Ready to Scream!!!!!

[Guest guest]

I was born with spina bifida myelomengocele which was repaired shortly

after birth. In 2006 after years of seeking a doctor to help me with

all of the headaches/backaches/nerve spasms I finally found one to do

a MRI and ten days later I had a lamnectomy to correct a tethered cord

which was splitting. In 2007 I was losing use of my left hand/arm,

another MRI revealed that I had a herinated disc at C4 which was

corrected with a fusion/hardware. This year I have started having

vision problems in one eye, brain fog, dizziness, nausea, falling down

or falling into things. My regular neuro did a MRI and it shows my

spinal cord now ends at L5 with possible retethering. My neuro said

that she didn't think it was tethered again and unless I have more

symptoms she doesn't want to do anything but watch it for now. Then

the new symptoms started that I mentioned above. She sent me to a

neurologist who deals with brain issues. The radiologist report from

the brain MRI states that my cerebral tonsils extend 5mm into my

spinal canal and are borderline for chiari. I should also mention I

have a syrinx from C4-C7. The neuro appointment was yesterday and he

was 2 hours late so at 5:00 p.m. he flies into the room and says I

just think you are stressed and put me back on Klonopin. This was one

of the drugs I STOPPED taking because I thought it was what was

causing all of my symptoms. I am so sick and tired of being treated

like I am depressed, insane, seeking attention or drugs. Who wouldn't

be depressed after feeling like crap each and every day of their

lives?? I don't want drugs all I want is to know is what is wrong with

me!!!!!!!!! Maybe I should just give up and take the various

medications they keep throwing at me that do make me have brainfog and

continue to live in this dizzy and confused state. I am trying so hard

to hang onto a job and be a productive member of society but it gets

harder each day.

Thanks to anyone who takes the time to read this. I am just frustrated

and using this post as a means to relieve some of the frustration in a

dear diary type manner.

Barb