities that alter normal patterns of blood flow) or

vascular diseases such as atherosclerosis that cause ischemia, a reduction

in normal levels of oxygen in spinal cord tissues. Ischemia can result from

bleeding (hemorrhage) within the spinal cord, blood vessel blockage or

narrowing, or other less common factors. Blood vessels bring oxygen and

nutrients to spinal cord tissues and remove metabolic waste products. When

these vessels become narrowed or blocked, they cannot deliver sufficient

amounts of oxygen-laden blood to spinal cord tissues. When a specific region

of the spinal cord becomes starved of oxygen, or ischemic, nerve cells and

fibers may begin to deteriorate relatively quickly. This damage may cause

widespread inflammation, sometimes leading to transverse myelitis. Most

people who develop the condition as a result of vascular disease are past

the age of 50, have cardiac disease, or have recently undergone a chest or

abdominal operation.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

What are the symptoms of transverse myelitis?

Transverse myelitis may be either acute (developing over hours to several

days) or subacute (developing over 1 to 2 weeks). Initial symptoms usually

include localized lower back pain, sudden paresthesias (abnormal sensations

such as burning, tickling, pricking, or tingling) in the legs, sensory loss,

and paraparesis (partial paralysis of the legs). Paraparesis often

progresses to paraplegia (paralysis of the legs and lower part of the

trunk). Urinary bladder and bowel dysfunction is common. Many patients also

report experiencing muscle spasms, a general feeling of discomfort,

headache, fever, and loss of appetite. Depending on which segment of the

spinal cord is involved, some patients may experience respiratory problems

as well.

From this wide array of symptoms, four classic features of transverse

myelitis emerge: (1) weakness of the legs and arms, (2) pain, (3) sensory

alteration, and (4) bowel and bladder dysfunction. Most patients will

experience weakness of varying degrees in their legs; some also experience

it in their arms. Initially, people with transverse myelitis may notice that

they are stumbling or dragging one foot or that their legs seem heavier than

normal. Coordination of hand and arm movements, as well as arm and hand

strength may also be compromised. Progression of the disease over several

weeks often leads to full paralysis of the legs, requiring the patient to

use a wheelchair.

Pain is the primary presenting symptom of transverse myelitis in

approximately one-third to one-half of all patients. The pain may be

localized in the lower back or may consist of sharp, shooting sensations

that radiate down the legs or arms or around the torso.

Patients who experience sensory disturbances often use terms such as

numbness, tingling, coldness, or burning to describe their symptoms. Up to

80 percent of those with transverse myelitis report areas of heightened

sensitivity to touch, such that clothing or a light touch with a finger

causes significant discomfort or pain (a condition called allodynia). Many

also experience heightened sensitivity to changes in temperature or to

extreme heat or cold.

Bladder and bowel problems may involve increased frequency of the urge to

urinate or have bowel movements, incontinence, difficulty voiding, the

sensation of incomplete evacuation, and constipation. Over the course of the

disease, the majority of people with transverse myelitis will experience one

or several of these symptoms.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

How is transverse myelitis diagnosed?

Physicians diagnose transverse myelitis by taking a medical history and

performing a thorough neurological examination. Because it is often

difficult to distinguish between a patient with an idiopathic form of

transverse myelitis and one who has an underlying condition, physicians must

first eliminate potentially treatable causes of the condition. If a spinal

cord injury is suspected, physicians seek first to rule out lesions (damaged

or abnormally functioning areas) that could cause spinal cord compression.

Such potential lesions include tumors, herniated or slipped discs, stenosis

(narrowing of the canal that holds the spinal cord), and abscesses. To rule

out such lesions and check for inflammation of the spinal cord, patients

often undergo magnetic resonance imaging (MRI), a procedure that provides a

picture of the brain and spinal cord. Physicians also may perform

myelography, which involves injecting a dye into the sac that surrounds the

spinal cord. The patient is then tilted up and down to let the dye flow

around and outline the spinal cord while X-rays are taken.

Blood tests may be performed to rule out various disorders such as systemic

lupus erythematosus, HIV infection, and vitamin B12 deficiency. In some

patients with transverse myelitis, the cerebrospinal fluid that bathes the

spinal cord and brain contains more protein than usual and an increased

number of leukocytes (white blood cells), indicating possible infection. A

spinal tap may be performed to obtain fluid to study these factors.

If none of these tests suggests a specific cause, the patient is presumed to

have idiopathic transverse myelitis.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

How is transverse myelitis treated?

As with many disorders of the spinal cord, no effective cure currently

exists for people with transverse myelitis. Treatments are designed to

manage and alleviate symptoms and largely depend upon the severity of

neurological involvement. Therapy generally begins when the patient first

experiences symptoms. Physicians often prescribe corticosteroid therapy

during the first few weeks of illness to decrease inflammation. Although no

clinical trials have investigated whether corticosteroids alter the course

of transverse myelitis, these drugs often are prescribed to reduce immune

system activity because of the suspected autoimmune mechanisms involved in

the disorder. Corticosteroid medications that might be prescribed may

include methylprednisone or dexamethasone. General analgesia will likely be

prescribed for any pain the patient may have. And bedrest is often

recommended during the initial days and weeks after onset of the disorder.

Following initial therapy, the most critical part of the treatment for this

disorder consists of keeping the patient's body functioning while hoping for

either complete or partial spontaneous recovery of the nervous system. This

may sometimes require placing the patient on a respirator. Patients with

acute symptoms, such as paralysis, are most often treated in a hospital or

in a rehabilitation facility where a specialized medical team can prevent or

treat problems that afflict paralyzed patients. Often, even before recovery

begins, caregivers may be instructed to move patients' limbs manually to

help keep the muscles flexible and strong, and to reduce the likelihood of

pressure sores developing in immobilized areas. Later, if patients begin to

recover limb control, physical therapy begins to help improve muscle

strength, coordination, and range of motion.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

What therapies are available to help patients left with permanent physical

disabilities?

Many forms of long-term rehabilitative therapy are available for people who

have permanent disabilities resulting from transverse myelitis. Medical

social workers, often affiliated with local hospitals or outpatient clinics,

are the best sources for information about treatment programs and other

resources that exist in a community. Rehabilitative therapy teaches people

strategies for carrying out activities in new ways in order to overcome,

circumvent, or compensate for permanent disabilities. Rehabilitation as yet

cannot reverse the physical damage resulting from transverse myelitis or

other forms of spinal cord injury. But it can help people, even those with

severe paralysis, become as functionally independent as possible and thereby

attain the best possible quality of life.

Commonly experienced permanent neurological deficits resulting from

transverse myelitis include severe weakness, spasticity (painful muscle

stiffness or contractions), or paralysis; incontinence; and chronic pain.

Such deficits can substantially interfere with a person's ability to carry

out everyday activities such as bathing, dressing, and performing household

tasks.

People living with permanent disability may feel a range of emotions, from

fear and sadness to frustration and anger. Such feelings are natural

responses, but they can sometimes jeopardize health and potential for

functional recovery. Those with permanent disabilities frequently experience

clinical depression. Fortunately, depression is treatable, due to the

development of a wide range of medications that can be used with

psychotherapeutic treatment.

Today, most rehabilitation programs attempt to address the emotional

dimensions along with the physical problems resulting from permanent

disability. Patients typically consult with a range of rehabilitation

specialists, who may include physiatrists (physicians specializing in

physical medicine and rehabilitation), physical therapists, occupational

therapists, vocational therapists, and mental health care professionals.

Physical Therapy: Physiatrists and physical therapists treat disabilities

that result from motor and sensory impairments. Their aim is to help

patients increase their strength and endurance, improve coordination, reduce

spasticity and muscle wasting in paralyzed limbs, and regain greater control

over bladder and bowel function through various exercises. Physiatrists and

physical therapists teach paralyzed patients techniques for using assistive

devices such as wheelchairs, canes, or braces as effectively as possible.

Paralyzed patients also learn ways to avoid developing painful pressure

sores on immobilized parts of the body, which may lead to increased pain or

systemic infection. In addition, physiatrists and physical therapists are

involved in pain management. A wide variety of drugs now exist that can

alleviate the pain that results from spinal cord injuries such as those

caused by transverse myelitis. These include nonsteroidal anti-inflammatory

drugs such as ibuprofen or naproxen; antidepressant drugs such as

amitryptyline (tricyclic) and sertraline (a selective serotonin reuptake

inhibitor); and anticonvulsant drugs such as phenytoin and gabapentine.

Occupational Therapy: Occupational therapists help patients learn new ways

of performing meaningful, self-directed, goal-oriented, everyday tasks

(occupations) such as bathing, dressing, preparing a meal, house cleaning,

engaging in arts and crafts, or gardening. They teach people how to develop

compensatory strategies, how to make changes in their homes to improve

safety (such as installing grab bars in bathrooms), how to change obstacles

in their environment that interfere with normal activity, and how to use

assistive devices.

Vocational Therapy: In addition to acquainting people with their rights as

defined under the Americans with Disabilities Act of 1990 and helping people

develop and promote work skills, vocational therapists identify potential

employers, assist in job searches, and act as mediators between employees

and employers to secure reasonable workplace accommodations.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

What is the prognosis?

Recovery from transverse myelitis usually begins within 2 to 12 weeks of the

onset of symptoms and may continue for up to 2 years. However, if there is

no improvement within the first 3 to 6 months, significant recovery is

unlikely. About one-third of people affected with transverse myelitis

experience good or full recovery from their symptoms; they regain the

ability to walk normally and experience minimal urinary or bowel effects and

paresthesias. Another one-third show only fair recovery and are left with

significant deficits such as spastic gait, sensory dysfunction, and

prominent urinary urgency or incontinence. The remaining one-third show no

recovery at all, remaining wheelchair-bound or bedridden with marked

dependence on others for basic functions of daily living. Unfortunately,

making predictions about individual cases is difficult. However, research

has shown that a rapid onset of symptoms generally results in poorer

recovery outcomes.

The majority of people with this disorder experience only one episode

although in rare cases recurrent or relapsing transverse myelitis does

occur. Some patients recover completely, then experience a relapse. Others

begin to recover, then suffer worsening of symptoms before recovery

continues. In all cases of relapse, physicians will likely investigate

possible underlying causes such as MS or systemic lupus erythematosus since

most people who experience relapse have an underlying disorder.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

What research is being done?

Within the Federal Government, the National Institute of Neurological

Disorders and Stroke (NINDS), one of the National Institutes of Health

(NIH), has primary responsibility for conducting and supporting research on

spinal cord disorders and demyelinating diseases such as transverse

myelitis. The NINDS conducts research in its laboratories at the NIH and

also supports studies through grants to major medical institutions across

the country.

NINDS researchers seek to clarify the role of the immune system in the

pathogenesis of demyelination in autoimmune diseases or disorders. Other

work focuses on strategies to repair demyelinated spinal cords including

approaches using cell transplantation. The knowledge gained from such

research should lead to a greater knowledge of the mechanisms responsible

for demyelination in transverse myelitis and may ultimately provide a means

to prevent and treat this disorder.

The NINDS also funds researchers who are using animal models of spinal cord

injury to study strategies for replacement or regeneration of spinal cord

nerve cells. The ultimate goals of these studies are to encourage the same

regeneration in humans and to restore function to paralyzed patients.

Scientists are also developing neural prostheses to help patients with

spinal cord damage compensate for lost function. These sophisticated

electrical and mechanical devices connect with the nervous system to

supplement or replace lost motor and sensory function. Neural prostheses for

spinal cord injured patients are being tested in humans.

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

Where can I get more information?

For more information on neurological disorders or research programs funded

by the National Institute of Neurological Disorders and Stroke, contact the

Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN

P.O. Box 5801

Bethesda, MD 20824

(800) 352-9424

http://www.ninds.nih.gov

Information also is available from the following organizations:

Transverse Myelitis Association

1787 Sutter Parkway

, OH 43065-8806

info@...

http://www.myelitis.org

Tel: 614-766-1806

American Chronic Pain Association (ACPA)

P.O. Box 850

Rocklin, CA 95677-0850

ACPA@...

http://www.theacpa.org

Tel: 916-632-0922 800-533-3231

Fax: 916-652-8190

Miami Project to Cure Paralysis/ Buoniconti Fund

P.O. Box 016960

R-48

Miami, FL 33101-6960

mpinfo@...

http://www.themiamiproject.org

Tel: 305-243-6001 800-STANDUP (782-6387)

Fax: 305-243-6017

National Rehabilitation Information Center (NARIC)

4200 Forbes Boulevard

Suite 202

Lanham, MD 20706-4829

naricinfo@...

http://www.naric.com

Tel: 301-459-5900/301-459-5984 (TTY) 800-346-2742

Fax: 301-562-2401

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

itis.htm#toc> top

" Transverse Myelitis Fact Sheet, " NINDS.

NIH Publication No. 01-4841

Back to Transverse

<http://www.ninds.nih.gov/disorders/transversemyelitis/transversemyelitis.ht

m> Myelitis Information Page

See a list of all <http://www.ninds.nih.gov/disorders/disorder_index.htm>

NINDS Disorders

Prepared by:

Office of Communications and Public Liaison

National Institute of Neurological Disorders and Stroke

National Institutes of Health

Bethesda, MD 20892

NINDS health-related material is provided for information purposes only and

does not necessarily represent endorsement by or an official position of the

National Institute of Neurological Disorders and Stroke or any other Federal

agency. Advice on the treatment or care of an individual patient should be

obtained through consultation with a physician who has examined that patient

or is familiar with that patient's medical history.

All NINDS-prepared information is in the public domain and may be freely

copied. Credit to the NINDS or the NIH is appreciated.

Last updated February 22, 2008

_____

National Institute of Neurological Disorders and Stroke

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From: spinal problems

[mailto:spinal problems ] On Behalf Of cathy

mccarthy

Sent: Monday, December 15, 2008 8:19 PM

spinal problems

Subject: bad Dr. appt

I had a appt with a neurologist this week. First of all, appt got screwed

up. Whether it was my fault, I heard wrong, appt. maker said it wrong...

whatever. I got there at the wrong time. I am 50 yo., first time for

everything I suppose. I DO THINK IT WAS MY FAULT!!! Ended up seeing a

different DOC, " who was kind enough to fit me in.... " That said, on with the

my " gripe " . (he was an ass...)

Doc had me do all the usual walk, talk, stand on one foot, poke here and

there type sort of things a neurologist does. I passed. After all, my

Transverse Myelitis thing happened in 1990. (Woke up paralyzed one morning

from the waist down, extreme pain set in, couldn't pee...or get out of

bed... flopped on the floor...all that and more). Well, brilliant Doc asked

me that " it happened 18 years ago are you certainly not over it yet??? " ...

WELL NOOOOO!!!! TM is something you live with not get " over " . Now I am

getting OLD, and RA, disks and things are rearing their ugly heads and

making the pain worse. I had BCBS insurance until last year. Self employed.

My premiums went from $400 to $650 when I turned 50. That is for a MONTH.

Now on Medicaid. Can I ask for an MRI??? What can a a person do to ask for a

procedure without a doctor ordering it??? It is my body??? I want to know

what it is doing??? AND I WANT TO SEE THE FILMS!!! Casn I do that?

AND, my Doc said some things to my nuerologist on the " chart " that was sent

before my appt. that puzzled me. Can I ask for that info????????????

Nuero I did not like. left the place feeling depressed and hopeless. Not a

good Dr.... do ya think???

in NH

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Share on other sites

I thought you had to have a prescription to get a test

done, wether cash or not...

Also, you do not have to pay to SEE your records, only

to get a copy. HIPPA regulations state that you can

have access to your records upon request.

---

--- Debra <i_ownaberner@...> wrote:

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#contentColumn> Skip secondary menu ,

>

> I wanted to try and answer your questions so did

> some research on TM.....it

> seems like most people will have 1 occurrence and

> will recover....left with

> either no problems or some problems.

>

>

>

> The only way a patient can have a procedure without

> a DR ordering it is to

> be a CASH PAY patient. Otherwise, you can not get

> it done without DR's

> orders.

>

>

>

> Why do you think that your doctor sent a note to the

> neuro...and what info

> puzzled you? Certainly you can ask for copies of

> your records BUT you will

> have to pay for them....depending on the state in

> mine there is a 5.00

> charge and then so many cents a page. Most records

> have cost me 30 to 50

> dollars.

>

>

>

> Are you concerned that you have MS? There are signs

> and symptoms that lead

> a dr to order a MRI...with out the presenting signs

> there would be no reason

> for the dr to order the test.

>

>

>

> Why did you go to the neuro?

>

> Deb RN

>

>

>

>

>

>

>

>

> What is transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis is a neurological disorder

> caused by inflammation across

> both sides of one level, or segment, of the spinal

> cord. The term myelitis

> refers to inflammation of the spinal cord;

> transverse simply describes the

> position of the inflammation, that is, across the

> width of the spinal cord.

> Attacks of inflammation can damage or destroy

> myelin, the fatty insulating

> substance that covers nerve cell fibers. This damage

> causes nervous system

> scars that interrupt communications between the

> nerves in the spinal cord

> and the rest of the body.

>

> Symptoms of transverse myelitis include a loss of

> spinal cord function over

> several hours to several weeks. What usually begins

> as a sudden onset of

> lower back pain, muscle weakness, or abnormal

> sensations in the toes and

> feet can rapidly progress to more severe symptoms,

> including paralysis,

> urinary retention, and loss of bowel control.

> Although some patients recover

> from transverse myelitis with minor or no residual

> problems, others suffer

> permanent impairments that affect their ability to

> perform ordinary tasks of

> daily living. Most patients will have only one

> episode of transverse

> myelitis; a small percentage may have a recurrence.

>

> The segment of the spinal cord at which the damage

> occurs determines which

> parts of the body are affected. Nerves in the

> cervical (neck) region control

> signals to the neck, arms, hands, and muscles of

> breathing (the diaphragm).

> Nerves in the thoracic (upper back) region relay

> signals to the torso and

> some parts of the arms. Nerves at the lumbar

> (mid-back) level control

> signals to the hips and legs. Finally, sacral

> nerves, located within the

> lowest segment of the spinal cord, relay signals to

> the groin, toes, and

> some parts of the legs. Damage at one segment will

> affect function at that

> segment and segments below it. In patients with

> transverse myelitis,

> demyelination usually occurs at the thoracic level,

> causing problems with

> leg movement and bowel and bladder control, which

> require signals from the

> lower segments of the spinal cord.

>

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#toc> top

>

>

> Who gets transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis occurs in adults and children,

> in both genders, and in

> all races. No familial predisposition is apparent. A

> peak in incidence rates

> (the number of new cases per year) appears to occur

> between 10 and 19 years

> and 30 and 39 years. Although only a few studies

> have examined incidence

> rates, it is estimated that about 1,400 new cases of

> transverse myelitis are

> diagnosed each year in the United States, and

> approximately 33,000 Americans

> have some type of disability resulting from the

> disorder.

>

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#toc> top

>

>

> What causes transverse myelitis?

>

>

>

>

>

>

> Researchers are uncertain of the exact causes of

> transverse myelitis. The

> inflammation that causes such extensive damage to

> nerve fibers of the spinal

> cord may result from viral infections, abnormal

> immune reactions, or

> insufficient blood flow through the blood vessels

> located in the spinal

> cord. Transverse myelitis also may occur as a

> complication of syphilis,

> measles, Lyme disease, and some vaccinations,

> including those for chickenpox

> and rabies. Cases in which a cause cannot be

> identified are called

> idiopathic.

>

> Transverse myelitis often develops following viral

> infections. Infectious

> agents suspected of causing transverse myelitis

> include varicella zoster

> (the virus that causes chickenpox and shingles),

> herpes simplex,

> cytomegalovirus, Epstein-Barr, influenza, echovirus,

> human immunodeficiency

> virus (HIV), hepatitis A, and rubella. Bacterial

> skin infections, middle-ear

> infections (otitis media), and Mycoplasma pneumoniae

> (bacterial pneumonia)

> have also been associated with the condition.

>

> In post-infectious cases of transverse myelitis,

> immune system mechanisms,

> rather than active viral or bacterial infections,

> appear to play an

> important role in causing damage to spinal nerves.

> Although researchers have

> not yet identified the precise mechanisms of spinal

> cord injury in these

> cases, stimulation of the immune system in response

> to infection indicates

> that an autoimmune reaction may be responsible. In

> autoimmune diseases, the

> immune system, which normally protects the body from

> foreign organisms,

> mistakenly attacks the body's own tissue, causing

> inflammation and, in some

>

=== message truncated ===

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Share on other sites

,

No....you can have certain radiological tests and blood tests without a

RX....actually what I think happens is the radiologist will write it if you

are cash pay, or the lab director...for instance if you want to have one of

the CT scans that predicts heart disease (insurance doesn't pay for it) all

you have to do is go in there with the money.....if you want a HIV

test....all you have to do is pay for it...if you want it to be submitted to

insurance you need a dr's order otherwise all you need is cash.

said she wanted copies.....you are absolutely right..to look at is

free

Deb

From: spinal problems

[mailto:spinal problems ] On Behalf Of

Babbitt

Sent: Monday, December 15, 2008 8:50 PM

spinal problems

Subject: RE: bad Dr. appt

I thought you had to have a prescription to get a test

done, wether cash or not...

Also, you do not have to pay to SEE your records, only

to get a copy. HIPPA regulations state that you can

have access to your records upon request.

---

--- Debra <i_ownaberner@... <mailto:i_ownaberner%40> > wrote:

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#contentColumn> Skip secondary menu ,

>

> I wanted to try and answer your questions so did

> some research on TM.....it

> seems like most people will have 1 occurrence and

> will recover....left with

> either no problems or some problems.

>

>

>

> The only way a patient can have a procedure without

> a DR ordering it is to

> be a CASH PAY patient. Otherwise, you can not get

> it done without DR's

> orders.

>

>

>

> Why do you think that your doctor sent a note to the

> neuro...and what info

> puzzled you? Certainly you can ask for copies of

> your records BUT you will

> have to pay for them....depending on the state in

> mine there is a 5.00

> charge and then so many cents a page. Most records

> have cost me 30 to 50

> dollars.

>

>

>

> Are you concerned that you have MS? There are signs

> and symptoms that lead

> a dr to order a MRI...with out the presenting signs

> there would be no reason

> for the dr to order the test.

>

>

>

> Why did you go to the neuro?

>

> Deb RN

>

>

>

>

>

>

>

>

> What is transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis is a neurological disorder

> caused by inflammation across

> both sides of one level, or segment, of the spinal

> cord. The term myelitis

> refers to inflammation of the spinal cord;

> transverse simply describes the

> position of the inflammation, that is, across the

> width of the spinal cord.

> Attacks of inflammation can damage or destroy

> myelin, the fatty insulating

> substance that covers nerve cell fibers. This damage

> causes nervous system

> scars that interrupt communications between the

> nerves in the spinal cord

> and the rest of the body.

>

> Symptoms of transverse myelitis include a loss of

> spinal cord function over

> several hours to several weeks. What usually begins

> as a sudden onset of

> lower back pain, muscle weakness, or abnormal

> sensations in the toes and

> feet can rapidly progress to more severe symptoms,

> including paralysis,

> urinary retention, and loss of bowel control.

> Although some patients recover

> from transverse myelitis with minor or no residual

> problems, others suffer

> permanent impairments that affect their ability to

> perform ordinary tasks of

> daily living. Most patients will have only one

> episode of transverse

> myelitis; a small percentage may have a recurrence.

>

> The segment of the spinal cord at which the damage

> occurs determines which

> parts of the body are affected. Nerves in the

> cervical (neck) region control

> signals to the neck, arms, hands, and muscles of

> breathing (the diaphragm).

> Nerves in the thoracic (upper back) region relay

> signals to the torso and

> some parts of the arms. Nerves at the lumbar

> (mid-back) level control

> signals to the hips and legs. Finally, sacral

> nerves, located within the

> lowest segment of the spinal cord, relay signals to

> the groin, toes, and

> some parts of the legs. Damage at one segment will

> affect function at that

> segment and segments below it. In patients with

> transverse myelitis,

> demyelination usually occurs at the thoracic level,

> causing problems with

> leg movement and bowel and bladder control, which

> require signals from the

> lower segments of the spinal cord.

>

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#toc> top

>

>

> Who gets transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis occurs in adults and children,

> in both genders, and in

> all races. No familial predisposition is apparent. A

> peak in incidence rates

> (the number of new cases per year) appears to occur

> between 10 and 19 years

> and 30 and 39 years. Although only a few studies

> have examined incidence

> rates, it is estimated that about 1,400 new cases of

> transverse myelitis are

> diagnosed each year in the United States, and

> approximately 33,000 Americans

> have some type of disability resulting from the

> disorder.

>

>

>

<http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyel

> itis.htm#toc> top

>

>

> What causes transverse myelitis?

>

>

>

>

>

>

> Researchers are uncertain of the exact causes of

> transverse myelitis. The

> inflammation that causes such extensive damage to

> nerve fibers of the spinal

> cord may result from viral infections, abnormal

> immune reactions, or

> insufficient blood flow through the blood vessels

> located in the spinal

> cord. Transverse myelitis also may occur as a

> complication of syphilis,

> measles, Lyme disease, and some vaccinations,

> including those for chickenpox

> and rabies. Cases in which a cause cannot be

> identified are called

> idiopathic.

>

> Transverse myelitis often develops following viral

> infections. Infectious

> agents suspected of causing transverse myelitis

> include varicella zoster

> (the virus that causes chickenpox and shingles),

> herpes simplex,

> cytomegalovirus, Epstein-Barr, influenza, echovirus,

> human immunodeficiency

> virus (HIV), hepatitis A, and rubella. Bacterial

> skin infections, middle-ear

> infections (otitis media), and Mycoplasma pneumoniae

> (bacterial pneumonia)

> have also been associated with the condition.

>

> In post-infectious cases of transverse myelitis,

> immune system mechanisms,

> rather than active viral or bacterial infections,

> appear to play an

> important role in causing damage to spinal nerves.

> Although researchers have

> not yet identified the precise mechanisms of spinal

> cord injury in these

> cases, stimulation of the immune system in response

> to infection indicates

> that an autoimmune reaction may be responsible. In

> autoimmune diseases, the

> immune system, which normally protects the body from

> foreign organisms,

> mistakenly attacks the body's own tissue, causing

> inflammation and, in some

>

=== message truncated ===

Link to comment
Share on other sites

Transverse Myelitis is a very nasty thing that effects children and young

adults. If not treated aggressively and quickly will leave you as a quad and on

a respirator. Or dead. It hit me at the age of 31. Kinda wrecked my life... Had

a very bad flu, got over it, but then my overactive antibodies few days later

then decided to attack my spine. Caused swelling, lot of other things too, woke

up one morning on the floor with legs not working, one arm going " dead " as well.

Flopping like a dying fish, scared me to death. Pain pain pain. Paralyzed, but

fortunately for only a week. Legs worked again, but recovery is a lifelong

thing.

No, TM never goes away, just like anything else we all have to deal with our

spine problems, that is why I sought out this list. Now, I have always had pain

on account of this. But now it is getting very bad. Yes, I read all the posts.

Most posts are not like my condition, but it is good to know others feel the

pain, fustration, anger, and just plain unhappiness as I do sometimes.

in NH

bad Dr. appt

I had a appt with a neurologist this week. First of all, appt got screwed

up. Whether it was my fault, I heard wrong, appt. maker said it wrong...

whatever. I got there at the wrong time. I am 50 yo., first time for

everything I suppose. I DO THINK IT WAS MY FAULT!!! Ended up seeing a

different DOC, " who was kind enough to fit me in.... " That said, on with the

my " gripe " . (he was an ass...)

Doc had me do all the usual walk, talk, stand on one foot, poke here and

there type sort of things a neurologist does. I passed. After all, my

Transverse Myelitis thing happened in 1990. (Woke up paralyzed one morning

from the waist down, extreme pain set in, couldn't pee...or get out of

bed... flopped on the floor...all that and more). Well, brilliant Doc asked

me that " it happened 18 years ago are you certainly not over it yet??? " ...

WELL NOOOOO!!!! TM is something you live with not get " over " . Now I am

getting OLD, and RA, disks and things are rearing their ugly heads and

making the pain worse. I had BCBS insurance until last year. Self employed.

My premiums went from $400 to $650 when I turned 50. That is for a MONTH.

Now on Medicaid. Can I ask for an MRI??? What can a a person do to ask for a

procedure without a doctor ordering it??? It is my body??? I want to know

what it is doing??? AND I WANT TO SEE THE FILMS!!! Casn I do that?

AND, my Doc said some things to my nuerologist on the " chart " that was sent

before my appt. that puzzled me. Can I ask for that info????????????

Nuero I did not like. left the place feeling depressed and hopeless. Not a

good Dr.... do ya think???

in NH

Link to comment
Share on other sites

,

I know that its not that common as in 20 years of nursing never saw.....did

see Guillain Barre.....which sounds similar to TM but I couldn't find any

correlation. Do pain meds work on the " nerve pain " ? Are you concerned that

you could have MS? My BF is going back to the neuro tomorrow his primary

thinks he has MS....during the workup they found obstructive sleep apnea,

then after an appt where the doc says I am sure there is nothing wrong and I

said humor me....lets do a MRI....we get a call 2 hours after his CT that is

spinal cord is completely compressed and he had very little spinal

fluid..... needs to see a neuro surg and go to the OR ASAP. So, the next

week he had neck surgery...they had to intubate him while awake cause they

were scared they would paralyze him when inserting the ET tube. Anyway, he

still thinks that he should have a lumbar puncture to rule out MS....I don't

think the neuro is going to....but, I am going to see if we can get the doc

to appease my BF.

, you could certainly call your primary or the neuro you just saw and

ask him to do a CT (not sure if you want one of your brain or back or

both.....if your concern is MS and you want to rule it out so you don't have

to worry about it....tell the doc that...

Another thing , you can ask all of your docs that you would appreciate

if they do their dictation in front of you, rather then waiting for you to

leave the office. That way, when you leave the office you know and

understand exactly what the DR will chart which is

SOAP and SOAPIER

S is for subjective data (what the patient reports)

O is for objective date (what the dr can see)

A is assessment (the dr's thoughts and other data

P is for plan (rx, tests treatments etc)

And some docs add

I is for intervention (anything the doc does to try and help the patient,

medications changes in diets, etc)

E is for evaluation ( when the patient returns and the doc evaluates changes

in the patients condition

R is for revision ( for example, changing drugs, prescribing new ones,

follow up labs)

My docs when writing in my medical record.......either dictate with me

present, the one actually talks out loud as he writes, the PM guy has me

fill out a sheet and that becomes my record for the visit.

I can understand your frustration......maybe there is a specialist in your

area that has expertise in the area of TM....who is aware of the long term

repercussions.

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of cathy

mccarthy

Sent: Monday, December 15, 2008 10:00 PM

spinal problems

Subject: Re: bad Dr. appt

Transverse Myelitis is a very nasty thing that effects children and young

adults. If not treated aggressively and quickly will leave you as a quad and

on a respirator. Or dead. It hit me at the age of 31. Kinda wrecked my

life... Had a very bad flu, got over it, but then my overactive antibodies

few days later then decided to attack my spine. Caused swelling, lot of

other things too, woke up one morning on the floor with legs not working,

one arm going " dead " as well. Flopping like a dying fish, scared me to

death. Pain pain pain. Paralyzed, but fortunately for only a week. Legs

worked again, but recovery is a lifelong thing.

No, TM never goes away, just like anything else we all have to deal with our

spine problems, that is why I sought out this list. Now, I have always had

pain on account of this. But now it is getting very bad. Yes, I read all the

posts. Most posts are not like my condition, but it is good to know others

feel the pain, fustration, anger, and just plain unhappiness as I do

sometimes.

in NH

bad Dr. appt

I had a appt with a neurologist this week. First of all, appt got screwed

up. Whether it was my fault, I heard wrong, appt. maker said it wrong...

whatever. I got there at the wrong time. I am 50 yo., first time for

everything I suppose. I DO THINK IT WAS MY FAULT!!! Ended up seeing a

different DOC, " who was kind enough to fit me in.... " That said, on with the

my " gripe " . (he was an ass...)

Doc had me do all the usual walk, talk, stand on one foot, poke here and

there type sort of things a neurologist does. I passed. After all, my

Transverse Myelitis thing happened in 1990. (Woke up paralyzed one morning

from the waist down, extreme pain set in, couldn't pee...or get out of

bed... flopped on the floor...all that and more). Well, brilliant Doc asked

me that " it happened 18 years ago are you certainly not over it yet??? " ...

WELL NOOOOO!!!! TM is something you live with not get " over " . Now I am

getting OLD, and RA, disks and things are rearing their ugly heads and

making the pain worse. I had BCBS insurance until last year. Self employed.

My premiums went from $400 to $650 when I turned 50. That is for a MONTH.

Now on Medicaid. Can I ask for an MRI??? What can a a person do to ask for a

procedure without a doctor ordering it??? It is my body??? I want to know

what it is doing??? AND I WANT TO SEE THE FILMS!!! Casn I do that?

AND, my Doc said some things to my nuerologist on the " chart " that was sent

before my appt. that puzzled me. Can I ask for that info????????????

Nuero I did not like. left the place feeling depressed and hopeless. Not a

good Dr.... do ya think???

in NH

Link to comment
Share on other sites

Hi, I'm new to the group, my mother has SCI C3-C-4 Incomplete. She's on Medicare

and Medicade, you have to have a prescription for anything if you are getting

Medicade to pay for it. But if you're self pay I don't know how that works. I

suppose insurance puts a  lot of restrictions on what you can and can't do. 

Shirley Vaughan

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#contentCol umn> Skip secondary menu ,

>

> I wanted to try and answer your questions so did

> some research on TM.....it

> seems like most people will have 1 occurrence and

> will recover....left with

> either no problems or some problems.

>

>

>

> The only way a patient can have a procedure without

> a DR ordering it is to

> be a CASH PAY patient. Otherwise, you can not get

> it done without DR's

> orders.

>

>

>

> Why do you think that your doctor sent a note to the

> neuro...and what info

> puzzled you? Certainly you can ask for copies of

> your records BUT you will

> have to pay for them....depending on the state in

> mine there is a 5.00

> charge and then so many cents a page. Most records

> have cost me 30 to 50

> dollars.

>

>

>

> Are you concerned that you have MS? There are signs

> and symptoms that lead

> a dr to order a MRI...with out the presenting signs

> there would be no reason

> for the dr to order the test.

>

>

>

> Why did you go to the neuro?

>

> Deb RN

>

>

>

>

>

>

>

>

> What is transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis is a neurological disorder

> caused by inflammation across

> both sides of one level, or segment, of the spinal

> cord. The term myelitis

> refers to inflammation of the spinal cord;

> transverse simply describes the

> position of the inflammation, that is, across the

> width of the spinal cord.

> Attacks of inflammation can damage or destroy

> myelin, the fatty insulating

> substance that covers nerve cell fibers. This damage

> causes nervous system

> scars that interrupt communications between the

> nerves in the spinal cord

> and the rest of the body.

>

> Symptoms of transverse myelitis include a loss of

> spinal cord function over

> several hours to several weeks. What usually begins

> as a sudden onset of

> lower back pain, muscle weakness, or abnormal

> sensations in the toes and

> feet can rapidly progress to more severe symptoms,

> including paralysis,

> urinary retention, and loss of bowel control.

> Although some patients recover

> from transverse myelitis with minor or no residual

> problems, others suffer

> permanent impairments that affect their ability to

> perform ordinary tasks of

> daily living. Most patients will have only one

> episode of transverse

> myelitis; a small percentage may have a recurrence.

>

> The segment of the spinal cord at which the damage

> occurs determines which

> parts of the body are affected. Nerves in the

> cervical (neck) region control

> signals to the neck, arms, hands, and muscles of

> breathing (the diaphragm).

> Nerves in the thoracic (upper back) region relay

> signals to the torso and

> some parts of the arms. Nerves at the lumbar

> (mid-back) level control

> signals to the hips and legs. Finally, sacral

> nerves, located within the

> lowest segment of the spinal cord, relay signals to

> the groin, toes, and

> some parts of the legs. Damage at one segment will

> affect function at that

> segment and segments below it. In patients with

> transverse myelitis,

> demyelination usually occurs at the thoracic level,

> causing problems with

> leg movement and bowel and bladder control, which

> require signals from the

> lower segments of the spinal cord.

>

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#toc> top

>

>

> Who gets transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis occurs in adults and children,

> in both genders, and in

> all races. No familial predisposition is apparent. A

> peak in incidence rates

> (the number of new cases per year) appears to occur

> between 10 and 19 years

> and 30 and 39 years. Although only a few studies

> have examined incidence

> rates, it is estimated that about 1,400 new cases of

> transverse myelitis are

> diagnosed each year in the United States, and

> approximately 33,000 Americans

> have some type of disability resulting from the

> disorder.

>

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#toc> top

>

>

> What causes transverse myelitis?

>

>

>

>

>

>

> Researchers are uncertain of the exact causes of

> transverse myelitis. The

> inflammation that causes such extensive damage to

> nerve fibers of the spinal

> cord may result from viral infections, abnormal

> immune reactions, or

> insufficient blood flow through the blood vessels

> located in the spinal

> cord. Transverse myelitis also may occur as a

> complication of syphilis,

> measles, Lyme disease, and some vaccinations,

> including those for chickenpox

> and rabies. Cases in which a cause cannot be

> identified are called

> idiopathic.

>

> Transverse myelitis often develops following viral

> infections. Infectious

> agents suspected of causing transverse myelitis

> include varicella zoster

> (the virus that causes chickenpox and shingles),

> herpes simplex,

> cytomegalovirus, Epstein-Barr, influenza, echovirus,

> human immunodeficiency

> virus (HIV), hepatitis A, and rubella. Bacterial

> skin infections, middle-ear

> infections (otitis media), and Mycoplasma pneumoniae

> (bacterial pneumonia)

> have also been associated with the condition.

>

> In post-infectious cases of transverse myelitis,

> immune system mechanisms,

> rather than active viral or bacterial infections,

> appear to play an

> important role in causing damage to spinal nerves.

> Although researchers have

> not yet identified the precise mechanisms of spinal

> cord injury in these

> cases, stimulation of the immune system in response

> to infection indicates

> that an autoimmune reaction may be responsible. In

> autoimmune diseases, the

> immune system, which normally protects the body from

> foreign organisms,

> mistakenly attacks the body's own tissue, causing

> inflammation and, in some

>

=== message truncated ===

Link to comment
Share on other sites

Just remember that when you are self pay you wind up paying a lot more because

insurance companies have allowable amounts. So of you do have insurance do all

you can to get the precert.

Thanks!

Rhonda

On Dec 16, 2008, at 2:03 AM, Shirley Vaughan <shirley_vaughan@...> wrote:

Hi, I'm new to the group, my mother has SCI C3-C-4 Incomplete. She's on Medicare

and Medicade, you have to have a prescription for anything if you are getting

Medicade to pay for it. But if you're self pay I don't know how that works. I

suppose insurance puts a lot of restrictions on what you can and can't do.

Shirley Vaughan

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#contentCol umn> Skip secondary menu ,

>

> I wanted to try and answer your questions so did

> some research on TM.....it

> seems like most people will have 1 occurrence and

> will recover....left with

> either no problems or some problems.

>

>

>

> The only way a patient can have a procedure without

> a DR ordering it is to

> be a CASH PAY patient. Otherwise, you can not get

> it done without DR's

> orders.

>

>

>

> Why do you think that your doctor sent a note to the

> neuro...and what info

> puzzled you? Certainly you can ask for copies of

> your records BUT you will

> have to pay for them....depending on the state in

> mine there is a 5.00

> charge and then so many cents a page. Most records

> have cost me 30 to 50

> dollars.

>

>

>

> Are you concerned that you have MS? There are signs

> and symptoms that lead

> a dr to order a MRI...with out the presenting signs

> there would be no reason

> for the dr to order the test.

>

>

>

> Why did you go to the neuro?

>

> Deb RN

>

>

>

>

>

>

>

>

> What is transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis is a neurological disorder

> caused by inflammation across

> both sides of one level, or segment, of the spinal

> cord. The term myelitis

> refers to inflammation of the spinal cord;

> transverse simply describes the

> position of the inflammation, that is, across the

> width of the spinal cord.

> Attacks of inflammation can damage or destroy

> myelin, the fatty insulating

> substance that covers nerve cell fibers. This damage

> causes nervous system

> scars that interrupt communications between the

> nerves in the spinal cord

> and the rest of the body.

>

> Symptoms of transverse myelitis include a loss of

> spinal cord function over

> several hours to several weeks. What usually begins

> as a sudden onset of

> lower back pain, muscle weakness, or abnormal

> sensations in the toes and

> feet can rapidly progress to more severe symptoms,

> including paralysis,

> urinary retention, and loss of bowel control.

> Although some patients recover

> from transverse myelitis with minor or no residual

> problems, others suffer

> permanent impairments that affect their ability to

> perform ordinary tasks of

> daily living. Most patients will have only one

> episode of transverse

> myelitis; a small percentage may have a recurrence.

>

> The segment of the spinal cord at which the damage

> occurs determines which

> parts of the body are affected. Nerves in the

> cervical (neck) region control

> signals to the neck, arms, hands, and muscles of

> breathing (the diaphragm).

> Nerves in the thoracic (upper back) region relay

> signals to the torso and

> some parts of the arms. Nerves at the lumbar

> (mid-back) level control

> signals to the hips and legs. Finally, sacral

> nerves, located within the

> lowest segment of the spinal cord, relay signals to

> the groin, toes, and

> some parts of the legs. Damage at one segment will

> affect function at that

> segment and segments below it. In patients with

> transverse myelitis,

> demyelination usually occurs at the thoracic level,

> causing problems with

> leg movement and bowel and bladder control, which

> require signals from the

> lower segments of the spinal cord.

>

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#toc> top

>

>

> Who gets transverse myelitis?

>

>

>

>

>

>

> Transverse myelitis occurs in adults and children,

> in both genders, and in

> all races. No familial predisposition is apparent. A

> peak in incidence rates

> (the number of new cases per year) appears to occur

> between 10 and 19 years

> and 30 and 39 years. Although only a few studies

> have examined incidence

> rates, it is estimated that about 1,400 new cases of

> transverse myelitis are

> diagnosed each year in the United States, and

> approximately 33,000 Americans

> have some type of disability resulting from the

> disorder.

>

>

>

<http://www.ninds. nih.gov/disorder s/transversemyel itis/detail_ transversemyel

> itis.htm#toc> top

>

>

> What causes transverse myelitis?

>

>

>

>

>

>

> Researchers are uncertain of the exact causes of

> transverse myelitis. The

> inflammation that causes such extensive damage to

> nerve fibers of the spinal

> cord may result from viral infections, abnormal

> immune reactions, or

> insufficient blood flow through the blood vessels

> located in the spinal

> cord. Transverse myelitis also may occur as a

> complication of syphilis,

> measles, Lyme disease, and some vaccinations,

> including those for chickenpox

> and rabies. Cases in which a cause cannot be

> identified are called

> idiopathic.

>

> Transverse myelitis often develops following viral

> infections. Infectious

> agents suspected of causing transverse myelitis

> include varicella zoster

> (the virus that causes chickenpox and shingles),

> herpes simplex,

> cytomegalovirus, Epstein-Barr, influenza, echovirus,

> human immunodeficiency

> virus (HIV), hepatitis A, and rubella. Bacterial

> skin infections, middle-ear

> infections (otitis media), and Mycoplasma pneumoniae

> (bacterial pneumonia)

> have also been associated with the condition.

>

> In post-infectious cases of transverse myelitis,

> immune system mechanisms,

> rather than active viral or bacterial infections,

> appear to play an

> important role in causing damage to spinal nerves.

> Although researchers have

> not yet identified the precise mechanisms of spinal

> cord injury in these

> cases, stimulation of the immune system in response

> to infection indicates

> that an autoimmune reaction may be responsible. In

> autoimmune diseases, the

> immune system, which normally protects the body from

> foreign organisms,

> mistakenly attacks the body's own tissue, causing

> inflammation and, in some

>

=== message truncated ===

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