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Hi, -

Great news! I'm so pleased you're doing so well and I have my fingers

crossed that the MDs will let you eat like a normal person. What food do

you miss the most? For me, it was bread - specifically, bagels. In fact,

once I knew I could eat them successfully again, I brought a dozen to both

my specialist and my surgeon by way of " thank you " ! In the past 13 months

since my surgery, I've hardly gone a day without one - making up for those 5

years when I went without!

Good luck today - hope it's the best birthday present ever!

Carol

Wish me luck

> Hello all fellow members!

> I had my surgery just two weeks ago today, and I am doing alright.

> Still on a liquid diet, but I hope to hear that I can eat when I got

> in for my check-up tomorrow, the 2nd, my 18th birthday.

> I would just ask that all who read this say a little prayer that the

> doctor has pity on me and lets me eat! I love you all

>

>

>

>

>

>

>

>

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  • 2 years later...
Guest guest

Hi Carol.....I wish you all the luck in the world for your biopsy tomorrow.

Perhaps as youve had painful biopsies before, this one will be a breeze. I

hope so. Take care & try and spoil youself.

Love Jan

>

>

>

>

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dear carole,

all jokes aside, I hope everything goes well for you and your biopsy. Thank God it doesnt take long for the doctor to do it. You are in my prayers. Until we hear from you....remember this "family" really loves you!!

Oceans of Prayers!

JUST Marcy

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YOu will do great!

debby

[ ] Wish me luck

Hi all,Tomorrow is the big day of my long awaited biopsy. It has been nearly four years, and three bad flares since last one. Been wanting answers for a while. Kind of scary now that the time is here. Symptoms haven't been great the last year, so worried about what answers I am going to get. I know I may not be up to getting on here for a couple of days, as my last one I was in alot of pain afterwards. It really knocked the heck out of me, but could be because I was so very sick when that one was done. So keeping my fingers crossed I am surprised with it being nothing much at all. Going to think positive. But if you don't hear from me for a bit, it is just me convelescing. They tell me my doc will have the results in one week and will call me about it. I hope so, they were sure slow on the last one. I'm pretty sure it will take longer than a week though - they have already told meseveral times how 'busy' they are with biopsies lately. Just hope they don't make me wait too long, makes me very grouchy. :) Anyway, wish me luck that it all goes smooth and painless.Love,Carole

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Dear Carole,

Having just gone through it, I can certainly feel for you !!! Carole,

be sure NOT to let your doctor do what mine did to me !!! Make sure

that you tell the nurses that you WILL HAVE something for pain BEFORE

the procedure !!!

Also, for the biopsy results, the hospital will have the report in 48

hrs. Give the " medical records " department a call on Friday morning

and see if they have it ready - - they should. All you will have to

do is go to the hospital, sign a form, and pick the pathology report

up !!! This is how I got mine. By the way, I called the GI's office

and the nurse told me that they did not have it !!! It is only

a " power " game !!! I actually know for a fact that it was sent to my

GI via fax last Friday !!!

Dear Carole, my prayers and my thoughts are with you !!!

A BIG Hug !!

a

> Hi all,

>

> Tomorrow is the big day of my long awaited biopsy. It has been

> nearly four years, and three bad flares since last one. Been

wanting

> answers for a while. Kind of scary now that the time is here.

> Symptoms haven't been great the last year, so worried about what

> answers I am going to get. I know I may not be up to getting on

here

> for a couple of days, as my last one I was in alot of pain

> afterwards. It really knocked the heck out of me, but could be

> because I was so very sick when that one was done. So keeping my

> fingers crossed I am surprised with it being nothing much at all.

> Going to think positive. But if you don't hear from me for a bit,

it

> is just me convelescing. They tell me my doc will have the results

> in one week and will call me about it. I hope so, they were sure

> slow on the last one. I'm pretty sure it will take longer than a

> week though - they have already told meseveral times how 'busy'

they

> are with biopsies lately. Just hope they don't make me wait too

> long, makes me very grouchy. :) Anyway, wish me luck that it all

> goes smooth and painless.

>

> Love,

> Carole

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Carole,

Good luck for sure..here's wishing you an easy time of it.

nne

> Hi all,

>

> Tomorrow is the big day of my long awaited biopsy. It has been

> nearly four years, and three bad flares since last one. Been

wanting

> answers for a while. Kind of scary now that the time is here.

> Symptoms haven't been great the last year, so worried about what

> answers I am going to get. I know I may not be up to getting on

here

> for a couple of days, as my last one I was in alot of pain

> afterwards. It really knocked the heck out of me, but could be

> because I was so very sick when that one was done. So keeping my

> fingers crossed I am surprised with it being nothing much at all.

> Going to think positive. But if you don't hear from me for a bit,

it

> is just me convelescing. They tell me my doc will have the results

> in one week and will call me about it. I hope so, they were sure

> slow on the last one. I'm pretty sure it will take longer than a

> week though - they have already told meseveral times how 'busy'

they

> are with biopsies lately. Just hope they don't make me wait too

> long, makes me very grouchy. :) Anyway, wish me luck that it all

> goes smooth and painless.

>

> Love,

> Carole

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Guest guest

Carole...that's the idea think positive thoughts. But as I always say

" no pain...no pain " Just tell the doc.. take a litle leave a little . I

personally think your going to be fine and they better treat you right

or I'll tell them you are fleet champion and your gloves are close by.

Remember we are with you.

sending my love and prayers jerry

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Guest guest

a,

Unfortunately I have learned from experience - with test results and

such - your doctor is only as informed as his staff makes him. I

have left doctors for that reason. My old GP had the most awsome

nurse. I go in to get blood drawn, and that afternoon she faxed them

to me. When she left I would have to wait two sometimes three weeks

for my test results - and had to ask for them to be faxed every time,

even though my chart said to do it in large letters on the front.

Then they would get appointments messed up, all sorts of stuff. so

told the doc that I love him but his staff stinks. He agreed with

me! So he moved on to a whole new practice! I really miss him. I

am hoping they get things together in good time. I am actually going

to do the paper work tomorrow to have them just mail it when it is

done. And yes, they will be giving my drugs! Wouldn't do it any

other way. Still not looking forward to it any way though. Oh well,

it will be over quick, and I will be on to vomiting in no time!

Actually they are supposed to hit me with some Tigan so that doesn't

happen either. Thanks for the well wishes.

Love,

Carole

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Carole:

I had a biopsy yesterday. All went well. It was done in the x-ray department guided by ultra sound. The local anesthetic was sufficient for the procedure. It was uncomfortable but not too bad. I didn't require anything for pain afterwards. I am a little sore today, but no big deal. I am just going to take it easy. We should get our results about the same time. I wish it would be this week, rather than next. I have not had a repeat biopsy in about 13 years, so I am very anxious to see if there have been changes microscopically over the years. I am crossing my fingers for both of us......Marty

[ ] Wish me luck

Hi all,Tomorrow is the big day of my long awaited biopsy. It has been nearly four years, and three bad flares since last one. Been wanting answers for a while. Kind of scary now that the time is here. Symptoms haven't been great the last year, so worried about what answers I am going to get. I know I may not be up to getting on here for a couple of days, as my last one I was in alot of pain afterwards. It really knocked the heck out of me, but could be because I was so very sick when that one was done. So keeping my fingers crossed I am surprised with it being nothing much at all. Going to think positive. But if you don't hear from me for a bit, it is just me convelescing. They tell me my doc will have the results in one week and will call me about it. I hope so, they were sure slow on the last one. I'm pretty sure it will take longer than a week though - they have already told meseveral times how 'busy' they are with biopsies lately. Just hope they don't make me wait too long, makes me very grouchy. :) Anyway, wish me luck that it all goes smooth and painless.Love,Carole

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  • 5 months later...

Good luck debbie, i hope the news is all good =)

JJ (Jonathon)

wish me luck

>

>

> Hey all

>

> just thought i'd say that my doc appt is tomorrow to find out if or

> when i can start walking with out my walker...i do hope i get my wish

> and be able to walk with out my walker.

>

> wish me luck

>

>

> Debbie

>

>

>

>

> ===

>

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  • 2 years later...

Hi Helen:

Well, first, off congratulations for being asked to speak. They couldn't

have picked a better person.

Secondly, what time should I be at your house today LOL. You certainly are

cooking up a storm. It all sounds delicious.

Congrats to Nick too. That sounds way to cute with him practicing on the

ottoman with an audience. Good for him for taking it serious enough to

practice. I am sure he will do an awesome job. Please wish him good luck for

me.

Good luck to you on Wednesday, I am sure you will do a wonderful job at

getting Nick's story across and telling more people about JRA. I'll be

thinking

of you. 'Break a leg'.

Take care.

Patty

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Helen - wishing you luck and knowing that you will do great. Just speak

from your heart - and all will go well. You have helped so many of us with you

knowledge of the disease and the strength to keep going. Sandi Ken and Hunter

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Helen,

Congrdulations to you and Nick. My Mom always told me if I got stuck with

talking to take a deep breathe and close my eyes. When I open them think of

everyone naked lololol. She said it will either get you laughing or you will

look stright forward and hopw you hurry up and sit down. Also another good way

is think of the adults as Kid's and your talking to them. You will be fine

though and Nick will to. Will be cheering you on in spirit.

Robbin

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You'll be fine, Helen, because you'll be speaking from the heart.

The first time I spoke I was so thankful to have a podium because at least

my shaking knees

hidden from everyone! I wish we could be there to support you, but know that

we'll be there in spirit.

Our best to all~~

Liz

_____

From: [mailto: ] On Behalf

Of hburger64

Sent: Sunday, October 22, 2006 9:03 AM

Subject: Wish me luck

I am a nervous wreak... On Wednesday I will be speaking at the

annual Commitment to a Cure breakfast that the Arthritis foundation

puts on.

I was asked back in June if I would be willing to share Nicks story

at the breakfast and said yes. This is TOTALLY out of my comfort

zone, but something i felt strongly about. Theres not a lot I can do

to fight this disease, but speaking out and raising awareness is

something we can all do.

At least my fmaily will eat well today because of my nervous engery.

I have been up since 4am. The sausage is ready to make grits and

eggs for breakfast ( one of Nicks favorites ) I have pork ready to

make snitzels for lunch and a crock pot is simmering away with a

beef stew in for supper, oh yea and theres bread raising to make

home made bread rolls to go with the stew.

I hope I can hold it together and not become a blubbering fool up

there. is also speaking, just a short piece but he is so

pumped up about it. He practices by moving the otterman in front of

the TV, climbing up with his piece of paper and making everyone

watch him. It's too cute.

Wish me luck.....

hugs Helen and (9,systemic)

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Good luck with it. You will do absolutely fine. From just this little time that

I have cyber known you, you are very knowledgeable about JRA, and I am sure you

will take all you have learned to this breakfast.

BTW, my beef stew is in the crockpot right now too, only I add beef kidney to

mine. Shhh, don't tell the kids.

Kirsty

Wish me luck

I am a nervous wreak... On Wednesday I will be speaking at the

annual Commitment to a Cure breakfast that the Arthritis foundation

puts on.

I was asked back in June if I would be willing to share Nicks story

at the breakfast and said yes. This is TOTALLY out of my comfort

zone, but something i felt strongly about. Theres not a lot I can do

to fight this disease, but speaking out and raising awareness is

something we can all do.

At least my fmaily will eat well today because of my nervous engery.

I have been up since 4am. The sausage is ready to make grits and

eggs for breakfast ( one of Nicks favorites ) I have pork ready to

make snitzels for lunch and a crock pot is simmering away with a

beef stew in for supper, oh yea and theres bread raising to make

home made bread rolls to go with the stew.

I hope I can hold it together and not become a blubbering fool up

there. is also speaking, just a short piece but he is so

pumped up about it. He practices by moving the otterman in front of

the TV, climbing up with his piece of paper and making everyone

watch him. It's too cute.

Wish me luck.....

hugs Helen and (9,systemic)

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Liz,

I only hope theres a podium, not to hide shaking knees, but to have

something to lean on so I dont fall over!!!

You are a wonderful pulic speaker Liz, I can only hope I do 1/4 as

well as you!!!

hugs Helen and (9,systemic)

>

> You'll be fine, Helen, because you'll be speaking from the heart.

>

> The first time I spoke I was so thankful to have a podium because

at least

> my shaking knees

>

> hidden from everyone! I wish we could be there to support you, but

know that

>

>

> we'll be there in spirit.

>

> Our best to all~~

>

> Liz

>

>

>

> _____

>

> From: [mailto: ]

On Behalf

> Of hburger64

> Sent: Sunday, October 22, 2006 9:03 AM

>

> Subject: Wish me luck

>

>

>

> I am a nervous wreak... On Wednesday I will be speaking at the

> annual Commitment to a Cure breakfast that the Arthritis

foundation

> puts on.

>

> I was asked back in June if I would be willing to share Nicks

story

> at the breakfast and said yes. This is TOTALLY out of my comfort

> zone, but something i felt strongly about. Theres not a lot I can

do

> to fight this disease, but speaking out and raising awareness is

> something we can all do.

>

> At least my fmaily will eat well today because of my nervous

engery.

> I have been up since 4am. The sausage is ready to make grits and

> eggs for breakfast ( one of Nicks favorites ) I have pork ready to

> make snitzels for lunch and a crock pot is simmering away with a

> beef stew in for supper, oh yea and theres bread raising to make

> home made bread rolls to go with the stew.

>

> I hope I can hold it together and not become a blubbering fool up

> there. is also speaking, just a short piece but he is so

> pumped up about it. He practices by moving the otterman in front

of

> the TV, climbing up with his piece of paper and making everyone

> watch him. It's too cute.

>

> Wish me luck.....

>

> hugs Helen and (9,systemic)

>

>

>

>

>

>

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--Thanks Patty,

I think the meals will be late today, everyones still sleeping!!!

and itd after 9am!!!

have a great sunday

hugs Helen and (9,systemic)

- In , ThreeMayEmeralds@... wrote:

>

> Hi Helen:

>

> Well, first, off congratulations for being asked to speak. They

couldn't

> have picked a better person.

>

> Secondly, what time should I be at your house today LOL. You

certainly are

> cooking up a storm. It all sounds delicious.

>

> Congrats to Nick too. That sounds way to cute with him

practicing on the

> ottoman with an audience. Good for him for taking it serious

enough to

> practice. I am sure he will do an awesome job. Please wish him

good luck for me.

>

> Good luck to you on Wednesday, I am sure you will do a wonderful

job at

> getting Nick's story across and telling more people about JRA.

I'll be thinking

> of you. 'Break a leg'.

>

> Take care.

> Patty

>

>

>

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Helen, you will do fine. As many have said speak from the heart, from

experiences and as a mom! No one is more out of their comfort zone than I am

when

it comes to public speaking. prior to my AF involvement you could not pay me

to speak. In school I took a lesser grade to avoid speaking. In college it

never failed I was sick or would choose a more difficult assignment to get out

of going to the front of the class. I would get so sick if I had

too.....However, when i found just how passionate I am about arthritis, finding

a cure and

helping people like your son or even myself I found speaking was not so

hard....best of luck and let us know how it goes!

Donna

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Good luck-to both you and Nick. And if there are leftovers, can you

send them my way?

Tracey & Madi :-)

>

> I am a nervous wreak... On Wednesday I will be speaking at the

> annual Commitment to a Cure breakfast that the Arthritis foundation

> puts on.

>

> I was asked back in June if I would be willing to share Nicks story

> at the breakfast and said yes. This is TOTALLY out of my comfort

> zone, but something i felt strongly about. Theres not a lot I can

do

> to fight this disease, but speaking out and raising awareness is

> something we can all do.

>

> At least my fmaily will eat well today because of my nervous

engery.

> I have been up since 4am. The sausage is ready to make grits and

> eggs for breakfast ( one of Nicks favorites ) I have pork ready to

> make snitzels for lunch and a crock pot is simmering away with a

> beef stew in for supper, oh yea and theres bread raising to make

> home made bread rolls to go with the stew.

>

> I hope I can hold it together and not become a blubbering fool up

> there. is also speaking, just a short piece but he is so

> pumped up about it. He practices by moving the otterman in front of

> the TV, climbing up with his piece of paper and making everyone

> watch him. It's too cute.

>

> Wish me luck.....

>

> hugs Helen and (9,systemic)

>

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Helen:

You and Nick are going to do awesome!!!

Way to go.

Beth (Hannah, 10, unspecified arthritis; asthma; gerd)

hburger64 <hburger64@...> wrote:

I am a nervous wreak... On Wednesday I will be speaking at the

annual Commitment to a Cure breakfast that the Arthritis foundation

puts on.

I was asked back in June if I would be willing to share Nicks story

at the breakfast and said yes. This is TOTALLY out of my comfort

zone, but something i felt strongly about. Theres not a lot I can do

to fight this disease, but speaking out and raising awareness is

something we can all do.

At least my fmaily will eat well today because of my nervous engery.

I have been up since 4am. The sausage is ready to make grits and

eggs for breakfast ( one of Nicks favorites ) I have pork ready to

make snitzels for lunch and a crock pot is simmering away with a

beef stew in for supper, oh yea and theres bread raising to make

home made bread rolls to go with the stew.

I hope I can hold it together and not become a blubbering fool up

there. is also speaking, just a short piece but he is so

pumped up about it. He practices by moving the otterman in front of

the TV, climbing up with his piece of paper and making everyone

watch him. It's too cute.

Wish me luck.....

hugs Helen and (9,systemic)

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HI Helen-

I'll be thinking of you on Wednesday. It's clear you have a way with words

and of course, Nick's story is so moving. I'm sure you'll both be a HUGE

hit!!! And you're right... it is so important.

By the way... I want to come over to your house on some Sunday... it sounds

like heaven with all that great home-cooked goodness!!!!

Best hopes-

Colleen

hburger64 <hburger64@...> wrote:

I am a nervous wreak... On Wednesday I will be speaking at the

annual Commitment to a Cure breakfast that the Arthritis foundation

puts on.

I was asked back in June if I would be willing to share Nicks story

at the breakfast and said yes. This is TOTALLY out of my comfort

zone, but something i felt strongly about. Theres not a lot I can do

to fight this disease, but speaking out and raising awareness is

something we can all do.

At least my fmaily will eat well today because of my nervous engery.

I have been up since 4am. The sausage is ready to make grits and

eggs for breakfast ( one of Nicks favorites ) I have pork ready to

make snitzels for lunch and a crock pot is simmering away with a

beef stew in for supper, oh yea and theres bread raising to make

home made bread rolls to go with the stew.

I hope I can hold it together and not become a blubbering fool up

there. is also speaking, just a short piece but he is so

pumped up about it. He practices by moving the otterman in front of

the TV, climbing up with his piece of paper and making everyone

watch him. It's too cute.

Wish me luck.....

hugs Helen and (9,systemic)

---------------------------------

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  • 3 years later...
Guest guest

I have had experience with the Woodridge office and the Aurora office.  The

Woodridge office is definitely nicer.  Make sure you know where to find it;

it's a little tucked away.  Good luck.

From: sunshinebeaches3@... <sunshinebeaches3@...>

Subject: wish me luck

ipaddunite

Date: Sunday, May 2, 2010, 7:57 PM

 

I'm making the call to social security for tomorrow to start the process of

receiving SSI, he turned 18 on 4/20. I spoke to someone I work with who went

through the process, he suggested I call and go there in person to speak to

them, he said the office here in Woodridge was very helpful and they were very

nice to work with.

I do appreciate any good vibes you can send our way :-)

Thanks, you have no idea how many e-mails I've printed off from some of you so I

can at least feel somewhat informed!

Have a great rest of the day,

H.

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