Re: someone...anyone?! peripheral neuropathy/Patty

[Guest guest]

Patty,

 

Thank God someone who is treating you has the foresight to send you to a

neurologist.  He/She should be able to diagnose where your physical problems are

coming from.  And, from what I have read so far, your neck injury seems to be

causing your periperhal neuropathy and the problems with your grip.  But,

perhaps your neurologist will order a CT of your brain to make sure there is no

residual head injury causing your migraines.  It is scary to read that you had

such sy,potms as stars, vomiting, and migraines.  Sounds like the possibility of

a closed head injury, or a hematoma.  I am not a medical professional.  But, I

have had similar circumstances in my life.

 

A neurosurgeon is the person who does surgery wheras the neurologist can make

the correct diagnoses, IMO.  S/he can also advise you to seek PT and/or OT.  OT

may be good for you to work on your fine motor skills.

 

I am C5-C6 anterior fusin post spinal cord injury.  And, yes I struglle with the

daily nerve-related issues in my hands and feet.  And, yes the

pain/tingling/numbness interferes and/or prevents daily activity.  It is

reality.  Takes alot of adjustment.

 

Keep me posted.  IMHO, I would not rush to sign anything either until all is

investigated and ruled out.  Seeing a neurologist is a BIG plus.

 

Keep me posted.  If you want, message me offline at

professor.victoria@....

 

Good luck, 

I wish you peace for today.

All my best,

:-)

From: NCGorgeous1963@... <NCGorgeous1963@...>

Subject: someone...anyone?! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@...

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

I’ve dealt with this for 6 years so far. This is just a little advise as I know

it by now.  don’t get your exceptions up to much because you get a diagnosis of

“neuropathy”. Basically its just a catch all term that means you have problems

with your nerves, that they don’t know where it is, or how  it got started. or

what to do about it yet. But a good point is they are on the trail of something

that there is a good chance they will find out more about it.

Be careful with neurosurgeons, now there is nothing in world wrong with them.

They help millions of people every year. But what they do for a living is cut ,

and their mind set is that  is the answer to every problem.

From: NCGorgeous1963@ aol.com <NCGorgeous1963@ aol.com>

Subject: someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

I have to disagree with what Ron said. I work with neurosurgeons for a living

across two different states. While it used to be true that neurosurgeons used to

cut everyone because that is hoe they make their living, that is most certainly

not the case now. Some are more judicial than others, but they have more

patients with back problems now than they can even see, let alone operate on.

They have also seen over time that surgery DOES NOT fix many back problems. The

patients just end up coming back with more and/or continued pain and

frustration. The back pain suffering group is felt to be a " difficult patient

population " because  it's so hard to find pain relief and let's face it...we

are in pain! Back pain is very difficult to treat..especially with the growing

numbers of obesity and unhealthy lifestyles. Many back pain patients are

overweight and want the doc to operate to fix the problem because it's easier

for them than to lose weight and change

their habits to healthy one that include exercize and healthy eating and

quitting smoking. This plan won't ever work! Surgeons are frustrated because

they labor in the OR to help people who won't even help themselves.Even if you

are not overweight, peole with bad backs need to have strong core muscles which

include the abdominlas, and back muscles.

 

Many people don't realize why smoking is bad for your back, so I'll throw this

in as well. Your spine is the only organ in your body that does NOT have it's

own blood supply. There are no blood vessels in your disks or vertebrae. They

are nourished by capillaries nearby. Capillaries are immediately compromised

upon inhaling a cigarette, every cigarette. Heavy smokers may have bloked off

capillaries all the time as the effects of nicotine on your blood vessels last

for several hours after. I know...I used to smoke.

 

---

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Hi

Im glad to hear that you are doing so much better, manageable is a place where I

think we all aspire too, at least thats what I aspire to.

So my question for you is- say you do all the things you are supposed to do-

Pilates, walking, Physical Therapy, keeping your weight down, massage,

accupuncture- had epidurals and they dont last long (like a week) and you still

have terrible sciatic pain every day with times of throbbing in the foot, or

curling toes that has gone on like at least 9 months, is that grounds for a

discetomy?

I am also going to ask about radiofrequency nucleoplasty to shrink the offending

L5 which some members of our group have said worked for them.

I guess my question to you is- if you have done all that stuff for over a year

and more as is the case of PT and still having problems with weakness in the

glutes and hip stabilizers, and foot numbness, buzzing, toe curling, what would

your neurosurgeons say? Time for surgery? Ablation?

thanks,

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

The docs I work with aren't doing ablations. Many of then are currently working

at developing newer techniques like how to make fusion less invasive and more

effective and the injectable disk, etc. Even in Boston I have not seen or heard

of them here. If they've done a lot of them, I would try that before diskectomy

to see if it would work unless it's open surgery. If it's open anyway, I'd do

the diskectomy. Have you had a diskogram? If you have had a positive one, and

you have done everything...I would consider having a fusion right off. I know it

sounds crazy, but you'd be doing yourself a favor. The liklihood of a diskectomy

working permanantly is low. Over time and especially as you age, your disk will

continue to become unstable after your first surgery, requiring a fusion anyway.

A lot of city docs are doing fusions right off for people with bad disks. Of

course, you may be able to find someone doing disk replacements in your area. I

can tell you

how to find one. There are only about 12 or so doing the clinical trials now.

 

That being said, if it were me, I would try to get by on meds for as long as

possible before doing any surgery. The things they are working on now are

amazing, but not quite ready yet. I would take as many meds as I could tolerate

before doing surgery. It is always a last resort. But, when it's needed...it's

needed and it CAN helpif done properly.

 

You need to consider the quality of your like as well. YOU are the one in your

body. YOU have to cope. You can decide what is right for you. Don't ever second

guess yourself once you do. We all can only do what we think is right for us at

any given moment. We can learn from others' experiences and mistakes and wins.

But at the end of the day, You have to do what YOU feel is right. You know your

body at this point in the game. Trust in yourself to know what you should do.

 

Take care,

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

thanks !

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Ablation is not even a procedure that involves a cut. Its done by PAIN

MANAGEMENT doc. The docs here don’t do discograms they are archaic and not

considered medically necessary. And they are very painful. You are absolutely

correct, I had a discect omy actually 2 one on each side cause I id mot one a

fusion…..stupid me…..I needed a fusion and I still do…but now I have a

scar tissue and my spinal cord is tethered by scar tissue.

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of Babbitt

Sent: Thursday, September 18, 2008 9:11 PM

spinal problems

Subject: Re: someone...anyone?! " peripheral

neuropathy " /Patty

The docs I work with aren't doing ablations. Many of then are currently working

at developing newer techniques like how to make fusion less invasive and more

effective and the injectable disk, etc. Even in Boston I have not seen or heard

of them here. If they've done a lot of them, I would try that before diskectomy

to see if it would work unless it's open surgery. If it's open anyway, I'd do

the diskectomy. Have you had a diskogram? If you have had a positive one, and

you have done everything...I would consider having a fusion right off. I know it

sounds crazy, but you'd be doing yourself a favor. The liklihood of a diskectomy

working permanantly is low. Over time and especially as you age, your disk will

continue to become unstable after your first surgery, requiring a fusion anyway.

A lot of city docs are doing fusions right off for people with bad disks. Of

course, you may be able to find someone doing disk replacements in your area. I

can tell you

how to find one. There are only about 12 or so doing the clinical trials now.

That being said, if it were me, I would try to get by on meds for as long as

possible before doing any surgery. The things they are working on now are

amazing, but not quite ready yet. I would take as many meds as I could tolerate

before doing surgery. It is always a last resort. But, when it's needed...it's

needed and it CAN helpif done properly.

You need to consider the quality of your like as well. YOU are the one in your

body. YOU have to cope. You can decide what is right for you. Don't ever second

guess yourself once you do. We all can only do what we think is right for us at

any given moment. We can learn from others' experiences and mistakes and wins.

But at the end of the day, You have to do what YOU feel is right. You know your

body at this point in the game. Trust in yourself to know what you should do.

Take care,

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

If you read an message I just recently posted a few minutes ago, I talked about

how you can have a herniation or degeneration or even stenosis and not even know

it. They do not always cause pain. Having a discogram is the one tried and true

way to know for sure, before having a potentially useless operation, that it is

the disk for sure causing the pain. Even the Boston docs are still relying on

them. Archaic has nothing to do with it. Pedicle screw fixation is till the main

and most reliable way to perform a fusion on someone and they've been doing that

for over 50 years. It's tried and true. I had a doc attempt a facet fixation on

me as a " new up and coming technique " ...well he screwed me up for life. In Feb

07 I had a pedicle screw fusion which finally solved my back issues. If I had a

" virgin " back and had not yet had a fusion, I would probably do the  disk

replacement. The only problem with that though, is that in order to get the

replacement disk

in, the adjacent vertebrae have to be stretched apart and this permanantly

stretches the ligament that runs up alongside your disks and vertebrae to hold

them up straight. This ligament gives them support and ligaments don't shrink

back to normal once they've been stretched out. This leads to potential problems

with other levels and can also allow for the replacement disk to shift. Just a

little FYI.

---

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Hi Tracey,

Was the procedure you had with the facet fixation called " Tru-Fuse " ? I recently

had this procedure on L5-S1. He also did the lamenectomy (spelling?) and

discectomy on both sides. I did poorly the first few weeks with the nerves going

nuts (also waking up nerves in areas that had been numb for more than 4 yrs) and

then for the next few weeks I did great other than getting shingles. But then

about a month or two out, it started doing crazy stuff like my legs just want to

go rubber on me and the nerve pain has cranked up real bad again. I don't know

if this is normal or not. Sometimes my back and legs feel like they go totally

weak and I feel like I'm about to go to the floor like a limp rag. Please tell

me more about your experience so that I can compare mine. Thanks so much.

someone...anyone? ! " peripheral

neuropathy " experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years

and have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office

this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Hi ,

 

I'm so sorry to hear that you're doing so poorly. I hope that you will turn a

corner for the better soon! How long has it it been? I don't know if there was a

name to the procedure or not. This was before my career in the OR and was done

when I was 21. About 10 years ago. I also had and anterior and posterior

approach so he could remove the entire disk and put in a piece of cadaver bone.

There is one screw in the head of my sacrum (the fusion was at L5S1) which also

has a washer. The other two screws went on an angle (looked like and x on xray)

through my facet joints. Of course I was in tremendous pain for months, yes, my

nerve pain was horrible too. But I did get better and went several years without

a stitch of pain. My surgeon told me I was totally fused at 6 months (a relative

impossibility). I thought my back problems were behind me forever. Then after a

few years I started to get achy, enough to go back on Tramadol and see my

surgeon. He wanted me

to do some injections or something and therapy. I did the therapy but tried to

just get by and get stronger to see if it would go away. It didn't. One day I

was doing a light jog on a treadmill and felt a horrible sharp pain in my back

and my legs wouldn't move. It was awful. From that point on my back was in a lot

of pain, though some days better than others. When it got bad enough I went back

to my surgeon who sent me for facet blocks and said if they didn't work he would

operate(without telling me what for). He also did a CT and MRI. What I didn't

know at that time was that my back was NOT fused. The pain I felt on the

treadmill was my titanium screws breaking inside my facet joints. They broke

because my spine was not fused at all and this allows for movement. The movement

and strain on the screws will cause them to break eventually. My " fusion " was

nothing but a crumbled mass of bone. I didn't know this was going on until I

went to the pain clinic

at the Boston hospital where I worked. I had to hear it from my pain

doc..instead of my lousy surgeon. There was nothing they could do at that rate.

I had to have surgery. I had one of the Boston spine surgeons whom I worked with

do it. He did a regular pedicle fusion, also anterior/ posterior.

 

One of the problems with a facet fusion is the bone area the screws go through

is much smaller than the pedicle, so it isn't as strong. Because the bone area

is smaller, the screws also have to be skinnier and shorter, also less strong.

Your facet joint is so highly innervated that it can be likened to your " funny

bone " . So, in effect it's like putting a screw through your " funny bone " to fuse

your elbow, meanwhile cutting a big nerve to do it. This is likely the source of

a lot of your nerve pain. I will tell you that there have been plenty of good

outcomes with facet fixation, but they have not done any studies past the five

year mark. There are no Boston docs who perform facet fixation.

 

---

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Hi Tracey,

The tru-fuse is supposed to be " cutting edge " and according to my surgeon has

been highly successful. We will see. There is no hardware just a bone dowel

screwed into the facet to not allow movement. It's supposed to fuse. He says

that it will do away with my back pain. Just a little history, I was rear ended

in 1997 while delivering mail and it messed up 3 disc in my neck, 3 in my lower

lumbar and tore my shoulder. Within 3 years I had my first of 4 surgeries

starting with the shoulder and the following year had my first cervical fusion

which was a failure (the donor bone split vertically causing nonfusion) and had

a 2 level cervical fusion the following year to correct the failure and because

the one above it had ruptured completely by that time also. They both were done

with plate and screws. The whole time my back hurt much worse than the neck but

they couldn't find the nerve compression. Go figure, my right thigh had been

numb for 4 years and the nerve pain shooting down the sciatica and into the feet

was driving me nuts. Also, I told them I felt like I would be in a wheel chair

in a year if something didn't happen. I could feel my butt and legs atrophying

bad. So finally this year June 25 they did this surgery. He now has me in

therapy 2x week for 3 weeks (now in second week) then work hardening for 2 weeks

(mon thru fri 4hours per day) and then they will do a functional capacity test

to see what I can do. The weakness is unbelievable in my legs and I have hip and

groin pain alot now. I don't understand it all and I try my best to stay off the

pain meds so that I don't have that additional problem. I am on lyrica and at

one time when I was on about 5 per day, I didn't have any pain but I was so

dopey in my head. I can't see myself working like that. I now work as a clerk

that sells stamps instead of the rural carrier that I was before so I deal with

the public and money. That's not the place to be dopey. I don't know where my

future lies but I am so wore out from it all. On my second neck and lumbar

surgery I had both an ortho spine spec and a neurosurgeon assist so I thought I

had the best of both worlds. Both these docs are considered top docs in their

field in B'ham Alabama. Even my doc told me before this surgery that the nerves

had been damaged for so long that I may not get that much relief from the

surgery, but I had to take the chance. Oh well, I'm rambling and didn't mean to.

Thank you so much for your reply and your insight.

someone...anyone? ! " peripheral

neuropathy " experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years

and have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office

this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

Did you have the discectomy at the same level on both sides?

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of Jim &

Sent: Saturday, September 20, 2008 11:00 PM

spinal problems

Subject: Re: someone...anyone?! " peripheral

neuropathy " /Patty

Hi Tracey,

Was the procedure you had with the facet fixation called " Tru-Fuse " ? I recently

had this procedure on L5-S1. He also did the lamenectomy (spelling?) and

discectomy on both sides. I did poorly the first few weeks with the nerves going

nuts (also waking up nerves in areas that had been numb for more than 4 yrs) and

then for the next few weeks I did great other than getting shingles. But then

about a month or two out, it started doing crazy stuff like my legs just want to

go rubber on me and the nerve pain has cranked up real bad again. I don't know

if this is normal or not. Sometimes my back and legs feel like they go totally

weak and I feel like I'm about to go to the floor like a limp rag. Please tell

me more about your experience so that I can compare mine. Thanks so much.

someone...anyone? ! " peripheral neuropathy "

experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years and

have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)

[Guest guest]

yes and he said a laminectomy as well and also the tru-fuse of the facet. I

haven't seen my surgical notes yet (I always get a copy of everything) and he

didn't even comment on the x-ray. I am now in therapy, this is my 3rd week and

starting next week I go into work hardening and then they will do a functional

capacity test on me to see at what capacity I can return to work. I am very

nervous about it because I am extremely weak and the nerve pain is pretty bad. I

was not this weak before surgery and I'm not sure how much is due to the surgery

and extended recovery with little activity or from the nerve thing. My legs feel

like rubber if I do anything and sometimes feel like they will just cut out. And

everytime they work with me at therapy, especially when the nerves are

stretched, it aggravates it. I can walk on a treadmill and it doesn't bother me

pain wise just makes my legs rubber. Well, didn't mean to get into all that but

in answer to your question, yes he did it on both sides. Why do you ask? He said

the surgery was worse than he expected but didn't go into detail.

someone...anyone? ! " peripheral

neuropathy " experience? (x-post)

NCGorgeous1963@ aol.com

Date: Wednesday, September 17, 2008, 12:47 PM

I know I've asked this question a dozen times, at least, but I am getting

nowhere and need to keep asking until I get an answer somewhere.

I was the third and last car in a rear-end 'fender-bender' on July 12, 2007..

Approximately 10 days post-wreck I started dropping things, first from my

right hand, then it progressed to my left. Fourteen months later it has blown

into numbing and tingling of all 4 extremities, including arms and legs. The

doctors haven't found a cause for this yet, but I don't believe that they're

looking very hard either.

I hit my head EXTREMELY hard on the headrest the day of the crash; to the

point of seeing dancing stars and hearing chirping birds like in the Looney

Tunes cartoons. I vomited within an hr of the crash and suffered migraines

steadily for several months. I still get them, but not nearly as bad.

I had a neck decompression and fusion. This reduced the numbing & tingling

for about 3 months but then it came back, more frequently and more intensely

to the point of costing me my job (I was a barber but couldn't get through a

haircut without dropping tools on my clients).

The complication is that I had gastric bypass surgery in 2003. It is not

uncommon for post-ops to develop peripheral neuropathy due to vitamin

deficiencies since we malabsorb. I have never missed a blood test in 5 years

and have

NOTHING indicating a cause of P.N. due to the gastric bypass, even though the

prosecuting attorney is dying to pin this problem on my weight loss surgery..

I need your help, PLEASE:

has anyone had a car wreck and developed numbing and tingling in their

extremities as a result? What type of doctor did you use? What tests did they

perform? What was their official diagnosis? What was/is your course of

treatment?

Are you permanently cured or are you just keeping symptoms under control?

My attorney is hounding me to close my case and I refuse to sign anything

until I have a complete understanding of this numbing and tingling bit. I will

not sign a stitch until I know 1) what caused this to start?, 2) have ALL the

available tests been performed for an exact diagnosis?, 3)is it curable?, 4)

if I have to live with it forever, what treatment options do I have and who

is going to pay for it?, 5) how am I supposed to get back to cutting hair for

a living when I can't hold a comb for more than 5 minutes?!

I saw my physiatrist today who is now sending me to a Neurologist. I've been

getting treated by a Neurosurgeon, so I fail to understand what a

neurologist can do that a neurosurgeon can't. I am so frustrated and beside

myself.

I've lost 14 months of my life so far to be run around in circles...just seems

like everyone downplays this problem and leaves it at " I don't know " ...so,

like, I'm supposed to accept that answer and live with something that I never

had before being in the wreck? Cripes, the guy was doing 65 mph when he plowed

into the Grand Am behind me; and she and I were both completely stopped.

Someone? Anyone? There has to be somebody out here with some experience or

knowledge of peripheral numbing and tingling brought on by a traumatic event.

Please, anything you can share would be so appreciated. I have to have

something concrete in hand before I go barreling into my attorney's office

this

Friday telling him I think he's lame for not fighting on my behalf.

Thanks you in advance, and I'm sorry for bringing this up...AGAIN.

Best regards,

Patty A

************ **Psssst. ..Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)