Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 _loangoddess1961@..._ (mailto:loangoddess1961@...) writes: << Have you considered that you may have multiple issues that need attention? That both surgeons are correct?...walks outdoors but I just pace indoors with my walker. The brain issue sounds like something I heard about years ago related to amusement park rides; that some people get what is called brain shearing. This is where the membraim that attached the brain to the skull separates.>> THANK YOU! I took as many notes as I could and he did use the term " brain shearing " , I just couldn't jot it down fast enough and by the time I'd left out, I forgot what he called it. And boy am I glad that someone else has actually heard of it because this neurologist was just SO packed FULL of information, supporting all of my (nonmedically trained) theories; by the time the appt was over I was crying hysterically because I'd finally found someone with answers. It felt so surreal that I was trying to figure out if he was for real or just took too much acid as a teenager (LOLOLOL, kidding - but you know what I mean, yes?). I'm still trying to figure out how to find some background info on this dr to make sure he isn't a quack. It's just too weird to finally hear everything I was thinking coming from a trained doctor, 1 out of 14+ doctors. So I *should* be happy to get confirmation, but because he and I are the only two who think alike, instead I am wondering if I'm making all of this up in my own twisted little mind. And what really blows my mind is that I didn't offer anything first and have him come back with positive confirmations...he actually said it all first. Okay. I'm sorry, I'm just so excited that someone finally believes me and is " proof positive " that such a thing exists. Yes, I most definitely feel that I have 2 independent issues happening at the same time. The thing that concerns me is having the fusion and then it potentially compromising the ability to treat and heal the numbing and tingling. But I have been in escalating pain for so long now that I'm desperate for relief. I'm aware that fusions may lead to the need for additional surgeries due to weakening the areas above and below it. The neurologist is willing to keep me on and work with me, regardless of my decision to fuse in 11 days or not. His practice is also a pain clinic. By the way - going back to my last saga with the pain clinic I fired, I am STILL waiting for a reply from the grievance coordinator. They have 1 more week to finish their investigation with the PA-C then I'll be turning up some heat - BIG TIME. Regarding the walking and cold weather. I never have done well in cold weather, even as a child, so there is no good time for me to do this in the immediate future and I'm not willing to wait 5+ more months to warm up. I have a fabulous treadmill and a Pilates bench in my storage unit that will be coming home soon. We are in the midst of adding to our house and actually built a gym. Sadly we are way behind schedule so I may not get these items out before surgery (the brilliant movers stored them in the nose of the 10'x20' unit after I specifically told them to keep the gym equipment near the door). In any event, I LOVE to walk so that shouldn't be too much of a problem. I am slightly concerned about weak upper body strength. Guess I'll just have to do my best - it's all I've got! Thanks for the reply. I appreciate your input! Best regards, Patty A -------------------------- Above text © 2008 PEA. . Any copying, transcription or redistribution outside this list without express written permission is not permitted. **************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Patty, Called COUP COUNTER COUP BRAIN INJURY....the brain shearing is what happens. Deb RN From: spinal problems [mailto:spinal problems ] On Behalf Of NCGorgeous1963@... Sent: Thursday, December 04, 2008 7:30 AM spinal problems Subject: Re: to fuse, or not to fuse...that is the question... _loangoddess1961@... <mailto:_loangoddess1961%40> _ (mailto:loangoddess1961@... <mailto:loangoddess1961%40> ) writes: << Have you considered that you may have multiple issues that need attention? That both surgeons are correct?...walks outdoors but I just pace indoors with my walker. The brain issue sounds like something I heard about years ago related to amusement park rides; that some people get what is called brain shearing. This is where the membraim that attached the brain to the skull separates.>> THANK YOU! I took as many notes as I could and he did use the term " brain shearing " , I just couldn't jot it down fast enough and by the time I'd left out, I forgot what he called it. And boy am I glad that someone else has actually heard of it because this neurologist was just SO packed FULL of information, supporting all of my (nonmedically trained) theories; by the time the appt was over I was crying hysterically because I'd finally found someone with answers. It felt so surreal that I was trying to figure out if he was for real or just took too much acid as a teenager (LOLOLOL, kidding - but you know what I mean, yes?). I'm still trying to figure out how to find some background info on this dr to make sure he isn't a quack. It's just too weird to finally hear everything I was thinking coming from a trained doctor, 1 out of 14+ doctors. So I *should* be happy to get confirmation, but because he and I are the only two who think alike, instead I am wondering if I'm making all of this up in my own twisted little mind. And what really blows my mind is that I didn't offer anything first and have him come back with positive confirmations...he actually said it all first. Okay. I'm sorry, I'm just so excited that someone finally believes me and is " proof positive " that such a thing exists. Yes, I most definitely feel that I have 2 independent issues happening at the same time. The thing that concerns me is having the fusion and then it potentially compromising the ability to treat and heal the numbing and tingling. But I have been in escalating pain for so long now that I'm desperate for relief. I'm aware that fusions may lead to the need for additional surgeries due to weakening the areas above and below it. The neurologist is willing to keep me on and work with me, regardless of my decision to fuse in 11 days or not. His practice is also a pain clinic. By the way - going back to my last saga with the pain clinic I fired, I am STILL waiting for a reply from the grievance coordinator. They have 1 more week to finish their investigation with the PA-C then I'll be turning up some heat - BIG TIME. Regarding the walking and cold weather. I never have done well in cold weather, even as a child, so there is no good time for me to do this in the immediate future and I'm not willing to wait 5+ more months to warm up. I have a fabulous treadmill and a Pilates bench in my storage unit that will be coming home soon. We are in the midst of adding to our house and actually built a gym. Sadly we are way behind schedule so I may not get these items out before surgery (the brilliant movers stored them in the nose of the 10'x20' unit after I specifically told them to keep the gym equipment near the door). In any event, I LOVE to walk so that shouldn't be too much of a problem. I am slightly concerned about weak upper body strength. Guess I'll just have to do my best - it's all I've got! Thanks for the reply. I appreciate your input! Best regards, Patty A -------------------------- Above text © 2008 PEA. . Any copying, transcription or redistribution outside this list without express written permission is not permitted. **************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp <http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000 010> & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 _darkrabbit2003@..._ (mailto:darkrabbit2003@...) writes: << God bless you. After carefully reading what you wrote, I would wait. I think you must try every avenue first. A new doctor thinks its best to reassess. Whatever you do, we are all with you every step.>> Reassess. Yes. I think I agree. I was in such a hurry to have 2 surgeries in Sept and both of them failed. I blame myself daily for having been so hasty. I tried forcing physical changes on my body in a specific time period, but my body reminded me of who's boss. After all, our bodies are supposedly God's temples, aren't they?! I should learn from that mistake. And God bless you, Mr. Ivan. You're so incredibly thoughtful and caring. I pray that you are justly acknowledged and rewarded in kind. Thank you for your support. Best regards, Patty A **************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
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