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Hi June,

Yes, I can see why you are nervous about another surgery. I understand about

multiple surgeries as I had 5 in two years! If you are looking for another

opinion, my doctor is Glazer, MD. He is at Beth Israel Deaconess Medical

Center in Boston (Brookline area). He can be reached at 617-667-2225. Feel free

to mention my name if it will help you get in any sooner. Good luck.

Delaney (RI)

>

> Glad to hear that you are doing better! and have so much going on in your

> life! Your update encouraged me to continue looking for a doctor to " fix "

> me!

> I'm not surprised that it took you so long to decide on revision surgery.

> I've been dragging my feet about another surgery.. This would be my 4th in

> about 10 yrs. My last surgery to remove broken Harrington rods was 12/05

> and now I have what they are calling " dextroscoliosis at the thoracic-lumbar

> junction measuring aprox. 25 degrees with increased thoracic kyphosis " . I

> started out leaning forward a little and now I am actually slumping forward

> terribly! I'm actually a " hunchback " and have gone from 6'1 " to 5' '7 "

> List members suggested that I contact Dr. Rand in Boston and also Dr.

> Kabaish in Baltimore. I wanted to ask about your Dr. Glazer. Is he in Boston

> near Dr. Rand? I called Dr. Rand's office and also Dr. Kabaish's for

> appts-more like second and third opinions. Both doctors along with Sr.

> Ludwig (Univ of MD Spine Ctr) know my surgeon Dr. Errico(NYC). Seems

> that some of the docs trained together. Both Dr. Rand's and Dr. Kabaish's

> admins wanted me to wait until after I see Dr. Errico to make the

> appointments. Understand, that Dr.Errico stated that he was afraid to operate

on me

> again due to previous mid torso radiation treatments in 1981. That's why I

> have gone to other specialists. I will see Dr. Errico this next Friday for

an

> annual checkup. I'll have had a CT scan by then and plan to take the

> results to him along with the results of yet another scoliosis (long) x-ray

that

> clearly shows the collapsed vertebrae above the fusion. I'll also have a

> detailed list of my limitations and complaints.

> I've been on this list for several years and have recently joined the

> scoliosis forum. I'm still gathering information and I do appreciate your

> update! I'm sorry if this is running on but I am in severe pain today and

> am extrememly frustrated by my situation!!

> Thanks for listening!

> June -NJ

>

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