Haven't been here in a while, but now I'm back

[Guest guest]

I found you all through a kyphosis online group. I've been here in the past,

but life got busy, and I was getting no where, so I took some time off. A quick

refresher- I am 43 years old. I have Scheuermann's kyphosis. I had a 108'

curve in my back before my surgery in 1989. I am fused T3-L2. I am one of the

unfortunate ones whose curve has moved up her spine. I now have at least a 104'

curve in my upper thorasic/cervical spine. I have seen Bridwell in late 2008,

who told me he thought he could fix or at least help it. I was ready to do

surgery, but then was found to be extremely anemic, so I canceled. I went to an

ortho doc here (near Indianapolis). He is very hesitant to extend my fusion,

because he in concerned that the curve will merely move up into the upper

cervical area then.

Meanwhile, I am left with a worsening curve, and lots of pain. I could have

cried today, it hurt so bad in my neck and shoulders. I just don't know what to

do anymore. I can barely wear my mock turtleneck sweaters because my neck juts

out so much they choke me. Also, just exhausted from being in pain. I am a

reading specialist and I love my job, but days like today are so hard.

Thank you for listening. I know we are all in the same boat here.