27 years old, Had surgery in 1998. Flatback since July 2004. Knoxville, TN

January 23, 2011

Hi everyone. I just found this group. I've had Flatback Syndrome since July 2004

and none of the idiot doctors I've been to have been able to diagnose me with

it. They all told me everything was fine with my rods and fusion and sent me on

my way with no answers to make sense of what happened to me or any options for

relief.

Thank God for Facebook, I was able to find someone with the same symptoms as me

who actually has the diagnosis and she filled me in on it. I put it altogether

and it wasn't hard for me to realize that I have Flatback--my neck bent forward

LITERALLY OVERNIGHT and the host of other problems such as pain, fatigue, and

burning fibromyalgia pain where the rods are began simultaneously.

Does anyone know of a good surgeon to consult with in Knoxville, TN????

I really hate that the spine surgeon messed up my body for the rest of my life,

retired, and now no one wants to consult with me except a bunch of nincompoops

who can't even diagnose a common complication of Harrington Rod surgery! :-/

Did I mention I have 3 and 4 year old boys, a baby due in March, and I'm on

disability??? Yeah, I hate Scoliosis surgery and the fact that after 6 years

when things finally went wrong b/c of it no one can give me the answers I need.

P.S. My fusion is from T2-L4, pre-op curves were 54 and 30 degrees and are now

30 and 15 degrees. But I think I'd rather be more crooked and in no pain like I

was before!

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