Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 My doctor just told me that I have Thoracic Outlet Syndrome and is sending me to s Hopkins for surgery. Has anyone else had the surgery for this? I've been living with this for years and didn't know it. I also have 4 other spinal disorders, but this seems the worse (as of now). Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 I am so sorry that you are having to deal with this. Nine years! You must be some kind of gal! Wish that I had that strength. We made a little progress today on daughter's TOS. Apparently I talked to somebody that could get something going yesterday, or sounded desperate enough, or my PCP got things moving after we left his office this morning for my own appointment. This afternoon we got a call - with an apologetic assistant on the other end - saying that we can schedule a CT with contrast for my daughter ASAP. They were very kind about it; now we have to get this on the calendar and nail down exactly what they are testing for. Also said it is not the kind of test that requires prior approval (to be covered by insurance) so there is no reason to wait. That is great! Usually we have to wait about 3-4 weeks for the authorization. It is a step in the right direction. And we have a medical appointment set up for her in a few weeks, and did go ahead to schedule a psychological consultation with her PCP, even though the earliest they could get a 45-minute appointment was the first part of May! They will call us if an opening comes before then. This PCP is GOOD, and people know it; so we have to be patient on his calendar. Debbie Dahl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 What kind of symptoms does your daughter have. My daughter has alot of the same symptoms I do, so I'm worried. She's only 8 but has been having muscle spasm in her neck and shoulders for the past year and a half. It got so bad a couple of times that they gave her valium to help her sleep. Her pediatrician scheduled the TOS test for her at my request. I hope she doesn't have it. It's a horrible thing to deal with. --- Debbie Dahl <gpages@...> wrote: > I am so sorry that you are having to deal with this. > Nine years! You must be some kind of gal! Wish > that I had that strength. > > We made a little progress today on daughter's TOS. > Apparently I talked to somebody that could get > something going yesterday, or sounded desperate > enough, or my PCP got things moving after we left > his office this morning for my own appointment. > This afternoon we got a call - with an apologetic > assistant on the other end - saying that we can > schedule a CT with contrast for my daughter ASAP. > They were very kind about it; now we have to get > this on the calendar and nail down exactly what they > are testing for. Also said it is not the kind of > test that requires prior approval (to be covered by > insurance) so there is no reason to wait. That is > great! Usually we have to wait about 3-4 weeks for > the authorization. > > It is a step in the right direction. And we have a > medical appointment set up for her in a few weeks, > and did go ahead to schedule a psychological > consultation with her PCP, even though the earliest > they could get a 45-minute appointment was the first > part of May! They will call us if an opening comes > before then. This PCP is GOOD, and people know it; > so we have to be patient on his calendar. > > Debbie Dahl > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 e, I am not that well versed on this subject at all- but most of the PT's are-- they have had lots of schooling and education-- almost like a PA for the body's bones, muscles. etc. So I would go with him but still is it possible to get an MRI??? Google it too. Annie A poet is, after all, to see From: e <JBrewe@...> Subject: Thoracic Outlet Syndrome neck pain Date: Monday, January 5, 2009, 2:07 PM Okay, just got back from PT. My PT thinks that what I have is thoracic outlet syndrome. He does not believe I have a herniated disc. I don't have any pain or numbness going down my arm, however...I do have some weakness when using the left arm. Also when he pushes on my shoulders in a laying down position, my left arm will go numb rather quickly. This tells him that my muscles in my pectoral area are extremely tight. He thinks that if I can strengthen my neck muscles, along with my trap, rhomboid and everything upper that my symptoms will go away. Why am I not convinced? Anyone else have TOS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 Only a trained medical professional can tell you if you have TOS. You will need to have X-rays and an MRI done. I too was told that I have TOS. Turns out I have two additional bulging discs above my C5-C7 fusion. Also, there is a simple surgery to fix TOS as well. You should also have a nerve test completed. Good luck! From: e <JBrewe@...> Subject: Thoracic Outlet Syndrome neck pain Date: Monday, January 5, 2009, 2:07 PM Okay, just got back from PT. My PT thinks that what I have is thoracic outlet syndrome. He does not believe I have a herniated disc. I don't have any pain or numbness going down my arm, however...I do have some weakness when using the left arm. Also when he pushes on my shoulders in a laying down position, my left arm will go numb rather quickly. This tells him that my muscles in my pectoral area are extremely tight. He thinks that if I can strengthen my neck muscles, along with my trap, rhomboid and everything upper that my symptoms will go away. Why am I not convinced? Anyone else have TOS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 Well that is my next step, what kind of doctor/specialist should I go to? Thoracic Outlet Syndrome neck pain Date: Monday, January 5, 2009, 2:07 PM Okay, just got back from PT. My PT thinks that what I have is thoracic outlet syndrome. He does not believe I have a herniated disc. I don't have any pain or numbness going down my arm, however...I do have some weakness when using the left arm. Also when he pushes on my shoulders in a laying down position, my left arm will go numb rather quickly. This tells him that my muscles in my pectoral area are extremely tight. He thinks that if I can strengthen my neck muscles, along with my trap, rhomboid and everything upper that my symptoms will go away. Why am I not convinced? Anyone else have TOS? Quote Link to comment Share on other sites More sharing options...
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