Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Hi Kristi, I know how horrible it is, but you have to stick it out. I'm on week #3 of being off Effexor and I'm still not right--profuse sweating, dizziness, nausea. But if you realize that it is something that will end, you can do it. It's not forever, but it's not pleasant. Please hang in there and get off the crap. I had a hard time coming off Lex also. Deb I am new My experience with Lex is horrible! I have tried cutting down, and the WD's are horrible! I feel like my head is a gigantic bubble, and I can't think for crap. I am always sleepy, and I have NO sex drive....I am 25 and newly married so this part really sucks! But yet, the WD feelings are so horrible, that I absolutey couldn't stand going completely off! I just wish these damn drug companies would take a look at the side effects and WD effects before putting it out on the market. I have been on it for almost two years (right when it came out) started at 20mg, and I am now at 5mg. I was on Celexa right before this at 40 mg and was having the same problems. Kristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Give us your renin and aldo results and what is normal in the lab that did them. What meds were you on and for what at the time of the testing? Tell us about you history of low K. Other details on HTN, nocturia etc would be helpful In a message dated 10/2/2004 8:44:50 PM Eastern Daylight Time, " juliegf65 " <juliegf65@...> writes: > > >Hi there, > >I was frequenting a message board for people with endocrine >disorders, however recently test results have indicated that I have >Conn's Syndrome. One of the other people posting told me about this >site and here I am. I have been sick and undiagnosed for many years >but now that I have these test results I am feeling hopeful. My >blood pressure has been elevated and I have been having terrible >migraines which I feel may be aggrevated by this syndrome. Also have >been experiencing abdominal and facial swelling. >It is great to find a site that brings together people with terrible >illness. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 aldosterone 570 pmol/l (ref range 100 - 860) renin activity 0.5 ng/ml/hr (ref range 1.0 - 4.0 ng/ml/hr) aldo/renin ratio 1140 What do you think? I am seeing a local endocrinologist on Tuesday to get some feedback as the endocrinologist who ordered the tests is interstate (travelled to see him) and currently on holidays. I was told that the facilitator of the board is actually a doctor with Conn's. Is that correct? -- In hyperaldosteronism , lowerbp2@a... wrote: > Give us your renin and aldo results and what is normal in the lab that did them. What meds were you on and for what at the time of the testing? > > Tell us about you history of low K. > > Other details on HTN, nocturia etc would be helpful In a message dated 10/2/2004 8:44:50 PM Eastern Daylight Time, " juliegf65 " <juliegf65@y...> writes: > > > > > > >Hi there, > > > >I was frequenting a message board for people with endocrine > >disorders, however recently test results have indicated that I have > >Conn's Syndrome. One of the other people posting told me about this > >site and here I am. I have been sick and undiagnosed for many years > >but now that I have these test results I am feeling hopeful. My > >blood pressure has been elevated and I have been having terrible > >migraines which I feel may be aggrevated by this syndrome. Also have > >been experiencing abdominal and facial swelling. > >It is great to find a site that brings together people with terrible > >illness. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I have tried all SSRI's, with the exception of Wellbutrin. Prozac made me violent, Paxil increased my anxiety, Zoloft of Effexor did not help at all. I don't know what to do! In a message dated 9/30/2004 11:05:20 PM Eastern Daylight Time, bjarrett@... writes: Apparently this drug is not for you. Either Celexa or Lexapro which are really the same thing. What other SSRI's have you tried, if any? Barbara I am new > My experience with Lex is horrible! I have tried cutting down, and the WD's > are horrible! > I feel like my head is a gigantic bubble, and I can't think for crap. I am > always sleepy, and I have NO sex drive....I am 25 and newly married so this > part really sucks! > But yet, the WD feelings are so horrible, that I absolutey couldn't stand > going completely off! > I just wish these damn drug companies would take a look at the side effects > and WD effects before putting it out on the market. I have been on it for > almost two years (right when it came out) started at 20mg, and I am now at 5mg. > I was on Celexa right before this at 40 mg and was having the same problems. > > Kristi > > > [Non-text portions of this message have been removed] > > > > > > Links > > > > > ------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I can't really stick it out! I am also on 30mg of Valium a day to help with vertigo caused by a stroke. Cutting has exabberated my stroke symptoms. I wasn't on anything before my storke, but the benzos made me really depressed, which is why I went on Celexa in the first place. I have tried taking 2.5mg of Lexapro, and I can feel the WD effects within hours. I can deal with the sweating, nausea, and vomoting, but I can't deal with vertigo, anxiety, and the general feeling of not feeling like I am in my own head......I can't describe it any better. In a message dated 10/1/2004 5:47:21 AM Eastern Daylight Time, damndanes@... writes: Hi Kristi, I know how horrible it is, but you have to stick it out. I'm on week #3 of being off Effexor and I'm still not right--profuse sweating, dizziness, nausea. But if you realize that it is something that will end, you can do it. It's not forever, but it's not pleasant. Please hang in there and get off the crap. I had a hard time coming off Lex also. Deb I am new My experience with Lex is horrible! I have tried cutting down, and the WD's are horrible! I feel like my head is a gigantic bubble, and I can't think for crap. I am always sleepy, and I have NO sex drive....I am 25 and newly married so this part really sucks! But yet, the WD feelings are so horrible, that I absolutey couldn't stand going completely off! I just wish these damn drug companies would take a look at the side effects and WD effects before putting it out on the market. I have been on it for almost two years (right when it came out) started at 20mg, and I am now at 5mg. I was on Celexa right before this at 40 mg and was having the same problems. Kristi [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Tiredness and no sex drive were my main side effects. WD symptoms are a whole different story! In a message dated 10/1/2004 10:31:20 AM Eastern Daylight Time, terry120953@... writes: Is that the only side effect you experienced? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 A agree. That might be the problem. It's worth a try... Barbara Re: I am new > > I'm not a doctor, but is it possible that your anxiety is not caused by an imbalance or that the imbalance is not in serotonin? Wellbutrin is not an SSRI, as it doesn't affect serotonin, but rather, I blieve, dopamine and norepinephrine. Maybe you should talk to your doctor about non-SSRI methods of controlling your anxiety? > > TE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I trained with Dr. Connn and have see about 100 pts with it. Ask what pts with proven Conns have had for aldo renin ratio in that lab. Has you K ever been low.? May your pressure be low! Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD Professor of Medicine and Epidemiology Medical College of Wisconsin Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Has your BP response to spironolactone been tested? May your pressure be low! Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD Professor of Medicine and Epidemiology Medical College of Wisconsin Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 In a message dated 10/5/04 18:27:46, juliegf65@... writes: ther details on HTN, nocturia, etc., would be helpful In a message > dated 10/2/2004 8:44:50 PM Eastern Daylight Time, "juliegf65" > <juliegf65@y...> writes: How many times do you get up to pee at night? How much do you pee, a little or a lot? How long have you had to get up at night to pee before it is time to get up? When you were tried on spironolactone for your BP or low K or high aldo renin ration did the need to get up to pee at night decrease? If you do not have to get up to pee before it is time to get up means you do not likely have PA or its variants. However one the average people with HTN have to get up to pee more than those without HTN. Grim Hypothesis: The reason you have to get up to pee at night with HTN or PA relates to the fact that HTN, in general, cannot get rid of the excess salt they eat during the day. This can be done at night by keeping the BP up (when it normally goes down) in order to excrete the sodium. Thus many HTN have higher BP at night than NT folks and many do not go down at night much at all. They are called non-dippers as the BP does not normally go down at night. May your pressure be low! Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD Professor of Medicine and Epidemiology Medical College of Wisconsin Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 I never know how to respond to these threads - at the top or the bottom. Anyway I saw an endocrinologist who does not think my results are significant. I am disappointed as I feel I am symptomatic. Based on the results that I have mentioned on this thread, are there any opinions on this matter? > > Give us your renin and aldo results and what is normal in the lab > that did them. What meds were you on and for what at the time of > the testing? > > > > Tell us about you history of low K. > > > > Other details on HTN, nocturia etc would be helpful In a message > dated 10/2/2004 8:44:50 PM Eastern Daylight Time, " juliegf65 " > <juliegf65@y...> writes: > > > > > > > > > > >Hi there, > > > > > >I was frequenting a message board for people with endocrine > > >disorders, however recently test results have indicated that I > have > > >Conn's Syndrome. One of the other people posting told me about > this > > >site and here I am. I have been sick and undiagnosed for many > years > > >but now that I have these test results I am feeling hopeful. My > > >blood pressure has been elevated and I have been having terrible > > >migraines which I feel may be aggrevated by this syndrome. Also > have > > >been experiencing abdominal and facial swelling. > > >It is great to find a site that brings together people with > terrible > > >illness. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Not that I am aware of, it has always been normal - sometimes even high which confuses me. My Na is on the high side of normal too. > I trained with Dr. Connn and have see about 100 pts with it. > > Ask what pts with proven Conns have had for aldo renin ratio in that lab. > Has you K ever been low.? > > > > May your pressure be low! > > Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD > Professor of Medicine and Epidemiology > Medical College of Wisconsin > Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 > > If you do not have to get up to pee before it is time to get up means you do > not likely have PA or its variants. > Uh oh... I rarely have needed to get up to pee in the middle of the night, even before I was DX'd and treated. I guess that's not a good sign, huh? Yet, my CT was positive. I am such a complex patient! :-) Thank you so much for being on this board and dealing with folks like myself. Thanks, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 My anxiety goes hand and hand with my vertigo from my stroke. I am not taking Lexapro for anxiety, I am taking it for the depression that the benzos caused. I have tried Lamictal, which caused heart palpatations, and Risperdal which caused me to lactate. In a message dated 10/4/2004 10:57:44 AM Eastern Daylight Time, seagraeme@... writes: I'm not a doctor, but is it possible that your anxiety is not caused by an imbalance or that the imbalance is not in serotonin? Wellbutrin is not an SSRI, as it doesn't affect serotonin, but rather, I blieve, dopamine and norepinephrine. Maybe you should talk to your doctor about non-SSRI methods of controlling your anxiety? TE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 I wish that I COULD go on Wellbutrin because there is no loss of sexual function with it. However, I am prone to seizures and I can not take it In a message dated 10/4/2004 11:12:44 AM Eastern Daylight Time, ashmo27510@... writes: Paxil was awful for me but a mixture of Wellbutrin and Lex has really helped my depression and anxiety. Ash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 What does PA stand for exactly? I'm knew to the board so be patient please.Thanks.Heidi Re: I am new > > If you do not have to get up to pee before it is time to get up means you do > not likely have PA or its variants. > Uh oh... I rarely have needed to get up to pee in the middle of the night, even before I was DX'd and treated. I guess that's not a good sign, huh? Yet, my CT was positive. I am such a complex patient! :-)Thank you so much for being on this board and dealing with folks like myself.Thanks,Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 In a message dated 10/6/04 8:20:08, hj.rankin5@... writes: What does PA stand for exactly? I'm knew to the board so be patient please.Thanks.Heidi Primary aldosteronism. May your pressure be low! Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD Professor of Medicine and Epidemiology Medical College of Wisconsin Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 The CT was positive means there is a bump on or in your adrenal. A bump can be fat, lipoma, TB, pheo, neuroma as well as one that makes too much aldo or cortisol. Only biochemical testing of the blood draining the bump will tell you it has anything to do with your BP. My motto is to never operate without the biochemistry that tells you what the bump is doing. I may just be a bump-so called nonfunctional adrenal adenoma and there are lots of them out there. In a message dated 10/6/04 0:23:29, lord_mike_the_great@... writes: > > If you do not have to get up to pee before it is time to get up means you do > not likely have PA or its variants. > Uh oh... I rarely have needed to get up to pee in the middle of the night, even before I was DX'd and treated. I guess that's not a good sign, huh? Yet, my CT was positive. I am such a complex patient! :-) Thank you so much for being on this board and dealing with folks like myself. Thanks, May your pressure be low! Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD Professor of Medicine and Epidemiology Medical College of Wisconsin Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Raynaud's can be caused/aggravatged by BB. How long have you had it ahd how does it manifest? In a message dated 10/6/04 20:36:14, hj.rankin5@... writes: I have PA (now that I know what it stands for, I always though it was P. hy....) and I also have reynauds disease. Could reynauds contribute to hbp? Can you suggest how to combat that? As for the night urination. You are very lucky if you can make it through the night. Only maybe 4 or 5 nights since January have I slept thru. I'm usually up 1x's or 2x's. Re: I am new Thank you doctor... I forgot to add my blood and urine work strongly suggest PA as well. Aldo/renin ratio of 48 and elevated urine aldosterone, but haven't had nightly urinary problem. Some days, when I've been feeling especially symptomatic (which is always at night as you have noted), I would need to pee within 30 minutes after laying down (and maybe once more), but once I had fallen asleep I was usually ok. Sometimes I'd wake up in the middle of the night, but that was rare. As for the other possibilities for the hypertensive stuff, pheo and cushings have been extensively investigated. I haven't been exposed to TB. Not sure aobut lipoma or neuroma, but I understand what you are saying. To my doctors credit, he still says "probable PA" instead of definite, although it does make sense. My BP is finally lowering again today. I seem to have broken my week-long hypertensive cycle. I think an allergic reaction and cold weather triggered it. I also have reynauds disease, and when my hands get cold, it seems that ALL my blood vessels sieze up as well. I don't know if that's a cause or the effect of some of my problems. Thank you again for helping all of us on this forum. :-D Thanks, Mike > > > > > > If you do not have to get up to pee before it is time to get up > > means you do > > > not likely have PA or its variants. > > > > > > > Uh oh... I rarely have needed to get up to pee in the middle of the > > night, even before I was DX'd and treated. I guess that's not a > > good sign, huh? Yet, my CT was positive. I am such a complex > > patient! :-) > > > > Thank you so much for being on this board and dealing with folks > > like myself. > > > > Thanks, > > > > > > > > May your pressure be low! > > Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD > Professor of Medicine and Epidemiology > Medical College of Wisconsin > Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Thank you doctor... I forgot to add my blood and urine work strongly suggest PA as well. Aldo/renin ratio of 48 and elevated urine aldosterone, but haven't had nightly urinary problem. Some days, when I've been feeling especially symptomatic (which is always at night as you have noted), I would need to pee within 30 minutes after laying down (and maybe once more), but once I had fallen asleep I was usually ok. Sometimes I'd wake up in the middle of the night, but that was rare. As for the other possibilities for the hypertensive stuff, pheo and cushings have been extensively investigated. I haven't been exposed to TB. Not sure aobut lipoma or neuroma, but I understand what you are saying. To my doctors credit, he still says " probable PA " instead of definite, although it does make sense. My BP is finally lowering again today. I seem to have broken my week-long hypertensive cycle. I think an allergic reaction and cold weather triggered it. I also have reynauds disease, and when my hands get cold, it seems that ALL my blood vessels sieze up as well. I don't know if that's a cause or the effect of some of my problems. Thank you again for helping all of us on this forum. :-D Thanks, Mike > > > > > > If you do not have to get up to pee before it is time to get up > > means you do > > > not likely have PA or its variants. > > > > > > > Uh oh... I rarely have needed to get up to pee in the middle of the > > night, even before I was DX'd and treated. I guess that's not a > > good sign, huh? Yet, my CT was positive. I am such a complex > > patient! :-) > > > > Thank you so much for being on this board and dealing with folks > > like myself. > > > > Thanks, > > > > > > > > May your pressure be low! > > Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD > Professor of Medicine and Epidemiology > Medical College of Wisconsin > Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 I have PA (now that I know what it stands for, I always though it was P. hy....) and I also have reynauds disease. Could reynauds contribute to hbp? Can you suggest how to combat that? As for the night urination. You are very lucky if you can make it through the night. Only maybe 4 or 5 nights since January have I slept thru. I'm usually up 1x's or 2x's. Re: I am new Thank you doctor... I forgot to add my blood and urine work strongly suggest PA as well. Aldo/renin ratio of 48 and elevated urine aldosterone, but haven't had nightly urinary problem. Some days, when I've been feeling especially symptomatic (which is always at night as you have noted), I would need to pee within 30 minutes after laying down (and maybe once more), but once I had fallen asleep I was usually ok. Sometimes I'd wake up in the middle of the night, but that was rare.As for the other possibilities for the hypertensive stuff, pheo and cushings have been extensively investigated. I haven't been exposed to TB. Not sure aobut lipoma or neuroma, but I understand what you are saying. To my doctors credit, he still says "probable PA" instead of definite, although it does make sense.My BP is finally lowering again today. I seem to have broken my week-long hypertensive cycle. I think an allergic reaction and cold weather triggered it. I also have reynauds disease, and when my hands get cold, it seems that ALL my blood vessels sieze up as well. I don't know if that's a cause or the effect of some of my problems.Thank you again for helping all of us on this forum. :-DThanks,Mike> > >> > > If you do not have to get up to pee before it is time to get up> > means you do> > > not likely have PA or its variants.> > >> > > > Uh oh... I rarely have needed to get up to pee in the middle of the> > night, even before I was DX'd and treated. I guess that's not a> > good sign, huh? Yet, my CT was positive. I am such a complex> > patient! :-)> > > > Thank you so much for being on this board and dealing with folks> > like myself.> > > > Thanks,> > > > > > > > May your pressure be low!> > Clarence E. Grim, BS (Chemistry and Mathematics), MS (Biochemistry), MD> Professor of Medicine and Epidemiology> Medical College of Wisconsin> Board certified in Hypertension, Internal Medicine and Geriatrics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Hi Beth, I am also a nurse.I've had " A " for 16 yrs.When I was first diagnosed I couldn't find much info on this disorder.I only found this group about 6-8 months ago.It is the greatest.It is full of info and caring people that understand.Welcome to group. Sherry from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 Hello Lynn Welcome to the group, hope it helps you as much as its helped me over the pst few wks. Best wishes Netty >From: " Lynn Downs " <oboy4boys@...> >Reply-Autism and Aspergers Treatment ><Autism and Aspergers Treatment > >Subject: I am new >Date: Sun, 27 Mar 2005 10:10:12 -0500 (Eastern Standard Time) > >Hello everyone. I just joined a few days ago and wanted to introduce >myself > My name is Lynn and I am the mother of four boys who range in age from >almost 19 to 8. My 10 year old, , was diagnosed formally with AS in >November. He had been diagnosed ADHD since the age of 4 and had been on >some form of meds ever since. He is now ADHD med free and we are working >towards beginning meds for the anxiety issues and noise sensitivity issues >he has. He has a lot of phobias that affect all aspects of his life, here >and at school. His grades are all over the place but his IQ testing put >him >at 169. He does a lot of stimming and has some echolachia. He can be loud >and argumentative and has no friends at all. Every new kid at school is >his >friend for about a week until they get to know him and then they are gone. >He is currently seeing a psychiatrist for meds and evaluations, and has an >in-home therapist who visits either her or at school at least 4 times a >week > She is a god send and he really likes her. We are going for his IEP >eligibility meeting on the 11th and I am hoping we can get some help in >school. He had a 504 but we need to address the ED issues. >Thank you for letting me be long winded! > >Lynn >Need Tupperware? >Visit my website at www.my.tupperware.com/LynnDowns > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Welcome Lynn!! Glad to have you on board! Don't worry about being long-winded, we all are at times, that's why were here, to listen and be there for each other! Hope all works out well with your son. Lynn Downs <oboy4boys@...> wrote: Hello everyone. I just joined a few days ago and wanted to introduce myself. My name is Lynn and I am the mother of four boys who range in age from almost 19 to 8. My 10 year old, , was diagnosed formally with AS in November. He had been diagnosed ADHD since the age of 4 and had been on some form of meds ever since. He is now ADHD med free and we are working towards beginning meds for the anxiety issues and noise sensitivity issues he has. He has a lot of phobias that affect all aspects of his life, here and at school. His grades are all over the place but his IQ testing put him at 169. He does a lot of stimming and has some echolachia. He can be loud and argumentative and has no friends at all. Every new kid at school is his friend for about a week until they get to know him and then they are gone. He is currently seeing a psychiatrist for meds and evaluations, and has an in-home therapist who visits either her or at school at least 4 times a week. She is a god send and he really likes her. We are going for his IEP eligibility meeting on the 11th and I am hoping we can get some help in school. He had a 504 but we need to address the ED issues. Thank you for letting me be long winded! Lynn Need Tupperware? Visit my website at www.my.tupperware.com/LynnDowns Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Hi Lynn, I'm new to the list also and have mostly been reading. I also have a 10 yr old (3 boys, 1 girl) who has not been dx yet. We just found out that insurance will pay for his evaluation. Our boys sound similar, I wanted to tell you about a group called the son Institute. This a group that helps gifted kids. My son has attended the yearly gatherings and has made similar friends there. Check out their website and click on Young Scholars. www.ditd.org Hope this helps, Debbi --- " Lynn Downs " <oboy4boys@a...> wrote: > Hello everyone. I just joined a few days ago and wanted to introduce myself > My name is Lynn and I am the mother of four boys who range in age from > almost 19 to 8. My 10 year old, , was diagnosed formally with AS in > November. Quote Link to comment Share on other sites More sharing options...
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