Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Stop Sugar it weakens the nerve and whole body, feed wholesome food if you would like to read my www.ginakopera.com click on Epilepsy link, the other thing that is real important and I am referring to a friend that has a child with autism is get the colon cleanse out. Have a Happy and Healthy Day, Kopera > > > > Hello All, > > I just joined the group and have a question. I have a 6 year old boy > who is Autistic and has ab seizures and on meds for it. After reading > some posts I wanted to ask if anyone goes to a Alternative Med doctor. > I take my kids to one and when I told him my son was having ab seizures > he said to do the gf/cf diet and eliminate sugar as well until we see > him again. Has anyone ever tried it? I asked why and he said the sugar > is causing the seizures. I'm just looking for advice and not to upset > anyone. > > Kathy > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi Kathy, Please tell me what ab seizures are. My 7 year old son is autistic with atonic and grand mal seizures. The ketogenic diet has workd well with us. My 13 and 16 year old daughters are great at making sure there isn't any candy or any of their food around that would mess up his diet. He can still eat hot dogs(no bun) and bologna which he loves. Since I don't know what ab seizures are ,I'm unsure if this diet would help or not. Cristy dwsmom1996 <dwsmom1996@...> wrote: Hello All, I just joined the group and have a question. I have a 6 year old boy who is Autistic and has ab seizures and on meds for it. After reading some posts I wanted to ask if anyone goes to a Alternative Med doctor. I take my kids to one and when I told him my son was having ab seizures he said to do the gf/cf diet and eliminate sugar as well until we see him again. Has anyone ever tried it? I asked why and he said the sugar is causing the seizures. I'm just looking for advice and not to upset anyone. Kathy --------------------------------- Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 -- Hi , WOW there is gluten in sunscreen? How did you find out about the medicine having gluten as well? That book I haven't read but will put it on the list. Thanks for sharing. Kathy - In , " mbrookh " <mbrookh@...> wrote: > > Kathy, > I would strongly encourage you to try gluten/casein and soy free [soy > is a protein much like casein]. My 22 year old pdd-nos daughter has > dealt with seizures since age 9. Meds did little for her. The > ketogenic diet helped but I could not get family cooperation for it. > She went through a celiac work up at age 11 - positive blood work > but her biopsy was 'negative' so the advice was to eat as usual. At > age 16 I came across the diet link through Seroussi's and ' > books. She has been a good responder. She still will seize, usually > 8-12 hours after she eats an offending food, of she gets any of > above. Summer 2006 at camp they used a gluten containing sunscreen > on her and she came home with lots of withdrawal seizures. When we > began the gfcfsf pattern it was like dt withdrawals. She several > days of multiple seizures. I was very scared. After day 5 the > seizures were gone. We had a lot of sorting out to do to get her > diet pure. Even tegretol, her med at the time, had a unlisted casein > component. Chocolate, peanut, and some other foods will put her > close to seizures. The gut and brain are quite related imo. Have you > read Dr. McCandless' book - 'Children with Starving Brains'? She's a > big advocate of gfcfsf. > > > , " dwsmom1996 " <dwsmom1996@> wrote: > > > > > > > > Hello All, > > > > I just joined the group and have a question. I have a 6 year old > boy > > who is Autistic and has ab seizures and on meds for it. After > reading > > some posts I wanted to ask if anyone goes to a Alternative Med > doctor. > > I take my kids to one and when I told him my son was having ab > seizures > > he said to do the gf/cf diet and eliminate sugar as well until we > see > > him again. Has anyone ever tried it? I asked why and he said the > sugar > > is causing the seizures. I'm just looking for advice and not to > upset > > anyone. > > > > Kathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 -- Hi Cristy, Ab seizures are absent seizures that look like daydreaming but are not. When you day dream and someone touches you, you respond. With ab seizures when someone touches you, you don't respond and you have to wait until they come out of it. It usually last for less than 1 minute and they go back to what they were doing like nothing happened. I never heard of atonic seizures, what are they like? My son also has had grand mal seizures as well but not often, but if he should fall and hit his head he will have one. The hot dogs your son eats are they the ones with no nitrates? Trader Joe sells them. Kathy - In , Cristy Harding <cah6605@...> wrote: > > Hi Kathy, > Please tell me what ab seizures are. My 7 year old son is autistic with atonic and grand mal seizures. The ketogenic diet has workd well with us. My 13 and 16 year old daughters are great at making sure there isn't any candy or any of their food around that would mess up his diet. He can still eat hot dogs(no bun) and bologna which he loves. Since I don't know what ab seizures are ,I'm unsure if this diet would help or not. > > Cristy > > dwsmom1996 <dwsmom1996@...> wrote: > > > Hello All, > > I just joined the group and have a question. I have a 6 year old boy > who is Autistic and has ab seizures and on meds for it. After reading > some posts I wanted to ask if anyone goes to a Alternative Med doctor. > I take my kids to one and when I told him my son was having ab seizures > he said to do the gf/cf diet and eliminate sugar as well until we see > him again. Has anyone ever tried it? I asked why and he said the sugar > is causing the seizures. I'm just looking for advice and not to upset > anyone. > > Kathy > > > > > > > --------------------------------- > Be a better Heartthrob. Get better relationship answers from someone who knows. > Answers - Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Hi Helen, Glad you found this group. They are Great Supporters and ask anything as if one does not know another will. My daughter also has Poly JA and has the 1 leg shorter than the other. 's is 1 1/2 inches shorter and she does well with this once she got a lift for her shoe. She walks without a limp as long as she wears those sneakers but if she wears her other shoes you can tell the limp is there. Feel free to ask any question ok. Have you seen any differences with the colder weather with her? Let her know there's more kid's with JA and she is not alone. Robbin **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Hi Helen and welcome to the list. You will find so much support, alot of caring people and information you cannot find anywhere else. It is bittersweet when someone finds this list. We always hate hearing of another child battling JA yet we are so happy you found this list! Donna<BR><BR><BR>**************<BR>Ideas to please picky eaters. Watch video on AOL Living.<BR> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/\ 2050827?NCID=aolcmp00300000002598)</HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Donna, Thanks for the warm welcome! I am estatic to have found this list. I have been searching for something like this, for a very long time. I have only been a member a few days, but already I have seen a lot of good information come across the board. I can't wait to get to talk to you all more. Helen Re: New Member Hi Helen and welcome to the list. You will find so much support, alot of caring people and information you cannot find anywhere else. It is bittersweet when someone finds this list. We always hate hearing of another child battling JA yet we are so happy you found this list! Donna<BR><BR> <BR>***** ********* <BR>Ideas to please picky eaters. Watch video on AOL Living.<BR> (http://living. aol.com/video/ how-to-please- your-picky- eater/rachel- campos-duffy/ 2050827?NCID= aolcmp0030000000 2598)</HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 HI Robbin, thanks for the warm welcome. The Podatrist was shocked to see a 1 inch difference in her legs, saying it was pretty " uncommon " . So, I am glad to hear that there are others out there that have the same problem. How long has your daughter had the difference her legs, and have they come any closer in length over the years? I have seen a lot of changes in her, with the cold weather. We moved here from Hawaii, where she pretty much had no problems at all, and here, she is back to pain and stiffness. Helen Re: New Member Hi Helen, Glad you found this group. They are Great Supporters and ask anything as if one does not know another will. My daughter also has Poly JA and has the 1 leg shorter than the other. 's is 1 1/2 inches shorter and she does well with this once she got a lift for her shoe. She walks without a limp as long as she wears those sneakers but if she wears her other shoes you can tell the limp is there. Feel free to ask any question ok. Have you seen any differences with the colder weather with her? Let her know there's more kid's with JA and she is not alone. Robbin ************ **Ideas to please picky eaters. Watch video on AOL Living. (http://living. aol.com/video/ how-to-please- your-picky- eater/rachel- campos-duffy/ 2050827?NCID= aolcmp0030000000 2598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Re: New Member Hi Helen, Glad you found this group. They are Great Supporters and ask anything as if one does not know another will. My daughter also has Poly JA and has the 1 leg shorter than the other. 's is 1 1/2 inches shorter and she does well with this once she got a lift for her shoe. She walks without a limp as long as she wears those sneakers but if she wears her other shoes you can tell the limp is there. Feel free to ask any question ok. Have you seen any differences with the colder weather with her? Let her know there's more kid's with JA and she is not alone. Robbin ************ **Ideas to please picky eaters. Watch video on AOL Living. (http://living. aol.com/video/ how-to-please- your-picky- eater/rachel- campos-duffy/ 2050827?NCID= aolcmp0030000000 2598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Inger Lise My name is Gentile and I am fom Sandvika. My daughter, Jackie, has had JRA systemic poly for 7 years and has been treated at Rikshospitalet and St. Olavs Hospital, Trondheim. I have worked a lot over the years on changing our diet to controll the inflamation in the joints. Briefly I can tell you that the biggest differenc was when we took away processed sugar (white sugar). That means most things that have suger in it like sodas, candy etc. Then we stopped dairy products and white flour. I have " left " Norway and live with my kids in the USA because Norway refused to accept that I did not want Jackies joints injected with steroids. She had that done 2 with out good result. Anyway, get all the information you can at the hospital. Go home, think about it and talk to your freiend before you decide on the medical treatment. Get a second opinion from an other reumatologist. Talk to Dr. Roald Strand at Kilden Helse in Oslo. He is very knowledgebal. He knows a lot about the diet. I gladly give you more info. if you want. Lykke til , mum to Jackie 11 poly system. since 3 @...: ingerko@...: Tue, 1 Apr 2008 15:04:39 +0000Subject: New member Hello thereI am Inger Lise from Norway. My daughter Erna at 7 was diagnozed today. For the last couple of months she has had really swollen knees and it has been hard for her to walk in the mornings. As soon as it happened, I was thinking arthritis. Almost a year ago a psycic friend of mine went into her to check out other issues with her, and asked if she had arthritis. I said no - and she said she could feel her limbs getting stiffer, so I could hold an eye on them. No big chock then, but I would like to learn more about it - which food to stay away from, what may help etc. Around week 17 we will be spending a week at hospital to take more test and such. HugsInger Lise _________________________________________________________________ Going green? See the top 12 foods to eat organic. http://green.msn.com/galleries/photos/photos.aspx?gid=164 & ocid=T003MSN51N1653A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 So sorry to hear about your daughter's arthritis. Glad to see that another member from Norway has given you so much great information for appropriate medical treatment there in your part of the world. I do agree completely that eliminating sugar and white flours makes a big difference with my daughter also. I also make sure that she has lots of probiotics each day to support the immune system and get healthy flora into her intestines (Kefir, yogurt, or probiotic powder in her milk). It helps with digestion considerably. Also nutrients cannot get through well when our intestines are " junked up " with white flours, white rice, and too much gluten. Even those that don't have Celiac Disease can be helped considerably by a lower gluten diet. Our bodies were just never intended to consume as much grains as we would love to eat. I also give Isabelle fish oil (there are " children's " DHA and fish oil ---I think one is even made in Norway?). This helps reduce inflammation also and eating fish at least twice per week is helpful as well; for everyone. All the best to you and your daughter, Hadley (Isabelle, age 4) > > Hello there > I am Inger Lise from Norway. > My daughter Erna at 7 was diagnozed today. For the last couple of > months she has had really swollen knees and it has been hard for her to > walk in the mornings. As soon as it happened, I was thinking arthritis. > Almost a year ago a psycic friend of mine went into her to check out > other issues with her, and asked if she had arthritis. I said no - and > she said she could feel her limbs getting stiffer, so I could hold an > eye on them. No big chock then, but I would like to learn more about > it - which food to stay away from, what may help etc. > Around week 17 we will be spending a week at hospital to take more test > and such. > > Hugs > Inger Lise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Welcome Kitty! Sorry you have had to deal with so much! I hope you work yourself up to trying the egg drink. It makes me feel great and it's an easy way to get what you need in. --- oliverkittyboy1 <oliverkittyboy1@...> wrote: > Hi - I am a new member. > > A little history about myself, I will be 60 this > year (still hard to > believe how that happened! LOL). Looking back over > my life I have > probably had candida for many, many years. I was a > vegan for almost > 30 years, but I wasn't even a healthy one - too much > sugar and too > many carbs. Plus, I took birth control pills for > many years. I > suspected that I had candida in my late 30's after > reading Dr. Crooks > book - however, I was never serious about changing > my eating habits. > > When I was about 50 I was diagnosed with rosacea - > this started me > taking antibiotics - both orally and topically - for > many years. I > was also on hormone replacement therapy. My rosacea > kept getting > worse and the doctor's answer was to up the dosage > of the antibiotic > or to switch to a different antibiotic. > > But the rosacea and my health kept getting worse. I > had a very long > list of candida symptoms which were pretty scary and > made me pretty > much non-functional. So I began researching candida > again - both on > the Internet and bought many books on the subject. > > May, 2006 I initally started on my own treatment - > changed my diet - > no longer a Vegan - which was hard mentally, but as > Chefsuz said in > one of her messages: " I had to change my thinking to > regain my > health " . I also started on natural anti-fungals. > But I know that I > was too agressive with the antifungals and had > pretty bad die-off - > though it did show me that the candida is real and > that there was a > connection between rosacea and candida. > > September, 2006 I started on a candida program that > uses a diet > similar to yours and natural anti-fungals - however, > they use some > different products that you don't recommend. I did > see significant > improvement in my candida symptoms while on this > program. However, > due to my own treatment prior to the program my > liver became really > over stressed - confirmed by a Naturopath and my own > liver pain. So, > I stopped taking everything - to give my liver a > break. > > My plan was to just continue with the diet for > awhile - but I was not > successful - I went back to my " old " eating habits. > > > There is a saying on another website that I visit: > " Why would you > want to go back to eating the way that made you sick > in the first > place? " That's something that I ask myself everyday > and now I know > that I need to start again - and this seems like a > good place to > start. > > So, I have started the diet as you outline here, > ordered the > supplements that you recommend from a reputable > Naturopath. I have > started taking the coconut oil (though I have used > it for quite some > time on my face with a couple drops of oil of > oregano - helps my > rosacea). And I have started the Pau d'Arco tea > (have used this in > the past and I really like the taste). This weekend > I will be > starting with the lemon drink and the sauerkraut. > > I am still thinking about your egg drink - having a > hard time getting > past the idea of consuming raw eggs. > > Three things that I have been doing to help my liver > are milk thistle > (from the same Naturopath), cholesterol packs on my > stomach and > essiac tea (to help detox). I have been feeling > really good using > these, so I will probably contine for awhile. I am > also back on my > rebounder, which I have also neglected for awhile. > > Sorry this is so long. > > While I hate having candida and having to continue > to deal with this, > I am excited about being here, and I do know how > important it is to > have a support system to keep you on track. > > So, thank you Bee for this website and sharing your > knowledge and > expertise - it is very encouraging! > > > > > > ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I too was afraid of the egg drink. I thought , okay, try it once and if I don't like it I won't drink it. I didn't mind it. I put 3 eggs in my blender with the coconut oil and cinnimon and nutmeg. I use olive oil, or omega or codliver oil instead of butter, my son is caesin free so I make it without butter because I encourage him to drink it. Maybe he will like it one day. I boil my tea kettle and pour it in. You don't even know it is raw eggs. It doesn't look, smell or taste like you'd think. I hope you try it! I actually crave it now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 > > I too was afraid of the egg drink. I thought , okay, try it once and > if I don't like it I won't drink it. I didn't mind it. I put 3 eggs > in my blender with the coconut oil and cinnimon and nutmeg. I use > olive oil, or omega or codliver oil instead of butter, my son is > caesin free so I make it without butter because I encourage him to > drink it. Maybe he will like it one day. > > I boil my tea kettle and pour it in. You don't even know it is raw > eggs. It doesn't look, smell or taste like you'd think. I hope you > try it! I actually crave it now > Thank you and Kathy for the welcome and encouragement. I will try the egg drink this weekend - will let you know how it goes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Hi . Welcome to our group. Thank you for sharing your story with us. You've had a lot to deal with over the years. You are so very welcome for the information and this group, who are wonderful! It does take time for your cravings and withdrawal symptoms to stop but it is doable. Here's some help for them: http://www.healingnaturallybybee.com/articles/menu_2_5_3.php That's great you are doing well on the castor oil packs, milk thistle, etc. for your liver. The best in health, Bee > > Hi - I am a new member. > > A little history about myself, I will be 60 this year (still hard to > believe how that happened! LOL). Looking back over my life I have > probably had candida for many, many years. I was a vegan for almost > 30 years, but I wasn't even a healthy one - too much sugar and too > many carbs. Plus, I took birth control pills for many years. I > suspected that I had candida in my late 30's after reading Dr. Crooks > book - however, I was never serious about changing my eating habits. > > When I was about 50 I was diagnosed with rosacea - this started me > taking antibiotics - both orally and topically - for many years. I > was also on hormone replacement therapy. My rosacea kept getting > worse and the doctor's answer was to up the dosage of the antibiotic > or to switch to a different antibiotic. > > But the rosacea and my health kept getting worse. I had a very long > list of candida symptoms which were pretty scary and made me pretty > much non-functional. So I began researching candida again - both on > the Internet and bought many books on the subject. > > May, 2006 I initally started on my own treatment - changed my diet - > no longer a Vegan - which was hard mentally, but as Chefsuz said in > one of her messages: " I had to change my thinking to regain my > health " . I also started on natural anti-fungals. But I know that I > was too agressive with the antifungals and had pretty bad die-off - > though it did show me that the candida is real and that there was a > connection between rosacea and candida. ><snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi, n and welcome to the list, although as always I am sorry to hear of another child with this disease. You have come to a place of great support and information. We all know how you are feeling as we have all been where you are now. The people here do understand in ways family and friends may not, as many folks think of arthritis as something old people get or as not a serious disease. Believe me, we do know how serious this illness is. It does often take time to get the disease under some type of control. The drugs take time to work, and then they may not be the right ones for your son, so you need to switch and try something else. It is the worst to see your child in pain and not be able to help. My son walked with a limp and could not run for two years before the drugs really started to help. My son too was often angry and frustrated with his disease. Sometimes meeting with a therapist to talk over the issues can help the kids. My son definitely benefited from meeting with someone to discuss his issues. Your son may find that helpful as well. Some of the kids here have done this and find it helpful. Please feel free to vent here whenever you need it. Ask any questions you may have, someone is sure to know something about what you are going through. Let us know how things are going. Check out past posts as there is often lots of info there. Georgina is the one who started this list and she often posts many informative medical articles to keep us learning about this disease. I know you feel alone right now and I can only imagine how it is to have your husband so far away, but as I said before, the people here do know how frustrating this disease can be and you have reached out to the right place. Hugs, Michele ( 20, spondy) From: [mailto: ] On Behalf Of marianwilcox17 Sent: Sunday, April 20, 2008 7:50 PM Subject: New member Hello- I am a mother of an 11-year old boy who has recently been diagnosed with JRA (Sept. 07). Our world has been turned upside down. His disease seems to be progressing despite treatment and we are told he probably has severe polyarticular JRA. He takes 3 injections a week now between Enbrel and Methotrexate. He is angry and frustrated as I am saddened and feel helpless. Please give us any advice, information, support, and opinions.............we are desperate and feel ALL alone in this! My husband is in Iraq for a year so I have no support, or anyone to talk to about such a personal issue. n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 n - Welcome to the group. I think that you will find that you have come to the right place for support. Whatever you are going through there will be someone that has already experienced it. This list has helped me realize that I am not alone with this disease. Even though it seems like it in my daily life because I don't know anyone personally with JRA or Uveitis. My son is also 11 and was just diagnosed in Aug of 2007. I will often share with Grant articles that I come accross of other kids his age with this disease. I think that he likes to know too that he isn't the only kid in the world with this. Feel free to ask any questions! & Grant (11, PsA/Uveitis) > > Hi, n and welcome to the list, although as always I am sorry to > hear of another child with this disease. You have come to a place of > great support and information. We all know how you are feeling as we > have all been where you are now. The people here do understand in ways > family and friends may not, as many folks think of arthritis as > something old people get or as not a serious disease. Believe me, we do > know how serious this illness is. > > It does often take time to get the disease under some type of control. > The drugs take time to work, and then they may not be the right ones for > your son, so you need to switch and try something else. It is the worst > to see your child in pain and not be able to help. My son walked with a > limp and could not run for two years before the drugs really started to > help. > > My son too was often angry and frustrated with his disease. Sometimes > meeting with a therapist to talk over the issues can help the kids. My > son definitely benefited from meeting with someone to discuss his > issues. Your son may find that helpful as well. Some of the kids here > have done this and find it helpful. > > Please feel free to vent here whenever you need it. Ask any questions > you may have, someone is sure to know something about what you are going > through. Let us know how things are going. Check out past posts as there > is often lots of info there. Georgina is the one who started this list > and she often posts many informative medical articles to keep us > learning about this disease. I know you feel alone right now and I can > only imagine how it is to have your husband so far away, but as I said > before, the people here do know how frustrating this disease can be and > you have reached out to the right place. Hugs, Michele ( 20, > spondy) > > > > ________________________________ > > From: [mailto: ] On > Behalf Of marianwilcox17 > Sent: Sunday, April 20, 2008 7:50 PM > > Subject: New member > > > > Hello- > > I am a mother of an 11-year old boy who has recently been diagnosed > with JRA (Sept. 07). Our world has been turned upside down. His disease > seems to be progressing despite treatment and we are told he probably > has severe polyarticular JRA. He takes 3 injections a week now between > Enbrel and Methotrexate. He is angry and frustrated as I am saddened > and feel helpless. Please give us any advice, information, support, > and opinions.............we are desperate and feel ALL alone in this! > My husband is in Iraq for a year so I have no support, or anyone to > talk to about such a personal issue. > > n > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 > > Hello All, > > My name is , nice to meet you. I have been very sick lately, and > in the past. I have endometriosis, was recently told I have fibroids, I > have migraines, upset stomach, irritable bowel, etc... all of the > things you ha dmentioned on your group page. Anyway, I saw Dr. Warren > Levin last night, in Vienna, VA. He is a great doctor. He believes > candida is causing a lot of my endo pain, fibriods and more. He is > testing me for candida and other things. I will keep you informed. > > I wanted to know... what the heck can I eat!? I was given soem basic > guidelines, but, it is not looking too appealing. I figured you all may > have ideas/suggestions etc? Please let me know. > > Thank you so much, > ==>Hi . Welcome to our group. You can read the articles emailed to you when you joined, mainly " Candida Basics by Bee " , or see my website for diet lists, articles, supplements lists and tons of other information and recipes: http://www.healingnaturallybybee.com/articles/menu2.php The best in health, Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 > I wanted to know... what the heck can I eat!? I was given soem basic > guidelines, but, it is not looking too appealing. I figured you all may > have ideas/suggestions etc? Please let me know. > > Thank you so much, > You get used to it really fast. I now LOVE my diet! Check out the hundreds of great recipes in the Files. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 > > I am not sure if I should be in this group, but someone recommended > it. +++Hi Patty. Welcome to our group. > I DO have problems with Candida, but have had it under control > the last few months. I will try and make a very long story short. > About a year and 1/2 ago I was in a wheelchair and knew my life had > to change. I started seeing a chiropractor and learned the truth > about foods. I am a disabled RN so had a lot of brainwashing to > overcome. > > 1. I have been on a no sugar/no grain very low carb diet for almost > a year a 1/2. I do ferment a lot of things, but to the point there > is no sugar left. ie kefir-24 hours at room temp, strain then about > 5 days in the fridge. Water kefir, ferment 2 days, strain, then 4 or > more days secondary ferment. Kombucha, I ferment to vinegar and > drink very small amounts and fermented veggies. I see sauerkraut is > allowed. I also ferment beets. They are extremely sour by the time > I eat them. I doubt there is sugar left in any of these, am I wrong? +++I've heard of water kefir, but can you tell me what ingredients are used? I know during fermentation of dairy kefir the lactose may lower but it is changed into another sugar called galactose. See this article about why Kombucha tea is not recommended: http://www.healingnaturallybybee.com/articles/komb1.php > > 2. I just found out on Friday I am sensitive to gluten and dairy, > so...kefir goes on the back burner for a while even though it was raw > milk. Gluten is not a problem as I almost never eat grains. +++That's good you are eliminating kefir. > 3. My major problem: I just had cortisol levels and a bunch of > other stuff tested. I am bordering on adrenal failure, am > hypothyroid even though treated and hormones are really messed up. I > have totally crashed. Insulin levels are BELOW 3 both fasting and > after eating (optimal is 5 to 10). Asthma is way out of control and > the Epstein Barr virus has reared its ugly head again. From getting > out of a wheel chair and going back to work, I am nearly housebound > and had to quit my job. This all occured in less than 2 months after > working in a toxic building. Here's my main question: > The doctor and the adrenal fatigue group say I need to add good carbs > back into my diet to recover. I'm scared of reactivating the > candida. Would adding a sweet potato, quinoa and beans now and then > be that bad? Will adding carbs help one thing and set me back on > another? He said the low insulin was a result of both extremely low > cortisol and low carb diet. +++Candida causes all of the symptoms you describe as well as thyroid and adrenal malfunction. That is because candida toxins make all cell membranes rigid/stiff which means that organs aren't as able to function normally, and hormones produced, along with nutrients and even water aren't as able to get into rigid cell membranes where they are needed to do their job - see Candida Causes Cell Membrane Defects: http://www.healingnaturallybybee.com/articles/cabout1.php +++I lost my thyroid due to over medicating and treatment when I had cured my candida over 20 years ago. At some point during my candida cure my thryoid started to recover, yet because I had been on hormones, etc. for so long my thyroid went into a tizzy, going from low to high (severe Grave's Disease) in a short amount of time. So it was zapped with radioactive iodine which killed it. If I had know back then what I know now I wouldn't have overtreated my thyroid, and instead focused on curing candida, which was the " cause. " +++Your doctor must have a lot of misinformation about glucose requirements, and that they can only come from carbs - carbs are all foods not classified as protein or fat. There's only about 1 tsp. of glucose circulating throughout the body at any given time, and 58% of protein and 10% of " good " fats are turned into glucose inside the body, which easily fulfills any glucose needs. +++All carbs feed candida, however it is impractical to exclude them all. +++Here's information about hypoglycemia: " Defective cell membranes may interfere with the ability of blood sugar to penetrate the various cells, a job normally accomplished with the help of insulin. When cell membranes are damaged, the insulin will have trouble doing its job - and insulin levels may have to be increased {by the body}. This may result in low blood sugar which explains why you have hypoglycemia symptoms, and it can also cause you to gain weight! " But that means a hugh battle is going on. +++Also all cell membranes must be constructed out of 50% saturated fats (lung cells required 100%), otherwise they will be weak. +++Also see these articles on the Adrenals and Thyroid: http://www.healingnaturallybybee.com/articles/menu4_7_1.php +++Also see Lung Health: http://www.healingnaturallybybee.com/articles/treat15.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 > The doctor and the adrenal fatigue group say I need to add good carbs > back into my diet to recover. I'm scared of reactivating the > candida. Would adding a sweet potato, quinoa and beans now and then > be that bad? Will adding carbs help one thing and set me back on > another? He said the low insulin was a result of both extremely low > cortisol and low carb diet. Patty: In my experience-- I have adrenal fatigue, Hashimoto's thyroiditis and asthma---the main thing I needed to add to my diet was good fats and plenty of them. The grains/carbs/sugars/etc all caused my problems to get worse. I needed good fats because my hormones were starving, our hormones are created by the body from good fats. I also needed HC in order to digest and process everything. But real sauerkraut can also be used. > > I truly want to heal through diet, not medications or even > supplements. Can this group and plan help me? Thank you! Absolutely. Read the success stories for inspiration. Marissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 > +++Your doctor must have a lot of misinformation about glucose requirements, and that they can only come from carbs - carbs are all foods not classified as protein or fat. There's only about 1 tsp. of glucose circulating throughout the body at any given time, and 58% of protein and 10% of " good " fats are turned into glucose inside the body, which easily fulfills any glucose needs. Bee, Thanks for your response. I have been reading your site, which is leaving me even more confused. Most of my research supports live ferments for candida as long as you make sure the sugar is gone. My blood sugar is fine, it's insulin itself that is low NOT high. Basically, my pancreas is not making enough insulin and he said that that could be a sign of developing Type 1 diabetes. However, because I am eating an extremely low carb diet, my blood sugar remains " normal " That's part of the reason I'm afraid to start eating carbs. Type 1 and type 2 diabetes run in my family and I want to avoid it. I used to be severely hypoglycemic, but within a few months of dropping grains/sugar, that went away. It's come back a little, but not bad. He was saying adding the carbs was necessary for adrenal recovery and stimulating the pancreas. I don't really understand the connection to adrenals. It is my understanding that the galactose ferments to alcohol which in turn ends up as lactic acid and other organic acids. I understood that the way I was fermenting the dairy kefir was using up almost all of all sugars. As to water kefir, there are kefir grains that look like soft crystals. You put these, water and sugar in a jar and ferment for 2 to 3 days at room temp. Then you strain. At this point, I add ginger, hibiscus tea, fruit or juice and leave to ferment another 3 to 5 days. If you aren't careful, you can end up with noticeable alcohol with the juices and fruit, but the long fermentation takes it past the alcohol stage too. If I'm understanding you correctly, you are saying to NOT add carbs back in my diet? Thanks again, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 > Bee, ><snip> > If I'm understanding you correctly, you are saying to NOT add carbs > back in my diet? +++Yes, that is correct Patty. See the " Diabetes & the Candida Connection " ; http://www.healingnaturallybybee.com/articles/diab2.php The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 do pills like that really work? New member Hi. My name is and I live in Northern New York with my husband and 7 month old son. Last year I went to a holistic healer who said I definitely have a huge problem with Candida. Unfortunately this person is over an hour away and with working full time and a family I just don't have time to see her. So I've got to do it on my own. I have never eaten the right things. I love veggies but I also love bread and pasta and sugar. I am about 60 lbs overweight. I need to lose it but first I need to take care of my internal body. I am SO TIRED. It is making me miserable. I feel bloated and sick all the time. I ache all over. I want sugar every second of the day. I have been through many tests all normal. Truely my eating habits are the only left to fix. So I went to our local health food store and bought a Candida Cleanse system. But I really want to do it right. I'm not sure how long I should take the pills. It says up to six months at a time. I just want to do it right so I can star Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 > > Hi everyone, > > I'm new and so grateful to have found Bee's web-site. I'm started my > second week on the diet today and I am already feeling different and > seeing changes. I have so many symptoms, week nails and thumb nails > with ridges, slight foot fungus, five root canals, thin teeth, hair > loss in certain places, hypothyroidism, sore throats, sinus problems, > post nasal srip, thick saliva, developed asthma. My rosacea diagnoses > was the last straw. Mentally I felt sadness, depression, crying spells. > with so many problems, my physician thought I was a hypochondriac, but > I knew inside I wasn't. I knew something was wrong, but no one could > tell me what it was. I felt as thought I had the body of an addict, but > I am the total opposite. I just felt off. I e-mailed you this morning > Bee and you asked me to join, so here I am. I want to thank you for > everything Bee. I have to agree with so may others, you are an angel. > Thank you, thank you, thank you +++Hi. Sorry I get too many personal emails to remember names. What is your name my friend? +++You are so very welcome for the information. I am honored to be able to help. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
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