Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Sharad-How has your hearing been affected by the c-toma and the surgery? Are you planning to do any hearing bone reconstructive surgeries in the future? What did the doctor say about that?Wish you best! On 6/15/07, sherryyogi <sherryyogi@...> wrote: Hi All, I went into my first cholesteatoma surgery yesterday (tympanoplasty and mastoidectomy). It went for about 1.5 hours. Dr Josheph Roberson in bay area california was my surgeon. I am experiencing - 1) literally no pain - just took one tylenol yesterday 2) No dizziness whatsover. 3) My tongue is a little numb 4) I am recovering well. My surgeon told me that my cholesteatoma had almost reached my facial nerve and that we got it out in the right time. I would highly recommend Dr Roberson (california ear institute) to all cholesteatoma patients in the north california or anyone who is willing to travel. He is a very reputed and skilled surgeon and espcializes in this procedure. Also his staff has been extremely friendly and caring. I wish all the best to all who are waiting for their surgeries. Please let me know if you have any questions. Thank you, Sharad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 Yes, my 3 middle ear bones were removed during the surgery. In about 6 to 9 months I will have another surgery to install prosthetics and reconstruct hearing. My hearing was very bad in the affected ear pre-surgery. Post surgery its even worse - but that is expected. I have one good ear so I guess I will have to survive on that till the reconstruction is done fully. - Sharad > > > > Hi All, > > I went into my first cholesteatoma surgery yesterday (tympanoplasty > > and mastoidectomy). It went for about 1.5 hours. Dr Josheph Roberson > > in bay area california was my surgeon. I am experiencing - > > > > 1) literally no pain - just took one tylenol yesterday > > 2) No dizziness whatsover. > > 3) My tongue is a little numb > > 4) I am recovering well. > > > > My surgeon told me that my cholesteatoma had almost reached my facial > > nerve and that we got it out in the right time. > > > > I would highly recommend Dr Roberson (california ear institute) to all > > cholesteatoma patients in the north california or anyone who is > > willing to travel. He is a very reputed and skilled surgeon and > > espcializes in this procedure. Also his staff has been extremely > > friendly and caring. > > > > I wish all the best to all who are waiting for their surgeries. Please > > let me know if you have any questions. > > > > Thank you, > > Sharad > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 I thought I had posted an update on my recent surgery, but apparently that thought was a victim of my post-surgery mush brain! My surgery was on March 9 and 11 with Dr. Lenke in St. Louis to correct my flatback. He removed ALL of the hardware from my previous surgeries and did one lumbar osteotomy. I now have a fusion from T1 to sacrum. After release from the hospital on March 17, I went directly to their Rehab Institute, and came home on March 28. I have no pain, just some soreness in mid-back, which I attribute to the time in rehab. (With previous surgeries and no rehab stay, I came home in much more pain.) Dr. Lenke's office also went ahead and scheduled me for at-home PT and OT. I was evaluated and I'm now awaiting a regular schedule. My legs are somewhat weak, and my gait is awkward, which I hope is a temporary situation. I'm using a walker religiously. I still have mush brain, I'm sleeping a lot, and I have no appetite. Many times in the past I would have prayed for no appetite, but right now I'm concerned that I get the nutrition I need. I had someone stay with me my first two nights at home, but I am now on my own overnight, with no problems - I sleep right through. During the day, I have a caregiver next door who comes in at lunch and dinner time and who is instantly available by phone. Of course, family and friends are visiting regularly. The best news of all: I am now standing straight up! Am I happy? YOU BET! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Wow, Felicia. That is just fabulous. Congratulations!! And keep up the good work!On Apr 3, 2011, at 8:58 AM, Felicia wrote: I thought I had posted an update on my recent surgery, but apparently that thought was a victim of my post-surgery mush brain! My surgery was on March 9 and 11 with Dr. Lenke in St. Louis to correct my flatback. He removed ALL of the hardware from my previous surgeries and did one lumbar osteotomy. I now have a fusion from T1 to sacrum. After release from the hospital on March 17, I went directly to their Rehab Institute, and came home on March 28. I have no pain, just some soreness in mid-back, which I attribute to the time in rehab. (With previous surgeries and no rehab stay, I came home in much more pain.) Dr. Lenke's office also went ahead and scheduled me for at-home PT and OT. I was evaluated and I'm now awaiting a regular schedule. My legs are somewhat weak, and my gait is awkward, which I hope is a temporary situation. I'm using a walker religiously. I still have mush brain, I'm sleeping a lot, and I have no appetite. Many times in the past I would have prayed for no appetite, but right now I'm concerned that I get the nutrition I need. I had someone stay with me my first two nights at home, but I am now on my own overnight, with no problems - I sleep right through. During the day, I have a caregiver next door who comes in at lunch and dinner time and who is instantly available by phone. Of course, family and friends are visiting regularly. The best news of all: I am now standing straight up! Am I happy? YOU BET! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Felicia, Wonderful news....and welcome to the " other side " . It is remarkable after you get home when you realize that the tension and worry that you had before surgery is gone....as well as the matters that the revision addressed, isnt it? Its just the weight of the world off you shoulders. Take all the time you need to rest and sleep. Growing bone is tiring work! I am sure we are all looking forward to hearing how things go with your PT an OT...so please post when you finish your evaluations. Excellent that you are able to manage at home after those first few nights home. I think most of us found that by about 2 weeks after surgery we could manage most of ourselves...I think we are just reluctant to say that it will definitely be possible. Everyone is different. Dont mind about the mush brained feeling. It will likely subside as you lower your meds. and we have ve all gone through it! Take Care, Cam > > I thought I had posted an update on my recent surgery, but apparently that thought was a victim of my post-surgery mush brain! > > My surgery was on March 9 and 11 with Dr. Lenke in St. Louis to correct my flatback. He removed ALL of the hardware from my previous surgeries and did one lumbar osteotomy. I now have a fusion from T1 to sacrum. After release from the hospital on March 17, I went directly to their Rehab Institute, and came home on March 28. > > I have no pain, just some soreness in mid-back, which I attribute to the time in rehab. (With previous surgeries and no rehab stay, I came home in much more pain.) Dr. Lenke's office also went ahead and scheduled me for at-home PT and OT. I was evaluated and I'm now awaiting a regular schedule. My legs are somewhat weak, and my gait is awkward, which I hope is a temporary situation. I'm using a walker religiously. > > I still have mush brain, I'm sleeping a lot, and I have no appetite. Many times in the past I would have prayed for no appetite, but right now I'm concerned that I get the nutrition I need. > > I had someone stay with me my first two nights at home, but I am now on my own overnight, with no problems - I sleep right through. During the day, I have a caregiver next door who comes in at lunch and dinner time and who is instantly available by phone. Of course, family and friends are visiting regularly. > > The best news of all: I am now standing straight up! Am I happy? YOU BET! > Quote Link to comment Share on other sites More sharing options...
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