Brace

[Guest guest]

Hi Eva...

Once one's skeleton in mature, no amount of external force will stop or

slow the progression of scoliosis curves. You may want to call the

Scoliosis Association (800-800-0669) to get a copy of the July-August

1999 issue of BackTalk. In that issue, seven scoliosis specialists tell

us why bracing won't work for adults. Also, for an explanation of

exactly why it won't work, check out

http://members.home.net/lindaracine/AdultBracing.htm.

Regards,

[Guest guest]

Sounds like we have the same brace. The brace slips

over the knee, and the U-shaped buttress is velcro'd

(is that a word??) in place. I've used it on a fair

amount of movement, including elliptical, walking and

even in the water walking. It works well for

everything except bicycling. The back of the knee

gets pinched and I don't like it. I also don't like

it when I use the rowing machine. I guess anything

that requires more extreme flexion causes that

pinching in the back, and pushing down of the kneecap.

nne

Brace

nne -- what kind of brace is it? I bought what I

hoped would be a wonderful brace -- it wraps around

the leg & Velcro's on (I have arthritis in my fingers

so pulling one on is painful), and has a movable

U-shaped buttress. But after hiking with it (on flat

ground) for half an hour, I found it had slipped up

onto my patella, so it wasn't pushing it over.

Ann

Re: Anesthesia

for

arthscopy

(Surgery Frustration) Any Advice?

>

> Hi ...again.....

>

> I apologize, you're right, of course, I responded

to

> your response...whoops!

>

> Where do you live that you're having to wait so

long??

>

> My advice to you would be to have a heart to heart

> talk with your physiotherapist and get a darn good

> regime you can do at home on your own...with

weights,

> elastic bands, balls, etc. So once your benefits

are

> gone you have at least an at home program to try

and

> maintain. I say this because you mention that

you'd

> be back in pain after PT...so PT must be helping

the

> pain a bit, right? You might also ask your PT to

> write a letter to your surgeon explaining what

he's

> done, and where you are at as far as pain, etc?

> Surgeon's first idea is always PT, and I

personally

> believe that many of them feel that " if we only

tried

> harder in PT " things wouldn't hurt. Well, bully on

> that! I do believe exercise of some sort is

> important, but there comes a point where the pain

over

> rides even the best of intentions.

>

> Hope you can get some resolution, or some type of

> cancellation quickly.

>

> nne

Hey there...

I live in Canada... I know there is a bit of a wait

for surgery but

usually not over a years wait. Most of the time it's

about 6 months

at the most. I don't think my doctor is taking me

very

seriously

about this issue. My family doctor said PT is the

" treatment " for

chondromalacia, like all I had to do was go to PT

and

it would get

better, but my PT said I have very bad

chondromalacia,

like bone on

bone (which means I must be close to Grade IV). Like

I've had

problems with my knee for 3 years and I'm just

finding

out now

what's wrong.

Actually I find I am more pain whenever I have

physiotherapy and I

care barely walk for days after each session. I have

a

bunch of

exercises I do at home on a daily basis (as well as

PT

twice a week

at the moment), as well as I ice my knee 3 times a

day, take some

anti-immflammitories and apply an anti-immflam cream

3

times daily.

But I still hurt a ridulous amount every single day.

I

can barely

walk, it sometimes keeps me up at night and every

one

seems to think

it is minor, when I know it's not. I mean it's my

body

I know what I

feel but everyone seems to just brush me off and

think

it's alright

for me to not have a job to just " deal " with the

pain.

I'm 25! I

never injured myself and no one can explain to me or

want to give me

any solutions to what is wrong!

[Guest guest]

I'm not sure, but that may be the Spinecor brace. Link below.

http://www.spinecorporation.com/English/index.htm

-------------- Original message --------------

From: Mafalda Giamboy <m_giamboy@...>

I have read some messages regarding the Brace. I have searched the web

for " Brace " and cannot find anything about it.

Can someone please direct me to the web site for the Brace - I am very

interested in learning about it.

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

[Guest guest]

I went to a brace maker for mine. I live in Canada. Usually the

orthopedic department of a hospital can give you the name of someone

who makes braces. The brace is basically a h shape on its side

with one section going up the spine and two sections wrapping

themselves around the ribs on the top and bottom... a corset type belt

holds it in place.

However those things are custom made and I am sure whoever makes

braces in your area can make you one if you have a prescription for

it. I know you need one here for it. It's fairly simple brace... It

won't straighten your back. It's only used for support.

[Guest guest]

Here is a link with a description:

http://www.trilliumhealthcentre.org/programs_services/neurosciences_musculoskele\

tal_services/mississauga/Braces.html

[Guest guest]

Thanks for the information, . I will speak with my physician about it to

see if it might be an option to help me from pitching forward.

<laura@...> wrote: Here is a link with a

description:

http://www.trilliumhealthcentre.org/programs_services/neurosciences_musculoskele\

tal_services/mississauga/Braces.html

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

I had my surgeries done in 1963....that's over 40 years ago...I was 16 and

after everything was complete, surgeries, casts, rehab, etc.....I had to wear

this brace for almost 1 year. Just like described except I was never allowed

to be upright without it meaning that I had to put it on while lying in bed.

Then, once secured, I was able to get up and go. I could remove it at

night and believe me, by the end of the year, it was barely still in one piece.

Several of the buckles were hanging by threads. But it obbviously worked

because I am still as straight as can be today. I have recurring problems with

pain and am getting help for that ... but Cleveland Clinic produced a

miracle, in my eyes.

Oh, PS...the brace was quite comfortable if properly fitted.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Lynn,I was told that the red pressure spots should disappear 20-30 minutes upon taking the brace off. If they do not - then you probably need to go in for an adjustment.Perhaps you could call the orthotist and explain what's going on to get their thoughts as well.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: lynn_marsden@...Date: Mon, 25 Oct 2010 11:16:54 -0700Subject: Brace

Hi All

It seems like forever since I talked to you all. I'm back to work and hardly ever get a free minute to come on here and see how everyone is doing. I have a question regarding braces. Peyton has been in a brace now for about 2 months. We have had to the brace altered and adjusted many times to get it to hold the way it did in the cast. My question is does anyone elses little one scream when you put the brace back on: Peyton screams and says "ouchie" each time I put the brace back on. He seems fine afterwards but its killing me to think I'm hurting him everyday. He seems to be really red in certain spots on his back and ribs when I take off the brace and I know thats just where the pressure spots are on the brace but do you think the kids ache or get sore from the brace?

Lynn

[Guest guest]

Hello Lynn ,My son always crys a bit when I put his brace back on but as soon as I have it done up he forgets about it . All red spots should go away in 30 min. Our Ortho said to put rubbing alcohol on the red spots to make the skin stronger. I just put a tiny bit on a cotton ball and rub on the spot. It has worked for us and now Thaddeus doesn't get red spots.Mom to Thaddeus Sent from my iPhoneOn Oct 25, 2010, at 11:16 AM, Lynn Marsden <lynn_marsden@...> wrote:

Hi All

It seems like forever since I talked to you all. I'm back to work and hardly ever get a free minute to come on here and see how everyone is doing. I have a question regarding braces. Peyton has been in a brace now for about 2 months. We have had to the brace altered and adjusted many times to get it to hold the way it did in the cast. My question is does anyone elses little one scream when you put the brace back on: Peyton screams and says "ouchie" each time I put the brace back on. He seems fine afterwards but its killing me to think I'm hurting him everyday. He seems to be really red in certain spots on his back and ribs when I take off the brace and I know thats just where the pressure spots are on the brace but do you think the kids ache or get sore from the brace?

Lynn

[Guest guest]

Yes they do go away after a while, thanks that makes me feel much better

Lynn

From: Borlik <christina_borlik@...>Subject: RE: Brace"infantile scoliosis" <infantile scoliosis treatment >Received: Monday, October 25, 2010, 11:48 AM

Hi Lynn,

I was told that the red pressure spots should disappear 20-30 minutes upon taking the brace off. If they do not - then you probably need to go in for an adjustment.

Perhaps you could call the orthotist and explain what's going on to get their thoughts as well.

~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosis

infantile scoliosis treatment From: lynn_marsden@...Date: Mon, 25 Oct 2010 11:16:54 -0700Subject: Brace

Hi All

It seems like forever since I talked to you all. I'm back to work and hardly ever get a free minute to come on here and see how everyone is doing. I have a question regarding braces. Peyton has been in a brace now for about 2 months. We have had to the brace altered and adjusted many times to get it to hold the way it did in the cast. My question is does anyone elses little one scream when you put the brace back on: Peyton screams and says "ouchie" each time I put the brace back on. He seems fine afterwards but its killing me to think I'm hurting him everyday. He seems to be really red in certain spots on his back and ribs when I take off the brace and I know thats just where the pressure spots are on the brace but do you think the kids ache or get sore from the brace?

Lynn

[Guest guest]

Oh wow I will try that, thanks

LYnn

Hi All

It seems like forever since I talked to you all. I'm back to work and hardly ever get a free minute to come on here and see how everyone is doing. I have a question regarding braces. Peyton has been in a brace now for about 2 months. We have had to the brace altered and adjusted many times to get it to hold the way it did in the cast. My question is does anyone elses little one scream when you put the brace back on: Peyton screams and says "ouchie" each time I put the brace back on. He seems fine afterwards but its killing me to think I'm hurting him everyday. He seems to be really red in certain spots on his back and ribs when I take off the brace and I know thats just where the pressure spots are on the brace but do you think the kids ache or get sore from the brace?

Lynn

[Guest guest]

Many families agree that a properly applied EDF plaster cast is far more

comfortable (and effective) than a brace. Transition time wasnt easy for

Liv either, but she eventually got used to it. I hope he's better today.

HRH

> Hi All

> It seems like forever since I talked to you all.  I'm back to work and

> hardly ever get a free minute to come on here and see how everyone is

> doing.  I have a question regarding braces.  Peyton has been in a brace

> now for about 2 months.  We have had to the brace altered and adjusted

> many times to get it to hold the way it did in the cast.  My question is

> does anyone elses little one scream when you put the brace back on: 

> Peyton screams and says " ouchie " each time I put the brace back on.  He

> seems fine afterwards but its killing me to think I'm hurting him

> everyday.  He seems to be really red in certain spots on his back and ribs

> when I take off the brace and I know thats just where the pressure spots

> are on the brace but do you think the kids ache or get  sore from the

> brace?

> Lynn

>

>

[Guest guest]

Hi Everyone!

I'm actually writing from home this time! I left rehab midday on Friday.

I have various people from a visiting nurses' association coming by.

Eventually it will be a nurse, PT, OT, and a case manager also came by

yesterday. They will all come until I can switch to normal outpatient

services. My first surgical follow up appointment is is about a week.

I have to admit -- wearing my post-surgical brace is driving me crazy!

Everyone who has checked it says that it fits correctly and that I am

wearing it correctly. Did it drive any of you crazy too? What can I do

to make it tolerable? I want to start getting up more and start doing

more things, but my avoidance of the brace Is a severe hinderance.

I hope you'e all having a great weekend!

Me

[Guest guest]

I must have been a bit dopey when I sent this email. I never would

have signed it " Me " otherwise. I meant to sign it " . "

On Mar 13, 2011, at 2:38 PM, Curran <melissacurran530@...> wrote:

> Hi Everyone!

>

> I'm actually writing from home this time! I left rehab midday on Friday.

>

> I have various people from a visiting nurses' association coming by.

> Eventually it will be a nurse, PT, OT, and a case manager also came by

> yesterday. They will all come until I can switch to normal outpatient

> services. My first surgical follow up appointment is is about a week.

>

> I have to admit -- wearing my post-surgical brace is driving me crazy!

> Everyone who has checked it says that it fits correctly and that I am

> wearing it correctly. Did it drive any of you crazy too? What can I do

> to make it tolerable? I want to start getting up more and start doing

> more things, but my avoidance of the brace Is a severe hinderance.

>

> I hope you'e all having a great weekend!

>

> Me

[Guest guest]

Hi Joy,

I have attached a link from my blog of e being casted for her brace. This

was with our old specialist who did not have the risser frame though.

It took about 20-30 mins. We found she felt more restricted in her brace than

her cast when it was first put on. We usually have to get a couple of

adjustments.

Happy to answer any other questions you may have.

Louise

http://lifewithbeals.blogspot.com.au/2011/06/casting-for-new-brace.html

>

> Hi everyone

> Jaylin is getting his cast off June 21 and getting fitted for a brace for the

summer. My question is, what do we need to know about braces. When jaylin gets

fitted for the brace does it take long? What should we exspect? How long does it

take to make the brace? Anyway full of questions.

> Thanks in advance

>

> Live, laugh, and love

> Joy

>

[Guest guest]

Hi Joy,

There are many types of braces and many types of brace applying protocols.

Please find out what type of brace and go from there. One important rule

when transferring to a brace is to be sure that it fits well and was made

effective and specifically for Jaylin's curve(s). Have them take an xray

in brace to be sure its doing what its supposed to:)

HRH

> Hi everyone

> Jaylin is getting his cast off June 21 and getting fitted for a brace for

> the summer. My question is, what do we need to know about braces. When

> jaylin gets fitted for the brace does it take long? What should we

> exspect? How long does it take to make the brace? Anyway full of

> questions.

> Thanks in advance

>

> Live, laugh, and love

> Joy

[Guest guest]

Hi heather, The cast clinic said when they take off jaylins cast they are using that as his mold but also take measurements. The nurse said its going to be just like his risser cast, well edf cast. It will take 2-3 days to make it and he will not have to be put under :) to do that. Live, laugh, and loveJoyOn May 21, 2012, at 10:47 AM, heather@... wrote:

Hi Joy,

There are many types of braces and many types of brace applying protocols.

Please find out what type of brace and go from there. One important rule

when transferring to a brace is to be sure that it fits well and was made

effective and specifically for Jaylin's curve(s). Have them take an xray

in brace to be sure its doing what its supposed to:)

HRH

> Hi everyone

> Jaylin is getting his cast off June 21 and getting fitted for a brace for

> the summer. My question is, what do we need to know about braces. When

> jaylin gets fitted for the brace does it take long? What should we

> exspect? How long does it take to make the brace? Anyway full of

> questions.

> Thanks in advance

>

> Live, laugh, and love

> Joy

=