Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 Hi , It's great that your daughter is doing well. I'm a PT. - once the goals of therapy have been achieved there is no need to continue forever. Keep in mind that it is important to continue with the exercise program that was given to you so that everything that you worked so hard to achieve in therapy will be maintained. Some therapists will follow up monthly or less frequent to make sure that range of motion and muscle strength is maintained. Keep up the good work! Rena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Rena, Thanks for the advice. Back in April when Kelsey was first diagnosed, she was spending most of her time in the bed or just laying around watching tv. Now she is very active and hardly ever sits down! I am very pleased with her progress, needless to say. Sometimes my husband tells me to leave her alone because I'm constantly trying to incorporate exercise/therapy into her play! lol Have a nice weekend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 In a message dated 7/28/00 9:39:38 AM Eastern Daylight Time, imshellrenee@... writes: << 'm constantly trying to incorporate exercise/therapy into her play! >> I do that to, I have a hard time going shopping and buying a toy just because its fun, every toy I look at has to be something to use therapeutically, lol. Always good to hear that i am not alone, lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hello Becki..have you asked your the rheumy if he or she knows of any organizations that can help you when it comes to the physical therapy. I know with Tabitha...I have the access card from the state and it covers only 30 min. sessions..so by the time we get in..it is time to leave..but they taught me therapy to do with her at home when she is smaller. Tabitha(16..poly) also has troubles with her elbows...she can only straightened them so far..plus it is like her arms didn't grow the potential length..or shrunk..I thought of asking about joint replacements in them..We mentioned to the dr. about her shoulders..because she can only raise her arms so high. This disease is so aggravating. But check with your dr. plus..if you see a dr. at a hospital, there might be a social worker who might be able to help. Good luck karen(tabitha16..poly) From: alarson1@... Reply- Subject: physical therapy Date: Wed, 17 Oct 2001 14:14:34 -0000 hi its becki.s lft elbow has a slight contracture.Can pysical therapy fix it or is it to late?We have insurance $15 copay 20% at 2 times a week it would still cost us around $150.My daughters school has a special ed pre-school program where physical and speech therapists come right to the school Even if they are full my daughters teacher knows of kids who come in for speech therapy doesnt know about physical though.I have also read some states offer rehibilitation services to children under 16 with limited income.Does anyone have an idea where to start looking,Im getting pretty desperate. isnt quite 4 months into this disease he has never complained of his elbows hurting yet his left one wont straighten all the way ouy and he cant touch his shoulder. Becki and 3 systemic _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Becki, Contact your local elementary school or superintendent's office. They should be able to give you the number for your district's early intervention program. In our county it is called Child Find. Thru this program should be evaluated for physical therapy and occupational therapy. If his problems are things that will interfere with learning, then he should qualify for services. Liz physical therapy > hi its becki.s lft elbow has a slight contracture.Can pysical > therapy fix it or is it to late?We have insurance $15 copay 20% at 2 > times a week it would still cost us around $150.My daughters school > has a special ed pre-school program where physical and speech > therapists come right to the school Even if they are full my daughters > teacher knows of kids who come in for speech therapy doesnt know about > physical though.I have also read some states offer rehibilitation > services to children under 16 with limited income.Does anyone have an > idea where to start looking,Im getting pretty desperate. isnt > quite 4 months into this disease he has never complained of his elbows > hurting yet his left one wont straighten all the way ouy and he cant > touch his shoulder. Becki and 3 systemic > > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Becki, Try going through the school district for the physical therapy. I have a son(nonJRA) who is recieving OT & PT through our school district and it is free. (MY JRA child) will be tested next month to see if she is eligable for services. Her teacher watched her running and thought maybe an evaluation just to see would be a good idea. Teri > hi its becki.s lft elbow has a slight contracture.Can pysical > therapy fix it or is it to late?We have insurance $15 copay 20% at 2 > times a week it would still cost us around $150.My daughters school > has a special ed pre-school program where physical and speech > therapists come right to the school Even if they are full my daughters > teacher knows of kids who come in for speech therapy doesnt know about > physical though.I have also read some states offer rehibilitation > services to children under 16 with limited income.Does anyone have an > idea where to start looking,Im getting pretty desperate. isnt > quite 4 months into this disease he has never complained of his elbows > hurting yet his left one wont straighten all the way ouy and he cant > touch his shoulder. Becki and 3 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Becki..hello it is karen again...Tabitha receives physical therapy during school..twice a week..she had an OT do an evaluation on her for school but it was needed..since she could feed herself and had an aide to assist her needs..as far as, carrying her lunch tray and such.If you can get your doctor to write a prescription for in school OT and PT during school..the school has to get someone to come in and evaluate the child..and the school system pays for the services while in school. Here it is the Lincoln Intermediate Unit..check with the guidance counselor at school..they should be able to help also. Sorry to keep rambling..trying to think of some solutions for you and . karen(tabitha16..poly) From: alarson1@... Reply- Subject: physical therapy Date: Wed, 17 Oct 2001 14:14:34 -0000 hi its becki.s lft elbow has a slight contracture.Can pysical therapy fix it or is it to late?We have insurance $15 copay 20% at 2 times a week it would still cost us around $150.My daughters school has a special ed pre-school program where physical and speech therapists come right to the school Even if they are full my daughters teacher knows of kids who come in for speech therapy doesnt know about physical though.I have also read some states offer rehibilitation services to children under 16 with limited income.Does anyone have an idea where to start looking,Im getting pretty desperate. isnt quite 4 months into this disease he has never complained of his elbows hurting yet his left one wont straighten all the way ouy and he cant touch his shoulder. Becki and 3 systemic _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Becki, yes PT can help to prevent the conracture of the joints, and as for the cost, if the therapist shows you, you can work with at home so you don't have a need to go in for PT , rather just an occasional check in. I too faced the joint contraction, although I still have some it stop severe contracture. Rusty Limbs On Wed, 17 Oct 2001 14:14:34 -0000 alarson1@... writes: > hi its becki.s lft elbow has a slight contracture.Can pysical > therapy fix it or is it to late?We have insurance $15 copay 20% at 2 > > times a week it would still cost us around $150.My daughters school > > has a special ed pre-school program where physical and speech > therapists come right to the school Even if they are full my > daughters > teacher knows of kids who come in for speech therapy doesnt know > about > physical though.I have also read some states offer rehibilitation > services to children under 16 with limited income.Does anyone have > an > idea where to start looking,Im getting pretty desperate. isnt > quite 4 months into this disease he has never complained of his > elbows > hurting yet his left one wont straighten all the way ouy and he cant > > touch his shoulder. Becki and 3 systemic > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dear Becki, When Kate was dx. at 3--is now 7--she had to go to therapy 8x's a month due to contractures. Our insurance would only pay for 6 weeks of any one condition--anyway--she has been going for 4 years now--and the hospital found us a program called Children With Special Health Care Needs that will pick up what your insurance doesn't cover. They've been a blessing to us (they covered her meds as well--but that's another long story! lol!) Ask to speak to your hospital's social worker and ask about programs--there are some out there--unfortunately sometimes you have to look hard for them. We live in Indiana---but I'm sure other places have them. Kate's program covers everything from her medical to her dental to legcasts, handsplints etc...that our insurance won't cover, I hope I could help some. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Does anyone have experience with Physical Therapy in the elementary grades? I am interested in your response if you get it as a service in school. What do they do weekly for your child and do they consult with Teacher. I have found that relatively few ds children receive PT services after preschool. My daughter does not walk independently up/down stairs, run or jump. She is 5 yrs old. The school PT is resistent to any suggestions. I have my daughter in 4.5 hours a day short of a full day special ed. They have all physical activities in the pm after she leaves i.e. recess. Any suggestions. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 11/2/01 11:51:05 PM Pacific Standard Time, dben937342@... writes: << Does anyone have experience with Physical Therapy in the elementary grades? I am interested in your response if you get it as a service in school. What do they do weekly for your child and do they consult with Teacher. I have found that relatively few ds children receive PT services after preschool. My daughter does not walk independently up/down stairs, run or jump. She is 5 yrs old. The school PT is resistent to any suggestions. I have my daughter in 4.5 hours a day short of a full day special ed. They have all physical activities in the pm after she leaves i.e. recess. Any suggestions. Diane >> Hi Diane, Seth is 5 years old and has had PT since he was a baby. In our county I think there needs to be a 30% delay in gross motor skills to qualify for PT. Seth goes to school for 3 hours a day (short full day special ed too) and still gets PT twice a week. Seth will do stairs and jumping only if he is holding my hand, but he still can't run yet. Do you know the gross motor delay for Rochelle? Seth works on trike, balance beam, stairs, stepping over-in-on courses, laying on a skateboard and pushing with his arms, and spends a lot of time walking VERY fast to get out of the room. LOL Seth's class does a lot of playground and walking in the afternoon when he leaves too, but he is active enough around here, so he isn't missing anything. Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 > Does anyone have experience with Physical Therapy in the elementary grades? I am interested in your response if you get it as a service in school. What do they do weekly for your child and do they consult with Teacher. I have found that relatively few ds children receive PT services after preschool. My daughter does not walk independently up/down stairs, run or jump. She is 5 yrs old. The school PT is resistent to any suggestions. I have my daughter in 4.5 hours a day short of a full day special ed. They have all physical activities in the pm after she leaves i.e. recess. Any suggestions. > > Diane > Gee Diane , Just trying to remember what went through during his elemantary days , makes my memory go dizzy , whew ! Its hard to believe went through all that . had OT/PT since he was 5 months old . By the time he reached elementary , it was easy to discuss what areas still needed concentration on and so it was applied to his IEP along with us keeping him home during the summer for private PT and home Therapy . Don't worry about the jumping yet , concentrate on Rochelle trying to balance well for now , keeping her gross motor skills to strengthen with Therapy needed . This site will explain why - http://www.altonweb.com/cs/downsyndrome/winders.html Once again , I'll see which home Therapy I did for at home . I know it involved practicing walking up and down the stairs , so that he could alternate his feet , leg work-out , mini-trampoline , walking on a beam , & riding a tricycle with the strapped peddles with assistance are a few . Oh ! How could I forget the Mickey Mouse excercise , that one was cute . As his motor skills strength improved, then gradually adaptive PE was included on his IEP . I was worried at first when one of his PT had mentioned that no longer needed it . The PT told me not to worry , he was able to balance well and if I was still worried we could always go back to plan A , but it was not necessary because she proved me right . To this day now he is doing wonderful , even jumping which he had just learned . It was nice seeing him doing the running long jump and the standing long jump along with the 50 & 100 yard dash run . received a Track & Field Award for outstanding achievement at the Special Olympics training clinic . Yes, could say been there , done that . You are not alone on this , many here will be glad to share what their kids went through , plus there are so much updated information . Do you have any type of State Health Services in your area , besides your health insurance ? Ok , you know me I get carried away . Take care , don't mean to bore you . : ) Irma, 13,DS/ASD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 11/3/01 12:21:00 PM Eastern Standard Time, ICANFIELD@... writes: > To > this day now he is doing wonderful , even jumping which he had just > learned . It was nice seeing him doing the running long jump and the > standing long jump along with the 50 & 100 yard dash run . > received a Track & Field Award for outstanding achievement at the > Wow, I didn't know he got a medal for jumping and running. That is impressive considering he was still getting PT in elementary school. Thanks for the website, I did read it. Pat Winders did Rochelle's eval. and I am awaiting the written copy. I will give this printed copy from Riverbed to the Sped teacher. Thanks. I asked the PT if she had experience with DS kids and she said very few get PT in elementary school. Soooo I guess thats a no or not many. Yet, she disagrees quite nicely with the suggestions Pat has made for Rochelle. I was so upset I couldn't sleep Friday night. Came down to the computer and starting writing to you guys. An as usual, you all are very helpful. Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 I had O.T. when I was younger, I don't know if I had P.t., I probablly did. I don't know if it was thought the school- though it might have been. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Hi Diane, My son Brook is 11 yrs and doesn't run or jump. I'm really not concerned about it. He did have a lot of difficulty with stairs and he did have physical therapy in his IEP until about 3 or so years ago. We had goals in his IEP regarding climbing and descending stairs safely and transversing uneven surfaces. He is much better at stair climbing now as long as their is a handrail to hold onto, otherwise he needs a hand to hold. Marisa Mom to Miles 14, Brook 11yrs and Genevieve 4yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 11/4/01 12:38:34 AM Eastern Standard Time, poggim@... writes: > Hi Diane, > My son Brook is 11 yrs and doesn't run or jump. I'm really not concerned > about it. > He did have a lot of difficulty with stairs and he did have physical > therapy > in his IEP until about 3 or so years ago. We had goals in his IEP regarding > climbing and descending stairs safely and transversing uneven surfaces. He > is much better at stair climbing now as long as their is a handrail to hold > onto, otherwise he needs a hand to hold. > > Marisa, Does Brook wear glasses? I just wonder if some of this cautious movement is visual perceptual. I just want Rochelle (wears bifocals) to be independent and I worry that if she continues this stop/drop/flop thing that my back will suffer. I try to not pick her up because I do have a bad back due to picking up both kids the wrong way. I am always in a hurry so I need to slow down. Just want her to have fun too. Thanks for your imput, maybe I worry to much. Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Does Brook wear glasses? I just wonder if some of this cautious movement is visual perceptual. I just want Rochelle (wears bifocals) to be independent and I worry that if she continues this stop/drop/flop thing that my back will suffer. I try to not pick her up because I do have a bad back due to picking up both kids the wrong way. I am always in a hurry so I need to slow down. Just want her to have fun too. Thanks for your imput, maybe I worry to much. > Diane (mom to Rochelle ds-5 and Danny 7) > Diane , Never say worry , just a concerned MOM . Glad you do want to watch your back , because it will occur in time as the kids get older your muscle spasms increases and tightens up more , not a pretty picture when trying to lift them when they're older and stronger . Make sure you always wear good arch support shoes and a possible ab belt when staying active , like when your cleaning & etc. . Try to do some back stretches , at least 15 minutes a day ,3x-a wk.. So that you could avoid any future major back problems . My doc said my injured back was due to what you had mentioned . I was always on the go also and always lifted the wrong way . Say, a Therapeutic excercise ball would not be bad also at home , for both you and Rochelle . just loved the huge ball . The visual perception could be a possibility . I remember would run , such a runner to this day , anyways before he had his glasses, he would just bump around and looked down at the floor all the time , no telling if that had triggered some sensitivity issues . Irma, 13,DS/ASD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 In a message dated 11/4/01 8:47:58 AM Eastern Standard Time, ICANFIELD@... writes: > Make sure > you always wear good arch support shoes and a possible ab belt when > staying active , like when your cleaning & etc. . Try to do some back > stretches , at least 15 minutes a day ,3x-a wk.. So that you could > avoid any future major back problems . My doc said my injured back > was due to what you had mentioned . I was always on the go also and > Irma, did you say cleaning? what cleaning? I'm always on the computer now. LOLO Sorry to hear about your back. Did you go to a Chiropractor? I did when I was getting no relief. It helped. The best thing though was getting a new firm mattress. And, I have started working out 3x a week at the gym. Thanks for being concerned. I will add some back stretches to my routine. Now if I can just stop eating the kids chocolate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 > In a message dated 11/4/01 8:47:58 AM Eastern Standard Time, > Irma, did you say cleaning? what cleaning? I'm always on the computer now. HA Ha ! Can't stay away , huh ? How funny ! I don't blame you , when I first attended my first local autism support group . One of the WARNINGS was that the INTERNET would be your friend . It does invovle alot of RESEARCH info, plus many wonderful friends with a Blessed HEART that can relate , like you all . LOLO Sorry to hear about your back. Did you go to a Chiropractor? I still am , going on 2 yrs . now . I have a tiny cyst that is right next to my lumbar area , so when goes into one of those melt- downs , I just let him cool down , because if I try to lift him up , OUCH ! Its better this year though . I have to twist my husbands arm to contact his Health Insurance to request for a good orthopedic (sp.) that will accept our insurance . I mean, to remind him , : ) I did when I was getting no relief. It helped. The best thing though was getting a new firm mattress. And, I have started working out 3x a week at the gym. Thanks for being concerned. I will add some back stretches to my routine. Now if I can just stop eating the kids chocolate. Oh yeah , right ! Good luck with those chocolates . You know thats impossible !! Glad to read that you are taking care of yourself . Because you do have 2 little ones that need you . Take care . Irma, 13,DS/ASD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 In a message dated 11/4/01 9:07:32 PM Eastern Standard Time, ICANFIELD@... writes: > Sorry to hear about your back. Did you go to a Chiropractor? > > Thanks for asking Irma. My back is fine these days. I just don't pick-up Rochelle from the front. I do let her ride piggy back. That doesn't hurt at all. I did see a Chiropractor for 10 visits or so. I think it helped some. I haven't had any painful episodes since. Maybe because I haven't done much cleaning. LOLOLO My DH does the kitchen floor, bathtubs and food shopping. He is so much more helpful. I hope we can come up with something so Rochelle won't do that sit anywhere stuff. Hope she will outgrow it. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Becky, I've typed two messages to you and hit wrong keys at the end, so I'm not sure if they'll come through to you. I'll email you instead. Thanks, loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Re: Physical Therapy > Are you here in the Portland area Mike? No, I am actually almost 1000 miles away in Montana. I was referred to OHSU by a friend. I have seen a half dozen OSs in the last 8 weeks. I am going with Dr. Crawford's recommendations. By " full > knees " , do you mean knee replacements? Yes. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 (if I've got the chain of communications right, you're the one whose doctor is considering TKR) -- may I ask how old you are, give or take? Thanks. Ann Re: Physical Therapy > Are you here in the Portland area Mike? No, I am actually almost 1000 miles away in Montana. I was referred to OHSU by a friend. I have seen a half dozen OSs in the last 8 weeks. I am going with Dr. Crawford's recommendations. By " full > knees " , do you mean knee replacements? Yes. Mike ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Re: Physical Therapy > > > > Are you here in the Portland area Mike? > > No, I am actually almost 1000 miles away in Montana. I was referred to OHSU > by a friend. I have seen a half dozen OSs in the last 8 weeks. I am going > with Dr. Crawford's recommendations. > > By " full > > knees " , do you mean knee replacements? > > Yes. > > Mike > > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 I asked because I'm 61 and my (now fired) OS told me I was " too young " for a TKR. I think his real problem was that, he being the team doc for the Sac. Kings, he'd lost interest in real people. Ann Re: Physical Therapy > > > > Are you here in the Portland area Mike? > > No, I am actually almost 1000 miles away in Montana. I was referred to OHSU > by a friend. I have seen a half dozen OSs in the last 8 weeks. I am going > with Dr. Crawford's recommendations. > > By " full > > knees " , do you mean knee replacements? > > Yes. > > Mike > > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
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