Re: Re: need advice please Felicia

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Felicia, You are so lucky to have gotten Dr. Lenke to see you. I sent him my studies but he referred me to a lesser experienced cohort. It was quite a disappointment, though I think I’ll get good care at Hopkins with Dr. Kabaish. I wish you the very best of luck with your revision. Kate

Felicia Kramer

Sent: Wednesday, February 02, 2011 9:02 AM

Subject: [ ] Re: need advice please

, I have posted here only a few times although I have been lurking and following the discussions. I'm currently fused T4 to sacrum but have flatback even though my four surgeries were all during the past ten years. I'm scheduled for revision with Dr. Lenke in March and he will fuse me to T1 and re-do my entire lumbar area. I just wanted to say that your nice post is very accurate about what it's like to be fused to the sacrum. One thing you didn't mention is trying to get up from lying flat on a yoga mat or something similar. I compare it to being a beached whale! Right now I can cut my toenails (with difficulty) and shave my legs (what little hair I have left!) but that will change after the new surgery. So I think I will start scheduling a pedicure at the same salon and the same time I get my hair done. I have a lot of faith in Dr. Lenke so I'm not too nervous about the surgery but not looking forward to the long recuperation I know will come. Right now I'm obsessed with trying to make the arrangements for being out of town for almost 3 weeks, since I'm single and will be alone for part of the time.

Felicia Kramer

http://anotherbrightidea.etsy.com

www.feliciakramer.blogspot.com