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I would love to talk to you more!! I dont have SMA but my 4 year old son

does. Feel free to email me kenya@...

Kenya

-- I`m new here

hello everybody!

i`m here for first time. few days ago i`ve discovered FSMA page and

now i`m trying to find some new friends. and of course i`m looking

for any informations about sma and cure for that.

let me tell you something about myself - my name is patricia, but i

prefer when people call me patie. i`m 23 from poland. last month

i`ve finished studies - philosophie. next year i`m planning to go to

psycholgie. i love music, especially rock, jazz, blues etc. i also

love books - this is my addict. i like to travel and i love to

makeing new friends. what else...? well i love going to the movies

and concerts. i`ve got dog, turtels and few fishes.

i`m looking forward to hear from people with sma or with that one

who`s interested in knowing me further.

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  • 4 years later...
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I have this electric shock feeling on my right buttucks..I am in so

much pain ..I have to sit on ice most of the time..Its been 6 weeks..I

am seeing a physical therapist Thursday,,I don`t know what it is...

Has anyone ever had the same things...And what could be causing it..I

was told a couple of years ago that I had stenosis of the spine....

I just can`t stand it...I hope I get a reply..

lovingly,

Connie

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