Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 , welcome to this group. I am not sure how far you are willing to travel, but one of the best GI's known to this board is Dr. Richter presently at Temple University in Philadelphia. He use to be at The Cleveland Clinic in Ohio. The Cleveland Clinic treats a lot of Achalasia patients. You can find contact information at this site: Richter, MD Or http://www.temple.edu/gisection/jr.html If you don't want to travel that far, I bet if you emailed him for a recommendation nearer you he might know one. Someone here may know one closer to you. I am sure they will speak up if they do. Good luck, Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 , sorry I just glanced back at your letter and noticed you ask for recommendations for a surgeon. Sorry I should have "listened" more closely. Still I'd bet Dr. Richter could recommend one and from all I've heard of him he would be trustworthy in his recommendation. Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 Welcome to the group. Take a look at the site. There is a section that lists surgeons and where they are located at. That might help for a start. in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 I second Dr. Richter…he was my GI. Sorry he moved away from me tho!!!! in Indiana From: achalasia [mailto:achalasia ] On Behalf Of LunaIam2@... Sent: Wednesday, November 09, 2005 2:12 PM achalasia Subject: Re: Surgeons in Boston , welcome to this group. I am not sure how far you are willing to travel, but one of the best GI's known to this board is Dr. Richter presently at Temple University in Philadelphia. He use to be at The Cleveland Clinic in Ohio. The Cleveland Clinic treats a lot of Achalasia patients. You can find contact information at this site: Richter, MD Or http://www.temple.edu/gisection/jr.html If you don't want to travel that far, I bet if you emailed him for a recommendation nearer you he might know one. Someone here may know one closer to you. I am sure they will speak up if they do. Good luck, Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 -we all empathize with your difficulties--this is a complicated disease and the degree to which you suffer is very individual--I have been under the care of Dr. Carr-Locke at the Brigham and Woman's Hospital in Boston--he is chief of the endoscopy center at the Brigham-and a GI doctor-10 years ago he gave me a botox shot which I now know was not as effective as I once thought--two years ago he gave me a diliation which has been as of now perfect--I also talked to Dr. Stanly Rosenberg for a consultation at the BI Hospital who was very compassionate and extremly well informed on achlasia--they both left the decision to me--but I decided on dilation instead of surgery--I would have used Dr. at the Brigham if I had decided on surgery--however, there is always the option of going to Dr. Rice at the Cleveland Clinic--which accoridng to everyone in this group is a good choice--I would be willing to help you in anyway--we live very close together--if I were you and wanted surgery, I would definitely consult with Dr. -he will give you names of patients that have had surgery for achlasia in his office--good luck, from Boston Paton <ppaton@...> wrote: Greetings to all, I just joined this list recently and it is nice to finally see a forum wherepeople truly understand my situation. I have been dealing with the symptomsof achalasia for a couple years now. My swallowing difficulties, sporadiccoughing, difficulty sleeping (without having to get up several times atnight to throw up) have gotten much worse over the past 4-5 months. It tookmy GI "specialist" over 9 months to diagnose my achalasia (based on theberrium swallow when I didn't swallow anything and it just remained in myesophogus). I tried to get a motility test about a month ago at Rhode IslandHospital, but they were unable to get catheter through either nasal passage(I broke my nose when I was younger), nor down my throat, so rescheduled mefor another try at a motility test where I will be sedated. However, theearliest they could reschedule me was two months later, so I am supposed togo in on 21 Nov. It has been a long wait, and I just wonder now if I shouldtry elsewhere? So I am writing to see if someone on this list could recommend asurgeon/practice in the Boston area? Based on everything I have read, I amopting for the surgery solution first. Obviously, I am losing patience andthink I should work with another group of doctors.Thanks in advance, in southern Rhode Island FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2005 Report Share Posted November 12, 2005 --where is Dr. Richter-- in Boston Mimms <juliemimms@...> wrote: I second Dr. Richter…he was my GI. Sorry he moved away from me tho!!!! in Indiana From: achalasia [mailto:achalasia ] On Behalf Of LunaIam2@...Sent: Wednesday, November 09, 2005 2:12 PMachalasia Subject: Re: Surgeons in Boston , welcome to this group. I am not sure how far you are willing to travel, but one of the best GI's known to this board is Dr. Richter presently at Temple University in Philadelphia. He use to be at The Cleveland Clinic in Ohio. The Cleveland Clinic treats a lot of Achalasia patients. You can find contact information at this site: Richter, MD Or http://www.temple.edu/gisection/jr.html If you don't want to travel that far, I bet if you emailed him for a recommendation nearer you he might know one. Someone here may know one closer to you. I am sure they will speak up if they do. Good luck, Maggie Alabama FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 HI , As far as I know, Glazer and Rand are probably the most used in Boston for flatback. I did have revision flatback surgery with Glazer in 2006. A two day consecutive surgery, anterior and posterior surgery. I found him to be a brilliant surgeon who approached my issues with engineering precision and works with his hardware supplier to develop hardware specifically for this use. If you can email me if I can answer any further questions. Thanks C > > I can't remember if I've introduced myself or not, so here's the brief > version. 1992 - scoliodid surgery, 1996 - injured back, 1997 - partial > removal of rods, 1997 - microdiskectomy (for herniated disc that > occurred in 1996), 2008 - pain suddenly worsed and has continued to > get worse since then, now all discs below the fusion are herniated. > > My pain management has suggested surgery, and referred me to Dr. Rand, > who wants to remove the herniated discs, replace them with titanium > spacers, correct the curvature of my lumbar spine (I'm constantly > tilted forward), and continue my fusion to the sacrum). I also have an > appointment scheduled with Dr. Glazer for a second opinion. Are there > any other surgeons in Boston I should be considering? > > If you've had surgery done by either of the above doctors, I would > love to hear your impressions on them. > > Thanks much, > > > > > -- > Curran > melissacurran530@... > www.beadedrelics.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 , Basically, between those two surgeons, you are seeing who our Boston Area gals have used. Cam the group owner, had Rand as her surgeon. Several have also used Glazer. See both, see what they have to say, weigh it, and see who is a fit for you. I'm sure plenty will chime in on this with their experiences, as we have members that have used both docs. Also know, that you can always check the SRS site, srs.org, for area doc's and beyond, since back east you all have very short flights or a train ride to surrounding states. Lucky to have two doc's in the same city, many of us have to travel, and many have to travel beyond their states borders. Do let us know when you have appointments, we can put the on the groups calendar, so we can help see you through the process. Colorado Springs On Sun, Jan 16, 2011 at 11:11 PM, Curran <melissacurran530@...> wrote: I can't remember if I've introduced myself or not, so here's the briefversion. 1992 - scoliodid surgery, 1996 - injured back, 1997 - partialremoval of rods, 1997 - microdiskectomy (for herniated disc that occurred in 1996), 2008 - pain suddenly worsed and has continued toget worse since then, now all discs below the fusion are herniated.My pain management has suggested surgery, and referred me to Dr. Rand,who wants to remove the herniated discs, replace them with titanium spacers, correct the curvature of my lumbar spine (I'm constantlytilted forward), and continue my fusion to the sacrum). I also have anappointment scheduled with Dr. Glazer for a second opinion. Are thereany other surgeons in Boston I should be considering? If you've had surgery done by either of the above doctors, I wouldlove to hear your impressions on them.Thanks much,-- Curranmelissacurran530@... www.beadedrelics.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Hi , I dont think I recall you introducing yourself before, so welcome to the group. As said, I had my revision with DrRand and am very pleased with my results. I wont bore you with the details here...all my story is in the files section if you want to read it. I had a staged procedure just about 6 years ago. DrRand is pretty much a one man show...and as with all doctors you have to get through the " gate keepers " sometimes to get the information you need, but I have always found him, and his staff, responsive to my needs. One of the top reasons I chose DrRand had to do with the way he wished to stage my surgeries. It was longer and harder to have it done this way, but for me, I felt it was best. I also knew that the NEBH hospital was waaaay below the national average for infections (and continues to be). This is no small thing with implants and mrsa, and I felt it warranted extra consideration. The overall care I received at the hospital was excellent. The staff there really knows how to handle ortho patients....its all they do. The only other surgeon in Boston that I am aware of (other than DrGlazer) is Kirkham Wood at Mass General. I honestly dont know of anyone who has had revision with him...although I am sure he is well regarded. It just might take some digging around in other venues to find out information on him and his practice. Where in NE do you live? Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Hello , Like you, I started my rapid decline in 2008 with increasing pain to the point that I was barely able to walk. Exactly one year ago today, I had my surgery at NEBH by Dr Rand. I am still recovering, and in my opinion, doing pretty well. I was lucky enough to only require one posterior surgery (nearly 12 hours long). I am slow to rehab as I also suffer from fibromyalgia, so I was at NEBH for 8 days and in Rehab for 10 days. I also had home services. In my opinion, Dr Rand is one of the top three surgeons in the country. Your pain management people referred you to the best. His revision surgery skills are exquisite. Another surgeon you could consult is Dr Parazin (617) 566-4276. He does not do as many revisions as Dr Rand, but is also very qualified. If you would like to ask any more questions, I would be more than happy to assist you along your journey Robin Salem, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Thanks, . You're right. I am lucky to have two good options within the same city. I do plan on seeing both, and was just asking about them here because my brief consultation with them doesn't seem like enough to be certain. I'm just trying to find out as much as I can. This whole process has been so overwhelming, but I really need to figure out what to do soon, because I can't keep going the way I have been. My appointment with Dr. Glazer is next week (February 3). I saw Dr. Rand a few weeks ago.Thanks, On Mon, Jan 17, 2011 at 12:30 PM, Kirkaldie <susan.kirkaldie@...> wrote: , Basically, between those two surgeons, you are seeing who our Boston Area gals have used. Cam the group owner, had Rand as her surgeon. Several have also used Glazer. See both, see what they have to say, weigh it, and see who is a fit for you. I'm sure plenty will chime in on this with their experiences, as we have members that have used both docs. Also know, that you can always check the SRS site, srs.org, for area doc's and beyond, since back east you all have very short flights or a train ride to surrounding states. Lucky to have two doc's in the same city, many of us have to travel, and many have to travel beyond their states borders. Do let us know when you have appointments, we can put the on the groups calendar, so we can help see you through the process. Colorado Springs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.