Re: Re: Side Effects Stirring Something Up? for Kathy

[Guest guest]

Hi Addy:

Thanks, for your reply about my hearing loss. I went to my Allergist today. I

told him about the Allergist (different doctor) who gives me the Xolair shots,

had increased all of my allergy/asthma medications, because I'm wheezing, and my

sinuses are bothering me more.

He said instead of getting my allergy shots every 4 weeks I should get them

every 3 weeks now. It is definitely the high mold we have been having this

year. Even my eyes have been itching like crazy.

Hope your well.

kathy

pyle456 <coachmac@...> wrote:

Kathy, I wonder if your docs will ever be able to determine why your

hearing further deteriorated. I'm sorry to hear that you have had

further hearing loss. Fortunately, hearing aid technology is much

better than it was (my dad's been wearing them for 30+ years).

Addy

> Hi Kathy,

>

> I am really curious as to what your doc said about " she was

concerned about

> stirring things up " . I have lost hearing in one ear since being on

Xolair

> but I had to decide do I want to hear or breath, I chose breath

but I would

> like to know if more people have had this side effect. Genentec

told my

> doc's nurse that only 2 others have lost hearing but they had

multiple

> problems so they were not sure of the cause. I also have multiple

problems

> so I went back on Xolair after stopping for 2 months out of fear

of losing

> hearing in my other ear.

>

> Looking forward to hearing more from your doc.

>

> In Hope,

>

>

>

>

>

>

>

>

> ---------------------------------

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>

[Guest guest]

Hi Carol:

I use to get the shots every week, then two, then three, and now four. I'm

going to try them every three weeks, and see how it goes.

Thanks,

Kathy

Carol Corley <mybouvs@...> wrote:

Kathy wrote:

He said instead of getting my allergy shots every 4 weeks I should get them

every 3 weeks now. It is definitely the high mold we have been having this

year. Even my eyes have been itching like crazy.

Hi Kathy:

My allergist said one of his patients is a doctor and he feels best

getting his allergy shots weekly. I was doing them every 2 weeks when I did

them myself, but now it's too far to go, so I'm trying them monthly. If I

notice a difference, I'll go back to every 2 weeks.

Carol

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[Guest guest]

Hi :

You could be right, but because several other Xolair patients brought it up,

it made me thing about my hearing loss. There's quit a few Xolair patients out

there with this problem. I sent Xolair people an e-mail and they didn't mention

anything except, tell your doctor.

kathy

Caldwell-Bissell <nightsky@...> wrote:

Hi Kathy,

I was thinking, your continued deterioration of hearing may be a process

that is taking place and unrelated to the Xolair.

In Hope,

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[Guest guest]

Hi all,

I have a question for those of you who are concerned that xolair is related to

your hearing loss. Have you consulted an audiologist or had any hearing tests to

determine if your loss is due to conduction (ie bones in middle ear defect) or

neural deficits (ie anywhere from the cochlea to cranial nerve XII and the

auditory processing center in the parietal area)?

The reason I ask is that repeated bouts of sinus infections are definitely

linked to conduction deficits and meningitis will cause neural conduction loss.

Perhaps it is just a coincidence that the loss occured at the same time as you

took the medication?

Co-moderator

Neurosurgery nurse

Canadian # 12 on Xolair

Please consult your physician for all pressing concerns about your health.

[Guest guest]

Hi Everyone:

As I said before I have NO ear drums, due to constant sinus infection. Yes

I've had a hearing loss for years. Yes my hearing has been checked many times.

Yes, I have hearing aids for both ears. But, since I've been on Xolair, my

hearing has diminished ever further very noticeable and faster. Because there

were MANY complaints concerning hearing, I put my two cents in too.

Kathy

uca79iii <uca79iii@...> wrote:

>

> - thanks for that post. I had always wondered if my chronic

> sinus infections were doing any permanent damage somewhere.

> Currently my husband is the only one who thinks I have a hearing

> problem.

>

> I see suspected hearing loss as a possible side effect of taking

> Xolair the same way that I saw suspected hair loss: There are so

> MANY reasons one can lose hearing/hair and most of them are far more

> likely than Xolair. Particularly as loss of hearing/hair may be a

> symptoms of a more serious underlying medical condition (hair loss

> and thyroid problems, for example), it's really important that one

> leave no avenue unexplored to determine the source of a problem like

> hearing loss or hair loss.

>

> Addy

>

> Please discuss any potential changes in treatment with your doc

> first.

>

Addy and group,

About 2 weeks after I started xolair in 2003, I noticed rashes on my

skin. They would not go away with over the counter antibiotic cream

and steroid creams. I immediately panicked and thought: " Oh my, this new

powerful shot is causing me to break out in hives all over. "

I immediately called my doctor and he said: " relax, no side effects

like this are mentioned in all the FDA trals. "

This answer did not satisfy my anxiety at all so I saw a

dermatologist. Before my office visit, he studied up on xolair and

it's components.

When I saw him, he immediately told me that it was NOT the xolair but

probably was a small spread out case of psoriasis. He did a biopsy and

his diagnosis was correct. He also said that all the evil candy I was

taking had probably taken care of the psoriasis and since I was now

off of it, that those spots had become worse. He prescribed me 2 creams. I used

them for a month and the psoriasis went away.

Well, thats the last time I blame xolair for something that is not on

the side effect list.

Doug

Group founder

Co/Owner/Moderator

Remember, ask your doctor before making any

changes to your healthcare.

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[Guest guest]

Hi :

I got my info. from the Xolair patients on this web site.

kathy

Caldwell-Bissell <nightsky@...> wrote:

I didn't know there were " quite a few Xolair patients out there with

this

problem " . Where did you get the information? I would like to know more.

I have been to ENT and the MRI didn't show any changes in fact the mastoid

had improved. I go to a neurotologist in Sept. The meningitis I had was 14

months before the hearing loss which occurred 3 months after starting

Xolair.

Thanks,

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