Re: I am new with two questions

[Guest guest]

Thank you for your response .

I was diagnosed with flatback about eight years ago by a local orthopedic pediatrician. He admitted he knew almost nothing about it but was able to give the diagnosis. He was very bleak about the situation and pessimistic about any kind of good outcome.

Thank you for the two names you found and I will certainly do some searching of my own, using the website. Also the Bridwell recommendation.

Are you, or anyone else, able to give me some of the possibilities behind the popping sensation?

Joan

[Guest guest]

Good Monrning Joan - I can't answer your questions, but it's 3:00am and I can't sleep. I just wanted to say welcome to the group that just may change your life for the better...like it has changed mine. Since finding this group a little over a year ago, my life has gone from a very dark, lonely & painful place, to a life worth living. Through shared information & stories of other members, I was able to find a doctor & find hope again. I just had my first corrective surgery 4 weeks ago & I am doing great. I have one more to go before I'm done. It all sounds overwhelming at times, but with the support I've gotten from this group, I'm well on my way to putting this flatback nightmare behind me. I just wanted to say "welcome" and :"good luck" on your search for answers

& help.

Sincerely...................................Kathy

On Thu, 1/13/11, Joan <dikjoanfox@...> wrote:

From: Joan <dikjoanfox@...>Subject: [ ] I am new with two questions Date: Thursday, January 13, 2011, 7:59 PM

Harrington rod about 35 years ago, I am now 66 years old. Have flatback. More and more I am becoming limited in my activities. Pain is increasing, esp last three months. My lower spine is now "popping" every now and then. Anyone know what that is?I live in a suburb near Nashville, Tennessee. Anyone know of a doctor who really understands all this and they can recommend?Thank you,Joan Fox

[Guest guest]

Joan,

 

I could only guess as to why you have a popping sound. Joints can be noisy, at your unfused levels.My guess is it might be pockets of gasses, being moved, or released during movement. I have no idea how your disc's below your fusions are holding up, some noise could result I figure, especially if the is little to none of your disc material left. Some have felt noise resulting from muscles moving over hardware( mostly post revision). Anyway, bring this up with opinion doc's you see. Do you know if your rod is still in place? Unhooked?

 

I wish I could tell you exactly. I googled this too, mostly confirmed what I just said. Maybe someone else has felt exactly what you are feeling pre revision, but still then no two of us are exactly the same, and what might be true for one of us, might not be true for you.

 

See some doc's, ask away, hopefully they will have an answer.

 

Sorry.

 

Colorado Springs

On Fri, Jan 14, 2011 at 12:13 AM, Dick and Joan Fox <dikjoanfox@...> wrote:

 

Thank you for your response .  

 

I was diagnosed with flatback about eight years ago by a local orthopedic pediatrician.  He admitted he knew almost nothing about it but was able to give the diagnosis.  He was very bleak about the situation and pessimistic about any kind of good outcome. 

 

Thank you for the two names you found and I will certainly do some searching of my own, using the website.  Also the Bridwell recommendation.

 

Are you, or anyone else, able to give me some of the possibilities  behind the popping sensation? 

 

Joan

[Guest guest]

Thank you, , for responding.

I am fused all the way down. I assume my rod is in place, but the pain has increased in the last few months. I had thought I had overdone it with a two year old granddaughter, but can no longer hold on to that excuse. I assume the rod is still in place, etc.

Don't worry, I can ask away when I finally get to a doctor.

Hope you are feeling well.

Joan

Re: [ ] I am new with two questions

Joan,

I could only guess as to why you have a popping sound. Joints can be noisy, at your unfused levels.My guess is it might be pockets of gasses, being moved, or released during movement. I have no idea how your disc's below your fusions are holding up, some noise could result I figure, especially if the is little to none of your disc material left. Some have felt noise resulting from muscles moving over hardware( mostly post revision). Anyway, bring this up with opinion doc's you see. Do you know if your rod is still in place? Unhooked?

I wish I could tell you exactly. I googled this too, mostly confirmed what I just said. Maybe someone else has felt exactly what you are feeling pre revision, but still then no two of us are exactly the same, and what might be true for one of us, might not be true for you.

See some doc's, ask away, hopefully they will have an answer.

Sorry.

Colorado Springs

On Fri, Jan 14, 2011 at 12:13 AM, Dick and Joan Fox <dikjoanfox@...> wrote:

Thank you for your response .

I was diagnosed with flatback about eight years ago by a local orthopedic pediatrician. He admitted he knew almost nothing about it but was able to give the diagnosis. He was very bleak about the situation and pessimistic about any kind of good outcome.

Thank you for the two names you found and I will certainly do some searching of my own, using the website. Also the Bridwell recommendation.

Are you, or anyone else, able to give me some of the possibilities behind the popping sensation?

Joan

[Guest guest]

Joan,

 

So what levels are fused on you exactly? Are you fused to the sacrum?

 

I get the overdoing with a Grandchild, mine is 5 now, and around 3  I was done picking her up and lifting her from the ground. She totally get grandma has metal in her back and it isn't good for Grandma to do that anymore. I'm thankful she came after my revisions, that I can do all the fun stuff with her I wasn't able to do with my own kids.

 

Grandkids are the BEST hunh!

 

Colorado Springs

 

On Sat, Jan 15, 2011 at 2:10 PM, Dick and Joan Fox <dikjoanfox@...> wrote:

 

Thank you, , for responding. 

 

I am fused all the way down. I assume my rod is in place, but the pain has increased in the last few months.  I had thought I had overdone it with a two year old granddaughter, but can no longer hold on to that excuse.  I assume the rod is still in place, etc. 

Don't worry, I can ask away when I finally get to a doctor. 

 

Hope you are feeling well.

Joan

 

 

Re: [ ] I am new with two questions

 

Joan,

 

I could only guess as to why you have a popping sound. Joints can be noisy, at your unfused levels.My guess is it might be pockets of gasses, being moved, or released during movement. I have no idea how your disc's below your fusions are holding up, some noise could result I figure, especially if the is little to none of your disc material left. Some have felt noise resulting from muscles moving over hardware( mostly post revision). Anyway, bring this up with opinion doc's you see. Do you know if your rod is still in place? Unhooked?

 

I wish I could tell you exactly. I googled this too, mostly confirmed what I just said. Maybe someone else has felt exactly what you are feeling pre revision, but still then no two of us are exactly the same, and what might be true for one of us, might not be true for you.

 

See some doc's, ask away, hopefully they will have an answer.

 

Sorry.

 

Colorado Springs

On Fri, Jan 14, 2011 at 12:13 AM, Dick and Joan Fox <dikjoanfox@...> wrote:

 

Thank you for your response .  

 

I was diagnosed with flatback about eight years ago by a local orthopedic pediatrician.  He admitted he knew almost nothing about it but was able to give the diagnosis.  He was very bleak about the situation and pessimistic about any kind of good outcome. 

 

Thank you for the two names you found and I will certainly do some searching of my own, using the website.  Also the Bridwell recommendation.

 

Are you, or anyone else, able to give me some of the possibilities  behind the popping sensation? 

 

Joan

[Guest guest]

Hi Joan...

The Leatherman Spine Center in Kentucky does a lot of revision surgery. I think

Steve Glassman, in particular, does a lot.

http://www.nortonhealthcare.com/body.cfm?xyzpdqabc=0 & id=1437 & action=detail & pid=A\

LL22579

Regards,

>

> Harrington rod about 35 years ago, I am now 66 years old. Have flatback.

More and more I am becoming limited in my activities. Pain is increasing, esp

last three months. My lower spine is now " popping " every now and then. Anyone

know what that is?

> I live in a suburb near Nashville, Tennessee. Anyone know of a doctor who

really understands all this and they can recommend?

> Thank you,

> Joan Fox

>

[Guest guest]

Thank you, !

Joan