Thank You All

[Guest guest]

Good Morning Hanan,

When I first started, I felt like you. I just kept putting my

problems out on the board, and wonderful people like Joan, Notan,

Cindi, Maggie, Sandy .......... I could go on and on ...........

jumped in to help me. I did not feel I had anything to add.

Since then, I have learned that EVERYONE has something to add.

How you are coping, what works for you, what does not work for you,

how you deal with any part of this awful disease. Sometimes you put

a note that seems logical to you, and it turns out to be just the

ticket for someone else. We are really glad you are part of the

group. What part of the world are you from?

Kathie from Pittsburgh

> I just wanted to say thanks to all of you Cindi, Kathie, and

Joan for responding so quickly. Yes I think I did not hear many

successful stories because those who had it successfuly leave the

group except for a few who stay to help others and because they like

us achalasians!!!.

> Glad to hear that you are doing well Cindi and Kathie and

hope every thing goes well for you Joan and thank you for thinking of

me which is not strange coming from a nice person like you.

> Excuse me because I do not participate a lot although I think

of all of you. I read the mail every day and really get very useful

information but I do not participate because I believe that all of

you know more and have( better ) experience than me regarding

achalasia.

>

> Hanan

>

> __________________________________________________

>

[Guest guest]

Hello again Kathie

I have been in this board for more than a year now. joining this group was the

best thing that happened to me for a long time because we all have the same

suffering so we understand each other better than our close family members,

because although they sympathize with us they sometimes make comments that do

not make much sense. Well I am from Amman Jordan I am 45 years old, I have a

loving husband and four bright children eldest is Ehab 18 studying medicine and

17 years Natalia 11 years Tatiana and 7 years Natasha. I had achalasia for the

last 16 years and had two dilations and now trying to live with this disease

untill I have a good chance to do something else because in Jordan we have good

doctors but they do not have experience regarding laproscopy because there

aren't many cases here ( the population of Jordan is about 5 millions) and

achalasia as you know is a rare disease. I hope I did not bother you with all

these details.

All the best and love from Hanan

zekenoahme <kgasior2@...> wrote:

Good Morning Hanan,

When I first started, I felt like you. I just kept putting my

problems out on the board, and wonderful people like Joan, Notan,

Cindi, Maggie, Sandy .......... I could go on and on ...........

jumped in to help me. I did not feel I had anything to add.

Since then, I have learned that EVERYONE has something to add.

How you are coping, what works for you, what does not work for you,

how you deal with any part of this awful disease. Sometimes you put

a note that seems logical to you, and it turns out to be just the

ticket for someone else. We are really glad you are part of the

group. What part of the world are you from?

Kathie from Pittsburgh

> I just wanted to say thanks to all of you Cindi, Kathie, and

Joan for responding so quickly. Yes I think I did not hear many

successful stories because those who had it successfuly leave the

group except for a few who stay to help others and because they like

us achalasians!!!.

> Glad to hear that you are doing well Cindi and Kathie and

hope every thing goes well for you Joan and thank you for thinking of

me which is not strange coming from a nice person like you.

> Excuse me because I do not participate a lot although I think

of all of you. I read the mail every day and really get very useful

information but I do not participate because I believe that all of

you know more and have( better ) experience than me regarding

achalasia.

>

> Hanan

>

> __________________________________________________

>

[Guest guest]

Hello Hanan:

I was delighted to learn about you. I am 57 years old, with 3

children, 2 girls and a boy, and 2 grandchildren. See we have

something in common BESIDES this disease!

16 years! Wow. I have only been dealing with this about a year,

but I did not even understand I had it until January of this year.

Those of you who have had it for such a long time, God Bless You!

My Achalasia progressed extremely quickly ... almost overnight and I

lost about 50 pounds in 14 weeks.

How are you dealing with the weight issue? I could not eat ANY

solid foods ... absolutely nothing. Those of you who have carried

this burden for years .... I can't even imagine!

Truly, I am delighted you shared your info with us. If you were to

decide to opt for surgery, would you be able to go to another country

for help?

The more I read about the dilemna others around the word face, the

more appreciative I am that I was able to find and be treated by such

a terrific surgeon right in my back yard. It is amazing what we take

for granted, and what a wake up call this disease is. The help I

received from my " cyber friends " can never be repaid. They taught me

to LEARN everything I could, BE SURE of my surgeons experience, and

ACT as soon as possible. I hope that I can, in turn, help someone

else.

Hope you continue to find the help and companionship you need on

the board. I will look forward to reading your posts.

Kathie from Pittsburgh (USA)

> > I just wanted to say thanks to all of you Cindi, Kathie,

and

> Joan for responding so quickly. Yes I think I did not hear many

> successful stories because those who had it successfuly leave the

> group except for a few who stay to help others and because they

like

> us achalasians!!!.

> > Glad to hear that you are doing well Cindi and Kathie and

> hope every thing goes well for you Joan and thank you for thinking

of

> me which is not strange coming from a nice person like you.

> > Excuse me because I do not participate a lot although I

think

> of all of you. I read the mail every day and really get very

useful

> information but I do not participate because I believe that all of

> you know more and have( better ) experience than me regarding

> achalasia.

> >

> > Hanan

> >

> > __________________________________________________

> >

[Guest guest]

Hanan:

We are so glad you have joined the conversation after " lurking " (a term for

reading, not

posting) for this time. Interesting to hear about how you are managing our

common

condition in the Middle East.

Sounds like you have a lovely family -- you can be proud. Here's hoping you can

find a

way for a more permanent solution through surgery. Maybe your young son should

study

the esophagus?

Peggy

> > I just wanted to say thanks to all of you Cindi, Kathie, and

> Joan for responding so quickly. Yes I think I did not hear many

> successful stories because those who had it successfuly leave the

> group except for a few who stay to help others and because they like

> us achalasians!!!.

> > Glad to hear that you are doing well Cindi and Kathie and

> hope every thing goes well for you Joan and thank you for thinking of

> me which is not strange coming from a nice person like you.

> > Excuse me because I do not participate a lot although I think

> of all of you. I read the mail every day and really get very useful

> information but I do not participate because I believe that all of

> you know more and have( better ) experience than me regarding

> achalasia.

> >

> > Hanan

> >

> > __________________________________________________

> >

[Guest guest]

Thank you Peggy and Kathie. Peggy the Middle East is a troubled area especially

in Iraq and Palestine, but thank God we do not have any troubles in Jordan we

have a democratic regime and people from different religions and different

origines live together for a long time.

Kathie I eat all the solid food except salades and fruit, I mean I can eat

pizzaz and hamburgers and the strange thing about it is that they go down easier

than liquidy things, but I regurg every night not all the food but some. I guess

every one is different.

hugs from Hanan

Peggy Cordero <pegster@...> wrote:

Hanan:

We are so glad you have joined the conversation after " lurking " (a term for

reading, not

posting) for this time. Interesting to hear about how you are managing our

common

condition in the Middle East.

Sounds like you have a lovely family -- you can be proud. Here's hoping you can

find a

way for a more permanent solution through surgery. Maybe your young son should

study

the esophagus?

Peggy

> > I just wanted to say thanks to all of you Cindi, Kathie, and

> Joan for responding so quickly. Yes I think I did not hear many

> successful stories because those who had it successfuly leave the

> group except for a few who stay to help others and because they like

> us achalasians!!!.

> > Glad to hear that you are doing well Cindi and Kathie and

> hope every thing goes well for you Joan and thank you for thinking of

> me which is not strange coming from a nice person like you.

> > Excuse me because I do not participate a lot although I think

> of all of you. I read the mail every day and really get very useful

> information but I do not participate because I believe that all of

> you know more and have( better ) experience than me regarding

> achalasia.

> >

> > Hanan

> >

> > __________________________________________________

> >

[Guest guest]

I eat all the solid food except salades and fruit, I mean I can eat pizzaz and

hamburgers and the strange thing about it is that they go down easier than

liquidy things, but I regurg every night not all the food but some. I guess

every

one is different.

Your symptoms are almost identical to mine -- I can eat things that have mass

like meat and then " pressurize " my esophagus with air and water and actually

feel my LES flutter open and food pass to my stomach.

Much trouble comes when, with so much water in my stomach, the pressure

differential is equalized and the technique does not work. Salads are like

paper towels blocking a drain, or worse, sticking to the sides and hanging out

for hours. Apples, oh no!

Peg

[Guest guest]

> Excercise is

> my main problem. I work 40 plus hours a week in a warehouse and walk

> constantly back an forth through the warehouse all day, lifting

> between 50 to 100 lbs frequently.

Now *I* would say you get *plenty* of exercise!

> but my

> whole body just aches after working all day.

Gentle stretching to loosen up and cool down is what you need. Have you

tried tai chi or one of those yoga for relaxation videos?

> Another question. How do you drink 10 12oz. glasses of water in a day?

LOL The question of the ages! In a job like yours, where you can't leave the

line and can only pee on scheduled breaks, it's probably impossible to do

except on your days off. Just make sure what you do drink is a healthy

choice - water instead of soda, and stuff like that.

> I've tried but I can only seem to accomplish 8 glasses and then I'm up

> all night visiting the bathroom.

I'm 52 and going through menopause - I have to stop drinking 2 hours before

I leave the house and about 4 hours before bed time. It's darn near

impossible for me to get my water allottment in except on days I feel so

lousy I know I'm not leaving the house.

> Are Healthy Choice frozen dinners okay for the plan?

On the Foodmover, *any* food is allowed as long as you don't have any

allergies or sensitivities to an ingredient. If you know salt raises your

blood pressure or makes your feet swell, read the package labels carefully

and try find some with a lower salt content. They're getting harder and

harder to find lately, as the past few years the fad has been low carb so

manufacturers have added salt (and fats) back in to make up for the taste of

the missing starches. If you don't have a salt problem, you have the whole

freezer aisle open to you to choose from. At least things are starting to

swing back to more balanced meals now. Do the Healthy Choice meals still

have the diabetic exchanges listed on them? They did last time I looked at

them, but that was ages ago.

[Guest guest]

>

> Excercise is my main problem. I work 40 plus hours a week in a

warehouse and walk constantly back an forth through the warehouse all

day, lifting

> between 50 to 100 lbs frequently.

************

Workout in the morning before work? Do you get a lunch break? Take

a brisk walk. Do exercises while watching TV at night. Unfortunately

physical activity performed everyday doesn't really count as

exercise. That becomes just becomes part of your lifestyle. I used

to think the same thing why should I need to exercise when i'm

walking a million miles a day just working... But to burn the

additional calories to drop pounds ya gotta burn more calories than

usual which requires additional exercise. Ain't life a trip??

Hahaha!!

********************

> Another question. How do you drink 10 12oz. glasses of water in a

day?

*************

Buy a 20oz bottle of water. Drink on bottle when you get up in the

morning, before you leave the house. refill. Drink another before

lunch. refill. Drink another at lunch instead of soda or juice or

whatever.. refill. Drink another bfore you go leave work. Drink one

at dinnertime instead of soda, juice, or whatever... Drink another

during the evening. Wha La!! 120oz. of good ole H2O. Soon your body

will get used to this and you won't have to go to the bathroom in the

middle of the night.

Wow!! Do I drink THAT much water?? sometimes even more cause I

sometimes can down two 20oz bottles with a meal!! Anyway your body

gets used to it and soon it will prefer water ova anything else.

***************

>

> Are Healthy Choice frozen dinners okay for the plan? I was

thinking

> maybe I could do that for me at supper and make the boys their own

> meal.

***************************

I eat a lot of Lean Cuisine (they are delicious!!) and SmartOnes,

occasionally I eat Healthy Choice too, if they are on sale. I don't

know how they fit into the Foodmover plan because i'm not following

it, but I found this was the best way for me to control my

portions!! Only thing I suggest if you do opt the frozen trail, is

to be knowledgeable of how much sodium is in the meal you select.

Sodium content in prepared food is way high. I try to stay under

600mg of sodium, which is still a lot. Sodum makes you retain water,

which ain't good for the scale numbers, and it also effects

cholesterol, blood pressure, etc. Also, make sure you are getting a

veggie or two with your meal, if the meal you choose doesn't have a

veggie, throw together a lil salad to eat with it. Also realize that

you can't go frozen for life... I am now in the process of weaning

myself away from frozen dinners. Forcing myself to cook dinners and

control my portions, which is hard, cause I'm such a good cook.

hahahaha!! But if you have problems with portion control I think

this is a good place to start.

****************************************

Happy Losing!!

[Guest guest]

,

My job isn't nearly as physically stressful as yours but I'm exhausted after work as well and can't bring myself to exercise (plus I'm just too busy with all my kids activities). I find that I have to get up (actually drag myself out of bed) 45 minutes early to get in my exercise. I don't know how you are in the sleep department but exercising in the morning may be your best bet.

CherylIt starts with a letter and ends with one too <woolababe@...> wrote:

Thank you all for the welcome.Sue-- I am using the older foodmover with the 1000 calorie blast off week. I have also been journaling my eating--my doctor is the one who told me I needed to do that. It does help there's nothing like being accountable to ones self (if I eat it I have to write it) Excercise is my main problem. I work 40 plus hours a week in a warehouse and walk constantly back an forth through the warehouse all day, lifting between 50 to 100 lbs frequently. By the time I get home at night I'm just exhausted and the last thing I am motivated to do is excercise.I know this sounds like an excuse (maybe in some form it is) but my whole body just aches after working all day. Another question. How do you drink 10 12oz. glasses of water in a day?I've tried but I can only seem to accomplish

8 glasses and then I'm up all night visiting the bathroom. Are Healthy Choice frozen dinners okay for the plan? I was thinking maybe I could do that for me at supper and make the boys their own meal.Sorry I'm so full of questions but I want this to work this time. I want to live to be a grandma someday.Thanks,

Cheryl

"Life is more than food." Luke 12:23

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

I, too, have learned that if I want to get any exercise in it has to be the very first thing I do in the mornings -- if not, it just isn't going to get done. There was a time that I thought I was not a morning person -- and if I had my druthers I wouldn't be one now either! But I have got myself trained to wake up at 4:30 AM so that I can exercise. Even on my days off, when I can sleep later -- I find myself unable to sleep much past 5:30 AM. There is an occasional morning when I do skip exercising and sleep all the way until 6:00 AM. I am usually in bed, asleep by 9:00 PM. Part of my exercise routine is to record some of my favorite TV shows (CSI & Law & Order) and walk the next morning while watching the show.

It started out with just getting up at 5:30 AM. And found that I just wanted to do more exercising.Cheryl N <life_is_more_than_food@...> wrote:

,

My job isn't nearly as physically stressful as yours but I'm exhausted after work as well and can't bring myself to exercise (plus I'm just too busy with all my kids activities). I find that I have to get up (actually drag myself out of bed) 45 minutes early to get in my exercise. I don't know how you are in the sleep department but exercising in the morning may be your best bet.

Dacia <><

For it is by grace you have been saved, through faith — and this not from yourselves, it is the gift of God — not by works, so that no one can boast. Eph. 2:8-9

www.DeafJesus.org

[Guest guest]

,

Sounds like your job is very strenous. Concentrate on your diet

first and then decide what kind of exercise program works for you.

I'm still working on the water thing, just like you, but I've

noticed that it doesn't interfere with sleeping if you drink most of

the water earlier in the day.

Good luck!

Araceli

>

> Thank you all for the welcome.

>

> Sue-- I am using the older foodmover with the 1000 calorie blast

off

> week. I have also been journaling my eating--my doctor is the one

who

> told me I needed to do that. It does help there's nothing like

being

> accountable to ones self (if I eat it I have to write it)

Excercise is

> my main problem. I work 40 plus hours a week in a warehouse and

walk

> constantly back an forth through the warehouse all day, lifting

> between 50 to 100 lbs frequently. By the time I get home at night

I'm

> just exhausted and the last thing I am motivated to do is

excercise.

> I know this sounds like an excuse (maybe in some form it is) but

my

> whole body just aches after working all day.

>

> Another question. How do you drink 10 12oz. glasses of water in a

day?

> I've tried but I can only seem to accomplish 8 glasses and then

I'm up

> all night visiting the bathroom.

>

> Are Healthy Choice frozen dinners okay for the plan? I was

thinking

> maybe I could do that for me at supper and make the boys their own

> meal.

>

> Sorry I'm so full of questions but I want this to work this time.

I

> want to live to be a grandma someday.

>

>

> Thanks,

>

>

>

[Guest guest]

Dacia,

What a great idea to tape your shows and then watch while you walk. I'll have to try that. I often tape shows but have trouble finding time to watch them. Thanks for the idea!!

CherylDacia <DEReinke@...> wrote:

I, too, have learned that if I want to get any exercise in it has to be the very first thing I do in the mornings -- if not, it just isn't going to get done. There was a time that I thought I was not a morning person -- and if I had my druthers I wouldn't be one now either! But I have got myself trained to wake up at 4:30 AM so that I can exercise. Even on my days off, when I can sleep later -- I find myself unable to sleep much past 5:30 AM. There is an occasional morning when I do skip exercising and sleep all the way until 6:00 AM. I am usually in bed, asleep by 9:00 PM. Part of my exercise routine is to record some of my favorite TV shows (CSI & Law & Order) and walk the next morning while watching the show.

It started out with just getting up at 5:30 AM. And found that I just wanted to do more exercising.Cheryl N <life_is_more_than_food@...> wrote:

,

My job isn't nearly as physically stressful as yours but I'm exhausted after work as well and can't bring myself to exercise (plus I'm just too busy with all my kids activities). I find that I have to get up (actually drag myself out of bed) 45 minutes early to get in my exercise. I don't know how you are in the sleep department but exercising in the morning may be your best bet.

Dacia <><

For it is by grace you have been saved, through faith — and this not from yourselves, it is the gift of God — not by works, so that no one can boast. Eph. 2:8-9

www.DeafJesus.org

Cheryl

"Life is more than food." Luke 12:23

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Oooh, this is such horrible news. I hadnt read this when I send my last

email. I think brain bleeding, not caused by trauma is an aneurysm. And I am

hoping that this time things wont come in 3's !!

Hugz,

Biancka

Thank you all

> Thank you everyone. Lupe passed away last night. The doctors said

> brain bleeding, not caused by trauma. Isn't that an aneurysm? We

> were worried he had gotten hurt on a piece of equipment, but

> apparently not. Amazing how you tell one person and how many other

> people have even worse tragedies. Losing both parents would be even

> worse. There is always someone worse off isn't there?

>

> Thank you for your thoughts. I will make sure my husband knows.

>

> I'm out of punch lines today, my husband is sure things come in 3's.

> He lost his mother to brain cancer on Oct 9, then this. He's kind of

> looking at me like it is either me or him to go next (there, some

> humor left!) There are some older relatives with bad health so I

> told him to quit looking at me. That didn't stop me from winding up

> and reminding him of his bad smoking habit, can't miss that

> opportunity.

>

> To those of you looking at your sutures... yes, yucky! Stop looking,

> grosses me out. My husband had a few sutures from removing a bad

> skin spot... couldn't even deal with that and sent him to the

> paramedic down the street as he didn't want to wait in the doctor's

> waiting room.

>

> And Kathie, haven't seen any Dr. McDreamy in all our latest messes,

> it is truly only on tv. We'll have to make that a category in the

> doctor database.

>

> Sandy in So Cal

>

> PS... All the Florida friends, of course there is room here come on

> over... I'll find a spot, don't wait for that nasty Wilma to decide

> where she wants to go. Really. No kids though, unless they are

> nice, no reptiles, will take dogs and cats. YOu cook, I'll shop.

> Have some extra pimp mobile cars and some couches you only need to

> share with my pets.

>

>

>

>

>

>

>

>

[Guest guest]

Hi Sandy,

I’m

sorry to hear about Lupe and the outcome. What a horrible thing for you

all to have to deal with.

I’ll be

praying for all who mourn him.

Hugs,

From:

achalasia [mailto:achalasia ] On Behalf Of toomuchclutter

Sent: October 20, 2005 1:12 PM

achalasia

Subject: Thank you all

Thank you everyone. Lupe passed away last night. The

doctors said

brain bleeding, not caused by trauma. Isn't

that an aneurysm? We

were worried he had gotten hurt on a piece of

equipment, but

apparently not. Amazing how you tell one person

and how many other

people have even worse tragedies. Losing

both parents would be even

worse. There is always someone worse off

isn't there?

Thank you for your thoughts. I will make

sure my husband knows.

I'm out of punch lines today, my husband is sure

things come in 3's.

He lost his mother to brain cancer on Oct 9, then

this. He's kind of

looking at me like it is either me or him to go

next (there, some

humor left!) There are some older relatives

with bad health so I

told him to quit looking at me. That didn't

stop me from winding up

and reminding him of his bad smoking habit, can't

miss that

opportunity.

To those of you looking at your sutures... yes,

yucky! Stop looking,

grosses me out. My husband had a few sutures

from removing a bad

skin spot... couldn't even deal with that and sent

him to the

paramedic down the street as he didn't want to

wait in the doctor's

waiting room.

And Kathie, haven't seen any Dr. McDreamy in all

our latest messes,

it is truly only on tv. We'll have to make

that a category in the

doctor database.

Sandy in So Cal

PS... All the Florida friends, of course there is room

here come on

over... I'll find a spot, don't wait for that

nasty Wilma to decide

where she wants to go. Really. No kids

though, unless they are

nice, no reptiles, will take dogs and cats.

YOu cook, I'll shop.

Have some extra pimp mobile cars and some couches

you only need to

share with my pets.

[Guest guest]

Sandy,

My condolence to you and your family over your recent loss of your friend Lupe.

in Covina

toomuchclutter <sandycarroll@...> wrote:

Thank you everyone. Lupe passed away last night. The doctors said brain bleeding, not caused by trauma. Isn't that an aneurysm? We were worried he had gotten hurt on a piece of equipment, but apparently not. Amazing how you tell one person and how many other people have even worse tragedies. Losing both parents would be even worse. There is always someone worse off isn't there?Thank you for your thoughts. I will make sure my husband knows.I'm out of punch lines today, my husband is sure things come in 3's. He lost his mother to brain cancer on Oct 9, then this. He's kind of looking at me like it is either me or him to go next (there, some humor left!) There are some older relatives with bad health so I told him to quit looking at me. That didn't stop me from

winding up and reminding him of his bad smoking habit, can't miss that opportunity. To those of you looking at your sutures... yes, yucky! Stop looking, grosses me out. My husband had a few sutures from removing a bad skin spot... couldn't even deal with that and sent him to the paramedic down the street as he didn't want to wait in the doctor's waiting room.And Kathie, haven't seen any Dr. McDreamy in all our latest messes, it is truly only on tv. We'll have to make that a category in the doctor database.Sandy in So CalPS... All the Florida friends, of course there is room here come on over... I'll find a spot, don't wait for that nasty Wilma to decide where she wants to go. Really. No kids though, unless they are nice, no reptiles, will take dogs and cats. YOu cook, I'll shop. Have some extra pimp mobile cars and some couches you only need to share

with my pets.

FareChase - Search multiple travel sites in one click.

[Guest guest]

sandy, sorry for my late posting. i've been busy travelling to my hometown since last week and we will be having family gathering soon. I'm really sorry about what happened. I always tell my friends that eventhough they are healthy and I am sick it doesn't mean we can live longer or shorter. when the time has come we all will die doesn't matter in what way. so, what we can do is do the best to our love one and to everyone. we won't regret anything if they left us or we left them.

my condolence to your husband.

I sha ,Kuala Lumpur malaysia

toomuchclutter <sandycarroll@...> wrote:

Thank you everyone. Lupe passed away last night. The doctors said brain bleeding, not caused by trauma. Isn't that an aneurysm? We were worried he had gotten hurt on a piece of equipment, but apparently not. Amazing how you tell one person and how many other people have even worse tragedies. Losing both parents would be even worse. There is always someone worse off isn't there?Thank you for your thoughts. I will make sure my husband knows.I'm out of punch lines today, my husband is sure things come in 3's. He lost his mother to brain cancer on Oct 9, then this. He's kind of looking at me like it is either me or him to go next (there, some humor left!) There are some older relatives with bad health so I told him to quit looking at me. That didn't stop me from

winding up and reminding him of his bad smoking habit, can't miss that opportunity. To those of you looking at your sutures... yes, yucky! Stop looking, grosses me out. My husband had a few sutures from removing a bad skin spot... couldn't even deal with that and sent him to the paramedic down the street as he didn't want to wait in the doctor's waiting room.And Kathie, haven't seen any Dr. McDreamy in all our latest messes, it is truly only on tv. We'll have to make that a category in the doctor database.Sandy in So CalPS... All the Florida friends, of course there is room here come on over... I'll find a spot, don't wait for that nasty Wilma to decide where she wants to go. Really. No kids though, unless they are nice, no reptiles, will take dogs and cats. YOu cook, I'll shop. Have some extra pimp mobile cars and some couches you only need to share

with my pets. 19icecream

FareChase - Search multiple travel sites in one click.

[Guest guest]

Warior Woman!!!

Strike that same pose again in a few months...You'll be surprised at

all the changes

Be Strong,

M.

> picture under new photos added lol

>

[Guest guest]

LoL i sure hope so next time i'll wait for dh to take the picture,

so i don't look like i'm about to walk like an egyption!

- In , " tjay1302000 " <t-

jay130@...> wrote:

>

> Warior Woman!!!

> Strike that same pose again in a few months...You'll be surprised at

> all the changes

> Be Strong,

> M.

>

>

> > picture under new photos added lol

> >

>

[Guest guest]

hear hear!!!

yes, i agree

felicity

> Warior Woman!!!

> Strike that same pose again in a few months...You'll be surprised at

> all the changes

> Be Strong,

> M.

[Guest guest]

Congratulations to your mom and I am so glad you sound us and wer able to pass

on the info to her. Please feel free to ask questions any time for your mother.

She is about embark on an amazing journey.

Connie

ldemarc1 <ldemarc1@...> wrote:

You probably dont remember me, but I posted back in March about my mom

who is profoundly deaf, gets little helo from BTE hearing aids and for

a few years was contimplating a cochlea implant but never went for it

due to fear and not knowing how much it would help her.

Well back in March I posted about this and all of you gave my mom

great support and after I made her read all the great support and

success stories from here my mom finally decided to go through with

it. My mom's surgery date for the C.I. is August 23rd.

Please wish her luck and Ill keep you posted.

Thanks again.

Lou

" The Miracle at Ohio State "

aka Nucleus Freedom

Implanted 10/04/2005

Activated 11/1/2005

Surgery: Ohio State University

Surgeon: Dr. Bradley Welling

http://internalmedicine.osu.edu/article.cfm?ID=2021

[Guest guest]

That's wonderful Lou, I remember you posted on Alldeaf as well. I wish your

mum all the best with her surgery. I bet she'll be very relieved to get it

over and done with rather than continue to struggle with her existing

hearing loss. I am only 3.5 weeks post switch on but am already amazed at

what I can hear now and am getting some sounds that I never caught when

wearing hearing aids such as the sound of my daughter whispering to me.

Severe/profoundly deaf since birth

Lost residual hearing October 2005

Approved for CI March 2006

Surgery 9th June 2006

Activation 29th June 2006

_____

From: [mailto: ] On Behalf Of

ldemarc1

Sent: Monday, 24 July 2006 10:46 AM

Subject: Thank You All

You probably dont remember me, but I posted back in March about my mom

who is profoundly deaf, gets little helo from BTE hearing aids and for

a few years was contimplating a cochlea implant but never went for it

due to fear and not knowing how much it would help her.

Well back in March I posted about this and all of you gave my mom

great support and after I made her read all the great support and

success stories from here my mom finally decided to go through with

it. My mom's surgery date for the C.I. is August 23rd.

Please wish her luck and Ill keep you posted.

Thanks again.

Lou

__________ NOD32 1.1675 (20060723) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

[Guest guest]

hi Lou,

I wish your mom great sucess with her operation on the 23rd of August.

I have had very good luck with my left cochlear implant and I can use the

phone, understand the radio and tv, appreciate nature sounds and music and

have meaningful conversations with my family. ttyl Larry

Thank You All

> You probably dont remember me, but I posted back in March about my mom

> who is profoundly deaf, gets little helo from BTE hearing aids and for

> a few years was contimplating a cochlea implant but never went for it

> due to fear and not knowing how much it would help her.

>

> Well back in March I posted about this and all of you gave my mom

> great support and after I made her read all the great support and

> success stories from here my mom finally decided to go through with

> it. My mom's surgery date for the C.I. is August 23rd.

>

> Please wish her luck and Ill keep you posted.

>

> Thanks again.

>

> Lou

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Traci, Hon, I have scratched holes in myself with the dry skin. But listen to the folks here.

[Guest guest]

Traci, if you take just a bit of pure glyceril on your finger and very lightly rub it across your eyelid, that will work for your particular ailment. IN your eye, the gel formulated for dry eye is the thing, the eye gel I mentioned works well too. It was suggested by my eye doc for me with my very dry eye problem and I've done BOTH these things. They do work. Once the gel is in the eye, my vision is blurred with it, so I only use it when I'm going to keep my eyes closed for the night. My sis told me about he glycerin - she keeps her feet soft as a baby's with it. lol It works very well for me. In the summer when my feet are sooo dry and calloused, glycerin softens and heals them very quickly.

My derma doc also suggested getting Sarna lotion with eucalypsus in it to soothe the skin. I see no contradiction to adding glycerin to that lotion, both together stop the itching.

You're in the tough part of treatment now, HANG ON, it gets better and ALL things pass. You WILL get through and bless your strength for having made it.

HUGS to you girl, we do know what you're going through. I'm 64 and just entering the second month of the second round of treatment. Keep in touch. a Sharon

Love

JanetTraci <traci@...> wrote:

Thank you with all the suggestions for my itchy, dry eye lids. I'm going to give the glycerin a try. The Aveeno does seem to make me itch MORE sometimes - weird. But then again all the side effects are weird, mostly painful & /or itchy like was mentioned I keep living & going on the word "UNDETECTABLE". Sometimes I just wanna' put my head in a vice grip & turn as tight as possible. (The Neupogen & Procrit shots have super bad side effects.) It takes all the side effects we already get with treatment and triples them. Oh well, I'm 40 years old now & by the time I turn about 50, I plan on being one of the healthiest 50 year old women around Thank you all again. 14 weeks to go & counting them ONE DAY AT A TIME!Take the ordinary things of life, and make them your own. Do the impossible with a smile

[Guest guest]

I live in San TX. What doctor are you going to see?

I have two children with a possible undiagnosed immune problem. Seems like

they lack antibodies to some of their vaccines.

Feel free to email directly tcm_marks@... if you would like to talk!! I

would love to chat some more.

Do you know that someone is trying to sent up a support group for PID? The

first meeting is this Tuesday.

Take care

Theresa

-Jacinto <smile_nocode@...> wrote:

I just wanted to thank everyone that has responded. I don't much about

IGAD and spend every free minute trying to learn more. I wish all of you the

best and am so thankful that I'm not 'alone' anymore. My son's pediatrician is

wonderful, yet told us right away that her knowledge of IGAD is limited. She

answers all the questions I have the best she can and is honest when she's not

sure and ask me to " write that one down for the specialist " . As mentioned before

my youngest son was diagnosed with Selective IGA, from what my pediatrician

says all other levels are normal however his IGA is at <9, whether that means

none or 9 we don't know at this point. The appointment with the specialist she

referred us to is still 2 weeks away!! So of course with my OCD I've been

consumed with sadness, despair and guilt and it's really taken a toll on my

health, my marriage and my job which only adds to the depression. What I don't

understand is how PID is considered a rare

disease

when it's estimated that apprx 1 in every 1000 has it? How is that rare???

thanks for listening,

Helotes, TX

---------------------------------

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