Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Hey thanks for the words of encouragement. I was speaking to my Mom on the phone when it came in and I read her my letter and your response. Of course there were some tears from me because of my feelings today. But she told me to tell you be strong. My tongue also hurts today.and it's funny because the seizure activity the I have destroys my appetite and if I don't eat then it pushes me closer to that seizure threshold.But anyway having shed a few tears today I am going to try and move on with my day.One of my peeves after I have a seizure is the fact that I want to call people. even though I don't know where I am in my own home. Plus I want to walk outside and this sometimes is without pants or underwear depending how I was sleeping. It is soooo confusing. But then again like you say I need to look at others and consider myself blessed. It is just hard to do that.Thanks for the feedback. Darrell Re: [ ] depressed > I can understand fo sure. I had another gran mal on Thursday morning. 5 > min or so. Bit my tounge, got some nifty little strawberry bruises all > over my back and right side of my face. I'm sore as all get out, but > hey... at least I'm still here! One of the problems w/ living alone > w/ epilepsy... you just never know. > I also smoke, and although I haven't found it yet, I am sure there has > to be a connection, since every time I try to quit I have a gran mal of > some type. Mostly just stress I'm sure, but I am also sure that there > has to be a chemical issue as well. I mean, it's nicotene, and if it can > give you a buzz, then I'm sure it affects the brain somehow. Try to see > the brighter side if you can. At least you have long periods w/o > seizures, and at least that's good. I try to remind myself of the > same.... many people here don't have that luxury so I try to keep > positive. If I could get by on natural methods I would...stay there! I'm > trying to find a way to get enough time off (like about 3 months or so) > to go ahead and get off of my meds and onto a more natural remedy. Long > stories of course, so I'll shut up on that note! > > I just bought all my groceries on Wed. Got all this wonderful food I > love, and now I can't eat anything but liquids for almost a week cuz my > toungue hurts so bad!!! AUUUUUUUuuuuugh! > > Take care of yourself, and try to never let your spiritual self get too > bogged down. It's what keeps us afloat! > > > > > Darrell McCall wrote: > > > Hey guys it's been awhile since I posted but have been keeping up with > > my heart the emails of others.I guess I just need to vent a little. my > > seizures started 5 years ago first petite then moving to grand mal.It > > started in my sleep then progressed into my waking hours. I have opted > > not to use medication and it has been up and down.Mostly up. I work > > and I work out and maintain a " normal life " as best I can.My one bad > > habit in the midst of trying to practice some form of health is that I > > am addicted to smoking. A light smoker maybe three a day but none the > > less I still smoke and I wonder if that could be the culprit.My last > > holistic approach has been the parasite cleanse from Dr.hulda > > and that worked well for 8 months or so but then the seizures came > > back but only in my sleep.Yesterday was a bad day for me I had a gran > > mal which last for only 15 to 20 seconds my wife tells me since she > > often is the one who see's them.But it affects me so greatly > > afterwards. Emotionally and Spiritually,but that aura is still > > following me around today. and I am feeling really low today and just > > needed to express my feelings to people who may understand. > > Darrell > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 I think for me the worst part of having seizures are the emotions that go with them. The fear, anxiety and depression. I'm in a constant state of suppressed fear and can easily be brought to tears...and laughter ..for some dumb reason. Sometimes I don't want to be here anymore. I saw a program the other day on the training of handicap dogs. These dogs would warn their owners of seizures that were about to happen so that they could prepare themselves. I've known about that..but, I could have sworn they said that this dog warned its owner 50 minutes ahead of a grand mal. I immediately thought...hmmm...if I had 50 minutes notice, I'd have time to take a valium or klonopin not to mention all the other preparations I could make. I mean, even if it were 15 minutes warning...I could lie down so I wouldn't get hurt.. protect my tongue.... and even make sure my pants were on.. ....(sorry,,,couldn't resist). Anyway, it showed her lying down , arms wrapped around her dog , her support ...waiting... and of course my tears started flowing. I know you don't have them very often, but you still may want to look into it...for your own sanity. I'm going to.... because even when we seem to be stable...you just never know...and the more control we have over this, the less the stress. Hope you start feeling better soon, Lorinda Darrell McCall <dmccall3@...> wrote:Hey guys it's been awhile since I posted but have been keeping up with my heart the emails of others.I guess I just need to vent a little. my seizures started 5 years ago first petite then moving to grand mal.It started in my sleep then progressed into my waking hours. I have opted not to use medication and it has been up and down.Mostly up. I work and I work out and maintain a " normal life " as best I can.My one bad habit in the midst of trying to practice some form of health is that I am addicted to smoking. A light smoker maybe three a day but none the less I still smoke and I wonder if that could be the culprit.My last holistic approach has been the parasite cleanse from Dr.hulda and that worked well for 8 months or so but then the seizures came back but only in my sleep.Yesterday was a bad day for me I had a gran mal which last for only 15 to 20 seconds my wife tells me since she often is the one who see's them.But it affects me so greatly afterwards. Emotionally and Spiritually,but that aura is still following me around today. and I am feeling really low today and just needed to express my feelings to people who may understand. Darrell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Hey thanks Lorinda, and it's okay about the pants.LOL I know what you mean when you say that you sometimes don't want to be here. But I rush those thoughts out as quickly as possible.I wish sometimes I had a valium to take. But I don't so I just move on and try to cope.I am saying to myself today that it will get better.And I am sure they will.I just feel like why me that kinda sorry for your self attitude ya know.But it has helped so much just today being able to write to those that understand.Take care of yourself and when we shed tears lets try and remember that it will get better. By the way are you on medication. Darrell Re: [ ] depressed > > I think for me the worst part of having seizures are the emotions that go with them. The fear, anxiety and depression. I'm in a constant state of suppressed fear and can easily be brought to tears...and laughter ..for some dumb reason. Sometimes I don't want to be here anymore. > I saw a program the other day on the training of handicap dogs. These dogs would warn their owners of seizures that were about to happen so that they could prepare themselves. I've known about that..but, I could have sworn they said that this dog warned its owner 50 minutes ahead of a grand mal. I immediately thought...hmmm...if I had 50 minutes notice, I'd have time to take a valium or klonopin not to mention all the other preparations I could make. I mean, even if it were 15 minutes warning...I could lie down so I wouldn't get hurt.. protect my tongue.... and even make sure my pants were on.. ...(sorry,,,couldn't resist). Anyway, it showed her lying down , arms wrapped around her dog , her support ...waiting... and of course my tears started flowing. > I know you don't have them very often, but you still may want to look into it...for your own sanity. I'm going to.... because even when we seem to be stable...you just never know...and the more control we have over this, the less the stress. > Hope you start feeling better soon, > Lorinda > Darrell McCall <dmccall3@...> wrote:Hey guys it's been awhile since I posted but have been keeping up with my heart the emails of others.I guess I just need to vent a little. my seizures started 5 years ago first petite then moving to grand mal.It started in my sleep then progressed into my waking hours. I have opted not to use medication and it has been up and down.Mostly up. I work and I work out and maintain a " normal life " as best I can.My one bad habit in the midst of trying to practice some form of health is that I am addicted to smoking. A light smoker maybe three a day but none the less I still smoke and I wonder if that could be the culprit.My last holistic approach has been the parasite cleanse from Dr.hulda and that worked well for 8 months or so but then the seizures came back but only in my sleep.Yesterday was a bad day for me I had a gran mal which last for only 15 to 20 seconds my wife tells me since she often is the one who see's them.But it affects me so greatly afterwards. Emotionally and Spiritually,but that aura is still following me around today. and I am feeling really low today and just needed to express my feelings to people who may understand. > Darrell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 I can understand fo sure. I had another gran mal on Thursday morning. 5 min or so. Bit my tounge, got some nifty little strawberry bruises all over my back and right side of my face. I'm sore as all get out, but hey... at least I'm still here! One of the problems w/ living alone w/ epilepsy... you just never know. I also smoke, and although I haven't found it yet, I am sure there has to be a connection, since every time I try to quit I have a gran mal of some type. Mostly just stress I'm sure, but I am also sure that there has to be a chemical issue as well. I mean, it's nicotene, and if it can give you a buzz, then I'm sure it affects the brain somehow. Try to see the brighter side if you can. At least you have long periods w/o seizures, and at least that's good. I try to remind myself of the same.... many people here don't have that luxury so I try to keep positive. If I could get by on natural methods I would...stay there! I'm trying to find a way to get enough time off (like about 3 months or so) to go ahead and get off of my meds and onto a more natural remedy. Long stories of course, so I'll shut up on that note! I just bought all my groceries on Wed. Got all this wonderful food I love, and now I can't eat anything but liquids for almost a week cuz my toungue hurts so bad!!! AUUUUUUUuuuuugh! Take care of yourself, and try to never let your spiritual self get too bogged down. It's what keeps us afloat! Darrell McCall wrote: > Hey guys it's been awhile since I posted but have been keeping up with > my heart the emails of others.I guess I just need to vent a little. my > seizures started 5 years ago first petite then moving to grand mal.It > started in my sleep then progressed into my waking hours. I have opted > not to use medication and it has been up and down.Mostly up. I work > and I work out and maintain a " normal life " as best I can.My one bad > habit in the midst of trying to practice some form of health is that I > am addicted to smoking. A light smoker maybe three a day but none the > less I still smoke and I wonder if that could be the culprit.My last > holistic approach has been the parasite cleanse from Dr.hulda > and that worked well for 8 months or so but then the seizures came > back but only in my sleep.Yesterday was a bad day for me I had a gran > mal which last for only 15 to 20 seconds my wife tells me since she > often is the one who see's them.But it affects me so greatly > afterwards. Emotionally and Spiritually,but that aura is still > following me around today. and I am feeling really low today and just > needed to express my feelings to people who may understand. > Darrell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 I have been on meds, and off of meds..and now on meds again. I'm really looking forward to being off of them again as soon as possible ! I hate them! I'm trying to detox. How can you detox and be on meds? The reason I brought up valium and klonopin is that when I wasn't taking meds every day, I would drop a valium or klonopin...only when I had seizures and it would stop them. If you are having grand mals though...it probably wouldn't work and it sounds like you want to stay as far away from meds as you can. I applaud you for that. Darrell McCall <dmccall3@...> wrote:Hey thanks Lorinda, and it's okay about the pants.LOL I know what you mean when you say that you sometimes don't want to be here. But I rush those thoughts out as quickly as possible.I wish sometimes I had a valium to take. But I don't so I just move on and try to cope.I am saying to myself today that it will get better.And I am sure they will.I just feel like why me that kinda sorry for your self attitude ya know.But it has helped so much just today being able to write to those that understand.Take care of yourself and when we shed tears lets try and remember that it will get better. By the way are you on medication. Darrell Re: [ ] depressed > > I think for me the worst part of having seizures are the emotions that go with them. The fear, anxiety and depression. I'm in a constant state of suppressed fear and can easily be brought to tears...and laughter ..for some dumb reason. Sometimes I don't want to be here anymore. > I saw a program the other day on the training of handicap dogs. These dogs would warn their owners of seizures that were about to happen so that they could prepare themselves. I've known about that..but, I could have sworn they said that this dog warned its owner 50 minutes ahead of a grand mal. I immediately thought...hmmm...if I had 50 minutes notice, I'd have time to take a valium or klonopin not to mention all the other preparations I could make. I mean, even if it were 15 minutes warning...I could lie down so I wouldn't get hurt.. protect my tongue.... and even make sure my pants were on.. ...(sorry,,,couldn't resist). Anyway, it showed her lying down , arms wrapped around her dog , her support ...waiting... and of course my tears started flowing. > I know you don't have them very often, but you still may want to look into it...for your own sanity. I'm going to.... because even when we seem to be stable...you just never know...and the more control we have over this, the less the stress. > Hope you start feeling better soon, > Lorinda > Darrell McCall wrote:Hey guys it's been awhile since I posted but have been keeping up with my heart the emails of others.I guess I just need to vent a little. my seizures started 5 years ago first petite then moving to grand mal.It started in my sleep then progressed into my waking hours. I have opted not to use medication and it has been up and down.Mostly up. I work and I work out and maintain a " normal life " as best I can.My one bad habit in the midst of trying to practice some form of health is that I am addicted to smoking. A light smoker maybe three a day but none the less I still smoke and I wonder if that could be the culprit.My last holistic approach has been the parasite cleanse from Dr.hulda and that worked well for 8 months or so but then the seizures came back but only in my sleep.Yesterday was a bad day for me I had a gran mal which last for only 15 to 20 seconds my wife tells me since she often is the one who see's them.But it affects me so greatly afterwards. Emotionally and Spiritually,but that aura is still following me around today. and I am feeling really low today and just needed to express my feelings to people who may understand. > Darrell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 May God bless all my epileptic family. I know sometimes we are down so low we feel that we could never stand up again. But we each have something to be thankful for and that is that we have friends whom we can share our thoughts and experiences with that understand exactely what your talking about. If you dont have epilepsy, then you have no idea what thoughts run through a persons minds because the experience is sometimes very tramatic. I have had seiures to where I once feel and cut my head so bad it took 36 stitches to close it up, and then 13 yrs ago I had one so bad i feel and cut my head again, crushed my ankles, and broke my arm by falling off a porch. Ever since my older brother died having a seiure I am frantic of being alone. I am 40 yrs old and I have never spent the night alone. We live out in the country in the middle of 6 acres of woods. I have no one but my mother and when she is gone, I guess I will spend the rest of my life in a nursing home for I am so unstable from having 4 nervous breakdowns since i was 19. But i do have one thing to be thankful for and that is friends. Merry Christmas to all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Darrell: It's good to see that you have had reasonable control without using drugs. My thought on the parasite cleanse only lasting 8 months is that perhaps you've acquired a new parasite. May I ask what other things you've tried? My 13-year-old son has epilepsy and I'm looking for some non drug methods to improve his control. Thanks. > Darrell McCall <dmccall3@...> wrote:Hey guys it's been awhile since I >posted but have been keeping up with my heart the emails of others.I guess >I >just need to vent a little. my seizures started 5 years ago first petite >then moving to grand mal.It started in my sleep then progressed into my >waking hours. I have opted not to use medication and it has been up and >down.Mostly up. I work and I work out and maintain a " normal life " as best I >can.My one bad habit in the midst of trying to practice some form of health >is that I am addicted to smoking. A light smoker maybe three a day but none >the less I still smoke and I wonder if that could be the culprit.My last >holistic approach has been the parasite cleanse from Dr.hulda and >that >worked well for 8 months or so but then the seizures came back but only in >my sleep.Yesterday was a bad day for me I had a gran mal which last for >only >15 to 20 seconds my wife tells me since she often is the one who see's >them.But it affects me so greatly afterwards. Emotionally and >Spiritually,but that aura is still following me around today. and I am >feeling really low today and just needed to express my feelings to people >who may understand. >Darrell _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Hey ,For me it has been hit and miss all the way.For me I have been working on the sugars and the meat eliminating them trying to follow Dr. Hulda s system but everything in her book is bad.LOL.I really feel your pain with your son. I am 40 years old and today I feel as frightened as a 10 year old. It just doesn't fit well with me ya know.But for it is times like this that I try and meditate and pray also along with Dr. s program. My blood pressure is also a bit high and I don't know if that is the cause. Maybe I am just reaching for straws but at this point I don't have much choice. If I go to a conventional doctor medication is the only thing they can tell me. I haven't really given you anything to go on I feel. Reiter's program seems to warrant a look.in the book Taking control of you epilepsy. The program itself in cali is past my budget.but I would love to go. Hey does anyone know if your blood pressure can affect seizures. Darrell Re: [ ] depressed > Darrell: > It's good to see that you have had reasonable control without using drugs. > My thought on the parasite cleanse only lasting 8 months is that perhaps > you've acquired a new parasite. > > May I ask what other things you've tried? My 13-year-old son has epilepsy > and I'm looking for some non drug methods to improve his control. > > Thanks. > > > > > Darrell McCall <dmccall3@...> wrote:Hey guys it's been awhile since I > >posted but have been keeping up with my heart the emails of others.I guess > >I > >just need to vent a little. my seizures started 5 years ago first petite > >then moving to grand mal.It started in my sleep then progressed into my > >waking hours. I have opted not to use medication and it has been up and > >down.Mostly up. I work and I work out and maintain a " normal life " as best I > >can.My one bad habit in the midst of trying to practice some form of health > >is that I am addicted to smoking. A light smoker maybe three a day but none > >the less I still smoke and I wonder if that could be the culprit.My last > >holistic approach has been the parasite cleanse from Dr.hulda and > >that > >worked well for 8 months or so but then the seizures came back but only in > >my sleep.Yesterday was a bad day for me I had a gran mal which last for > >only > >15 to 20 seconds my wife tells me since she often is the one who see's > >them.But it affects me so greatly afterwards. Emotionally and > >Spiritually,but that aura is still following me around today. and I am > >feeling really low today and just needed to express my feelings to people > >who may understand. > >Darrell > > > _________________________________________________________________ > MSN 8 with e-mail virus protection service: 2 months FREE* > http://join.msn.com/?page=features/virus > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 Howdee all, I've had a bad pain week and so far it continues. Feelin sorry for myself (I know so many others have it worse). My pain and depression are feeding off each other and I can't seem to get it to stop. Just thought I'd post to people who understand. Thanks. ivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 most of us go through it and know how you feel. It seems like every time im get a little bit better bang the big break out pain hits. There is nothing wrong in telling this to your doctor and let him help with the depression From: Ivan <darkrabbit2003@...> Subject: Depressed spinal problems Date: Saturday, September 13, 2008, 8:38 AM Howdee all, I've had a bad pain week and so far it continues. Feelin sorry for myself (I know so many others have it worse). My pain and depression are feeding off each other and I can't seem to get it to stop. Just thought I'd post to people who understand. Thanks. ivan Quote Link to comment Share on other sites More sharing options...
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