Re: friendly reminder from your moderators

[Guest guest]

Well said!

On Aug 12, 2006, at 7:06 AM, pyle456 wrote:

> We have had some discussions on the board recently about taking more

> than the prescribed dose of Xolair, about taking it more frequently

> than prescribed, etc. I think that this is a good place for us to

> have these discussions, since few of us know people who are as

> allergic as we are and need Xolair so badly AND understand what our

> lives have been like living in a bubble sucking on evil candy. I

> know that a couple of folks had their thyroid tested after our

> discussions and research on hair loss and discovered that they had

> previously undiagnosed thyroid conditions and might have gone on a

> long time without treatment if it hadn't been for discussions that

> took place in this group. THAT SAID, Doug, and I want to

> emphasize that everyone needs to discuss ANY decision about changes

> in treatment with his/her own physician before doing so. If you

> have a conservative physician, you can always get a second opinion

> or encourage your physician to talk to the area Genentech Xolair rep

> to try to get more information. Another possibility might be to get

> your specialist to call a specialist at one of the major research

> universities for a consult. National Jewish, the Mayo Clinics, the

> Cleveland Clinic, and s Hopkins have major allergy/asthma

> departments and I think all of them were involved in the Xolair

> clinical trials from the get go.

>

> Pat, the Xolair specialty pharmacy nurse, seems to be no longer with

> us, but she did once encourage a member who would be on a trip on

> her usual Xolair day to talk to her doctor about getting her dose

> just before she went on the trip, a couple of days before her normal

> day, rather than be a week late with her dose. One of you takes

> a " half " dose in the middle of the dosing period, but only with the

> approval of his doctor. These are excellent examples of appropriate

> changes made in the standard treatment plan in consult with one's

> doctor.

>

> Take care, all of you, and have a great weekend.

>

> Addy

> (the material contained herein may or may not be protected by

> attorney-client privilege; may not be reproduced without the

> expressed written consent of major league baseball; and may cause

> headaches, nausea and diarrhea. If these symptoms continue for more

> than a week, discontinue use and call your doctor.)

>

>

>

[Guest guest]

Addy, I've been meaning to comment on these little quips for a while now,

it's just been SO hectic around here what with all the pre " back to school "

chaos and whatnot. I found the part highlighted in pink below particularly

hilarious since I'm a HUGE baseball fan. Got married at Fenway Park in

Boston in September 2001. Just 9 days after the terrorist attacks in New

York. People went berserk, and it was so much fun. It would be a better

story if the marriage had lasted, LMBO! Just wanted you to know your sense

of humor was fully appreciated! The entire post script was just too funny

for words!

Thanks for the laugh!

Jenn

-------Original Message-------

From: pyle456

Date: 08/12/06 08:10:18

Subject: [ ] friendly reminder from your moderators

Addy

(the material contained herein may or may not be protected by

attorney-client privilege; may not be reproduced without the

expressed written consent of major league baseball; and may cause

headaches, nausea and diarrhea. If these symptoms continue for more

than a week, discontinue use and call your doctor.)

[Guest guest]

, (and everyone else)

Thanks for the compliment! It's hard for me sometimes b/c I have a

very cynical/sarcastic sense of humor which is totally encouraged at

my workplace (I work for a criminal/family law firm). I know that

sometimes it doesn't come across very well in cyberspace, so I do

try to behave but I still get myself in trouble sometimes. Most

recent example, I responded to an email from Doug in my own special,

sarcastic way and it didn't come across the way I thought it would

so he thought he'd done something to offend me! Sigh. The perils

of virtual communication.

Take care, all,

Addy

P.S. I lifted the idea about using the MLB disclaimer off

jibjab's " The Drugs We Need " ditty, which is still viewable at their

website, jibjab.com. It's hysterical. Doug or or someone

told me about it.

>

> Addy, I've been meaning to comment on these little quips for a

while now,

> it's just been SO hectic around here what with all the pre " back

to school "

> chaos and whatnot. I found the part highlighted in pink below

particularly

> hilarious since I'm a HUGE baseball fan. Got married at Fenway

Park in

> Boston in September 2001. Just 9 days after the terrorist attacks

in New

> York. People went berserk, and it was so much fun. It would be a

better

> story if the marriage had lasted, LMBO! Just wanted you to know

your sense

> of humor was fully appreciated! The entire post script was just

too funny

> for words!

>

> Thanks for the laugh!

>

> Jenn

>

> -------Original Message-------

>

> From: pyle456

> Date: 08/12/06 08:10:18

>

> Subject: [ ] friendly reminder from your moderators

>

> Addy

> (the material contained herein may or may not be protected by

> attorney-client privilege; may not be reproduced without the

> expressed written consent of major league baseball; and may cause

> headaches, nausea and diarrhea. If these symptoms continue for

more

> than a week, discontinue use and call your doctor.)

>

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