Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Dr. Metzger prescribed probable Bartonella -- Samento 15 drops 3 x/day, Babesia, Artemisinin (from Allergy Research Group), 5 caps, 2x/day. Used Interfase Plus for biofilm, digestive enzymes from Pure for digestion. Vital Plex for digestion, Methylation PSP (from Pure, Methylated B12, Fola Pro, PS100 from Pure and NAC (Pure). Samento is Cat's Claw concentrate... I've heard that regular Cat's Claw works just as well, but you have to keep it up. All these things you can buy without a prescription if you think you have co-infections. Cleaning> > > > > > > > > > > > > > I'm in the middle of stripping my downstairs - and saying that I am overwhelmed is such an understatement...> > > > Can you all give me some advice? Do you wipe out your cupboards daily? Every surface - every room - every day? I want to do everything right - but I'm lost. > > > > Also - I still have empty dressers and chests in each bedroom - do you think I should remove them? Or do I need to move them every time I vacuum and mop? > > > > We have removed all of our carpeting, but between the floor (plywood) and the wall there are sometimes cracks or spaces... Should we dust those or caulk it - what do you think?> > > > I'm getting very concerned about Morgellon's lately. Is there any way to head it off (if it is something that progresses - still clueless about the whole thing)or would it be wise to begin treating as if I have it? Would appreciate any advice about that. BTW what is a bio film?> > > > - does every lyme (specialty) doctor test for all of the co infections like yours does? I would never be able to afford to go to CA and see your doctor...but it is tempting. I was just hoping that maybe I could find a doctor like her in IL.> > > > Thank you all so much. This thing has me over a barrel and I feel so alone. Thank you for your advice.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Bactrim is important for co-infections I believe. Another reason the organic sulfur is important. http://www.anapsid.org/lyme/matthewgoss/drugs.htmlThe following table is a list of drugs that are commonly used to treat Lyme disease and the coinfections. The table was compiled using information that people posted to a message board, and reflects the dosages of those individuals that shared their treatment information. The dosages listed are provided as an overview and are not meant to suggest an appropriate dose. If you have any questions about drug doses, please contact a doctor who specializes in the treatment of Lyme Disease.Brand NameGenericDoseDoryx; Minocin; Terramycin; Vibramycin, etc.DoxycyclineTetracyclineMinocycline300-600mg1500-2000mg200-400mgDescription: The tetracycline family of antibiotics are used in treating many different kinds of bacterial infections. Tetracyclines are bacteristatic at low doses.For many bacteria, whose life cycle is short and reproduce within a matter of minutes, low doses will cure them as the bacteria will die before they get the chance to reproduce. But Lyme Disease reproduces over a much longer time frame and will not be eliminated with bacteristatic doses.Higher doses are needed to be bactericidal and to cross the blood brain barrier (BBB). Doxycycline is often the first choice in treatment as it will eliminate an Ehrlichiosis coinfection.An important note is that any mineral supplements such as aluminum, calcium, iron, magnesium or zinc should not be taken within 2 hours of any of these kinds of antibiotics as they will inhibit absorption of the antibiotics. Brand NameGenericDoseAmoxil; Biomox; Polymox; Trimox; Wymox, etc. AmoxicillinAmpicillin1500-4000mg for AmoxicillinDescription: These are part of the Penicillin family of antibiotics and are bactericidal. Brand NameGenericDoseCeftin, CeclorBiocef; KeflexRocephin CephalosporinCephalexinCeftriaxone Sodium500mg twice a day This is given by daily I.V.Description: Cephalosporins are cousins of the penicillins, and approximately 15% of those that are allergic to penicillin will also be allergic to these drugs.Rocephin is typically taken intravenously (IV). Brand NameGenericDoseMepronMalaroneAtovaquoneAtovaquone + Proguanil750mg twice a dayAvailable in 250mg & 100mg tabsDescription: Taken for Babesia in combination with Zithromax (Azithromycin) and Trimethoprim-sulfamethoxazole to prevent Babesia from developing a resistance to Mepron, which occurs in about 20% of those who take Mepron for this infection. Mepron must be taken with fatty foods such as ice cream to ensure proper absorption.Malarone is another anti-malarial, included here as an alternative to Mepron because it contains atovaquone. Brand NameGenericDoseBactrim, SeptraTrimethoprim-sulfamethoxazoleTwo 80mg/400mg tablets twice per day. (Because there are two drugs mixed the amount is listed with a /.)Description: Taken with Mepron and Zithromax or Cleocin and Quinine.It has a half life of 12 hours and that is why dosing is twice a day. Drink lots of water with this one to avoid kidney stones.One study found that 89% of those that took Trimethoprim with one of the above combinations were cured of Babesia while many of those that did not include it relapsed.Dr Zhang also recommends taking this drug in combination with Qinghaosu. Brand NameGenericDoseProloprim, TrimpexTrimethoprim200mg per dayDescription: This is the same as above without the sulfamethoxazole. Some people are allergic to the sulfamethoxazole. Brand NameGenericDoseRulid, RothricinRoxithromycin300mg twice a dayDescription: This is the only macrolide antibiotic that crosses the blood brain barrier (BBB).Macrolides are typically combined with Bactrim, and if treating for Babesia Mepron is also added. Zithromax and Biaxin are two other macrolides. Macrolides work intracellular.It is not approved by the FDA so you will have to order it from an overseas pharmacy or go to Mexico to get it. Brand NameGenericDoseZithromaxBiaxinAzithromycinClarithromycin250mg to 600mg per day1500mg per dayDescription: See notes above regarding macrolides. Take it on an empty stomach for full potency. Zithromax will stay in your body for 68 hours, so this drug may be prescribed to be taken every other day. Some people are reporting great success in combining this drug with Plaquenil and Amoxicillin for treatment of Lyme.Biaxin is a member of the same family as Zithromax. Zithromax is the more advanced drug. Brand NameGenericDoseCleocin/DalacinClindamycin600mg three times a dayThis drug is taken in combination with Quinine and Trimethoprim-sulfamethoxazole for Babesia. This treatment is hard to tolerate due to hearing loss, fever and headache. Mepron and Zithromax with T/S are a better option. Brand NameGenericDoseQuinammQuinine650mg three times a dayDescription: This drug is taken in combination with Cleocin (see above). Tonic water contains 50 to 70 milligrams of quinine per liter. Brand NameGenericDosePlaquenilChloroquineHydroxychloroquine200mg to 400mg per dayAn anti-malarial taken for Babesia in combination with Quinine. It is taken in combination with Doxycycline to combat the cystic form of Lyme. Also used in combination with Biaxin to combat the cystic form of Lyme. In rare cases it has caused irreversible vision damage. You will need to get a retinal exam before taking this drug. Brand NameGenericDoseFlagylFasigynMetronidazoleTinidazole750mg twice per day1500mg to 3000mg per dayFlagyl: This drug is used to treat the cystic form of Lyme Disease as it is capable of killing spirochetes that are in the cystic form. Flagyl should not be used with Tetracyclines (according to Dr Burrasccano). Use either Penicillins or Cephalasporins.Do not consume ANY alcohol with Flagyl or you will have a severe reaction.Many people find that they get a very strong reaction from this drug and it is advisable to slowly build up to the maximum dose.Fasigyn: This drug also attacks the cystic form of Lyme and is a relative of Flagyl and is supposed to be easier on your liver and better tolerated by the patient. It has a half life of 12 hours so if the dose is split up it can work 24 hours a day. Brand NameGenericDoseRifadin, RimactaneRifampin1200mg per dayDescription: Used in conjunction with Doxycycline for the treatment of Bartonella and Ehrlichia. Brand NameGenericDoseTobradexGentamycinTobramycin/DexamethasoneGentamycin.Description: Both of these drugs are aminoglycosides and are used to treat Bartonella. A bad side effect is that they can cause vestibular damage (hearing/equilibrium). Brand NameGenericDoseHep-Lock; Heparin Flush; Heparin LockHeparinInjection administered at home by patient.Description: It is believed that blood thinners cause better circulation and increase the effectiveness of antibiotic treatment. [Many with Lyme disease have hypercoagulation, which is treated with anti-coagulants.] Brand NameGenericDoseQuestrancholestyramine (CSM)Usually, 1 scoop 4 x dayDescription: This drug binds with bile acids, helping to eliminate them from your system and promote liver health. It also binds with other drugs and supplements, so be sure that if you are taking this in combination with other drugs you do not take them together. (See also Shoemaker'sLyme Disease protocol.) Brand NameGenericDoseMycostatin; Mycostatin Pastilles; Nilstat; NystexDiflucanNystatinFluconazole.Description: These two drugs are used to control yeast problems.Other ProtocolsHyperbaric Oxygen Treatment (HBOT) This is a treatment that involves spending time in a pressurized oxygen chamber. The cost is about $150 to $200 per session. Many people report improvement, but this is not a cure. For some reason, children are believed to respond to this treatment better. Thirty or more 60 to 90 minute sessionsICHT (internal heat by use of Dinitrophenol, Usnic acid)This is an experimental treatment for Lyme that elevates the intracellular temperature to levels high enough to kill the disease. The cost is $20,000, but you may qualify for a reduced rate of $10,000 if you have tested positive on a western blot test in the last 45 days. Initial reports show that it is very effective in eliminating symptoms but it is unknown if this is a long term cure. Five to 10 days of in hospital treatment.Rife MachineThis is a treatment that involves sending a weak electric current through your body at different frequencies. It is believed that each bacteria/microbe is suceptible to a certain frequency that will inhibit its growth or kill it. The Goss Lyme Disease Information content is no longer being updated by Goss. A new home on the web for this information is provided by Kaplan's Anapsid.org Herp Care and CND & Lyme Information. Please report any webpage errors to Kaplan.http://www.anapsid.org/lyme/matthewgoss/drugs.htmlLast Update: 10/22/2004> >> > Hi les lee> > > > I got tested for lots of things, but the co-infections Dr. Metzger treated based on symptomatology only. The Lyme was found through blood sample, but so often these co-infections go along with the Lyme. It is so darn maddening. Sorry you don't have a doctor like her in IL. I found Dr. Metzger through the ILADS website. By the way, the Lyme Disease conference is set for Oct 15-17 and Dr. Metzger will be speaking too. Wish I could afford to go there to hear everyone speak. It is way out of the ballpark for me after a trip to Europe. Even some doctors do not test for Lyme by treat based on symptoms. I have a friend on another site who saw a doctor who did just that. He is in California too unfortunately, near Chico.> > > > > > > > Cleaning> > > > > > > > > > > > > > > > > > > > > > > > > > > > I'm in the middle of stripping my downstairs - and saying that I am overwhelmed is such an understatement...> > > > > > > > Can you all give me some advice? Do you wipe out your cupboards daily? Every surface - every room - every day? I want to do everything right - but I'm lost. > > > > > > > > Also - I still have empty dressers and chests in each bedroom - do you think I should remove them? Or do I need to move them every time I vacuum and mop? > > > > > > > > We have removed all of our carpeting, but between the floor (plywood) and the wall there are sometimes cracks or spaces... Should we dust those or caulk it - what do you think?> > > > > > > > I'm getting very concerned about Morgellon's lately. Is there any way to head it off (if it is something that progresses - still clueless about the whole thing)or would it be wise to begin treating as if I have it? Would appreciate any advice about that. BTW what is a bio film?> > > > > > > > - does every lyme (specialty) doctor test for all of the co infections like yours does? I would never be able to afford to go to CA and see your doctor...but it is tempting. I was just hoping that maybe I could find a doctor like her in IL.> > > > > > > > Thank you all so much. This thing has me over a barrel and I feel so alone. Thank you for your advice.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Agree Totally with Dr if going natural. > > > > > > > > Hi les lee > > > > > > > > I got tested for lots of things, but the co-infections Dr. Metzger treated based on symptomatology only. The Lyme was found through blood sample, but so often these co-infections go along with the Lyme. It is so darn maddening. Sorry you don't have a doctor like her in IL. I found Dr. Metzger through the ILADS website. By the way, the Lyme Disease conference is set for Oct 15-17 and Dr. Metzger will be speaking too. Wish I could afford to go there to hear everyone speak. It is way out of the ballpark for me after a trip to Europe. Even some doctors do not test for Lyme by treat based on symptoms. I have a friend on another site who saw a doctor who did just that. He is in California too unfortunately, near Chico. > > > > > > > > > > > > > > > > Cleaning > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I'm in the middle of stripping my downstairs - and saying that I am overwhelmed is such an understatement... > > > > > > > > > > > > > > > > Can you all give me some advice? Do you wipe out your cupboards daily? Every surface - every room - every day? I want to do everything right - but I'm lost. > > > > > > > > > > > > > > > > Also - I still have empty dressers and chests in each bedroom - do you think I should remove them? Or do I need to move them every time I vacuum and mop? > > > > > > > > > > > > > > > > We have removed all of our carpeting, but between the floor (plywood) and the wall there are sometimes cracks or spaces... Should we dust those or caulk it - what do you think? > > > > > > > > > > > > > > > > I'm getting very concerned about Morgellon's lately. Is there any way to head it off (if it is something that progresses - still clueless about the whole thing)or would it be wise to begin treating as if I have it? Would appreciate any advice about that. BTW what is a bio film? > > > > > > > > > > > > > > > > - does every lyme (specialty) doctor test for all of the co infections like yours does? I would never be able to afford to go to CA and see your doctor...but it is tempting. I was just hoping that maybe I could find a doctor like her in IL. > > > > > > > > > > > > > > > > Thank you all so much. This thing has me over a barrel and I feel so alone. Thank you for your advice. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 My glue traps got most of my insects in closets and around book shelves and books. Thats interesting. My closet glue trap literally had hundreds at the height of infestation. > > It was my belief when I had the mites or whatevers that they did not go into closets (like dish or pots and pan cupboards or even my linen closet). Wherever I got bites, I knew they were. They stick closer to us, so if near the bed at night, on floors, in the shower, in drains, on keyboard and mouse, in computer, on monitor, into cracks near bed, or walls, or linens on the beds, or anyplace we would hang out. We had them initially in our downstairs. After getting rid of carpets and most of our furniture we had emptied our house almost. We moved ou8r bed (purchased simple frame from Ikea) and set up an air mattress on the frame. We lived on that pretty much. We had a couple of chairs to sit on, that I kept taped up with plastic covers and a simple table which I sprayed daily since I got lots of bites there. Did not rid of bookcases or TV entertainment center. Covered some of bookcases with DE which caused respiratory problem. So I'd vacuum that up and mop with ammonia water which wrecked floors, but I didn't care at this point. > > I felt it was necessary to do a lot of praying during this time... I should keep it up, but sometimes forget. > > > > Cleaning > > > > > > > > > > > > > > I'm in the middle of stripping my downstairs - and saying that I am overwhelmed is such an understatement... > > > > Can you all give me some advice? Do you wipe out your cupboards daily? Every surface - every room - every day? I want to do everything right - but I'm lost. > > > > Also - I still have empty dressers and chests in each bedroom - do you think I should remove them? Or do I need to move them every time I vacuum and mop? > > > > We have removed all of our carpeting, but between the floor (plywood) and the wall there are sometimes cracks or spaces... Should we dust those or caulk it - what do you think? > > > > I'm getting very concerned about Morgellon's lately. Is there any way to head it off (if it is something that progresses - still clueless about the whole thing)or would it be wise to begin treating as if I have it? Would appreciate any advice about that. BTW what is a bio film? > > > > - does every lyme (specialty) doctor test for all of the co infections like yours does? I would never be able to afford to go to CA and see your doctor...but it is tempting. I was just hoping that maybe I could find a doctor like her in IL. > > > > Thank you all so much. This thing has me over a barrel and I feel so alone. Thank you for your advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 My recovery continues to be going well (2.5 months post-op), and I'm slowly being able to ddo more and more. I can do some of the house chores now, but certainly not all of them. Our house is still quite messy, which I hoped to work on before surgery, but I didn't get much done beforehand due to the short notice and the high pain levels I was experiencing at that time. But now that I've been home for over two months, the mess is driving me more and more crazy. My husband has been pretty good about doing the chores that are absolutely necessary -- such as dishes, laundry, and taking out the trash -- but it is impossible to get him to work on tidying, organizing, and weeding out things we no longer need. And those are things I desperately want to get done. I've started to work on some of it, but it is certainly not easy to do at this point. Do you have any pointers on how I can tackle this, so that it will stop driving me crazy? I'm sure some of you will tell me not to let it bother me, but I've tried that, and I haven't been able to succeed. Any suggestions? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 , Of course it is wise to realize your limitations preclude the kind of scouring, lifting and cleaning that I imagine you have in mind....but I do have one suggestion. Right now there are lots of college kids letting out for the summer and few jobs..many that are not full time hours. Why not see if you can hire an " assistant " for a few hours a day or week, depending on how much you want to tackle. Having someone to pull down and help resort and clean will inspire you to stay on task...but also not do too much...when they go...you are done for the day. I will say that my very favorite post-fusion purchase was my " janitors dustbin " ...you know one of those dustbins with the long handle. I have mostly wood floors...so about 75% of the mess can be dealt with by sweeping up regularly...but I couldnt do it before I purchased one of these. For the deeper cleaning I had a cleaning person for the first year. I just couldnt do it and my husband was already doing as much as he could. Let us know what you end up doing! Take Care, Cam > > My recovery continues to be going well (2.5 months post-op), and I'm > slowly being able to ddo more and more. I can do some of the house > chores now, but certainly not all of them. Our house is still quite > messy, which I hoped to work on before surgery, but I didn't get much > done beforehand due to the short notice and the high pain levels I was > experiencing at that time. > > But now that I've been home for over two months, the mess is driving > me more and more crazy. My husband has been pretty good about doing > the chores that are absolutely necessary -- such as dishes, laundry, > and taking out the trash -- but it is impossible to get him to work on > tidying, organizing, and weeding out things we no longer need. And > those are things I desperately want to get done. I've started to work > on some of it, but it is certainly not easy to do at this point. Do > you have any pointers on how I can tackle this, so that it will stop > driving me crazy? I'm sure some of you will tell me not to let it > bother me, but I've tried that, and I haven't been able to succeed. > Any suggestions? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Llweyn, Thanks for the suggestion. However, I don't know if I really have any friends that I am close enough to that I could ask that of them. I tend to keep to myself, which means I don't end up having many people to turn to for this type of stuff. I also don't know if I have a family member who is available to help at the moment. But honestly, I'd rather have a stranger help than a family member. A stranger would work and get stuff done. A family member would end up asking questions about the items we're sorting through, greatly slowing down the process. On Sunday, May 15, 2011, <mad.monk@...> wrote: Have a friend come over to give you a hand? I know I used to find it easier to help a friend with their house than it was to do my own, as it was more of a social event and I enjoy helping others. I'm sure you have some friends that are wanting to help in some way but don't know how or what until you either mentIon or ask them. They can do the bending or lifting that you have difficulty with or not be able to do for long. Just a thought. Llweyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Since you are in an apartment, maybe someone in your building might be interested in a cleaning "party". LlweynSent from my BlackBerry device on the Wireless NetworkFrom: Curran <melissacurran530@...>Sender: Date: Sun, 15 May 2011 21:13:53 -0400 < >Reply Subject: [ ] Re: Cleaning Llweyn,Thanks for the suggestion. However, I don't know if I really have anyfriends that I am close enough to that I could ask that of them. Itend to keep to myself, which means I don't end up having many peopleto turn to for this type of stuff. I also don't know if I have afamily member who is available to help at the moment. But honestly,I'd rather have a stranger help than a family member. A stranger wouldwork and get stuff done. A family member would end up asking questionsabout the items we're sorting through, greatly slowing down theprocess.On Sunday, May 15, 2011, <mad.monk@...> wrote:Have a friend come over to give you a hand? I know I used to find iteasier to help a friend with their house than it was to do my own, asit was more of a social event and I enjoy helping others. I'm sure youhave some friends that are wanting to help in some way but don't knowhow or what until you either mentIon or ask them. They can do thebending or lifting that you have difficulty with or not be able to dofor long. Just a thought. Llweyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi ... I'm 3-1/2 months post op and live alone. So, I really only have myself to get things done. I do things in small bits. Using my grabber and a little ingenuity, I've managed to get everything done with the exception of being able to get down on my hands and knees to do things like scrub a spot on the carpet or open the bottom drawer of my dresser. I work for maybe 15 minutes every hour, and it takes a very small percentage of the day to get it all done. Regards, > > My recovery continues to be going well (2.5 months post-op), and I'm > slowly being able to ddo more and more. I can do some of the house > chores now, but certainly not all of them. Our house is still quite > messy, which I hoped to work on before surgery, but I didn't get much > done beforehand due to the short notice and the high pain levels I was > experiencing at that time. > > But now that I've been home for over two months, the mess is driving > me more and more crazy. My husband has been pretty good about doing > the chores that are absolutely necessary -- such as dishes, laundry, > and taking out the trash -- but it is impossible to get him to work on > tidying, organizing, and weeding out things we no longer need. And > those are things I desperately want to get done. I've started to work > on some of it, but it is certainly not easy to do at this point. Do > you have any pointers on how I can tackle this, so that it will stop > driving me crazy? I'm sure some of you will tell me not to let it > bother me, but I've tried that, and I haven't been able to succeed. > Any suggestions? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 - I'm curious: are you still on any medication? You said the pain gets to you after a while. I'm about 2-1/2 months now, still on gabapentin and hydrocodone/acetominaphen, and sort of pain free. I have soreness in my upper back and numbness and some pain in my left leg. I just " fired " my neighbor who was coming in daily to help me with meals, laundry, etc. And I have a friend/cleaning lady who comes in once a month. Other than that, I'm on my own and coping well. I have my followup with Dr. Lenke next week. I'm mostly worried about my left leg - I would hate to think my current condition is permanent. Thanks, Felicia > > > > My recovery continues to be going well (2.5 months post-op), and I'm > > slowly being able to ddo more and more. I can do some of the house > > chores now, but certainly not all of them. Our house is still quite > > messy, which I hoped to work on before surgery, but I didn't get much > > done beforehand due to the short notice and the high pain levels I was > > experiencing at that time. > > > > But now that I've been home for over two months, the mess is driving > > me more and more crazy. My husband has been pretty good about doing > > the chores that are absolutely necessary -- such as dishes, laundry, > > and taking out the trash -- but it is impossible to get him to work on > > tidying, organizing, and weeding out things we no longer need. And > > those are things I desperately want to get done. I've started to work > > on some of it, but it is certainly not easy to do at this point. Do > > you have any pointers on how I can tackle this, so that it will stop > > driving me crazy? I'm sure some of you will tell me not to let it > > bother me, but I've tried that, and I haven't been able to succeed. > > Any suggestions? > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Felicia, Yes, I'm still on quite a bit of pain medication, though I continue to be able to reduce the amount little by little. Over the past three weeks, I've stopped taking two of my medications, but I still take three others (a long acting pain med, a short acting pain med, and a muscle relaxant. I've been taking the short acting one less frequently recently, and I'm about to ask my surgeon to reduce the dose on my long a ting pain medicine. So I am still making progress. I too still have some leg pain, but it comes and goes, which is much better than the constant intense pain I had before surgery. My surgeon told me at the beginning that my pain level could continue to improve for up to a year after surgery, because any nerves that were being compressed or pinched before the surgery may take a while to heal themselves. Hopefully that is the case with the leg pain that we're both still suffering from. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hi Felicia... At bedtime, I take 900mg of gabapentin and a vicodin. I take them not for my back, but because I have an issue with hypersensitivity from my waist down. It's not all that uncomfortable, but it keeps me from falling asleep. As long as I don't sit for too long (more than 2 hours), I essentially have no pain. I'm going into the office today to get an ergonomic evaluation. I'm hoping they'll install sit/stand workstations in both my office and the clinic. Doing so would allow me to go back to work immediately. I can't wait! Regards, > > > > > > My recovery continues to be going well (2.5 months post-op), and I'm > > > slowly being able to ddo more and more. I can do some of the house > > > chores now, but certainly not all of them. Our house is still quite > > > messy, which I hoped to work on before surgery, but I didn't get much > > > done beforehand due to the short notice and the high pain levels I was > > > experiencing at that time. > > > > > > But now that I've been home for over two months, the mess is driving > > > me more and more crazy. My husband has been pretty good about doing > > > the chores that are absolutely necessary -- such as dishes, laundry, > > > and taking out the trash -- but it is impossible to get him to work on > > > tidying, organizing, and weeding out things we no longer need. And > > > those are things I desperately want to get done. I've started to work > > > on some of it, but it is certainly not easy to do at this point. Do > > > you have any pointers on how I can tackle this, so that it will stop > > > driving me crazy? I'm sure some of you will tell me not to let it > > > bother me, but I've tried that, and I haven't been able to succeed. > > > Any suggestions? > > > > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Hi , Just so you have hope, I gained my toes back, two years post revision. They were mostly numb and felt like needles sometimes. Also, the neuropathy I had on my left side, post revision has pretty much cleared up. That is five years post revision with the help of myofacial release therapy but the point is nerves heal very, very slowly. So, don't give up hope. 2 1/2 months is not long though it feels like forever. Remember the rules while you continue to heal up. They are so easy to forget when you want to change the laundry. One member found that out the hard way. :- C > > > > > > My recovery continues to be going well (2.5 months post-op), and I'm > > > slowly being able to ddo more and more. I can do some of the house > > > chores now, but certainly not all of them. Our house is still quite > > > messy, which I hoped to work on before surgery, but I didn't get much > > > done beforehand due to the short notice and the high pain levels I was > > > experiencing at that time. > > > > > > But now that I've been home for over two months, the mess is driving > > > me more and more crazy. My husband has been pretty good about doing > > > the chores that are absolutely necessary -- such as dishes, laundry, > > > and taking out the trash -- but it is impossible to get him to work on > > > tidying, organizing, and weeding out things we no longer need. And > > > those are things I desperately want to get done. I've started to work > > > on some of it, but it is certainly not easy to do at this point. Do > > > you have any pointers on how I can tackle this, so that it will stop > > > driving me crazy? I'm sure some of you will tell me not to let it > > > bother me, but I've tried that, and I haven't been able to succeed. > > > Any suggestions? > > > > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 -- Ouch! Yes, laundry is a tricky one. I make liberal use of my reacher for that chore. UPDATE -- I broke down and hired a house cleaner for the first time, who will be coming tomorrow. I'm convinced the budgetary changes I need to make to afford it will be well worth it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Thanks, . I guess I just need to be more patient. Having been through this before I should know how long it takes for some issues to resolve. I'm so happy to be standing up straight that I would hate it if I traded that for a leg/walking problem. I'm retired now so I don't have to worry about going back to work, but if the economy keeps going the way it has I may have to reconsider in order to replenish my income!! > > > > > > > > My recovery continues to be going well (2.5 months post-op), and I'm > > > > slowly being able to ddo more and more. I can do some of the house > > > > chores now, but certainly not all of them. Our house is still quite > > > > messy, which I hoped to work on before surgery, but I didn't get much > > > > done beforehand due to the short notice and the high pain levels I was > > > > experiencing at that time. > > > > > > > > But now that I've been home for over two months, the mess is driving > > > > me more and more crazy. My husband has been pretty good about doing > > > > the chores that are absolutely necessary -- such as dishes, laundry, > > > > and taking out the trash -- but it is impossible to get him to work on > > > > tidying, organizing, and weeding out things we no longer need. And > > > > those are things I desperately want to get done. I've started to work > > > > on some of it, but it is certainly not easy to do at this point. Do > > > > you have any pointers on how I can tackle this, so that it will stop > > > > driving me crazy? I'm sure some of you will tell me not to let it > > > > bother me, but I've tried that, and I haven't been able to succeed. > > > > Any suggestions? > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Hi , I think you meant this reply for me, not . Thank you so much for reminding me that recovery is a slow process. I've had several fusion surgeries before so I should know that by now. But it's still a relief to hear that the neuropathy you suffered has cleared up, although it took a while. Since I have had surgeries before I had already adjusted my lifestyle for most tasks. I do very small loads of laundry in a plastic bag carried in one hand since I have to go downstairs and I always use the railings. And I have five - count 'em - five grabbers all over the house! That's not to say that I sometimes don't push the envelope. Being such an independent cuss gets me in trouble sometimes! Thanks again for your feedback - much appreciated. > > > > > > > > My recovery continues to be going well (2.5 months post-op), and I'm > > > > slowly being able to ddo more and more. I can do some of the house > > > > chores now, but certainly not all of them. Our house is still quite > > > > messy, which I hoped to work on before surgery, but I didn't get much > > > > done beforehand due to the short notice and the high pain levels I was > > > > experiencing at that time. > > > > > > > > But now that I've been home for over two months, the mess is driving > > > > me more and more crazy. My husband has been pretty good about doing > > > > the chores that are absolutely necessary -- such as dishes, laundry, > > > > and taking out the trash -- but it is impossible to get him to work on > > > > tidying, organizing, and weeding out things we no longer need. And > > > > those are things I desperately want to get done. I've started to work > > > > on some of it, but it is certainly not easy to do at this point. Do > > > > you have any pointers on how I can tackle this, so that it will stop > > > > driving me crazy? I'm sure some of you will tell me not to let it > > > > bother me, but I've tried that, and I haven't been able to succeed. > > > > Any suggestions? > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Hi ... One thing I forgot to mention when I talked about doing my own cleaning is that I have a cleaning crew come in once a month. -- > > -- Ouch! Yes, laundry is a tricky one. I make liberal use of > my reacher for that chore. > > UPDATE -- I broke down and hired a house cleaner for the first time, > who will be coming tomorrow. I'm convinced the budgetary changes I > need to make to afford it will be well worth it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 , Hurrah for you! I am very interested to hear how your day went with a cleaning crew. I bet you will find, especially since you are around to guide/help, that things will be spic and span. My guess is that looking at your neat and clean house will be just the mental lift you need...kind of like the way you feel after that first post - op shower! Worth every penny. And no one says this is forever...its just for now. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
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