New member

[Guest guest]

Breathe the fresh air, Robin. Enjoy it. Take in the spring flowers,

new leaves, and the freedom of being out of an institution for the

first time since your accident. Keep in touch.

On Apr 19, 2009, at 2:27 PM, robin wrote:

________________________________

From: April <nanny04@...>

spinal problems

Sent: Friday, April 17, 2009 11:57:44 AM

Subject: Re: new member

Wednesday will be the first time

I will be outside either yhe hospital or rehabilitation center since

the accident.

The outing is for an

audiologist's appointment. I have a severe hearing loss in both ears

since I was 5-years old.

Robin

Welcome to the group Robin. It makes me sad to see someone your age

already suffering with pain. How is your recovery going?

new member

Date: Fri, 17 Apr 2009 16:49:42 -0000

Hi,

My name is Robin,I am 14 and a new member.

On December 10 I suffered a severe spinal cord injury at the T3 to T4

level.

I have spent the last eight weeks in a rehabilitation center learning

to walk with crutches and HKAFO braces.The braces also include a

heavy leatherTLSO brace that attaces to the pelvic band and extends

The HKAFO to just below my shoulders.

Robin

uch

--

Email2me.... The email service that cares. It is FREE.

http://www.email2me.com

[Guest guest]

Hello, Please look at my website for information regarding the treatment of

CP for your daughter.

www.hbot4u.com freely call me at anytime,

909-889-7626

we have over 200 testimonials and 800 pages regarding HBOT for brain injury

Sincerely

and CHT

serving your needs since 1998

www.hbot4u.com

hyperbaric1@...

[ ] new member

> my daaughter is almosst 7 she has cerebral palsy spastic quadrapledga

> and severe developmental issues could this method help

>

>

>

> ------------------------------------

>

> " So I say to you: Ask and it will be given to you; seek and you will find;

> knock and the door will be opened to you. For everyone who asks receives;

> he who seeks finds; and to him who knocks, the door will be opened. " [Luke

> 11: 9-10]

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

[Guest guest]

Hi Betty and welcome to the group,

I have some very

similar problems as you have

mentioned, although my doctor said I'm not yet at the point for surgery.

But I can

certainly identify with what you must be going through. My cousin had a

surgery very

similar to yours and he is doing soooo well, it took him awhile but he

says he is glad

that he had it done____he feels much better. I hope all goes well for

you!

God Bless and I will put you in my prayers!

In a message dated 8/15/09 7:59:07 AM Eastern Daylight Time,

busybet33@... writes:

> Hello

> y name is Betty from NJ. I have had spinal stenosis for years with ongoing

> progression from bulging disk to nerve root compression. I have had

> epidurals and nerve root pain management all of which got to the point where

they

> no longer worked.

> So I decided to go the surgury route. I will be in recovery for 8 more

> weeks. Had to lie flat for two weeks, then sit for half hour intervals. Now am

> allowed to walk a little bit each day.

> The surgery was called decompression but doc found a bone had grown over

> the nerve root requring further work to cover the nerve root with a biologic

> materiel.

> I hope to hear positive reinforcement from anyone who has gone this route.

> i.e. Was it successful in relieving pain?

> Thanks, Betty

>

>

>

>

>

> Messages in this topic (49) Reply (via web post) | Start a new topic

> Messages | Files | Photos | Links | Database | Polls | Members | Calendar

>

>

> Change settings via the Web ( ID required)

> Change settings via email: Switch delivery to Daily Digest | Switch format

> to Traditional

> Visit Your Group | Terms of Use | Unsubscribe

>

>

> Recent Activity

>

> 11

> New Members

> Visit Your Group

> Give Back

> for Good

>

> Get inspired

>

> by a good cause.

>

>

> Y! Toolbar

> Get it Free!

>

> easy 1-click access

>

> to your groups.

>

>

>

> Start a group

>

> in 3 easy steps.

>

> Connect with others.

>

>

>

>

>

>

[Guest guest]

Betty...welcome. It sounds like you've been through a lot, and I hope your

surgery relieves your pain. I don't have your particular situation but want to

wish you the very best recovery and well wishes.

[Guest guest]

Oh thanks for the encouragement, this is what I need to hear at this point.

Betty

>

> Hi Betty and welcome to the group,

> I have some very

> similar problems as you have

> mentioned, although my doctor said I'm not yet at the point for surgery.

> But I can

> certainly identify with what you must be going through. My cousin had a

> surgery very

> similar to yours and he is doing soooo well, it took him awhile but he

> says he is glad

> that he had it done____he feels much better. I hope all goes well for

> you!

> God Bless and I will put you in my prayers!

>

> In a message dated 8/15/09 7:59:07 AM Eastern Daylight Time,

> busybet33@... writes:

>

> > Hello

> > y name is Betty from NJ. I have had spinal stenosis for years with ongoing

> > progression from bulging disk to nerve root compression. I have had

> > epidurals and nerve root pain management all of which got to the point where

they

> > no longer worked.

> > So I decided to go the surgury route. I will be in recovery for 8 more

> > weeks. Had to lie flat for two weeks, then sit for half hour intervals. Now

am

> > allowed to walk a little bit each day.

> > The surgery was called decompression but doc found a bone had grown over

> > the nerve root requring further work to cover the nerve root with a biologic

> > materiel.

> > I hope to hear positive reinforcement from anyone who has gone this route.

> > i.e. Was it successful in relieving pain?

> > Thanks, Betty

> >

> >

> >

> >

> >

> > Messages in this topic (49) Reply (via web post) | Start a new topic

> > Messages | Files | Photos | Links | Database | Polls | Members | Calendar

> >

> >

> > Change settings via the Web ( ID required)

> > Change settings via email: Switch delivery to Daily Digest | Switch format

> > to Traditional

> > Visit Your Group | Terms of Use | Unsubscribe

> >

> >

> > Recent Activity

> >

> > 11

> > New Members

> > Visit Your Group

> > Give Back

> > for Good

> >

> > Get inspired

> >

> > by a good cause.

> >

> >

> > Y! Toolbar

> > Get it Free!

> >

> > easy 1-click access

> >

> > to your groups.

> >

> >

> >

> > Start a group

> >

> > in 3 easy steps.

> >

> > Connect with others.

> >

> >

> >

> >

> >

> >

>

>

>

>

[Guest guest]

Thank you so much Liz!!! Betty

>

>

> Betty...welcome. It sounds like you've been through a lot, and I hope your

surgery relieves your pain. I don't have your particular situation but want to

wish you the very best recovery and well wishes.

>

[Guest guest]

Hi ,

You have found a home where we truly know the kind of pain you suffer from. 

Live each day to the fullest and enjoy every moment!  Just some simple advice

from me:  Get any and all information about your back condition(s) as you can. 

It will do wonders and assist in making a decision when the time arrives!

dave

________________________________

From: busybet33 <busybet33@...>

spinal problems

Sent: Saturday, August 15, 2009 1:35:54 PM

Subject: Re: new member

 

Oh thanks for the encouragement, this is what I need to hear at this point.

Betty

>

> Hi Betty and welcome to the group,

> I have some very

> similar problems as you have

> mentioned, although my doctor said I'm not yet at the point for surgery.

> But I can

> certainly identify with what you must be going through. My cousin had a

> surgery very

> similar to yours and he is doing soooo well, it took him awhile but he

> says he is glad

> that he had it done____he feels much better. I hope all goes well for

> you!

> God Bless and I will put you in my prayers!

>

> In a message dated 8/15/09 7:59:07 AM Eastern Daylight Time,

> busybet33@.. . writes:

>

> > Hello

> > y name is Betty from NJ. I have had spinal stenosis for years with ongoing

> > progression from bulging disk to nerve root compression. I have had

> > epidurals and nerve root pain management all of which got to the point where

they

> > no longer worked.

> > So I decided to go the surgury route. I will be in recovery for 8 more

> > weeks. Had to lie flat for two weeks, then sit for half hour intervals. Now

am

> > allowed to walk a little bit each day.

> > The surgery was called decompression but doc found a bone had grown over

> > the nerve root requring further work to cover the nerve root with a biologic

> > materiel.

> > I hope to hear positive reinforcement from anyone who has gone this route.

> > i.e. Was it successful in relieving pain?

> > Thanks, Betty

> >

> >

> >

> >

> >

> > Messages in this topic (49) Reply (via web post) | Start a new topic

> > Messages | Files | Photos | Links | Database | Polls | Members | Calendar

> >

> >

> > Change settings via the Web ( ID required)

> > Change settings via email: Switch delivery to Daily Digest | Switch format

> > to Traditional

> > Visit Your Group | Terms of Use | Unsubscribe

> >

> >

> > Recent Activity

> >

> > 11

> > New Members

> > Visit Your Group

> > Give Back

> > for Good

> >

> > Get inspired

> >

> > by a good cause.

> >

> >

> > Y! Toolbar

> > Get it Free!

> >

> > easy 1-click access

> >

> > to your groups.

> >

> >

> >

> > Start a group

> >

> > in 3 easy steps.

> >

> > Connect with others.

> >

> >

> >

> >

> >

> >

>

>

>

>

[Guest guest]

Dear Jan, Hi and welcome, welcome and a good day to all of you, thanks so much.

dottie

GREETING'S FROM UP-UNDER.....YOUR PAL DOROTHY....XOXO

From: spinone@...

Date: Mon, 2 Nov 2009 14:24:49 -0500

Subject: [ ] New member

Hi everyone,

Just to introduce myself... I'm Jan, I'm 59, I live in Florida, and I

was recently diagnosed with AIH. I'm sure I'll learn a lot from all of you!

Jan

_________________________________________________________________

Windows Live: Make it easier for your friends to see what you’re up to on

Facebook.

http://go.microsoft.com/?linkid=9691816

[Guest guest]

Hi Jan

 

My name is Donna and I live in Ohio but go to Naples, Fla for the winter.  where

do you live in Fla?  I was diagnosed with AIH in 2005 and I was 58 at the time.

I live in a small town and have checked around to find someone who also has AIH

but no luck.  It's so hard sometimes not having someone to share this with but

I'm

so lucky that I have my family to talk to and this web sight.  I don't write

much but

I do read posts frequently.

 

Take care

From: Jan <spinone@...>

Subject: [ ] New member

Date: Monday, November 2, 2009, 2:24 PM

 

Hi everyone,

Just to introduce myself... I'm Jan, I'm 59, I live in Florida, and I

was recently diagnosed with AIH. I'm sure I'll learn a lot from all of you!

Jan

[Guest guest]

Harper ...thank you for all the wonderful info!!!

(I just lost an email I wrote so you may get two of these)

I go to doctor tomorrow and I'll have lots of questions. He's a

gastro-heptologist. I do blood draws weekly and see him weekly as well. I'll

have to get ALL test results to follow along, as you suggested. We live in Park

City, Utah and my husband takes me and reminds me of things!

He may take me off cholestyramine now...but it helps I see in lowering

cholesteral and mine has always been high -240. I like the taste of it as there

is very little I can drink.

Thank you for the tacrolimus article! Fascinating. When I had all the strange

skin symptoms years ago (they thought lupus at the time from

bloodwork)...nothing worked not even prednisone!! For 10 years. Finally I was

givin a tacrolimus topical med (called simply protopic) and it was

miracle...stopped all in maybe a week. So initially, with this AIH, I was leary

of prednisone working for me and asked for the tacrolimus oral med they give

transplant patients (because my ownn body is rejecting/attacking it's liver

similarly I would think.) Doc says pred first (gold standard). I like that these

other meds are easier on the bone density as well. My mother/grandmother have

osteo. But the Pred has worked so far. I'm not taking anything else yet.(no

azith. or imuran) I'll ask about calcium. Anyone use milk thistle??..I've know

that it supports liver function..a natural herb.

I have horrid nauseau. Ondansetron was from first doc before I was diagnosed,

but it helps as needed now. I try to chew gum and apples help..and cheerios. Can

take Kapidex in morning (acid med that may help). No overeating yet - maybe

because I've only been on prednisone for 2 weeks. I'm down to 110 pounds. I am

a huge eater, with a high metabolism normally...more than my teens and husband.

Now only can handle things that are plain, not rich. Thin soups. Nothing fried,

fake, spicy..my body just wants bland, healthy. Can barely drink my fave coffee!

only water, lightly flavored energy waters.

I especially appreciate the notes on the brain fog and will absolutely adress

tomorrow. Funny that the body builds up amonia..didn't know that. I have a salt

water fish tank and thats what kills the fish, when amonia turns to nitrites...I

feel like a sick fish tank! I'll avoid protein.

I'm also looking forward to getting that book!

Many, many thanks....missy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [ ] New Member

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Thanks for note Kay!

>

>

>

>

>

> I'm a new member from Utah. My history...Just diagnosed with AIH. Docs thought

it was Hep A. (from a recent trip to Guatemala)...but my liver numbers never got

better...and biopsy proved AIH. (Hep A could have triggered. And it started

right when my father died, so maybe stress a factor..who knows) I have had

weird skin reactions years ago from yellow fever shots...that could have screwed

up my immune system. My immune profile has since been strange, but until now,

nothing had manifested. The only thing that worked for skin issues was

'protopic'... a drug that stops your body from attacking itself. I am anxious

now to try those " tacrolimus " oral drugs for AIH.(50 yrs old)

>

>

>

>

>

> For now..On 40 prednisone.. and cholestyramine (orange drink)... and trying to

shed the yellow. Nauseau pills as needed and promethazine and ondansetron.

Horrid itching stage is over. Can only eat very bland... it's like the nauseau

of preganancy.

>

>

>

>

>

> I'm reading thru old posts trying to learn.... and the " brain fog " is

currently the hardest, no concentration, not my usual mind at all.... wondering

when this will get better...and what exactly it's from??? Only energy in the

early part of days... and insomnia.

>

>

>

>

>

> So ...day by day...weekly blood draws for now... can only get better!

>

>

>

>

>

> Nice to gather information from this sight, and thank you for it already...

missy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Funny, you feel like a sick fish tank! Are you saying apples and cheerios

and chewing gum help nausea? I buy peppermints. I have terrible nausea and

when I let go, it is projectile. I appreciate your mentioning Ondansetron;

I'd never heard of it but I'm going to ask my doc about it. Is your name

Missy, or what? I can't imagine losing weight on prednisone, I put on 5

pounds a week when I was taking 40 prednisone. I agree with Harper, milk

thistle is a waste of money, and imuran/aza is important to start taking so

you should be weaned of the pred and started on it.

Just my two cents. I'm also a big fan of AARDA, as is my mom, who also has

PBC.

Kay, AIH/PBC

[Guest guest]

Hi Donna,

You're in the southwest -- I'm right in the middle of the state, in

Clermont. (I used to live in Michigan.)

It does seem strange to have something so uncommon. My doctor said that

during his hepatology fellowship he saw about 20 patients with AIH. In

comparison, it was at a hospital where they do 200 liver transplants a year!

I haven't started treatment yet -- it was caught early (stage 2, but

enzymes less than 5 times normal) and apparently there are no studies to

show whether the bad side effects of the drugs are worth it at this

point. The doctor left it up to me whether I wanted to start now or

wait a while. What I forgot to ask him, though, was if there's anything

I should know about living with AIH. Are there things I should or

shouldn't do?

Jan

Donna Holstein wrote:

>

>

> Hi Jan

>

> My name is Donna and I live in Ohio but go to Naples, Fla for the

> winter. where

> do you live in Fla? I was diagnosed with AIH in 2005 and I was 58 at

> the time.

> I live in a small town and have checked around to find someone who

> also has AIH

> but no luck. It's so hard sometimes not having someone to share this

> with but I'm

> so lucky that I have my family to talk to and this web sight. I don't

> write much but

> I do read posts frequently.

>

> Take care

>

[Guest guest]

Hi Nandy

Welcome to the group.

Im sorry you have to deal with HCV 'and' HBV, but Im glad you found us.

We will try to help you with info and support.

The first thing is to stay calm.

There are answers, and there is hope.

Many people clear and go on to lead whole lives.

On top of that Medical Science is making great advances in helping us.

I suggest that you do a few things.

[1] Get and keep copies of all your labwork and everything medical so that you can follow your own progress.

[2] Diet is very important. Diet goes a long ways in helping our bodys work right, and fight health issues.

[3] Research. This is important for your understanding of what you are dealing with.

We have tons of website links in the links library to help speed you along.

http://health.dir./group/ /links <--- click here

You will find information in these websites to help you.

Please browse and check it out.

It is set up with topic folders first, filled of website links.

Below that are just loose website links.

Here are some good websites to start with. Click on them.

http://www.hbvadvocate.org/

http://hepatitis-central.com/

http://janis7hepc.com/Information%20Links.htm

You are not alone Nandy. We are here.

Any questions you have, just ask.

We will do our best to answer.

love

don in ks

From: nandywho <nandyad@...>Subject: [ ] new member Date: Saturday, January 2, 2010, 12:55 AM

I was told 2 days ago I have hepatitis B and c .Dont know alot about hepatitis and am here to learn, Thanks for letting me join.------------------------------------

[Guest guest]

Welcome RandyOFrom: Randy <randyowe@...> Sent: Fri, January 22, 2010 7:51:29 AMSubject: [ ] New Member

Hi All,

Just joined this group. Have been a member of CanHepC for about 10 years, but the group has faded and I have recently decided to renew the fight against the disease. So, I hope to be of use here as well as get support myself.

RandyO

[Guest guest]

hi randy from threasa in texas

From: sheila slater <a_nc_female@...> Sent: Fri, January 22, 2010 9:00:57 AMSubject: Re: [ ] New Member

Welcome RandyO

From: Randy <randyowe (DOT) com> Sent: Fri, January 22, 2010 7:51:29 AMSubject: [ ] New Member

Hi All,Just joined this group. Have been a member of CanHepC for about 10 years, but the group has faded and I have recently decided to renew the fight against the disease. So, I hope to be of use here as well as get support myself.RandyO

[Guest guest]

Hey thanks Theresa......and everyone else.Like I indicated earlier I am a member of CanHepC, have been for ten yeas of so. The group has basically died and I don't know if it is a result of members dying or not. One of my good friends Marty did pass last year, so that was trying. Anyway, I was diagnosed back in 2000 (mild fibrosis stage 2)and have attempted to go through TX 3 times. Those are all telling stories maybe some day I'll give the details. The last time was in 2003 on PegIntron and I lasted about 8 1/2 mos. before the docs took me off. I lost 25 lbs. ( down to 119 lbs) had a herpes infection that crossed back and forth in my mouth for the last 5 mos. (couldn't eat) and I developed hypoglycemia. I was so anemic that I got both Procrit and ???(the shot for low white

count) about six times. Then I got high. Started smoking pot in order to eat and get a better outlook on life. Started taking pain pills so I could work (I'm a carpenter). And since my dealer used crack I used thar too! Well, one day I just couldn't handle all the deceit I was going through to cover my ass (I had been sober in AA for five years previously) that I told my doctor everything. She immediately took me off TX and I was pissed. She suggested I might try methadone!!!! Well as parting gift they did another biopsy and the results showed I was at stage O !!!!!!!!!!!!!!!!! Wow! But, I was still a drunk and for the next 5 years I have proceeded to give up the ghost. By the grace of God it did not work. Death by drinking is much too slow. Six mos. ago I went back onto recovery (in AA) and I have found a local group of HepC folks that are willing to give me another shot at TX (maybe). So I'm back with you folks, THE DRAGON SLAYERS, and

have somewhat committed my efforts to helping others. On the 29th of this month I' getting labs, courtesy of the www.chancecenter.org my local HepC group. I'm now developing a group for support here in St. sburg,Fl for those on TX who absolutely need someone to relate to. Wish I had. Please help me get my site going. Right now it's just a page. I haven't had time to develope it yet. But I am somewhat of a professional site builder (got the degree tp prove it ....nnyah!!!) and it will get better as I go. So if you'll have this ragged old man that I am, I'd be glad to share what I know about this disease.Whew ......... that was tough!Randysuncoasthepcfriends.orgFrom: mary hughes <pachucka77@...> Sent: Sun, January 24, 2010 3:40:50 PMSubject: Re: [ ] New Member

HI RANDYkathy

From: Threasa Leight <threasaleight>Subject: Re: [ ] New Member Date: Friday, January 22, 2010, 7:11 PM

hi randy from threasa in texas

From: sheila slater <a_nc_female> Sent: Fri, January 22, 2010 9:00:57 AMSubject: Re: [ ] New Member

Welcome RandyO

From: Randy <randyowe (DOT) com> Sent: Fri, January 22, 2010 7:51:29 AMSubject: [ ] New Member

Hi All,Just joined this group. Have been a member of CanHepC for about 10 years, but the group has faded and I have recently decided to renew the fight against the disease. So, I hope to be of use here as well as get support myself.RandyO

[Guest guest]

RandyA suggestion and this I asked permission to use, because it came from a fella on another site. "The best liver cleanse I know of is AA"...If you were at stage 0 after that last treatment, did you actually have a NO viral load??? Or, did the Hep C return because of returning to the old lifestyle??Gloria

Hey thanks Theresa..... .and everyone else.Like I indicated earlier I am a member of CanHepC, have been for ten yeas of so. The group has basically died and I don't know if it is a result of members dying or not. One of my good friends Marty did pass last year, so that was trying. Anyway, I was diagnosed back in 2000 (mild fibrosis stage 2)and have attempted to go through TX 3 times. Those are all telling stories maybe some day I'll give the details. The last time was in 2003 on PegIntron and I lasted about 8 1/2 mos. before the docs took me off. I lost 25 lbs. ( down to 119 lbs) had a herpes infection that crossed back and forth in my mouth for the last 5 mos. (couldn't eat) and I developed hypoglycemia. I was so anemic that I got both Procrit and ???(the shot for low white

count) about six times. Then I got high. Started smoking pot in order to eat and get a better outlook on life. Started taking pain pills so I could work (I'm a carpenter). And since my dealer used crack I used thar too! Well, one day I just couldn't handle all the deceit I was going through to cover my ass (I had been sober in AA for five years previously) that I told my doctor everything. She immediately took me off TX and I was pissed. She suggested I might try methadone!!! ! Well as parting gift they did another biopsy and the results showed I was at stage O !!!!!!!!!!!! !!!!! Wow! But, I was still a drunk and for the next 5 years I have proceeded to give up the ghost. By the grace of God it did not work. Death by drinking is much too slow. Six mos. ago I went back onto recovery (in AA) and I have found a local group of HepC folks that are willing to give me another shot at TX (maybe). So I'm back with you folks, THE DRAGON SLAYERS, and

have somewhat committed my efforts to helping others. On the 29th of this month I' getting labs, courtesy of the www.chancecenter. org my local HepC group. I'm now developing a group for support here in St. sburg,Fl for those on TX who absolutely need someone to relate to. Wish I had. Please help me get my site going. Right now it's just a page. I haven't had time to develope it yet. But I am somewhat of a professional site builder (got the degree tp prove it ....nnyah!!! ) and it will get better as I go. So if you'll have this ragged old man that I am, I'd be glad to share what I know about this disease.Whew ......... that was tough!Randysuncoasthepcfriends .orgFrom: mary hughes <pachucka77 (DOT) com> Sent: Sun, January 24, 2010 3:40:50 PMSubject: Re: [ ] New Member

HI RANDYkathy

From: Threasa Leight <threasaleight>Subject: Re: [ ] New Member Date: Friday, January 22, 2010, 7:11 PM

hi randy from threasa in texas

From: sheila slater <a_nc_female> Sent: Fri, January 22, 2010 9:00:57 AMSubject: Re: [ ] New Member

Welcome RandyO

From: Randy <randyowe (DOT) com> Sent: Fri, January 22, 2010 7:51:29 AMSubject: [ ] New Member

Hi All,Just joined this group. Have been a member of CanHepC for about 10 years, but the group has faded and I have recently decided to renew the fight against the disease. So, I hope to be of use here as well as get support myself.RandyO

Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now!

[Guest guest]

That is so right. Food for thought.!Sent on the Sprint® Now Network from my BlackBerry®From: Gloria <gadamscan@...>Date: Tue, 26 Jan 2010 19:55:30 -0800 (PST)< >Subject: Re: [ ] New Member RandyA suggestion and this I asked permission to use, because it came from a fella on another site. "The best liver cleanse I know of is AA"...If you were at stage 0 after that last treatment, did you actually have a NO viral load??? Or, did the Hep C return because of returning to the old lifestyle??Gloria Hey thanks Theresa..... .and everyone else.Like I indicated earlier I am a member of CanHepC, have been for ten yeas of so. The group has basically died and I don't know if it is a result of members dying or not. One of my good friends Marty did pass last year, so that was trying. Anyway, I was diagnosed back in 2000 (mild fibrosis stage 2)and have attempted to go through TX 3 times. Those are all telling stories maybe some day I'll give the details. The last time was in 2003 on PegIntron and I lasted about 8 1/2 mos. before the docs took me off. I lost 25 lbs. ( down to 119 lbs) had a herpes infection that crossed back and forth in my mouth for the last 5 mos. (couldn't eat) and I developed hypoglycemia. I was so anemic that I got both Procrit and ???(the shot for low whitecount) about six times. Then I got high. Started smoking pot in order to eat and get a better outlook on life. Started taking pain pills so I could work (I'm a carpenter). And since my dealer used crack I used thar too! Well, one day I just couldn't handle all the deceit I was going through to cover my ass (I had been sober in AA for five years previously) that I told my doctor everything. She immediately took me off TX and I was pissed. She suggested I might try methadone!!! ! Well as parting gift they did another biopsy and the results showed I was at stage O !!!!!!!!!!!! !!!!! Wow! But, I was still a drunk and for the next 5 years I have proceeded to give up the ghost. By the grace of God it did not work. Death by drinking is much too slow. Six mos. ago I went back onto recovery (in AA) and I have found a local group of HepC folks that are willing to give me another shot at TX (maybe). So I'm back with you folks, THE DRAGON SLAYERS, andhave somewhat committed my efforts to helping others. On the 29th of this month I' getting labs, courtesy of the www.chancecenter. org my local HepC group. I'm now developing a group for support here in St. sburg,Fl for those on TX who absolutely need someone to relate to. Wish I had. Please help me get my site going. Right now it's just a page. I haven't had time to develope it yet. But I am somewhat of a professional site builder (got the degree tp prove it ....nnyah!!! ) and it will get better as I go. So if you'll have this ragged old man that I am, I'd be glad to share what I know about this disease.Whew ......... that was tough!Randysuncoasthepcfriends .orgFrom: mary hughes <pachucka77 (DOT) com> Sent: Sun, January 24, 2010 3:40:50 PMSubject: Re: [ ] New Member HI RANDYkathyFrom: Threasa Leight <threasaleight>Subject: Re: [ ] New Member Date: Friday, January 22, 2010, 7:11 PM hi randy from threasa in texasFrom: sheila slater <a_nc_female> Sent: Fri, January 22, 2010 9:00:57 AMSubject: Re: [ ] New Member Welcome RandyOFrom: Randy <randyowe (DOT) com> Sent: Fri, January 22, 2010 7:51:29 AMSubject: [ ] New Member Hi All,Just joined this group. Have been a member of CanHepC for about 10 years, but the group has faded and I have recently decided to renew the fight against the disease. So, I hope to be of use here as well as get support myself.RandyO Canada Toolbar : Search from anywhere onthe web and bookmark your favourite sites. Download it now!

[Guest guest]

Hello,

Sorry to hear about your recent accident. You are welcome to call me anytime

at the number below. I can give you some great information regarding HBOT.

You can also see my website at www.hboinfo.com/ncarolina.htm .

Take Care,

Pridmore

Charlotte Metro Hyperbarics

14330 Oakhill Park Lane

Huntersville, NC 28078

1-888-704-HBOT

704-875-7189

www.charlottemetrohyperbarics.com

www.hboinfo.com/ncarolina.htm

From: medicaid

[mailto:medicaid ] On Behalf Of Kent Raney Jr

Sent: Saturday, January 30, 2010 5:03 PM

medicaid

Subject: [ ] new member

I am a person who suffered from hypoxic induced brain damage I am a 40 year

old man and recently I was in a car wreck. I could use some advice from

anyone. Thank You

[Guest guest]

What were your lab results [please include ranges]? If you're just a

bit high then there should be no problem with waiting; but I guess it

depends upon your symptoms [or lack thereof]. When I was diagnosed I

was only a little high and had no symptoms so I waited a month or two

and had another test to confirm that I had hypothyroidism before

starting treatment.

What kind of scan are you having, and why does your doctor think you

need one?

Luck,

..

..

>

> Posted by: " jmorrisuk " jmorrisuk@...

> <mailto:jmorrisuk@...?Subject=%20Re%3Anew%20member>

> jmorrisuk <jmorrisuk>

>

>

> Sat Mar 13, 2010 2:34 pm (PST)

>

>

>

> hi all

> I was diagnosed last week with hypotyroidism, my doctor did not give

> me medicine as he wanted me to have a scan first. My hospital

> appointment is in two weeks,i dont think i can wait that long. Has

> anyone else had this problem?

[Guest guest]

Thanks for replying

I did not take a record of my levels I will take a note of them on 22nd of this

month ( I think my THS was 12, the doctor said he sees it as high as 30).   

I went back on Fri and begged for some medication because I was so tired I kept

getting emotional.  The doctor gave a low dose of 25mg to take until my

hospital appointment where they will take more blood tests and a scan because my

tyroid is enlarged. 

Saturday morning I felt great until 3pm when the tirness hit me, I think the

hormone just run out.  When reading the instuctions of the normal start dose

was 50-100mg so I know I shouldnt have but I have anyway - uped the doseage to

50mg for the last 2 days and feel much better.

How long have you been on medication?  Have all your symptoms gone?

________________________________

From: <res075oh@...>

hypothyroidism

Sent: Sun, 14 March, 2010 17:14:49

Subject: Re:new member

 

What were your lab results [please include ranges]? If you're just a

bit high then there should be no problem with waiting; but I guess it

depends upon your symptoms [or lack thereof]. When I was diagnosed I

was only a little high and had no symptoms so I waited a month or two

and had another test to confirm that I had hypothyroidism before

starting treatment.

What kind of scan are you having, and why does your doctor think you

need one?

Luck,

..

..

>

> Posted by: " jmorrisuk " jmorrisuk (DOT) co.uk

> <mailto:jmorrisuk (DOT) co.uk?Subject=%20Re% 3Anew%20member>

> jmorrisuk <http://profiles. / jmorrisuk>

>

>

> Sat Mar 13, 2010 2:34 pm (PST)

>

>

>

> hi all

> I was diagnosed last week with hypotyroidism, my doctor did not give

> me medicine as he wanted me to have a scan first. My hospital

> appointment is in two weeks,i dont think i can wait that long. Has

> anyone else had this problem?

[Guest guest]

Hi, Jay. Please see responses below...

..

..

>

> Posted by: " jay morris " jmorrisuk@...

> <mailto:jmorrisuk@...?Subject=%20Re%3A%20new%20member>

> jmorrisuk <jmorrisuk>

>

>

> Sun Mar 14, 2010 12:39 pm (PDT)

>

>

>

> Thanks for replying

>

> I did not take a record of my levels I will take a note of them on

> 22nd of this month

..

..

It's a good idea to get a printout of your labs for future reference.

In the US the law requires that you be given them if you ask.

..

..

> ( I think my THS was 12, the doctor said he sees it as high as 30).

..

..

The normal upper range runs from about 3 to about 5 on those I've seen,

so 12 would be high. I think how high your TSH is is more of an

indicator of how long your thyroid has been under producing on not

producing, so you could have had the problem a while.

..

..

> I went back on Fri and begged for some medication because I was so

> tired I kept getting emotional. The doctor gave a low dose of 25mg to

> take until my hospital appointment where they will take more blood

> tests and a scan because my tyroid is enlarged.

>

> Saturday morning I felt great until 3pm when the tirness hit me, I

> think the hormone just run out. When reading the instuctions of the

> normal start dose was 50-100mg so I know I shouldnt have but I have

> anyway - uped the doseage to 50mg for the last 2 days and feel much

> better.

..

..

25 mcg is a starter dose. As long as you watch out for hypEr symptoms I

don't think there should be a problem. My full dose is 75 mcg/day; many

are higher.

..

..

>

> How long have you been on medication? Have all your symptoms gone?

..

..

I've been on Synthroid about 3 years I think. I never had any

symptoms. My annual checkup caught the elevated TSH when it was under 6

so it had probably just started to climb. A month or so later it was up

another point.

The half life of T4 is about a week; I don't know how fast it acts to

get the initial T3 into your blood.

Luck,

..

..

>

> ____________

> ____________________

> From: <res075oh@... <mailto:res075oh%40verizon.net>>

> hypothyroidism

> <mailto:hypothyroidism%40>

> Sent: Sun, 14 March, 2010 17:14:49

> Subject: Re:new member

>

>

> What were your lab results [please include ranges]? If you're just a

> bit high then there should be no problem with waiting; but I guess it

> depends upon your symptoms [or lack thereof]. When I was diagnosed I

> was only a little high and had no symptoms so I waited a month or two

> and had another test to confirm that I had hypothyroidism before

> starting treatment.

>

> What kind of scan are you having, and why does your doctor think you

> need one?

>

> Luck,

>

> .

[Guest guest]

Hi

I have been on Levothyroxine since Friday (so 4 days - not long), I feel that I

have more energy, today Im tired but I run 16 miles yesterday in a race.  I

feel better than I remember after other races, I would be stuck to the sofa for

hours unable to move.

I rang my doctor for my test result and they were

Tyroid level 9.36 (normal level 0.2-4.2)

T4/3 9.6 (normal level 12-22)

I am feeling happier, I wouldn't say I was depressed before, I would just go

very quiet in the evenings (no energy to talk maybe).

Im a little nervous about my scan, with horror stories of nodules and cancer -

im sure it will be fine.

Your lucky to have no symptoms, do you still have none?  You seem very

knowledgeable about the subject, have you read a book or just from the www have

you gained this?

Thanks for your reply

Jay

 

________________________________

From: <res075oh@...>

hypothyroidism

Sent: Mon, 15 March, 2010 14:23:26

Subject: Re: new member

 

Hi, Jay. Please see responses below...

..

..

>

> Posted by: " jay morris " jmorrisuk (DOT) co.uk

> <mailto:jmorrisuk (DOT) co.uk?Subject=%20Re% 3A%20new% 20member>

> jmorrisuk <http://profiles. / jmorrisuk>

>

>

> Sun Mar 14, 2010 12:39 pm (PDT)

>

>

>

> Thanks for replying

>

> I did not take a record of my levels I will take a note of them on

> 22nd of this month

..

..

It's a good idea to get a printout of your labs for future reference.

In the US the law requires that you be given them if you ask.

..

..

> ( I think my THS was 12, the doctor said he sees it as high as 30).

..

..

The normal upper range runs from about 3 to about 5 on those I've seen,

so 12 would be high. I think how high your TSH is is more of an

indicator of how long your thyroid has been under producing on not

producing, so you could have had the problem a while.

..

..

> I went back on Fri and begged for some medication because I was so

> tired I kept getting emotional. The doctor gave a low dose of 25mg to

> take until my hospital appointment where they will take more blood

> tests and a scan because my tyroid is enlarged.

>

> Saturday morning I felt great until 3pm when the tirness hit me, I

> think the hormone just run out. When reading the instuctions of the

> normal start dose was 50-100mg so I know I shouldnt have but I have

> anyway - uped the doseage to 50mg for the last 2 days and feel much

> better.

..

..

25 mcg is a starter dose. As long as you watch out for hypEr symptoms I

don't think there should be a problem. My full dose is 75 mcg/day; many

are higher.

..

..

>

> How long have you been on medication? Have all your symptoms gone?

..

..

I've been on Synthroid about 3 years I think. I never had any

symptoms. My annual checkup caught the elevated TSH when it was under 6

so it had probably just started to climb. A month or so later it was up

another point.

The half life of T4 is about a week; I don't know how fast it acts to

get the initial T3 into your blood.

Luck,

..

..

>

> ____________

> ____________ ________

> From: <res075ohverizon (DOT) net <mailto:res075oh% 40verizon. net>>

> hypothyroidism

> <mailto:hypothyroid ism%40group s.com>

> Sent: Sun, 14 March, 2010 17:14:49

> Subject: Re:new member

>

>

> What were your lab results [please include ranges]? If you're just a

> bit high then there should be no problem with waiting; but I guess it

> depends upon your symptoms [or lack thereof]. When I was diagnosed I

> was only a little high and had no symptoms so I waited a month or two

> and had another test to confirm that I had hypothyroidism before

> starting treatment.

>

> What kind of scan are you having, and why does your doctor think you

> need one?

>

> Luck,

>

> .

[Guest guest]

Hi, Jay. I think most goiters are benign; that's just the body's way to

try to increase the needed thyroxine. In areas of the world that are

iodine deficient the goiters can grow to grotesque sizes. Even when

they are malignant I think they are among the more treatable types

unless they have metastasized.

I still have no symptoms that I can specifically relate to

hypothyroidism and nothing else, but many symptoms accredited to

hypothyroidism can actually be caused by a huge number of other

conditions; for example growing older [and I'm 69].

I knew very little about hypothyroidism prior to diagnose. Most of my

info has been picked up on this list and other sources on the internet.

There are literally thousands of sources; IMHO the trick is to develop

the ability to determine the BS from MOL probably factual information.

IMHO we need to be aware that alternative treatments exist; BUT: Mostly

they are totally lacking in any kind of credible research to support

helpful claims. And when such research is done generally results fall

to the chance or placebo range. Anecdotal evidence isn't always wrong;

but it is always anecdotal.

We are very fortunate to have some very knowledgeable people posting

here from time to time; for example Chuck is probably about the best

source of information anyone could ask for. And there are quite a few

who are pretty good at interpreting lab results; unfortunately I'm not

among them.

My world view is from the allopathic medicine and scientific method

position... Although I have no credentials in those, or anything else.

I do have a pretty good ability to differentiate between quack claims

and those that are not. I have a pretty negative view of con artists

who enrich themselves at the expense of sick, desperate, often poor and

poorly educated patients.

Best,

..

..

>

> Posted by: " jay morris " jmorrisuk@...

> <mailto:jmorrisuk@...?Subject=%20Re%3A%20new%20member>

> jmorrisuk <jmorrisuk>

>

>

> Mon Mar 15, 2010 8:02 am (PDT)

>

>

>

> Hi

>

> I have been on Levothyroxine since Friday (so 4 days - not long), I

> feel that I have more energy, today Im tired but I run 16 miles

> yesterday in a race. I feel better than I remember after other races,

> I would be stuck to the sofa for hours unable to move.

>

> I rang my doctor for my test result and they were

> Tyroid level 9.36 (normal level 0.2-4.2)

> T4/3 9.6 (normal level 12-22)

>

> I am feeling happier, I wouldn't say I was depressed before, I would

> just go very quiet in the evenings (no energy to talk maybe).

>

> Im a little nervous about my scan, with horror stories of nodules and

> cancer - im sure it will be fine.

>

> Your lucky to have no symptoms, do you still have none? You seem very

> knowledgeable about the subject, have you read a book or just from the

> www have you gained this?

>

> Thanks for your reply

>

> Jay

>

>

>

> ____________

> ____________________

> From: <res075oh@... <mailto:res075oh%40verizon.net>>

> hypothyroidism

> <mailto:hypothyroidism%40>

> Sent: Mon, 15 March, 2010 14:23:26

> Subject: Re: new member

>

>

> Hi, Jay. Please see responses below...

> .

> .

>

> >

> > Posted by: " jay morris " jmorrisuk (DOT) co.uk

> > <mailto:jmorrisuk (DOT) co.uk?Subject=%20Re% 3A%20new% 20member>

> > jmorrisuk <http://profiles. / jmorrisuk>

> >

> >

> > Sun Mar 14, 2010 12:39 pm (PDT)

> >

> >

> >

> > Thanks for replying

> >

> > I did not take a record of my levels I will take a note of them on

> > 22nd of this month

> .

> .

> It's a good idea to get a printout of your labs for future reference.

> In the US the law requires that you be given them if you ask.

> .

> .

> > ( I think my THS was 12, the doctor said he sees it as high as 30).

> .

> .

> The normal upper range runs from about 3 to about 5 on those I've seen,

> so 12 would be high. I think how high your TSH is is more of an

> indicator of how long your thyroid has been under producing on not

> producing, so you could have had the problem a while.

> .

> .

> > I went back on Fri and begged for some medication because I was so

> > tired I kept getting emotional. The doctor gave a low dose of 25mg to

> > take until my hospital appointment where they will take more blood

> > tests and a scan because my tyroid is enlarged.

> >

> > Saturday morning I felt great until 3pm when the tirness hit me, I

> > think the hormone just run out. When reading the instuctions of the

> > normal start dose was 50-100mg so I know I shouldnt have but I have

> > anyway - uped the doseage to 50mg for the last 2 days and feel much

> > better.

> .

> .

> 25 mcg is a starter dose. As long as you watch out for hypEr symptoms I

> don't think there should be a problem. My full dose is 75 mcg/day; many

> are higher.

> .

> .

> >

> > How long have you been on medication? Have all your symptoms gone?

> .

> .

> I've been on Synthroid about 3 years I think. I never had any

> symptoms. My annual checkup caught the elevated TSH when it was under 6

> so it had probably just started to climb. A month or so later it was up

> another point.

>

> The half life of T4 is about a week; I don't know how fast it acts to

> get the initial T3 into your blood.

>

> Luck,

>

[Guest guest]

For many people once you are stabilized and on the correct amount of medication,

usually that is what happens. For the time being, concentrate on feeling better.

Hope all goes well.

Keep us posted, and by the way welcome to the group.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <2810@...>

Subject: new member

hypothyroidism

Date: Monday, May 17, 2010, 9:54 PM

Hi, my name is , I'm 54 and from the UK, I haven't been diagnosed with

hypothyroidism yet but went to see my doctor yesterday and she said it would

surprise her if I didn't have it. I now have to wait a week before I can have a

blood test. There are two things that is really getting me down at the moment,

that is the tiredness, I hate feeling so tired all the time the other thing that

I'm not liking is the weight gain and no matter how much I diet and exercise it

doesn't make a difference. I think I know why I might have hypothyroidism five

years ago I had throat cancer and had to have radiotherapy having done some

research it seems that people who have head and neck radiotherapy treatment have

more of a chance of getting  hypothyroidism.

Just wanted to say hi and ask 2 questions once you are diagnosed and on

medication does the feeling of tiredness disappear and losing weight become

easier?

thanks